I’m from the uk and even with the help packets and meetings I had, I wasn’t told gluten free oats might be an issue for some coeliacs. I buy a big tub of gluten free oats to make all sorts of stuff with, porridge being the main one, soon after my diagnosis. I had to throw it away after my first bowl, till then I don’t think I have ever been in so much pain and mess at the same time in my life. A few months later I decide to try again with a different recipe and see if the first time was a fluke, a bad batch perhaps or something. It was not, and the pain was much much worse, the mess was also far worse, when I was done I literally blew out chunks of oats out of my nose.
Nice comprehensive vid! I've always been curious as why the UK is so relaxed about oats, if 1 in 5 people might react to them. The only way to really see how the body is reacting is with a biopsy so I do think anyone who is coeliac and introduces oats should have a endoscopy to fully assess the situation. However i'm sure this would not be entertained on the NHS. Its quite concerning to think that there is probably a good number of coeliacs in the UK who are unaware of the oat 'situation' and consume them in GF labelled products and end up having damaged villi as a result. :(
Great video. I always thought oats were naturally gluten free. I wasn't aware, until I purchased a gluten free bag of oatmeal in my local Morrisons supermarket. ❤
Thank you for a very informative video. I love oats. I have a big jar of oats in my kitchen left over from before I went gluten-free that I keep eyeing up...
I LOVE oatmeal. I'm glad the U.S. allows celiacs to eat oats! I asked my doctor if I can eat oats, and he said, "Oats are fine." He didn't even mention that I should eat oats that are labeled gluten free and that it's possible for some people with celiac to react to the protein in oats.
Yes you can develop intolerances at any time. I had NO signs or symptoms of coeliac disease and no family history but then wham.. developed in in my late 30’s. Now can’t have even the smallest crumb of contamination.
I just had gluten free certified oats with just water...it felt terrible....stomachache etc...couldn't believe it...next morning one more time...same story...
Thank you very much. I had/still have refractory celiac disease. I did try to eat oats, rice, corn and teff. With teff and oats i had the worse type of reaction. I know that I was diagnosed with eosinophilia back then and graminacee family Is my super high trigger. I have 0 IgE respond to weath, rice, soya but as we all know cross reactivity could be the reason since I have been GF free since 2018. I really wanted to take the Cyrex Lab test but is not available here in Europe. I have also noticed that even degluninated wheat starch are the worse for me, tried some few months ago. May i ask you which Blood test did you take? IgE, IgA, deaminated gliadin IgA IgG ? ❤❤❤
Hei Thank you for the great video! I'm from Switzerland where oats are currently not considered gluten free. However, there is currently effort being put in to have that changed. Unfortunately I can't say that I'm looking forward to that at all. On the occadions I have tried oats, I always started showing strong symptoms. I've never had my blood checked after eating oats, so I'm not totally sure whether my immune system actually reacts badly to them or if it's just that my digestive system is not used to processing them. Either way I am afraid that if oats get re-classified as gluten free, that will make it a lot harder to avoid them.
I’m celiac , I once tried rice oats, they were horrible. I miss oats, as in porridge, but there not worth the pain. I had a really bad reaction to oats once. If I eat gluten, or get accidentally glutened, I have diarrhoea, pain all over, fatigue so bad I can barely put one foot in front of the other, brain fog, a gluten attack can put me away for days. I was 64 when diagnosed with celiac disease 🤷🏼♀️ so definitely no oats for me. I live in Australia 🇦🇺
Wendy, you might want to look into Honest to Goodness (NSW brand)‘s “Wheat Free Oats”. They are tested for wheat, barley, and rye so they don’t have detectable gluten, but they can’t legally say “gluten free” due to Australia’s stance on avenin. The oats we can get at Woolies and Coles are probably contaminated.
