AWAKE | A Shift.ms film about insomnia & multiple sclerosis

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AWAKE' 🛌💤😪 is a short film by Shift.ms that explores the interplay between #MultipleSclerosis, sleep and mental health. It is an experimental documentary film that unfolds over one night. Voices from real late-night phone calls are woven together to reflect on life and death from the unique perspective of those experiencing both insomnia and a neurological disease.
Lack of sleep can have a serious impact on people living with MS. Insomnia can heighten symptoms and have a negative impact on MSers quality of life 🛌💤😪 Shift.ms research found that 85% of MSers experience insomnia and 75% of these MSers believe that it has some impact on their mental health and wellbeing.
Do you experience insomnia? What goes through your mind when you're lying awake in bed? Do you have any tips for coping with sleeplessness? Share in the comment section below 👇Please help us get our film out there by liking and sharing your experiences of insomnia, mental health and MS using #AwakeWithMS in the comment section below 👇💚
'Awake' was directed by Matan Rochlitz (www.matan-rochlitz.net/). Matan is an award-winning, Emmy-nominated filmmaker. Born and raised in Rome he trained as a video journalist, making films for political, environmental and science strands for Al-Jazeera, Channel 4 and the BBC before becoming an independent filmmaker. His most recent credits include the Emmy-nominated “I have a message for you” and “The Runners”
If you've been affected by the issues in this film and need help contact your local service here: www.befrienders.org/
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#Shiftms #MultipleSclerosis #AwakeWithMS #Insomnia

Опубликовано:

27 янв 2020

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Комментарии : 56

@AJHR77 4 года назад

This was really good and affirming of what I go through. Great film,hope you will produce more.

@Shiftms 4 года назад

Thank you for your kind words. It's great to hear that you were able to resonate with the film. Do you have any tips for coping with sleeplessness?

@AJHR77 4 года назад

@@Shiftms I don't have anything that has worked other than medication for insomnia. I still have to wash out on the medication because the body builds up a tolerance. I've tried a sleep therapist,who recorded his voice to listen to,lying in the dark,reading before sleep.

@rainbows9060 4 года назад

"There is no greater a divide than the man who sleeps, to the one who is AWAKE!!

@metronomepulse 3 года назад

I don’t feel so alone anymore. Thank you for this.

@Quiggy49 4 года назад

Thank you for your work on this film. My only complaint, as this is often the case, there are no comments from the MSers that are living with chronic pain. Your whole body is racked with pain, always. Trying to sleep when you feel you are laying on a rack is next to impossible and you feel so lucky if you get 2 hours of sleep/night. It's difficult especially because sleep is the most restorotive thing you can do for am aching, disabled body. When sleep eludes you, all you can do is tuck it away and hope you find it again the next night. MS pain is real.

@tinalonefeather453 4 года назад

Tina Quigley , I could not have expressed the mind-bending effects of painsomnia better myself due to MS.

@Quiggy49 4 года назад

@@tinalonefeather453 Thank you for responding. It's so great to know that I'm not alone, albeit I wouldn't wish this on my worse enemy; I am incredibly grateful to you for "getting it". Thanks again and I hope you get through this difficult time unscathed. 🎗️

@Nadz8131 4 года назад

Thank you for making this video. It’s 3.22am as I type and I’ve only made it to my bed twice in 11 days. I sit here and as each new day arrives and the sun rises, I resent it. I want it to stay darker for longer. I’ve suffered with insomnia my entire life. It’s actually one of my very first memories. You feel like you’re losing your mind and that you need to be locked up. This morning I read an entire book in 3 hours. My life revolves around my sleep. Mostly being stressed out because I don’t have it. I should go into bed but I don’t want to. Ironically I’m exhausted due to the fact that I can’t sleep. Again, thank you for this video. A tiny part of me doesn’t feel so alone.

@Shiftms 4 года назад

@Nadine Williams - Thank you so much for sharing your story Nadine. It sounds like many of the stories we heard when making the film - you are not alone!! We're glad that the film has helped in some small way.

@Nadz8131 4 года назад

Shift.ms thank you for acknowledging me. It means more than you know. If you’re ever doing any more kind of work on insomnia or other health issues, please contact me. I would love to participate. To do anything that helps other people is something I love to do. Again, thank you 💜

@amystow4059 4 года назад

Such a unique way of exploring this issue. I think everyone experiences insomnia at some point in their lives, perhaps only for one night, but its something we can all relate to. Very powerful.

@deepthoughts8393 2 месяца назад

One night is one lucky bastard

@LornaAnnMcCabe 5 месяцев назад

Thank you been ten years housbound bedbound, and watching this helped me to realise its ms, and seeing it helped me to understand and accept and also see where I was! Thank you

@claremckenzie5119 4 года назад

Incredibly thought provoking. Bravo Shift.ms.

@Shiftms 4 года назад

Thank you Clare, glad you enjoyed it.

@user-fb5dq2ed7n 4 года назад

watching this video and seeing these people I can relate to all those people I never knew i had insomnia until I've watched this. but the thing is I dont have the help around me or anyone who understand, so am dealing with this situation on my own. so this video helped alot and gave me the knowledge on what I have to deal with in the future

@Shiftms 4 года назад

Thanks for your comment mohibur - I'm glad this video has helped you. In a recent survey we did we asked our members what tips or techniques they have for coping with insomnia. There were many that came back with meditation, no caffeine, no screens before bed, sticking to a routine. Calm was also mentioned - it could be worth trying these out 🙂

@gabymammone 4 года назад

This was an enjoyable film to watch. Thank you for shedding light on the situation. We often talk about lethargy and don't realize that so many people have insomnia.

@Shiftms 4 года назад

Thanks Gaby, we're so happy you liked it. You're welcome, it's so important we talk about these things and let MSers around the world know that they aren't alone in this condition.

@ib2773 3 года назад

I feel seen!

@garikavakian8210 4 года назад

Now I understand why I have insomnia

@sirborrisandfootballentert9557 4 года назад

I have never been amused with adverts but this is brilliant.

@douglaspalmer5210 7 месяцев назад

Yup😢me too

@DarrionVaughn 4 года назад

Us with a Thyroid problem can relate too 😪🥺 I remember I didn't sleep for 2 whole months, It got to the point where I would just hallucinate while watching my room go from night to morning.

@olabergstrom665 4 года назад

MS-patients are in general low on Melatonin and likely on other hormones as well (I was). In my case I am convinced my PPMS is a neuroendocrine imbalance at core. I take Melatonin to fall asleep every day all year around since a year or so, and finally sleep well again. If nothing else it improves the quality of sleep and is a great antioxidant for the brain.

@highheeledfagin 4 года назад

On the topic of marijuana: I'm from a weed-smoking culture so getting some wasn't difficult, but my experience of it seems to be different from the norm: most people that I know have a smoke and then fall asleep easily, but not me. It's difficult to articulate but it's like every part of my brain is sparking off fireworks and every thought that I could possibly have tried to happen all at once and I can't keep up. It's exhausting but having any complex ideas after years of cog fog feels like a revelation... definitely doesn't help me sleep, though.

@Shiftms 4 года назад

Thanks for sharing your story - it's so important to hear different stories. MS is different for everyone right?

@willoubooby 4 года назад

I was diagnosed at 24 I am now 27 28 in July and I have sleep problems due to over active bladder and also I carnt sleep I can be laid there uncomfortable fidgeting things on my mind I argue with myself in my head and tell my self to go to chuffing sleep.... 😖 I always feel rough like I been on a night out. I cry sometimes because all I want to do is have a decent sleep =(

@Shiftms 4 года назад

Hey - sounds so frustrating 😖 but thanks for sharing your experience with us. Do you think the lack of sleep because of your over active bladder also makes other MS symptoms worse?

@willoubooby 4 года назад

@@Shiftms no idea I suffer aniexty and depression too and my mind just thinks all the time and it annoys me I carnt just switch off

@Shiftms 4 года назад

@@willoubooby that sucks but you know the Shift.ms community will always be around to provide support - have you checked out the forum? www.shift.ms We asked some of our members how they would describe insomnia to someone who doesn't experience it, here are some of our fave responses - very accurate: “Like a million browsers open in your brain.” , “A never ending day.” , "A demon that creeps in planning to ruin your following day.”

@erty9727 4 года назад

please look into medication for an over-active bladder, it's available and helpful

@willoubooby 4 года назад

I have already tried 3 lots didn't work I'm afraid they offered me botox injections but no way I'm 27 n I may after use a catheter if I did =/

@TheOligoclonalBand 4 года назад

I love all your films, but this was eye opening (pun intended). Sometimes there are phases I can‘t calm down, these are the worst. I so relate to the guitar player.

@MasonLogerquist 3 года назад

the cinematography in this is really great

@thaishelena110 4 года назад

I complete can relate with the second woman... I usually wake up at night with both arms and hands numbs. I just can't feel anything. I need to get up and try to move them. Sometimes it takes a long time...

@TheOligoclonalBand 3 года назад

I have an insomnia phase again and I wrote and recorded a song about how I feel. It will never be made public though because I used some snippets for a sound collage, so I am the only one listening to it, hahaha. But it was necessary to express all these emotions. Thanks for these incredible videos.

@death.noneexistentchannel5797 4 года назад

Incredible

@douglaspalmer5210 7 месяцев назад

4 am or 2hrs

@UmbrellaCorpTeam 4 года назад

ASMR has been the only thing to help me sleep, but sometimes it doesn't work and I'm lucky if I get 2h sleep

@Shiftms 4 года назад

Hey Kent, what's ASMR?

@UmbrellaCorpTeam 4 года назад

@@Shiftms Autonomous sensory meridian response, there are many ASMR creators here on RU-vid.

@jammyrapper7426 4 года назад

@@UmbrellaCorpTeam i wish i can do something for insomniac as i ve suffered this condition

@francesarmes4291 4 года назад

1K likes for this woomin to sleep atlest 9 hours of sleep

@jathusansatkunarajah1732 4 года назад

I have a question I don't mean any disrespect or to offend any one who has this problem but my question is if you go 3 weeks without sleep don't you feel tired enough to go sleep sorry if I offend any one by asking this just want to know for knolage

@Shiftms 4 года назад

Thanks for your question Jathusan. No sleep for three weeks would make you incredibly tired but a person can be so so tired and not able to sleep because they live with insomnia. It can be incredibly frustrating.

@antheagc5148 4 года назад

Unfortunately not, no. Its like you can be yawning your head off, so incredibly tired but you just cannot physically fall asleep, no matter what you do. You just lay there, so angry and frustrated.