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As a mom with an autistic son of 24 yrs, it seems probably that your son is uncomfortable with too much sensory input around him. Many people speaking, bright lights, the new smell of the bed, etc. Also, if he's accustomed to a routine, sudden changes also can affect him. A quiet, dim lit, peaceful bedtime routine might help. God bless your beautiful family. Love how the siblings help out.💓
I really hope they see this and consider really trying it. I don’t have an autistic child, but I am non neurotypical myself and have two nephews on the spectrum. I really think you’re right.
❤BEAUTIFUL ❤. The Most Involved Parenting and Family Routines Are So Important With Every Child . Consistency. Respect for Each Other's Privacy & Property . Respect for One Another . Loving Kindness . Light Hearted Voices . Lifting Your voices to express joy ,love ,peace and harmony is just like a song to children 🎼. God bless All of you . These children were chosen just for you to nurture . Each will contribute Wondrous & Miraculously to Our World by Being A Light For Others To Follow 🕯️. Be Proud . Encourage One Another . 💫.
God bless this whole family especially the siblings who help their parents and the parents for being a great example of what love between parents and their children should always be like. Blessings to this family!!
I love when parents go the extra-extra mile for their kids who have individual needs. I did the same and do not regret it. It actually gives me happy memories as it will you.
@@7Aheadfamily Wonderful that you have done information sharing. To bring others in means more ideas and support. More can be done, we have to find new protocols. Not drugs. Slow things down without using medication. Exoskeleton, Visual Reality glasses, braces, weighted shoes, light signals. Autism should be addressed with visual cues. So should walking for mobility impaired people. Wear a belt, it sends a light impulse when we've over extended and a fall could result. Many of us have seen parents of special needs kids. Late life, the exhaustion shows. It’s hard hard work. So far, we’re waiting, we're talking to doctors, we’re talking to each other in support groups. Answers are to be found in information sharing, which is what you’re doing here. Simple solutions can be close at hand. British parents had tried everything. Their daughter was petrified of water. After trying everything, they got a lead for a Maine Coon cat. These gentle giant cats love water. Cat and daughter were besties from the start.
I don't think the small little acts of service that our older children do is toxic. They want to help and jump right in and start helping because they sincerely care for their younger siblings, not because we are demanding it from them, I hope that makes sense. We could easily expect too much of them, but we really don't. They have their own rooms and have their own lessons, interests. Mark does Piano, runs, and is a little chef, and Benson does parkour, twice a week and would play Minecraft on his Nintendo switch all day if we let him. He was some amazing creations in there and builds amazing lego creations. and Marie takes Piano lessons, and tap lessons ( i teach tap lessons from my garage for a little extra money) and we go on kid dates with them individually all the time, (monthly) the reason I share this is to help illustrate that they have their individual lives, too we don't treat them as if their purpose in life is to just take care of the younger ones. We don't have it ALL figured out, we still are learning, but we are getting some great parenting advice from youtube comments, (that last bit was meant to be sarcastic, but in all honesty someone pointed out a place on line where we could buy better Pajamas for the boys, and I am ordering some right now. 😄
@@7Aheadfamilyignore ignorant people. Families help other family members, it's what we do. Only people that are sad, lonely and pathetic don't know that. Unapologetically ignorant people like Lexi will never understand a loving family - they are broken beyond repair usually.
Hopefully no one is broken beyond repair. We should try to avoid being judgmental of others we barely know. Whether that is someone who makes RU-vid videos or someone who made one comment on one. ❤️😊❤️
Hi. What an amazing bed. I would have loved one of these for our autistic son when he was a toddler. We had many a sleeple ss night because he would not stay in bed and we would be worried he would get up once we were asleep. A stair gate kept him in his room but I still worried about what he was getting up to in there. He was diagnosed at 2yrs old and was non verbal until around 4 when he was given more speech and language therapy because he started nursery and then school. He is now 24yrs old and has surpassed all the mile stones that when diagnosed was taken away from us. You all as a family are doing a wonderful job raising two boys with autism. Just keep doing what your doing and pass milestone after milestone as a loving family that you are. God bless you all. Xxxx
Wow. This made me tear up. Thank you so much. ❤️ it is difficult to make unique divisions sometimes for Autistic kids cause their needs are so different sometimes. But we appreciate your kind words. How old is your son now? How is he doing?
NOT a good job, but they CAN if they wake up & learn how to properly feed him! The bed may be awesome, but should have been set up outside for a week to get rid of toxic fumes! It's probably from china & if, again, you do your homework, things shipped from overseas are treated/sprayed with horrendous toxic chemicals to prevent mold/rat & other infestations.
@@7Aheadfamily I have an adult son on the spectrum. Your sons response is pretty normal and I instantly recognized his posture of trying to process what this new thing is in his room and what does it have to do with him. It does take awhile for them to get aquatinted to new things as you well know. I didn't know about safety beds when our son was younger and we could have benefitted from it as our son was and still is to some degree a wanderer. We lost our son one time when he was about 5 years old. I was using the bathroom and walked out and the door was open and he was gone. We had to call 911 and I'll never forget that frantic feeling. One of our neighbors found him in an open lot and me and/or my husband slept in the living room for a few years after that so we could catch him quicker if he walked out again. (We put bells and other noisy things on the door so we could hear if it was being opened.) I still do at times to this day even though he is a lot better at staying put. 😆😆 You are awesome parents to very beautiful children. All of them Gods gifts to us. 🤗🤗
One of my grandsons has autism and is mute. They diagnosed him via a blood sample and when they told my daughter he has genetic autism she laughed and asked if that was why they did the blood test, because if it was she could have told them it's genetic. One of her brothers also has it. Exactly the same. My daughter and grandson are learning sign language, much to the delight of one of their neighbours who's son is deaf. Good luck with everything. Best wishes from England.
I love that they are learning sign language. I really tried to get Ezra to do some signs. His brain just doesn’t work that way. And know quite a bit of sign language, and have some deaf friends. I think the world would be a better place if more people knew sign language. :-) thank you for sharing. I have a cousin and a nephew who are Autistic as well.-Holly
Depending upon which geneticist you talk to, there are as many as 23 different genes that can cause/trigger autism. I agree with the researchers who think autism is a catch all for a host of related disorders. It can present so differently, and what helps one can be a disaster for another.
Our granddaughter is autistic and loves rocking and swinging. So when we moved and purchased new furniture, we took her shopping with us and got her her own rocking recliner. She doesn’t ever recline, but sits and rock a lot.
It is such a benefit for the whole family caring for the special needs of the younger boys. A really special family an example to show that new parents don’t need to be afraid if their children have special needs. 😊
oh boy oh boy... so many blessings to see... the kindness of the bigger children to the younger ones... wonderful mum n dad... Our Lord to bless you, guide you, to hold you tight.
GREAT PARENTS~!!! How wonderful that you parents have surrounded ALL your kids with love... so they are included in assisting their siblings with so much love and support.
I have 3 autistic grown up sons...the best way to help them cope is to have 1. A quiet household 2. Routine 3. Dim lights at night all around the house 3. Meditation misic playing 5. Special diet ( no dairy and no gluten) 6. Never shout at them or hit them...always ask for eye contact and explain to them gently using empathy and making them see how another would feel in regards to bad behaviour 7. Let them be....if they have obsessions like lining up toys let them do it 8. Ecourage them by praising them 9. No closed in spaces ( they hate restriction it damages them) 10. No sensory lights...they can trigger them...especially if they play computer games( should be time limited as it triggers something in their brains and makes them flip out My sons are now 19, 21 and 23...all at college and working part time! Why and how??? Because they have to have their rigidity flexed so that they can cope in the real world...too many parents hear autism and think "limited!" And dont push to help the child adjust in social settings... Autism is a gift...find their gift and let them pursue their dreams ... Much love ❤
I couldn't do what you do! To have children that don't settle down and cry a lot it was hard for me to watch the Video. It surely is a real blessing to have a husband who is involved with the children. His love for them is evident and your children know it too!
I worked in a hospital that had patients with brain injuries. A few of them required beds like this for their own safety. They were great, allowing mobility and freedom of movement during a time when mobility was more advanced than judgement.
Keep on keeping on! Your tenacity is admirable! Your outlook on life with 2 autistic children should be in a book, ,maybe in 5 or 10 years when your trials and errors have been practiced. You have blessed many viewers including this old lady! I am so happy to see your transparency dealing with your two, very special autistic children. To be so encouraging not only with the two boys struggling to understand their special world, but the hands on love, patience, acceptance, and eagerness of their older siblings is just righteous beauty! JUST SO VERY REFRESHING, I COMMEND YOUR ENTIRE FAMILY!!
We have been posting every day lately. usually shorts, but about 2 long form every week. We'll do some educational videos of Autism with examples of our kids, and also add in some vlogs too. have you had a chance to take a look at the channel? We have about 300 videos already. (but our older ones are about how we went to all the National Parks in an RV) So they may not be relavant, but they are of our family and we always include our 2 Autistic kids in our travels. ❤️
I think this would benefit Ezra massively. I’m very exited for the whole family. Especially Ezra. I would totally sleep in that bed. You guys are awesome
I’d so sleep in a bed like that but one that’s like black or something since I like how the color looks on appliances only hard thing is my room is pretty little even with my sister and I being in that room so it’d have to be one like that but like a twin size or something but I love how the zipper part of it gives camping energy
@@Jocelyn_Games_And_More7216 Every U.S. National Park We've been to Ranked (Contiguous States) ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-UisUYvK_vfc.html
Seeing the way you put your sons pj's on took me back. My son who also has autism (20 now) used to smear his poop for years. He was doubly incontinent till 14 so this was always a massive issue for us. We used to put his onsies on backwards too but then he found out how to get them off. We had to buy special ones made especially to prevent him taking his pad off. But with special needs, comes special prices. So glad we don't have this issue anymore. Love your sons reaction to his bed. His excitement over such a big change is really nice to see. We also had a special bed and it gave us peace of mind knowing he was safe so I can totally empathise with you guys.
Thank you so much for sharing. Because of this video we put up we found out about a company that makes sleep-wear for older kids that they can’t take off, I am so happy to find it. I was thinking that I would have to try my hand at sewing something big for him. Lol! You guys know so much more than us, since your child is older. We should be asking your advice on stuff. ❤️
I ❤️ the Support, Patience and ❤️ that your Family especially your kids, his siblings displayed on this video their actions showed how well their being raised…😊🙃
Thank you so much! It's so nice to have help from the whole family. I am blessed to have a wonderful husband who is in the trenches with me and older kids who step up all the time. thank you for your kind words! -Holly
My son is 38 now. He weighed 1 lb 5 oz when he was born. He is autisic and was legally blind until he got fast growing cataracts about 10 yrs ago. He had them removed but they grew back. Now he is completely blind. Anyway, since before he could even walk, he loved to watch Jeopardy, Wheel of Fortune, and Price is Right. He also played with word flash cards. Anything with words was his "thing". He still loves these shows today and repeats some of the words..basically the only time he talks with a few exceptions. I guess he can remember what the hosts look like. 😊 It makes me so sad that he can't see anymore and is hard for me to deal with.
I’m so sorry to hear your son has lost his eyesight. 😢 Sending sending prayers and hugs your way ❤️. Let us know if there’s anything we can do to help.
@@lucyllewellyn2850 quite agree, but how many unsung heroes are out there caring full time for handicapped children. I’ve spent most of my life nursing handicapped children who go on to becoming handicapped adults. One person I helped was a 90 year old lady who was still the carer for her 70 year old child who was totally autistic and sat in a pushchair all day nursing her doll. Love is unconditional but for some life is that bit harder and life means life.
You have a very patient family. It must be hard for the other kids to have everything be about Ezra. I hope they have their time to be the center of the family attention. Prayers for you all.
Yes, you bring up a good point. We do have to spend more time with Ezra’ and Simon than with the other kids. But one thing we do that helps the situation, is planning kid nights. A kid night is when one child gets to go on a date with one parent. The child gets to pick what to do and they have the whole evening Together. We take turns having each child have their own kid night. :-) every month. This works out and helps the kids not feel ignored.
We’ve been doing “kid nights” ever since they were really small. And now that our older ones are teenagers they still want their kids might. I thought they’d feel too cool and our grow them but not yet!
Amazing Parents. Loving, supportive siblings. I hope Ezra becomes comfortable with his new bed, soon. We all know that kids, in general, don’t like change, and usually more so with Special Needs kids. Beautiful family.
This is so like one of my grandsons when he was little. He’s supposed to be high functioning. Unfortunately at now 18 years old nothing has helped him with his violent outbursts. His father’s not much help and neither are his older brothers as by now have become resentful for all the restrictions placed on them because everything has been a trigger all these years. He’s now taller than my daughter and too strong for her to handle, especially when he yanks her hair off her head as she’s helping him in the bathroom. Wishing all the parents of autistic kids in the world, infinite patience and strength. ♥️🙏🏻🙏🏻🙏🏻
That sounds incredibly difficult. Thank you for sharing. Sometimes medicine can help calm the nerves and aggression, but it’s different for each person. Hope things can get better.
@@linato1855 been a caregiver in group homes when kids age out and their parents just aren't able to handle them anymore. Many become violent, even on meds, and parents just aren't able to take getting beaten up. I get it...
Change is scary. 70+ years autistic, diagnosed at 17, they have learned so much in these decades. I learned, with little help, how to pass as neurotypical-ish. But the underlying fears never have changed, or lessened. I'm just more practiced at hiding them.
as an autistic myself, diagnosed in 2014, i agree, i hate change, it usually if not always is bad or scary, and God knows we have had a lot of change and i cant say its good(ill spare the details, i dont think anyone wants to read them), i would wonder if something soft and cuddly like a teddy bear would help him, it helps me.
Change can be scary. ❤️ We have tried to give him stuffed bears before, he would mostly just throw them, but every once in a while he would hold them. ❤️ Thank you for the suggestion! 😊😊😊
Same here, but diagnosed at age 66, way too late to get help since I managed with great effort to imitate the neurotypical enough to get through life without total rejection. As I watch this I find all the commotion and focus on the new bed by all the family members with people coming and going and talking and shouting to be way overwhelming to me and, obviously, to the boy covering his ears and holding his head. And then to just force him, both mentally and physically, makes no sense at all. This should have been done way more quietly and drawn out over many days for a smoother transition. Big brother is a rare gem indeed!
You are right. Ezra’s would thrive in a more calm and predictable environment. It’s pretty difficult to create the optimal environment for my two younger autistic children. But we can put more effort into it. Thank you for the reminder.
Mom Dad, you are doing an Amazing job with All your Children. You involve all the older children help with the figuring out what might help reach what your Sons trying to communicate. AMAZING JOB lots of Love , and understanding in this Family!!
20 yrs ago I worked for CPS. I had a case where a child had severe autism. He would get up in the night & turn the stove on & do other dangerous things. His family had turned his bedroom into a fortress, nails windows shut & looking the door. I got the case because he had gotten out of the house & was found wandering the streets. So glad that they have developed these safety beds to protect children. Some people don't understand the problem with 24 hour supervision.
I would think if medical insurance pays for a care taker for various diagnosis, a night care taker should be available to families who have children who would be dangerous to themselves without supervision. Like a night nanny ,to sit with the kids at night ,they could listen to podcasts with ear buds or something.
@@blazefairchild465 Sometimes a "safe haven bed" where the child can't leave by themselves and they are trained to have certain times in there helps the child and the caretakers very much. The child knows it can relax there, the caretakers can sleep also in a separate room. With one ear open as parents with children do, but for themselves and without second thoughts. Helps significantly. You only need a nightwatch besides someone if there are conditions like f.ex. epilepsy, self-harm or something like uncontrollable bloodsugarlevels, if there's not another solution available. And it is nice to have peace of mind and not having another person in the household at all times. So props to safe bed developers!
I'm 60 now, and never diagnosed, but I know I would definitely not like sleeping in something that blocked my ability to see out. Definitely not in a room with no light source, I insisted on a night light. My mom was very insensitive so she didn't understand. I think I'm more along the lines of empathic sensitivity, but from what I'm learning thanks to RU-vid, I have some autistic traits as well. Then again, many of the same issues I have seem to apply to both, such as not handling change well among other things. I always knew I was different & couldn't handle as much as other people, but learned to mask & spent a lot of time alone to recuperate. Sensory overload causes me to seem "slow" to other people because I can't process when I'm overloaded. People are only now starting to understand that some of us just can't "toughen up." Sensory overload causes me to focus on anything to shut out what's going on around me, such as the floor, or looking out a window at a tree. There's so much more we need to learn. You're doing a great job with your children, don't get me wrong. I just wanted to maybe give you some ideas of the way thought processes can be so different. I know I wouldn't have done well in a large family, too much going on causes me to withdraw and try to block out what's going on around me because it's more stressful to me compared to what most people consider a normal day. The stress I'm talking about is also that fight or flight type of physical reaction, cortisol being the bodies natural adrenaline, to environment even though other people don't think there's a reason for someone to react with a fear response. Just being different is stressful, actually, so I resort to being alone where my body can calm down, because being around people requires masking. I hope this helps, I realize there's different levels of autism, and what I've experienced may not be what another experiences. I know textures were very important to me, some soothing, others not, such as clothing, blankets and pillows, just to name a few. Light was another. My mom couldn't understand why I couldn't go to sleep for the night when it was still daylight outside as it is in the summer, and needed blackout curtains, but didn't want my bedroom completely dark. May sound like a crazy thing to be sensitive about, but I'm pretty sure there's been some research done on the sun and daylights effect on sleep. I'll say again I can see you're doing your best to help those little ones, and that's a wonderful way to be! I wish my mom had tried as much instead of feeling like I was just wanting attention, or being picky. I don't think she realized how that affected my self esteem.
I’m self-diagnosed autistic and 50 years old and this bed seems super cool to me. I didn’t even know such a thing existed, but I think I would love it even now! It’s hard to say from just the video, but I think he was most likely just overwhelmed by the whole thing - that’s a lot of change all at once and over the course of a day and he seemed like he might have already been spent and had no reserves left for it at the end of his day. I do love how supportive your whole family seems to be with your two autistic sons - that’s really amazing and I love your other kids for it. It’s a pretty big deal. For me, I was never non-verbal and my mom said I was pretty easy to raise, but having been me all my life, I do know that I’ve always struggled in various ways that I was just really good at masking (in part because my issues weren’t so severe as to make masking impossible). But I can say with certainty that once I’ve reached my limit, I have no options left and I need to be able to recover before I can deal effectively with anything else again. If I keep pushing myself past my end point, I’m going to wind up in either a meltdown condition which is extremely embarrassing and depressing to go through, or if I’m very “lucky”, I’ll wind up dealing with burnout, which will last much longer and is a lot harder to get through and come back out of, but it’s less visible to other people, and so it’s less embarrassing and less stressful in that way. I have to be very careful about managing my internal resources, which is where all the stereotypical autistic traits start coming into play - special interests, hyperfocus, stimming, sensory issues, sensitivity, etc. I need to be able to make use of all of those that I’m able to leverage in order to cut out all the things that are irritating me or stressing me out and recharge and recover so that I have something left to work with for dealing with the challenges a neurotypical world throws at me. I’m not sure how much this might help with Ezra given his age and being non-verbal compared to me, because every autistic person is different and experiences and handles things a bit differently, but it might have helped in this situation if you’d been able to prepare him for these changes more in advance and over a longer period of time. For me, things that stress me out are easier to deal with if I know to expect them, have some idea what to expect (the more details the better, to make sure that I understand what’s coming vs. being taken by surprise - while understanding that I may still be taken by surprise if I misunderstood something), because then I can start managing my resources in advance and have an easier time handling the changes when they actually come. But it’s probably also useful to let him know clearly if there are still some unknowns, so that he can prepare for those as well (like, “we don’t know exactly when it will come” or “we’re not sure how long it’ll take to set it up and get it ready”, or in this case maybe even “when it comes, it might have some unusual smells that will go away over a few days or a few weeks”). That way, even if the changes are still too much to handle, they at least won’t take him quite as much by surprise, and over time as he gets older, he’ll be able to learn better how to prepare himself in advance and be a bit less overwhelmed by things. Experience helps a lot, especially when you know how and where to apply that experience.
Thank you so much for sharing this. ❤️ I think you hit the nail on the head. 😊 it did just take some time for him to get used to it, and that her preparation might have helped, although I don’t think he would’ve understood until it actually happened. But I think you’re exactly right in your perception of things. Thanks for watching and being here. We try and have a routine around bedtime and that does really help Ezra…
I slept in an indoor tent, ball pit, and bunk bed as a child and now a canopy bed. This makes me feel not alone in needing to sleep in tight spaces. Thank you
that is awesome. Didn't know this is available. I have an autistic granddaughter and we have found many surprises when we wake up. This would be very safe.
@@7Aheadfamily Autism is so horrible. I wish I knew what is she thinking and does she understand what we are saying. Hopefully someday we will understand about these sweet babies. She is always happy, though. At least, most of the time. I wish you well. Your family is so sweet to help with Ezra.
It really is! Well said. I am surprised at how many people are reacting negatively to our family, but I love it. The chaos of sweet little ones helping each other is what we are used to. ❤️
Hi!!! New here. I just watched your rv tour and see you’re now in a house!!! Ezra is so cute!!! I love his name!!! And all the kids are so helpful it’s great!!! Idk a lot about autism but I do see that you’re Fantastic parents!!!💛
Check with your insurance. If your child is handicapped you might get it free. My daughter got one for her son. Otherwise cost would have been $5000. But the loud constant talking is not good for autistic children.
Happened to notice a red popsicle. Some people are prone to reactions from red and blue dyes, chemicals, etc. I imagine it is something you are aware of. Like the teamwork of your family.
I saw that also, dyes are detrimental for these kids. I had to take all sugar and dies out of our diet for our son. This was 40 years ago, when dyes were a little less than they are today. Home cooked and organic. He lives with me today . He manages well , but at highly stressful times, he still loses it sometimes. My son is a meat eater. Meat and sticky rice.
I'm a parapro at a school and I can definitely see how that bed would be VERY helpful for some of the autistic kids I've worked with. I'm also autistic myself and I think that looks like a lovely cave to sleep in, I imagine I would have enjoyed it as a kid.
I have recently started to look into autism- I think I might be autistic from all I’ve seen so far- this video reminds me of when I moved from my toddler bed to my ‘big girl bed’ i was about 4-6 and I cried the whole first night because it was a new bed with new bedding- and I wanted my old room back (we had also redone the whole bedroom) it was to much and I just cried. Now I’m in an entirely different room and when I first moved in here we did it slow and I kept the same bedding for a while. This is one of my many reasons that I think I could have autism ❤
How does Ezra feel about pillow forts? That’s what the safety beds remind me of-I’d absolutely sleep in the new one… my cat might not like being unable to move in and out easily, though.
LOVE the entire family support ❤ when we changed my sons bed, he had to spend a few days playing on it before he’d sleep on it. He’s since regressed again, now he only sleeps in his rocking recliner chair, sleeps well in it, but we just applied for a Cubby Bed (similar to this) due to new eloping abilities at night.
It would probably take a week to me to, mostly because it would scare me to not be able to leave the bed by myself, but I understand that thats kind of the point with this beds and it seems good if it works.
@@7Aheadfamily I am a bit confused, because I wrote two comments (because the first one disappeared) and know the second one did also. I hope that is only a fault of my RU-vid-App and you can see the comments. If not I will write a third one about the Kayserbetten-safetybeds.
I taught twins in a day care they both had different things that calmed them down sounds crazy but a closet is hard to break .One brother was very calm and love to both nap or go in the closet to play there was to much going on in the classroom We never shut the door but just a little open He slept great. Each of the twins were different in their learning skills John learned how to print simple words at age 5 His brother was happy to sit and turn cars in circles. Accept what they can do and be encouraging. Life is a journey and just love them . Be grateful for simple things when they are still young. I also found having pictures of each activity help them know where to go and it was less frustrating for both boys. Neither of the boys could talk. God bless your family you are all doing great. The help from the other children is done out of love good for them.
My mom is 88 years old and jokes about how she used to sleep in a cage. As a toddler she slept in a cast iron crib that had a hinged cover on it. I guess the new safety beds aren't that new of an idea after all.
@@7AheadfamilyI admit (at first) I was a little taken aback by the fact that the kids can't get out of the tents...Then my brain reminded me that I have NO idea what raising kids w autism is like so maybe I should just shut up & watch the video & maybe I'd learn something! 😂 So I did and I did! 😅 Now I absolutely understand why. See? You didn't even have to tell me off, I told myself off LOL Jokes aside, all the best to you & your family! You guys are doing a great job! 🙂💛
Thanks for watching the video. The purpose of our videos is to help spread awareness of our unique normal raising Autistic kids. So thank you for taking the time to see what we shared in the movie. And you are so funny! ❤️
I think the dark color of the old bed is a change to the light color of the new bed. Maybe more stimulating, less dark for encouraging sleep. Really great that you let him set the pace to adjust and choose to sleep there.
It reminds me of the privacy pop bed tents. I have one and use it when I have severe migraines. It’s all black and great for people who have eye pain from migraines! You might want to tell him it’s like camping.
I'm so happy for you guys and for Ezra! Will Simon get a new bed too at some point?? My just about 3 year old got a new safety bed yesterday and slept in in for the first time tonight!!
@@7Aheadfamily we ended up getting one called the safety sleeper by Abrams nation. It came be broken down and set up again with an air mattress if we travel.
Changing beds was hard for my son, so we used the new bed to read and play on until one night he fell asleep on it. A very surprised little chap the next day, and after a few weeks, he moved himself to it permanently.
I'm on the spectrum myself and I would say the smell was probably quite overwhelming at first. Having some time to let the chemically smell of new fabrics/plastics settle and having comforting smells of people he knows take over was probably a massive help. The way smells can instantly hit you and trigger memories/feelings can be tough even when you are kind of ready for them. Personally anything too perfumy or fake smelling (like air fresheners) makes me uncomfortable very quickly. Having something like clothes or a blanket/pillow that has not been washed too recently (not filthy but just used) would likely help with any new experiences in the future. Any sensation of home goes a long way.
@sasquatchpjs, My husband taught me that trick when taking our kitties to the vet__an white t-shirt he wore goes into the carrier beforehand and they feel less stressed. 🐾😺💖
I’m 30… I have 5 kids 10y-10mo, 4 (oldest 4) have all been diagnosed with autism of different levels. I’m kind of stressing out if I’m going to be enough for all of them (and I’m praying our 5th doesn’t also get diagnosed but she’s hitting all her milestones and I see a big difference in raising her versus how I’ve “known” raising to be. Obviously I absolutely wouldn’t change a thing but I’m just also wondering if I’ll be enough. Our oldest JUST got diagnosed and so did our 3rd and 4th so it’s all just hit at once that this isn’t a phase (again all have different levels of it ) and also my oldest has just started having huge panic episodes where he makes his self sick (not on purpose but from worrying so much and the only thing that seems to calm him is going to the DR Or hospital and being told he’s OK .. then 2 days later tops, it starts again. He’s been evaluated over and over again by different places including his stable dr and nothing is wrong. I have them to, so for example like right now, I feel like im in a bad place with no sign of relaxing in sight and it’s just a horrible feeling. I want to be the best mom but I feel like im losing before I can even catch a grip on what’s happening around me :( . I also have to homeschool bc my oldest just gets sent home all of the time for his worrying because his reaction to things are a little… well a lot more than a typical person would act. Say he stubs his toe and not hard either, he will completely fall out on the floor and stuff. And when people see that, of course they think something is REALLY wrong. Im happy they take him seriously, but when it’s also a daily thing it keeps him from being in school even though he’s a straight A student. So I just feel so lost. Thank you for listening. And if anyone is in my shoes I’d love a non criticizing person to talk to and maybe get to be pen pals/friends? ❤
Sounds like you do have a lot in your plate. My initial reaction to what you have said, is… can you get help and support? To have to home school is a huge responsibility, and I am sure you are doing a great job, but are there some special education programs locally that can be taught how to respond to your son so that he can stay in school? Remember, you are enough. As their mother you will always be enough for them, even if you don my feel like it. Our nonprofit that we just started is exactly for these types of situations, to create a call center with informed individuals who can talk with parents and help them with whatever they are needing. In our local town there are respite organizations and grants and scholarships to help pay for in-home help and therapy. (We use it daily) is there someone you can talk to, like a social worker who may be able to connect you with these types of services? I know the help at home by professionals has really helped us a lot.
I just wanted to let you to know I read your message, and that somewhere in the world, someone is thinking of you and everything you have going on. I wish I could help. But I do want you to know that what you are doing matters, that you are doing the best you can and that you deserve support
I was an LPN for 27 years. Much of my career was as an agency nurse in a large metropolitan area. I worked in over 100 different facilities. From time to time facilities would have residents suffering from Huntington's Chorea. At the best they would be in beds like this. At the worst they would line the floors with mattresses and the resident would roll around all over the mattresses. A couple of times I would have to give meds crawling around on the 'floor'. Their muscles would be so spastic they could not stay in a regular bed. Lots of interesting experiences in those years.
Wow! Thank you for your service as a nurse. ❤️ The world can’t have enough good nurses. Yes, these beds definitely have their place, and can be a lifesaver at times. Literally.
Outstanding new big boy bed! I'm so excited for you all! I would sleep in that nice bed too! Does it come with warranty if the child damages the mesh? I enjoy your videos and I learn so much! Thanks for sharing your family.💓
Thank you so much for your kind words. ❤️ The warranty info is pretty vague. Manufacture, defects are covered for five years, but it is not very clear if Ezra, where to break it if it would be covered. We would try. :-) At this point I don’t think he could break anything, but a few years from now that might change. :-) Hoping that he just enjoys the bed and is too intimidated by its size to try and break it. 😊 ❤️
Some of the problem may also be the coloring. His old shelter hut was black in coloring and dark and cool in temperature. The new one is white which is good for claustrophobia. If the color can’t be change, maybe hang up dark curtains inside with Velcro to be removed if necessary. 🙏💕🙏💕🙏
My son is Autistic and has a special mattress.. that has an Alarm on it , coz he has fits as well sometimes .. but he used to jump on his bed and scared hims coz of the Motion Alarm on his Mattress.. it’s as amazing the things that are made to help sick children . I’m so happy this young boy has his special bed
