SECOND DAY IN THE HOSPITAL 

My disabled son drooled profusely too as a small child. It gave him rashes and would cause him to cough and choke at times, there was so much saliva. We used scopolamine patches which are meant for motion sickness but the side effect is dry mouth! So every 3 days a new patch behind the ear and it was very effective. At age 4 we decided that because the drooling was indefinite, he needed surgery. Two salivary glands were removed and two others redirected. He has never required a bib since and he’s 32 now 😊

He's in such good spirits for not being able to eat normally. That's a plus at least. Ask them about giving him Pediasure if he still won't eat solid food. And I should ask about getting my arm wrapped up like that the next time I'm in the hospital. I always need to get my IV redone 3 or 4 times because it irritates me so much. Maybe if they wrapped it up I'd stop fussing with it. And this is coming from a 41-year-old woman. lol

He has such a beautiful smile. Bless him, Almighty God, with good health, tons of giggles, endless joy, and Your holy angels. In Jesus’ Name, Amen🙏🏻🙏🏻🙏🏻

I have spina bifida. That happened with me when I was little where everyone was saying different things and my parents ended up having to have a meeting with everyone to make sure everyone was on the same page. Don’t be afraid to do that.

Praying for you and Will & the kids!

Poor griffin prayers Emily 😢

Continuing to lift you, Griffin and your family up in prayer. Having any family in the hospital is exhausting but you and Will are doing the right thing / Hugs

Griffen is such a sweet heart. Hoping he gets better soon. By the way you are one great mom. I don't blame you for feeling worried and frustrated. Glad you had a better team today thats helping.

Your such a good momma ❤️

My little girl had severe pediatric obstructed sleep apnea and it took 8 months from our first appointment to surgery day. (6 months after the sleep study) It's such a frustrating process but omg what a difference once those tonsils and adenoids were out its like a whole new kid. Sending lots of good thoughts your way!

The best mom and dad ever!! ❤️

Sounds like answers are slowly, but finally coming! ♥️♥️

Keep fighting don't give up

Praying for you and your little guy!

I’m so pleased the staff had damn good beating and changed tune quickly! So pleased his tonsils are down ! Let’s hope they stay down! ☺️👏🏾👏🏾👏🏾👍🏾🙏🏾💪🏾🙌🏾🇬🇧❤️

Praying for you and your sweet boy! Just hang in there! 💞

So I've had to do 3 different swallow studies- 1 with food, 1 with only liquid, and 1 with an ng tube that measures pressure and how slowly the esophagus empties. That was the only study that showed something- mine empties slowly and causes me to choke/aspirate. I need muscle relaxants to eat/drink. It took forever to diagnose. I don't have tonsils- removal made no difference for me. You've got this!

Griffen is such a happy lil guy,his smile and excitement is the sweetest 💙

I am praying so so so so so so so so so so so so hard for him and a 3 year old little girl on tick tock

Boy do I relate with all of this. At the hospital with my 2.5 year old who has mild cp and autism. He randomly started screaming and refusing to put any weight on his leg a few days ago. He’s typically so active and doesn’t feel pain because of cp so the fact that he won’t move and is screaming in pain is heartbreaking. Doctors office looked at him for five seconds and said he’s probably fine. Just wait a few days. Like ugh! We know our kids. How am I supposed to wait days of him screaming in pain without a known cause!! Sorry. Rant over. Praying for you guys, but it’s nice to to know I’m not the only momma constantly having to fight for my boy.

Hey mom 👋 😊 bill all write Calm down it be happysome Take care of him Love GAynn God bless yàll❤❤

Wonderful Vlog Emily....stay strong Momma!! To Will n kiddos I hope you are all doing ok! My ❤ it's with you all....everyday I think about you! ❤ From Minnesota P.s. are you going to have a PO Box for your Fans like in New York?

This may, or may not be of any help for you, but I just wanted to put it out there. I had a series of botox injections for TMJ. Not long after my second set of injections, I started having problems swallowing. I would choke if I drank anything. It seemed that I could swallow soft things that were thick...like potatoes or a smoothie. We had to start using a thickening agent for all of my drinks. Once the botox wore off, the issues stopped. Just something to think about.

Your son has the same disability that I have seizures

I’m sorry that you’re going through all of this! We’ve had our 6 year old dealing with a rare birth defect that has now caused her trauma around medical procedures, so she has to be sedated for everything! So getting anything done to help her takes forever and I feel like the doctors all contradict each other!! I feel your pain and frustration. Sending love!

Sending prayers for all of you 🙏🏻 stay strong momma ❤️

I had my tonsils removed when I was three and they put me in this IV box where they put like ivy on your arm but you have to feel pain and and they put a mask on you before you go to sleep and they give you painkillers

Griffin and your family are in my prayers!

They should running more tests on him.Also they over look things on him.

Hi hun yeah getting there but I am so pleased to hear you are well welcome to the shop today and commented on

🙏 Hang in there🙏

He is so cute is smile is everything ❤

Thank You so much for the updates on the whole family. Keeping you in my prayers.

Sending prayers for Griffin and family

I did that swallow study and they said same thing about me . That nothing was wrong. But I still kept choking. So they did body cat scan and found I had a whole right at opening where food passes to the stomach and it was getting caught there and causing all my problems. I had to live with choking on everything meal for almost 13 years before they finally listened and found it. They still didn’t believe me until they followed my weight for a week and within about eight days I lost almost forty pounds. Then they did cat scan and found it. Need surgery to fix it still. But I had to start drinking whole chocolate milk about half gallon a day to put weight on. I’m praying your precious little boy don’t have this. Praying everything turns for the better from today on out for you.

You must be frazzled Emily - hospital atmospheres are so draining - information overload etc....but your doing such a great job for Griffin - you WILL get to the solution eventually - and he's such a sweet natured boy. Love from Scotland x

A777

Much love and prayers for Griffin! Hope you receive answers soon. 💕🙏💕🙏💕😘

Are your in-laws helping out with your other kids? It’s a lot for you and Will to carry on your shoulders.❤️🙏

Am so glad things seem to be getting better. Take care of yourself. 💕 🙏🙋

Poor Griffen he is so brave ❤😢

Ugh I know that is so rough...you are so strong...my whole childhood I use to get tonsillitis and bronchitis atleast 10 times a year and I would always get them at the same time it was miserable...I'm praying for you all

Sending my love xx

Hope he gets better

Griffin is so cute! So glad his tonsils have gotten smaller.

Hope y'all are back home by now with some good answers to how to help Griffin. You and Will are such a good team, but I wish y'all had more support at home. Will having to take off work is surely a hardship. Since y'all became friends with The Landing Crew I've been praying their subscribers would discover your channel. It would be life changing if Will could stay home the way Lonnie is able to. Hang in there! Hugs from West Texas!

Praying for griffin

The Till

Are you still friends with our landing crew

Praying for Griffen🙏🙏🙏

I think (I have a medical background) that you need to find a doctor who will take Griffin's tonsils out. It certainly seems like his tonsils to me & this will keep happening periodically until they're removed. Griffin also needs the botox for his own dignity & while I don't believe the botox had anything to do with it, if the doctors don't want him to have it because of this, he needs his tonsils out for that too.

yay for the swallowing study, this will help rule out neuro-muscular issues that can affect swallowing/choking issues. They have to rule this out, I know the unknown is scarey and I'm sorry for the upset. Hopefully they'll recommend a level of diet that he can take (as in types of puree'd food etc... level 1, 2, 3, or 4 level diets for swallowing issues. I know you though it was just a tonsil issue, but feeding studies are essential for kids who have been diagnosed with Angelman and similar musco-skeletal disabilities. You'd hate to have his tonsils removed if there was something more serious going on.

You’re doing a great job 👍 Don’t give up mothers intuition is always accurate ., You’re a great mom 💕 I’m Praying for you Griffin and your family 🙏

Praying for all of you ,I know this is so hard.Keep fighting for him,you know him better than any body.Love and prayers.💕🙏🙏🙏

Hang in there Momma you are sooo strong ! Keep fighting for Griffin don’t give up .

I'm happy you are getting answers and the doctors "get it" finally. You and Will are great and Griffin is such a cutie. I love his smile. Hang in there, I'm always praying for your family.

You really went through so much!!!No wonder you had struggles.Soo glad you got through it and are out the other side!❤️❤️❤️❤️❤️❤️❤️❤️

Next Wednesday is my birthday

Bless his heart and yours and Will’s. Praying for precious Griffin.

I know it is hard for me for getting my tonsils out sometimes, It sounds like my words can mix up and that is stuttering and that makes my words backwards. So yeah, I am still healthy and lose weight a lot. Thanks Emily, your are still awesome and strong, and have a great day.

Great to hear Griffin fels a little bit better! FIngers crossed you find out what exactly it is tomorrow!!

You have a very good view from your sons hosptial room I love it I think your children have great parents

Good luck little man.......so much for such a little man to endure. 🙏

Griffin is so cute. You hang in the Mama. You have to be his voice and you are doing a great job!

Your doing a great job but you already know that ! ❤️

Bless you and your amazing family 🙏🙏

I used to drool a lot thanks to cerebral palsy

Will Griffin leave his hands off an NG tube??? How did the food go that you just spoke about? fries?????? I'm glad the doctors and staff finally got through to you, you seem a bit more reserved about the whole thing - a bit. Hang in there Em and Will. I hope you have some help at home also. You are both sooooooo wonderful! HUGS (and prayers) for all. P.S. how can they do a swallow study when they don't give him regular food, of course it'll be normal when he has squooshy food! What did they feed him to make the swallow study??

Prayers for you. 🙏🙏🙏

Love that smile 😊

Prayers for Griffin

🙏💜🙏💜🙏💜🙏

Just noticed your lisp today...

Ask for a patient advocate and don't take no for an answer