ASXL parent leaders Laura Badmaev (ASXL1/Bohring-Opitz Syndrome), Amanda Scheirer (ASXL2/Shashi-Pena Syndrome), Gracileia Morrison (ASXL3/Bainbridge-Ropers Syndrome), and Sankar Madhavan (ASXL3/Bainbridge-Ropers Syndrome) share practical tips and advice from their own personal experience finding ways to care for their mental and physical wellbeing while also caring for a child with complex needs.
Discussion includes:
- Acknowledging feelings of grief and isolation
- Developing self-compassion and finding joy amidst daily challenges
- Creating opportunities for breaks in caregiving responsibilities
This is the first event in a two-part series about caregiver well-being. The second event is a virtual workshop on Tuesday, August 6 from 12:00-1:00pm U.S. Eastern Time with clinician Abigail Moretti (Rowan University) where she will guide participants in practicing self-care strategies.
Meeting slides are available as a PDF download here:
10 июн 2024
