An extremely helpful interview, especially for those of us whose doctors refuse to even consider the importance of monitoring bone turnover, and/or have no access to P1NP/CTX (in Ontario, Canada, they ARE available!). For those attempting to safely exit Prolia, CTX monitoring is key. By the time a DEXA is taken, the damage from the rebounding turnover is already done. I am one of the many post-Prolia patients with out-of-control rebounding turnover and multiple spontaneous vertebral fractures. Fortunately my endocrinologist monitors my CTX.
Margaret, you continue to be my main source of credible and reliable information about osteoporosis and effective, safe exercise to build muscle and bone. Thank you SO much for everything you do in this field. You are truly a one-off and I recommend you to everyone I know who has osteoporosis. ❤
Thank you! This is the first time so much of this is beginning to make sense to me. Somehow the dexiscan scores alone never made sense, this approach is much more understandable. Now maybe i can find the courage to try the meds even though i frequently have nasty reactions to many of them.
Wow!! Wish wr had this on the UK. We have no one looking at bone markers.I would love to get my bone checked like this. But,no one here who foes this work. Thank you for this wonderful videos.
My endo has never mentioned bone markers, just sees the dexa and determines I need medication...Im still on the fence with this and need a second opinion. I spoke with my PCP, he said he didnt know too much about them, so didnt feel comfortable ordering the tests.
Excellent information. Thoroughly depressing to not get this type of approach or knowledge in Canada, despite being a patient with an endocrinologist at the Osteoporosis Clinic where I live, despite itts apparent highly regarded reputation. Never tested during a drug holiday and rapid decline not discovered until finally allowed to have another DEXA in 2 years. Will be asking for bone markers at next appointment to test progress of being out back on the same oral bisphosphonate and contemplating paying for Forteo out of pocket. I usually feel gaslighted, however, when I ask such questions. Nonetheless, the information you provide is invaluable. Hoping to use in on this journey.
I'm on your page, Deborah. It is clear that Margaret is working hard for us, bringing us the knowledge of these specialists. I am very grateful for her. But, it is so frustrating to know that there are experts who take thoughtful approaches to managing this condition, and we cannot access them, or anything approaching their level of care, in Canada.
@@katedagg287 A bit of good news, I went to my Endocrinologist today and with everything I learned I was actually able to get her to do a bone marker test before we decide if it is necessary for me to start an infusion or injections versus staying on oral bisphosphonates. The oral bisphosphonates worked so that I did not get worse while on them for 6 years. But I rapidly declined on a 2 year drug holiday during which time I had no tests or DEXA scan. I was restarted on them in the fall. It was only because I came armed with information that I got it and I insisted on another DEXA one year after the one I had last June. She said I am high risk regardless but I did convince her. I said that if I had been tested and a yearly DEXA during my 2 year drug holiday during which time I rapidly and significantly declined, then I would have been started on a different medication at least a year earlier and not be as bad as I ended up. This recent RU-vid from Margaret couldn’t have been better timed! Wishing you all the best!
My endocrinologist wouldnt order a CTX blood test. She said they are not accurate enough. I told her that they can be useful if you follow the guidelines before the test.For instance, fasting overnight, no biotin ,Collagen for a number of days before & take the test early morning & repeat in 3 or4 months . I paid for the test myself!!!
Thank you, I may listen again to comprehend all. I have been on recast for 2 years, the next infusion will be coming up. I had asked the endocrinologist I had consulted with about Telopeptide test. He said it was not accurate and did not recommend last year when I asked about it. I wish could consult with Dr Silverman !? I am also wondering when to schedule my next dexascan before or after my 3rd reclast infusion?
I think bone markers should be seen as some form of control, like you would when doing research. Why endos want to just put you on medication without even thinking about controls, is beyond me. Its as if theyre on a percentage from the pharmaceutical companies.
I understand in Japan, 45 mg of K2 NK7 daily is recommended...natto is the source many Japanese use but is a taste not many westerner appreciate. Where in North America can I source 45 mg of K2 NK7 in pill or cap format? I have found K2 NK7 in 100 mcg caps which is a miniscule fraction of the dosage recommended in Japan. I am not just osteopenic but have osteoporosis in the neck of my left femur.
What is NK7? I was recently diagnosed with osteoporosis and am having trouble finding a rheumatologist that takes Medicare. The ones that do near me have poor reviews . I also cannot swallow pils and I have heard about the terrible side effects of the drugs; ie. jaw necrosis, etc.
The Japanese studies used 45mg/day of K2-MK4 to treat osteoporosis, not MK7. They're different molecules. Menatetrenone (K2-MK4) is approved as an anti-osteoporotic medicine in Japan. Good sources of K2-MK4 are: beef liver, muenster cheese, and most other animal foods.
Prescribe drugs before you do blood tests to know what the patients current condition is. Saw two endochronologists in the past who prescribed drugs with no results. Before I would see a third I saw my primary care who ordered the tests to diagnose my current situation so I could make a knowledgeable decision. Insurance payment is irrelevant, it's your health so pay for the test if necessary. Treating using guessing is not competent care.
I was diagnosed with osteoporosis on October of last year, my physician put me on Ibandronate Sodium tables 150 mg, but I got such a scary and terrible reaction did he ask me to stop takin it, so he send me to another medication which it was an infusion I think it was Reclast, but when I got to get the procedure they told me my doctor change it to Prolia, but after that I read like you can have so many bad side effects did I call my doctor and told him I want to stop having it, I don’t know if I don’t understand very clear about pros and cons , so he give me an appointment to sit with me and explained me really about the medication, because my next which will be my second Inyección it’s scheduled for August
Please be careful - you can't "just quit" with Prolia. You need to speak immediately with your doctor about being relayed off of Prolia using an alternative antiresorptive (yes, it might be ibandronate, but there are other bisphosphonates) AND having the Prolia's "rebound effect" treated and monitored. The manufacturer's warning materials, the clinical studies, and professional association statements are all clear that once you're on Prolia, you need to be properly relayed OFF it again. You can't just change your mind and quit. Please talk to your doctor!
@@dianebakermason5535 Thank you so much Diane, I finally spoke with my Dr, and he explain to me what can happen if I don’t fallow the treatment he told me he’s very concern because my osteoporosis it’s kind of severe specially on my spine and that’s the reason he wants me to continue with it, he told me did by next June of 2024, he will do again my DEXA, which by that time will be already the two years of my first one, I’m just hoping and praying god did everything will be ok, I’m still scared but I think I need to do what I need to do.
@@yvonnehernandez6233i wonder if you get any side effect from Prolia? Im bit worried after reading people's commemt about the bad side effects . My mom is scheduled to get Prolia 1 august. Thanks
Do you have links for some things mentioned in this video (the osteoporosis questionnaire referred to at the end; and the studies he mentions earlier)? Thanks for all you do!!
I just founding your channel today and I see what I like and subscribed..! I have a question to you. Is The Med, Forsamax is good..? What is good ( up ) side..? And what is down side ( effected)..? I have Osteoporosis should I taking this med..? But want to do natural healing I’m 73..!
@@dangcoppock7362 I realize this is a year past your post, but I have your same questions regarding Fosamax. I have been Reluctant to take it because of the possible side effects of jaw bone death.
I tried so hard to buy through you so you could get the commission. But, failed. I bought a machine. I really am sad that you didn't get commission. I tried.
