Annual Angelman Clinic Appointment

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This is an overview of Griffin's annual Angelman Clinic appointment.
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Опубликовано:

19 окт 2023

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Комментарии : 47

@phillisob 8 месяцев назад

You can absolutely complain. It doesn't mean you're not grateful or that you don't love your kids. Being a special needs parent is incredibly difficult, and if you don't vent sometimes, you'll explode. I'm glad you've opened up about CTSD. You dont need to suffer in silence! Anyone with a brain can see you love your kids. ❤

@angelaruiz5323 9 месяцев назад

Griffin is such a handsome little man. That smile makes me smile. Wow that’s a lot in one day . I agree with you it’s too much medicine for a little boy. I feel overwhelmed just seeing your video. I can only imagine how you must feel . I’ve been there too , crying, lost , overwhelmed , scared and nervous of the outcome. You are a remarkable super mom.

@phillisob 8 месяцев назад

I'm so glad she's opened up a little about her chronic traumatic stress disorder (CTSD), because as much as she seems to keep it together, having even one child with special needs is genuinely anxiety-provoking on a daily basis, and no one should have to deal with that in silence. I haven't seen a video of theirs in a couple months, and Griffin has shocked me with his improvement!!!

@nancycoy9510 9 месяцев назад

Griffin is blessed to have two such loving & involved parents, you always do so much for all of your kids!!!

@alinamarquardt8266 8 месяцев назад

Hang in there, you are amazing!!❤ juggling all your kid's needs & wants, work& marriage of course you feel overwhelmed. You have this❤😊🙏

@Boomincap 9 месяцев назад

Griffin is so strong including that he has a disability❤. He is one of my favourites😊 including the rest of the family🎁

@Tabby116 9 месяцев назад

I just love Griffins smile ❤he’s so cute 🥰

@ArrowHeart15 9 месяцев назад

I have special needs as well. My disability is also genetic, it's called CHARGE syndrome. I love watching your family!

@jennifermiller8226 9 месяцев назад

Its so great to hear Lindy talk!

@albussnape2 9 месяцев назад

Thanks! It’s always so good to hear from you here, for those who don’t follow all the social media platforms. 👏💖

@carolmilligan5653 9 месяцев назад

I hope the plans for new treatments and meds etc all work out great to help Griffin. He is such a wee champ.

@crohniequeenab 9 месяцев назад

So happy they are so willing to help his quality of life and change things up to make him better. I hope it all works out. You guys are doing great.

@blo1314 9 месяцев назад

He looks like a little angel sitting back there waiting so patient 😌

@Theautisticenby 9 месяцев назад

Well I mean…he is an angel…no actually.

@suzybausch8587 9 месяцев назад

Fascinating glimpse into the clinic. Thanks for sharing!

@Meemagolding 9 месяцев назад

I’m so happy for Griffin!!! Emily I must say “ YOUR GORGEOUS “ SUPER FAMILY ❤

@AllAboutAddy 9 месяцев назад

Griffin is so strong ❤ I love yalls channel

@tonyac2416 9 месяцев назад

Praying that decisions made are those that make life better for all of you especially Griffin.

@AnnaMathiesen 8 месяцев назад

Ive tried calm, It worked well for just relaxing back pain as well!

@Tracie..... 9 месяцев назад

Dont say that its stupid that you are fearful or scared feeling what you feel is never stupid. Griffin is your precious son who faces so many challenges. Its normal where your kids are concerned

@charlottemiller961 9 месяцев назад

Griffin has such a sweet smile! You have a beautiful family!

@jennyann5405 9 месяцев назад

Thanks for sharing and for the update. :)

@carolynwalker9920 9 месяцев назад

It is always scary when changing meds and sometimes it gets worse before it gets better but it seems like you have a great medical team that wants the best for griffin. Lots of love and hugs ❤❤

@nicoalcock3470 9 месяцев назад

You are wonderful

@ven_425 9 месяцев назад

I love your videos ❤

@Tabby116 9 месяцев назад

I love your family so much

@nicoalcock3470 9 месяцев назад

Griffin is so cute

@lisanneschilperoort8723 9 месяцев назад

I love your videos keep going ❤❤

@Cutesiecaiboii 9 месяцев назад

What i have found working with Angel kiddos,, when an AAC gets introduced and for i’d say the first 6 months to a year, they tend to gain comfortability in their new device and will REFUSE words. Once they realize the device is more of a crutch and not their only form of communication, their words come back!! Its frustrating and it hurts my heart to see a mom/dad get upset over it. Just keep working in ABA on using his device for mands and work on it in speech, he’ll do just fine ❤

@rayleebergman2257 7 месяцев назад

Your videos asome. You are so tuff and it is hard being a special needs parent and having yo figure out what your kids need when they can not talk. 😢Keep up the great work 😂

@SkylaMcNaughton-iz5wy 9 месяцев назад

❤❤❤❤❤❤❤❤❤❤❤ I love I love your videos

@ASLtoMusic 9 месяцев назад

My client before my last teen court client had FAS. I'm on the autism spectrum, dyslexic, and I'm hard of hearing, and I also have ADHD, OCD, and SPD. So i know what it is like on both sides of the fince.

@michellesmith2040 9 месяцев назад

I don't want to be a troll but I am wondering if he has teeth issues again and since he is non verbal he can't say that his mouth hurts. I remember a couple of years ago that when he was stopping eating and was having more behavioral problems that he had a bad tooth just a thought

@amandakamar252 9 месяцев назад

Why don't you ask for Griffin to be on a feeding tube? I had one when I was a baby and they gave me another one when I had my second bowel surgery. The first one would be for Griffin because it is for kids.

@paulineobrien4524 9 месяцев назад

@Tabby116 9 месяцев назад

I also have special needs I have fetal alcohol syndrome

@ASLtoMusic 9 месяцев назад

My client before my last teen court client also had FAS. I'm on the autism spectrum, dyslexic, and I'm hard of hearing, and I also have ADHD, OCD, and SPD.

@Tnokbejy 9 месяцев назад

First

@rhondahayes93 9 месяцев назад

i have adhd and autisum

@Tnokbejy 9 месяцев назад

May God bless you

@user-ci2xd8pq2k 9 месяцев назад

hi can you dress up your kid as harry potter for helloween and vlog it happy helloween 😛

@user-hm6vt9kz1o 3 месяца назад

А если он может ходить зачем ему коляска инвалидная?

@catiehays3361 9 месяцев назад

Use your words with Griffin. It's not okay 4 him 2 hit anyone & you don't say anything. Get on his level, cha ge your tone & tell him No, we don't hit. Do it everytime & he'll eventually catch on especially if there's consequences..