Thank you so much for posting these videos! I'm in Canada. I had a colostomy done because I'm paralyzed and it's sooooo much easier to deal with. I"m possibly headed for a colonoscopy and your information is extremely helpful. Looks like you use the same bag system as me, so it's good to know about using an open ended bag! Thanks again.
You are quite the brave one. Wanting to watch the colonoscopy. Thank you for sharing your journey with us. You are becoming quite the host, and are a natural at it.☺ Best of health and Blessings to you and all here from Maryland in the states.🙏🏾🤗
Hi Chris.I had the same procedure done 2 months ago.I found it easier than the traditional route! I sat up on the bed and watched the whole thing.When the scope went in it was just a bit of a tickle.Worst bit for me was at the end Dr wanted to exam defunctioned part of my bowel ie;traditional route! That was no fun. I've got an end colostomy (temporary in medical terms as i still have rectum) but i'm never having it reversed.I've used open bags from day one as i'd already had 2 resections before stoma formation.Empty 4/5 times a day.I'd seen the consequences of 2 resections which left me needing high dose loperamide every day of my life so when i had another section of damaged bowel i argued for a stoma.Had to be 'insistent' (as Dr now describes me) but my quality of life is way,way better than before. I found the Plenvu prep way easier with a stoma just had to empty water like output a few times! Great channel mate.You help a lot of people.
Hi. Thanks for watching and leaving a comprehensive comment. You have certainly been through it! Sometimes we have to be insistent with Dr's otherwise we never get what we what, we know our bodies. My stoma certainly gave me my life back. Glad to hear it's changed your life for the better aswell. Again thanks for watching.
You're a rockstar, I'll have to have my colonoscopy in August which is a year after my surgery for colorectal cancer and permanent colostomy. I'll be put out though, there's no way I could stand to be a awake. Thanks for the info. ✌🏻💕🇨🇦
I just got the call for my colonoscopy through my stoma…..booked in for two weeks time. I’ll let you know how I go. Thanks for posting this situation it has put my mind at ease.
Had my first colonoscopy through my stoma last month. I had pain relief. Should have asked for gas and air but hate being in hospital any length of time and thought that may delay my getting home in the two or three hours that was required. Staff were wonderful and informative. Watched the monitor to see the progress but didn’t watch as camera went in. I had to spin from stomach to side and back several times due to loops in my colon. It was uncomfortable but recoverable and instantly forgettable once procedure was completed. Glad to get back on my feet and out😊
Hi Catherine. Thanks for sharing your procedure. Having the sedation only delayed my leaving the hospital by half an hour. Also my wife had to pick me up as you can't drive for 24 hours after sedation.
Thank you for talking about this, it’s really helpful. I’m glad to hear it’s a smaller scope. I’ve got 10 months til my 1st post op scope I think but will face it with more confidence now. 😊
Is it normal procedure to get a post op scope? Because if it is I need to talk to my doctor. I think it would definitely be beneficial to have one done. 😊 So thank you for your comment.
@@michellekear3653 I’m due one 12 months after my original cancer surgery, then at 24m and 5 years I think. All organised by my surgical team or specialist nurse. Hope that helps.
Very glad all seems good up to the small intestine....well done....I imagine you're one of the better patients for them...slim. Good explanation as always 🤗. Looking good in the smock!😀
Yeah I am a good patient. I stand up for myself when I think I am being fobbed off, but with things like this I do as I am told, I do the prep properly, I do what they ask. I am always very respectful.
Chris. Thankyou so much for sharing the 3 vids. I am booked in for the same soon and I am very anxious. Also the info I have been sent is all describing a rectal procedure. You have really helped. Thanks so much
I appreciate you very much for doing this video. I'm finding it very hard to find the information I need or want and its been very frustrating! You are the very first person to post a video where I didn't get annoyed or loose interest. So Thank You so much for sharing your experience ❤
The colonoscopy went well. No polyps!! The prep part went much better than I thought it would. Attached a long irrigation pouch to my barrier to catch the bulk of output and switched to regular size later in day. Was amazed how well it went. And during the procedure, i didn't feel anything cause I was out.
Thanks for sharing your journey. I have prep tonight for colonoscopy tomoro at 3pm. 1st time a year after surgery so dreading it to be honest. Happy you say smaller camera used for stoma. Really helpful to see your videos thank you
Hi, thanks for the time taken to make these. I have the same as you (no rectum) and are due to have my first stoma colonoscopy this week so it was good to hear this. Thanks again for sharing your experience. Pedro
Thank for your video! My husband is to have colonoscopy in May. He had surgery a year ago April. His bottom sewn up. He adjusted very well. Just had a CT Scan done again part of checking. Admire you and him for dealing with this part of life.❤️🇨🇦❤️
Thanks for vid Bit nervous as first thru stoma on 19th December I had a diverticulitis restriction n Hartman sigmoid op I’m quite an upbeat person sooo nice to listen to you being realistic but positive All the best Maria
So had my procedure done with sedation because the surgeon didn't recommend doing without it. USA. Went well. Some pain around the stoma this evening, not sure why. Also the RN who told me she would put a new bag on me afterwards, didn't stretch out the protective ring before applying it. So when I woke up it was choking the stoma. And so I will have to change sooner than usual. I should have given them a closed bag for temporary use till I got home and put on my drainable bag and skin protection and ring properly. My reults were no issues, no biopsy. On track for reconnecting in 3 months.
Hi Anne. Glad it went well and great news no issues. Good news that you stay on track for the reversal. After my colonoscopy they didn't have a clue how to put a bag on properly!
Date booked for 1st year cancer review colonoscopy via my stoma, so I’ve come back for revision. Hoping I can manage with gas and air so I can drive home😮 Thank you again for this.
@@sydneystoma385 I managed to ask a kind neighbour to drive me in and collect me so I checked out and went for sedation! Also I thought I might have a few adhesions that might cause a few corners! It’s odd having a scope through a stoma, but more comfortable lying on my back watching. And I did have a few stuck bits that were sore. Now I know what it’s like I might have gas and air next time, but I think that’s the only scope I get with my follow up. Thank you so much for the clips as it was so helpful to know what to expect with the scope and the prep. These’s no advice given separately if you have a stoma. That’s a bit daunting for your first time but much easier with your advice and support. Defiantly drainable bags needed for the prep!
In the U.S you are generally put to sleep during the procedure. Question, before starting procedure,when did you remove your bag? Did you put bag back on immediately after procedure? I got my colostomy three months ago, still learning to live with it.
Hi Jack. That is a really good question and I probably should have covered that. The bag came off just before they put the camera in. The bag went back on fairly quickly afterwards. However, there was no danger of anything coming out as I followed the procedure correctly with the bowel prep. So my intestines were empty. I could see that on the screen, so there was no danger of any output coming out. I have had no output today either. It takes time to learn to live with a colostomy. But overall it's not a problem to live with. If you have any questions feel free to ask me.
Hi Chris so glad the procedure went smooth, I didn't realise you still had part of your main bowel left, seems odd when you had all the tail-end removed, does your colon form part of your stoma? I had my colon removed and just recently had the barbie butt surgery, still recovering slowly.
Hi. Yes my large intestine forms the stoma. My Crohn's has affected my terminal ileum in the past and that part had a resection. The majority of my Crohn's was in the rectum, I had ridiculous amounts of fistulas and lost bowel control. So I opted to have all the rectum removed. I hope the rest of your recovery goes well.
Hi. Thanks for the video. I have to get a colonoscopy thru my stoma soon and I’m not looking forward to it. I’m in America and I believe I will be asleep
Hi Susan. Yes I have heard in America they put you to sleep for the procedure. It will be fine. I take it you will have to do some form of bowel prep before? What do they give for that in America?
I really hope they figure out what is going on I'm dealing with a similar situation idk what's going on I didn't have any sign of active disease in my small at the time of the surgery but since I've had an attack and only have a small,.....
Hi Andrew. Actually no it didn't. I couldn't even tell it was filling up. It did fill up quickly mind you, it was only because I was lying on my bed with the bag on show I could see it was filling up. I am very glad I used drainable bags!
I appreciate your video as I'm going in tomorrow morning. (I Don't Want To) 🤮Been having a lot of anxiety. Last time Besides the Cancer, I came home with a Fisula!! I know the drink is NASTY. Starts tonight at 6pm. Eck. Yes, I want sedation!! Well, Here I go..
Hi Chris just watched your stoma colonostomy videos as I'm due to do the same this month and you have answered all my doubts apart from after you left the hospital did you drive home or did someone pick you up cheers again kev ( UK based )
Thank you for watching, I am glad I have answered some doubts for you, due to the surgery my wife took me home, you cannot drive for upto six weeks after surgery.
Does gas go into your bag after surgery ? Normally, it would release through the rectum. And, if it does go into your bag, how do you handle it? Also, do you really have to stay off work or driving for weeks just for the colonoscopy? Thanks for your help.
Have you tried to irrigate your stoma to get your output going more? I have to irrigate everyday or it does not move and I'm always so drained. My energy levels are non existent and my memory is horrible. I will forget what I'm thinking mid-thought sometimes and it's so debilitating. Getting things done for me is very hard.
Hi. I am due to see the stoma team in a couple of weeks and they are going to teach me how to irrigate. I am looking forward to it. I hope my energy levels get better aswell as my memory problems! I will let you know how I get on. Thanks for watching.
Hi Brother, love your vids Did they pump you full of gas like they do when we had a working bum? Or do they do it without inflating your colon? I am having mine this month as well through my stoma.
Gas sounds really nice. I suspect it was the resident mds first time! Nothing for pain or sedation he also did my rectum 😢 We are planning on a reversal in the near future. I believe the majority of the barium drained on the table and was sopped up with lots of towels? Not good news for my nephrostomy 😮 0/10 would not recommend 🎉
