Arteriovenous malformations (AVM) in the human brain with subsequent intracerebral hemorrhage (ICH). NEU075 Related videos: trialimage.com/home-page/stoc...
I believe this is the news ill reveive about my son tomorrow. He is in a coma in hospital and has had 2 surgeries to release pressure in brain. Very healthy, aneurysm occurred at the gym. The have removed some of haemotoma for testing and found abnormal vessels. Clinging to hope he will recover. Was so healthy, no symptoms prior that we know ofand only 20 years old
for me the only treatment was gamma knife. my avm bled in 2004 the only symptoms i had was 3 panic attacks . i had been a builder all my life very active and 36 years old , if your going through a bleed i wish you well be positive it can work out ok. my bleed caused paralysis on my right side loss of speech i couldn't read or write , 2007 i became a qualified plumber . i found singing helped with my speech, your in possession of a wonderful tool your brain is amazing.
Glad to hear your well , hope still all good? I’ve just found out I’ve got one, lucky not through a bleed but a seizure. Did gamma knife work? I have to have it done twice
Anyone; anyone suffering from suddenly sharp pain in the brain very often; please, request a MRI or something similar to be done to brain. My son, a very healthy 37 years old was complaining from a sharp pain in his brain unfortunately his ignorant GP; did not bother to send him for a brain scam or similar test. He was only prescribing normal pain killers. My son collapsed over 5 months ago & thanks God; he survived; but, he just start talking again & he hasn't been able to use his legs, his left arm yet. So, you must take seriously any signs of AVM, it can be fatal as almost take my son life😔😔
That's what I noticed from a very a dear friend of mine. She would get frequent powerful headaches but at very random times until one morning she fallen victim to hemorrhage caused by AVM. It's so scary because the symptoms are kinda random and are easily dismissed as "stress" due to this rare condition. Currently awaiting prognosis, it just... sucks.
I just lost my 40 year old brother from AVM and for the first time in life I heard of. You are right unexplained pain on his head that brought him to tears and was blamed on his eyes needing corrected lenses, only to find out that needed an emergency surgery.
I had an intracerebral hemorrhage due to a ruptured AVM in January. I've since been released from the hospital and am recovering well enough that you probably wouldn't know it happened just by looking at or speaking with me, but one question that has come up that I didn't get answered is, will this have an effect on my lifespan? I'm currently in my early 30's. Should I focus on continuing my career, or should I just go ahead and try to get any personal goals out of the way while I can?
Hi Jungle - provided there was only one AVM noted during your recent treatment, there's no reason to assume your life span will be affected now that the AVM has been successfully treated. As to how to proceed from here, of course, that's a personal decision only you can make. Many patients I have seen who have survived life-threatening illnesses have told me that the experience made them realize just how fragile life is, and how quickly an illness can change everything. I think these folks are, in general, more inclined to do something (take a trip, climb that mountain, visit that old friend, etc.) they might otherwise have been putting off, thinking they had plenty of time to do those things at some future point. I hope this helps and I wish you all the best in the future...
@@TrialImageInc Thanks for the reply, Dr Shipley! Unfortunately, my AVM is a Category 4, I believe, so only the hemorrhage was treated, not the avm. But it's a relief to hear that I don't necessarily have a reduced life expectancy due to the past bleed! I'll still make it a point to go on that cruise I've been wanting at some point, though!
@@lukescrimshaw7678 it was located very close to the cerebellum. He had it in one of the worst spots to have it. I’m not too sure of the size, but he had two AVMs. One that ruptured and one that they fixed via angiogram while he was in his coma.
My husband at the age of 60 lost the peripheral vision in his left eye due to the bulging AVF pressing on his occipital lobe. He has had two onyx embolization and coil embolization. Has to have an arteriogram in November to determine if another embolization is needed. So far removing it has not been mentioned.
jappy88 - most AVMs are congenital, and unfortunately, there is no way to prevent them from occurring. Also, many AVMs may cause no symptoms right up until the moment they rupture. Some will begin to expand or leak days, weeks or months prior to rupture, and may cause symptoms (most commonly headache), that may trigger a medical workup that results in appropriate treatment and cure. For those who have known AVMs, but have not had curative treatment, probably the most important step they can take is to ensure that their blood pressure is normal, as elevated blood pressure can hasten rutpure. Hope this helps Cjs
There are 2 commonly used techniques - one is to apply metal clips on either side of the avm, thus cutting off blood flow through it, hence, eliminating the danger of rupture. The other procedure is to inject a type of glue into the AVM, again blocking blood flow through it. Some AVMs are very small, and at less risk of rupture, and treatment may not be recommended in such cases. Get the opinion of at least 2 experienced neurosurgeons before you proceed one way or the other. Good luck!
***** I had an Avm 20 years ago, when I was 9. They told me at the time, that they bored holes into my head and shined a laser through the holes and that cut off the affected area, so the blood just bypasses it. Does this sound familiar to you, as a treatment option? I am aware that I may be completely wrong, because i was a child at the time and I don't remember the details.
