Positives and Negatives of life with a Colostomy 

Superb video mate, very enlightening and entertaining at the same time. So pleased it's made such a positive difference for you overall and that you're able to share that in such a generous and helpful way, you're a proper inspiration dude. 🤗

Thank you. Panproctocolectomy in 15 days time for me! Much appreciated the detail about the Barbie butt - hadn’t realised the healing would be like that! I’ve struggled on for 15 years with no real remission - had to give up teaching. So looking forward to the day I feel in control and can go for a long walk without stressing about what might happen! Thanks for sharing.

Really interesting and informative. Thank you 👍

I've dealt with diverticulitis for 12yrs...3 months ago I went into emergency surgery because it perforated into my body I was in MAJOR PAIN not really knowing if it was from my diverticulitis or something else...long story short it was from my diverticulitis..the pain going through this procedure was pretty real..I was going through social media and the internet to search for answers and help on questions and found your story on what you went through and it's answering pretty much what I need to know and do to carry on with my life...Mahalo for sharing your experience and story to everyone who is dealing with a stoma and tryna move on with a sort of productive life 👍🤙

So glad I found your channel. I really need all info I can find on living with a permanent colostomy. Do to rectal cancer it seems it is in my near future. Thanks for your honesty 💙🇨🇦

Amazing what you have been through. So inspirational to see someone like you talk about it so honestly and open. Thank you. 👍🏻👍🏻👍🏻

Thank you for sharing your incredible story in such a sincere and easy to understand way. Your courage is absolutely admirable.

Thank you for sharing this information I’ve only had my stoma for 2 months….still learning.

I'm getting the exact surgery you've had in a few weeks. This was very informative and I am so glad you've gotten your life back. As for the farts, I'm going to be petrified!!! Guess I'm going to have to avoid quiet places.

Great video, thank you for sharing this! It's likely my stoma will be permanent (still have to do the chemeos first) but your video gave me much more confidence! I wish you all the best, and thank you again.

I've recently been researching getting a colostomy. I currently do ACE (antegrade colonic/continence enema) procedures and was told the benefits would be what you described as your pros of the colostomy but I have still been struggling with GI for 5 years now (had to switch to online university because of it). Despite my doctor tweaking my stoma to help with the procedures, it's still troublesome. Your video is really making me lean towards getting one in the future. Thank you so much for your perspective on it.

Fantastic video, thank you so much for sharing. I’m in the process of deciding if I should have an Ileostomy and although yours is a colostomy I found it very informative and reassuring. I currently have a somewhat ostomy, I have a apendicostomy where I irrigate my bowel (that decided to stop working altogether after a lower anterior resection) I appreciate the time you have taken to give us an insight and outline both negative/positive’s You take care and keep doing your videos you are definitely helping more than just one person 😉

Excellent video. Thank you!!

Great watch ,very informative. Take care.

Amazing video. Thank you very much.

It is a great idea to share and educate, give yourself a pat on the back from me!

I'm scheduled for a takedown next week iv had my bag for 10 months this is enlightenment

Thank you for your insights.

Cant thank you enough for this video, i have had ibs-d for 30 years, i am existing and not living, life revolves around toilets, im anxious to go anywhere different, i am speaking with a doctor soon to ask if he will put me forward to see a specialisit as i have decided a colostomy might be right for me. i am gathering as much info as i can, i didnt know about the bottom packing, that was an eye opener ! listening to you, i am sure the positives will outweigh the negatives. thank you

Very informative, thank you.

I'll agree totally with eveything youve said. I elected to have an ileostomy just as i was the same as you i'd literally had enough of it all. My colitus had flared up hugely with 20 visits to the toilet every day sometimes more, lots of blood tests, colonoscopies and hospital visits. Now i have no colitus but its the intense pain of the surgery and recovery after which has really set me back. For me ,i'd grown up with the story of ileostomies as my father had had one for 30 years and had a better life than me at over 70! Great video Sir,Thankyou

Good video and advice.

Thanks so much for making the video

Thanks you very much for this video

Love your cactus light.

Thank you so much ❤

Great video.I was lucky enough to have my stoma done after i have a spinal injury .if i didn’t have it done i would have to wait for a nurse to come and empty me every day.when i had the surgery done ,the doctor said have you named it yet.i said sorry.He then said it will make lots of strange noises and you can now blame it.😂

I feel better after watching this!🤞

Hello Sydney stoma, thanks for this video, i also have a colostomy, i have a question for you do also have crohn, s dicease? After 6years now i getting more and more problems whit my stoma, like empty the bag 30times a day that, s average. Gladly the lekage is getting less. For all colostomy humans keep fighting stay strong the sun will shine tomorrow,

21:50 it takes me on average 14 minutes to change my stoma bag, that's with having everything out and ready to go. I'd love to shorten the time as I'm still in the mindset of 'change stoma bag? That's going to take time!' I have skin prep, stoma/bag prep.. I'm not in a race but I'm curious how you are shortening the time?

Stoma nurses are terrific

Why do they leave an ope wound I uk and pack it but in the USA they sew it up?? Is one better than the other? Also what pain med would you recommend as I have a neurological problem meaning I experience pain worse than the average person 👋✌✋

Hi, I live in New Zealand, I had bowel cancer at age 46 and had to have almost all my bowel removed, They put in an internal j pouch and I have my rectum but no more large bowel. I am now facing constant bowel motions and incontenance. I saw my gasto doctor last week and they are wanting me to consider having a ileostomy bag and stoma. I am having a hard time with deciding if its best for my quality of life. I found your posts very helpful. Any Advice would be appercated Thank you.

Can you eat normally? How is your diet? I had colorectal surgery. I currently have an ileostomy which can be reversed back to my colon, however, the surgeon said I have to decide if I want to have the reverse surgery. However with out part of my rectum and lower colon ( which could result in fecal leakage ) or I could opt to have the whole rectum and most of my colon removed to stop any cancer in the lymph nodes coming back. Difficult decision. There are not many videos or info on Colonostomy, but many on ileostomy. So thanks for your insightful video. I think I might consider a permanent colon ostomy after seeing your video. With an ileostomy you cannot eat normally ( no fiber )

I received my stoma 3 weeks ago tomorrow. Stool movements are fine but having significant pain internally. How long did it take for your pain to ease? Skin I fine. This is more of an internal pain. Thanks

Do you get stomach pain and gas when a movement is working it's way around ?

Strong pain medicine? The only pain meds I could take was toradol or vicodin post colostomy and peritonitis. The pain was all consuming and horrific. I have so much anxiety to have future surgeries.

Hi. Can I please ask you. Is there any foods that one should avoid, and can you get constipated with a colostomy. I'm to have an op soon for a colostomy after 11 years of reversal I now have terrible tenesmus and I'm hoping the colostomy will help. Thanks, Shona.

I'm hoping the pain isn't going to be as much as it is now 😢.... I have to wait 18 months to 2 years to have the operation on the NHS 😢

My dad had prostrate cancer and now he is on a colostomy..

Hey Sydney Please my dad just got a colostomy and he still feels like stooling through his enus but it's fluid that comes out and it's very painful when he stands.. and how long will he start walking again?.. thank you very much for this video

My grandpa using this since 3/4 years. It's really difficult to find good quality colostomy/ostomy/stoma bags & other elements like coloplast ostomy gel & others of it because the current finance crisis situation in our country Sri Lanka🇱🇰 We are spending very much for those cause very expensive & rare to find here. I really need help from the International friends/audience to help the people who are using this with proud. I hope for your help as soon as possible ❤ Humanity is forever immortal !!!

I had my surgery 3 weeks ago spend 2 weeks in hospital had 90 stitches and a bag in icu my voice hasn’t come back properly because of the pipe down my throat in icu yes the pain is horrific I am going to see a therapist as my operation was an emergency one the pain was to much at home recovering it’s hard to get used to it’s a big thing to go through it’s the shock of it all as well

I definitely concur with the excruciating pain from the Tigerderm tape seal over a wound from the woundvac as I had when a 30 ton forkliff ran me over from behind, shearing off my anus and a good portion of my buttocks had to be debried and my foot was amputated and my other leg has permanent drop foot and a knee that doesn't bend past 60 degrees. Was in the hospital and therapy for 6 1/2 months. The hardest thing for me is that I have a fistula where the anus was and smelly mucus leaks from there extensively every morning as the DR wouldn't remove my rectal tube as it is too risky for me so I live with that. The bags smell bad once poop has been in the bag so I have a spray hose on my toilet that I extensively clean my bag with when I have a movement. Mine is not as bad to conceal but it's noticeable with a T shirt on. The postive is I don't need to worry to have a movement at anytime especially when driving rather then having stomach pains and anxiety over a accident. I just keep extra bags and wipes when I travel. I myself have had 18 surgeries and think I'm done for now as most was during that 6 month period. I have a lot to live for with 4 kids and a wife and I'm extremely fortunate that they help and encourage me to be a better person. I can't drive my vehicles or ride my motorcycles and can barley walk right now but I have all I need and maybe one day I will be able again. Thanks for your story ✌🏽🇺🇲

How long did it take you to heal?

How often do you change your bag?

Well it's been six months since I had my colostomy. And if thought my life was shit before (pun intended) it is now worse. The op may have saved my life, but?

Does your stoma make loud farting sounds and how loud is it?

Not many positives

Disliked by accident

Thank you. Panproctocolectomy in 15 days time for me! Much appreciated the detail about the Barbie butt - hadn’t realised the healing would be like that! I’ve struggled on for 15 years with no real remission - had to give up teaching. So looking forward to the day I feel in control and can go for a long walk without stressing about what might happen! Thanks for sharing.