I had a seizure the other day as an adult and it was the scariest thing that's ever happened to me. I thought I had died and come back to life. My son was screaming at me in my face Mom! Mom! and crying. I couldn't make any words but I could start to say mom after a minute or so and it was weird and garbled. It was so terrifying. I'm waiting on UCSF to call me back for a neurology appointment and I am wondering what that looks like. Can anyone shed some light on what testing looks like? I'm scared. Or what videos to watch that won't scare me anymore.
My daughter has absence seizures, and you are not aware of them or at least you wouldn't have been able to know that your son was screaming at you in your face during one. Defo best to get it checked like you are though as could be something else. X
Heya! Idk if you managed to get an appointment, or whether or not it’s already happened- but just in case, I can talk about what it was like for me at least. Now, I assume that the test you’d be getting is an EEG, which is essentially where they use a device to measure your brain activity. Basically for me, they started by putting electrodes all over my head (btw-some places use an adhesive that likes to stay behind in your hair, so bring a hairbrush and prepare for a possible shower when you get back home). After that, they had me do some breathing exercises with a pinwheel for a bit. Then they shut off the lights and did the strobe test, which was basically slow strobe for 10 seconds, few seconds of rest, then a faster strobe for 10 more seconds, and that repeated for a few rounds, the strobe getting faster each time. When that was done, I was left alone to sleep. Now they do usually have a camera in the room to watch, so don’t worry too much about wanting to move and shift to a more comfortable position. But yeah, that’s basically it. Only thing I will say about this, is that an EEG can not tell you if the episode you’ve described here was a seizure or not, let alone the type. However, it can be used to help determine how likely a person is to have another episode. Another thing that’s common is a full neurology checkup. It’s nothing too stressful, and personally it feels very similar to a normal routine physical. If you have questions or concerns about anything going on, this will likely be the best time to ask. Other than that, if you aren’t typically prone to seizures, then I think it may be smart to ask about having a physical scan of your brain done. That’s just to rule out anything physical like bleeding, or a tumor, which can also cause seizures. Damn this is long, but I hope this could help you or someone else feel a little more prepared for these things. These things can definitely seem daunting otherwise (especially the EEG-). Anyway, I believe this comment has gotten long enough, lmao. Hope you have a lovely day!
I finally got an appointment but only for my MRI's. I haven't gotten in to see a neurologist still. I'm stuttering and shaky more. I'm still scared. I'm supposed to move to Oregon in a few weeks and hopefully I can see someone and get some answers.
@@pamelcakes04 I scribed for a neurosurgeon. He or she will likely order an EEG as purplecat mentioned above and do a physical exam to test for sensation and motor deficits. I'm guessing you got an MRI brain, correct? Depending on how serious your diagnosis may be, or if your seizures are elicited by strenous activity, he or she may advise further observation before moving. You won't really know for sure without someone interpreting your imaging and also a physical exam.
Oh it's ok ,did you feel you weren't alive for a moment like that phase/particular moment of ur life was lost or there was a gaping hole in it So then it's most probably a seizures especially if it was accompanied by some strange feeling in the beginning like clouding of vision and déja vu and ending with you forgetting everything you did that day and struggling very hard to remember where were you and what were you doing... It's ok, I know the feeling's horrible and yours may not be the same case But it's manageable with right treatment, rest and food
I myself have non epelectic seizures. And they are very frightening. I have my sezisures under control but it's had for other people to understand exactly what is going on...You just need to step back.And let the paramedics do there jobs.
My seizures started at 14. I'll never forget how it happened because it was so unusual, and it has never happened again in that way (I'm 38 now and still have essentially seizures of all kinds). If you need to talk, please reach out.
