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You have a great presentation and the information about pain associated with MG needs to be shared far and wide! If you ask MG patients if they have muscle pain or pain all over, they will explain it to you. But, Neurologists and other doctors tell patients there i# no pain with MG -- it must be something else. So, we never bring it up again. That just serves to convince the doctors that they are right -- there is no pain with MG, or I would have heard it from my patients! Curiously, I went on to develop CRPS 2 and I must have CRPS 1, as well, because it has spread over the last 15-20 years (I had MG starting 12+ years before that (that's when it was diagnosed). It's a bad spot to be in with the crazy handling of pain issues all going to Integrated Pain Management. I don't think putting a device in my back and connecting it to my spine would help the 5 or 6 places I have it in and would do nothing for the MG! What do you think about DRGs for multiple locations of CRPS and multiple areas affected by MG? Please help!
Please talk more about the myasthenia grains patient's experience of pain -- this is not recognized by some doctors as a symptom but those with MG do feel it. Thank you for a freak talk!
My 74year old uncle has just been diagnosed with this..this video is a Great help to understand what he is going through.. Iam not sure if he will pull through as his mind seams to have gone also.. He is struggling to swallow and can hardly talk now.. Just stuck in a bed in a UK hospital with doctors who don't seam to know how to treat him.. 😐
Seemed overly complex...the best I've seen is from the head of neurology @ Houston Methodist. She did a completely awesome job of explaining it all. It's here on YT...
Really glad to know it was useful. Please follow my instagram page and facebook page. Please share my youtube channel link with your friends and help me to reach big audiance I'm on facebook & Instagram as @animatedbiologywitharpan. Install the app to download notes and flash cards. instagram.com/invites/contact/?i=1p41h314q3fv8& You can support the channel by clicking on the super like icon below the video ( a heart sign with $ in it ) . You can support using paytm/ phone pe/ gPay / paypal. Your small contribution means a lot for me
I had a thymectomy to remove my thymus and I was told that having my thymus removed won’t affect my T cells because I can get Tcell production from my bone marrow. I was told that at a certain age the thymus shrinks and becomes less active. My doctor said because I’m in my early 40’s that my overgrown thymus with thymoma growth can cause other cancers and should be removed regardless if it treats the myasthenia Gravis. So, why did you say it’s bad to have the thymus removed?
@@animatedbiologywitharpan ok, so what’s this business of the thymus shrinking as you age and becomes obsolete? www.google.com/search?sxsrf=ALeKk00QaEpTmppk6jkEOxGAkMAYVsnKbw%3A1603814332331&ei=vEOYX5i_E4TKytMP_KC-iAE&q=thymus+removal+effects&oq=&gs_lcp=ChNtb2JpbGUtZ3dzLXdpei1zZXJwEAEYADIHCCMQ6gIQJzIHCCMQ6gIQJzIHCCMQ6gIQJzIHCCMQ6gIQJzIHCCMQ6gIQJzIHCCMQ6gIQJzIHCCMQ6gIQJzIHCCMQ6gIQJzIHCCMQ6gIQJzIHCCMQ6gIQJzIHCCMQ6gIQJzIHCCMQ6gIQJzIHCCMQ6gIQJzIHCCMQ6gIQJzIHCCMQ6gIQJzoECCMQJ1AAWABggUxoAnAAeACAAVSIAZcBkgEBMpgBAKABAbABD8ABAQ&sclient=mobile-gws-wiz-serp
Why does repetitive muscle use/strenuous activity worsen the weakness in MG in relation to the pathogenesis? Is it because the Ach gets depleted at the synapse or more AutoAbs compete with Ach during muscle activity? Could you pls clarify how and why this happens? thank you
I am 38 and have had Myasthenia Gravis since age 11 or to make it easier 1 my puberty started.After so many years I have decided to go the vitamin therapy way.The prescriptions such as Mestinon Bromide (Pill) caused GI tract issues since I was 15 years old.Steriods ( Prednisone ) has made my nails brittle hair thin and teeth decay horribly .And added bone issues.The point is the medicines helped for symptoms but long term use has caused damage.I decided to take control .This is something I will record and share with others so that they can see improvements I have experienced.
Video was very informative I am currently on prednisone and mestinon. Still having severe symptoms. Should I ask the doctor for a different medication? Any suggestion?
Natural doctors who look at anti-inflammatory (hard, but necessary) diets. Don't give your body opportunity to get worse...there are other things that can be done. Big Pharma is all about suppression, but causing other issues.
Myasthenia gravis is often attributed to faulty immune tolerance, where the immune system mistakenly attacks healthy tissues, specifically targeting acetylcholine receptors on muscle cells.
i’m 15 years old i was diagnosed with it in 2019 on my 14th birthday and i have it my doctors are saying i have to get my thyman gland removed in later june . i’m scared and idk if it’s gonna help i’ve been reading about it and i’m scared. everyone in my family been saying it’ll help but idrk
