During Porphyria Awareness Week 2021, Clint and Hattie share their experience living with EPP (Erythropoietic Protoporphyria).
For more information about Erythropoietic Protoporphyria - visit the American Porphyria Foundation Website.
EPP: porphyriafound...
Shadow Jumpers: porphyriafound...
*Permission given by parents to share on RU-vid.
29 окт 2024