Cranial Cervical Instability (CCI) presented by Dr. David Saperstein 

Spot on, did you ever resolve your issue?

I would like to know more about your issue if you are willing to share. I have been having problems for 2 years and so far I have no answer.

its called delusional parasitosis

Exactly, I do have Hypermobility EDS, But the doctor I went to see a few weeks ago, basically poo-pooed me off as lazy arse and said I can't be sitting around forever and wrote on my medical file that there are jobs I can do. Meanwhile giving me diazepam sent me on my way. I've been getting as far back as 2018 and before. Repeated chronic headaches, from the base of the skull pain going down the neck into the Scapula., shoulders and down arms tingling fuzzy fingers, Tinnitus, pain behind the eyes, Pressure in the skull.. sweating, more than Usual blur vision. dizziness, vertigo and unbalanced walking, and digestive issues. I cant turn my neck left or right and it is very painful doing so. I Realise that this is not going to be easy trying to get any of these local GPs to take my symptoms seriously. I was given a number to self-refer myself to physiotherapy.. She had it in for me from the minute I said I needed a sick note. Even Accused me in words, It became apparent she was here for a sick note. Also said she didn't have time to look at my medical file, but when I checked my medical file she had put EDS not seen on file.

Perfect explanation reminds me of such I’ve had to pursue my life through. Rewarding them GP for writing prescription… is inhumane and they know it. Even specialists hold back proper investigation/treatment. I asked a neurologist for over 2 years to look into my neck, or autoimmune in case since the steroids I got abolished all symptoms and even had me seizures free for about 2 years straight, nothing seizure meds did for 10 years straight. They seen hydrocephalus on my scans over 10 years ago now, at about the 10 year mark my headaches had intensified I had added dizziness and immense pressure in my head. All ignored and just said by DOCTORS and neurologist to be epilepsy. When I landed in the hospital my DOCTOR seen I had huge ventricles… I mean if anyone in this country feels safe with whatever health services they get, they’re probably not seeing things through well enough. I seen 4 ENT Specialists and 4 neurologists. I felt a sense of unproven direction from such people. I’m in Ontario Canada.

I have all the symptoms except the fast heartbeat (tachycardia). Instead of fast heartbeat what I have is what seems like heart palpitations that come and go. Other than that I have all those symptoms and more but I haven’t been diagnosed. 2 years of doctors and nothing.

Me Too!

How are you now?

No change@@tara7206

Yeah same with me. My life is absolutely miserable now. I’m in bed nearly 18 hours a day. I’m not sure how much longer I can keep at like this

​@@someonewhoisyou4643I understand too well.

I was going to send my 84 year old mother to a chiropractor to see if she has CCI ...maybe not then.

How are you now ?

You're welcome. Can you please clarify the question?

Thank you, I meant to say, do CCI cause white matter?

Find a good Upper Cervical Chiro. Try the Centeno Schultz Orthopedic Specialist who embrace Upper Cervical they're based in Denver and have specially trained real experts in various areas. PT is not always the best because one size does not fit all ! You need the highly specialized who truely have expertise in head & neck injuries and the harm done by long term lack of expert care

@@anitabarnes3114 thank you, sadly I’m based in the U.K. so can’t check out the recommendation, but I’ll do some research for local ones,

Im sorry to say, it may well be that most of your symptoms are rooted in the Upper Cervical distorted alignment, and only the specialised trained in UC know how to help you. The reg PT may do more harm unknowing. This was originally discovered by MDs in London so you ought to be able to find help. Keep searching CCI experts, or upper cervical experts. Warm regards

From vax???? I do too. And you are the first that has mentioned bending over issue

​@@Kelly-im7ec I get severe pain in neck about 25-35% percent of the time other times it's milder pain and not as debilitating. When I get severe neck pain I get headache, nausea and dizziness and occasionally ringing in ear. Bending over sometimes will trigger the neck pain and headache.

Sorry to hear you are going through that. We aren't aware of anyone in Indiana. We do see patients from out of state often. We have a hotel partnership with set lower rates. We can do telemedicine. However, state medical board regulations require the patient be seen in our office at least once first and once annually for ongoing care. If you'd like to discuss this further, please reach out on our website using Klara; a HIPAA-compliant way to communicate. bit.ly/CranialCervicalInstability

Injury during birth.

We are located at 1010 E McDowell Rd, Phoenix, Arizona. We often see patients from Texas. Contact us on our website using Klara; a HIPAA-compliant way to communicate if you'd like to inquire more. www.complexneurology.com

Mold can cause it

​@@robertwilliams5618 mold can cause this? 😮

@@robertwilliams5618 Can you elaborate further.

Yes, osteoarthritis.

howto reverse it

Sorry to hear you're going through that. We do offer second opinions if you're seeking one. Otherwise, you might check out our video on coat hanger pain and Dr. Saperstein's recommendations.

@@centerforcomplexneurology Thankyou I will have a look

Yes please don't do it I didn't know I had cervical instability and I pulled myself up on an out-of-reach ladder at a wave pool (so basically I did a pull up) and I got very disabling symptoms that continued to get worse and worse with ANY physical activity even mild dancing and stretching. I found an excellent upper cervical chiropractor who started saving my life and I am soon going to get prolotherapy at Caring Medical, Ft Myers Fl

Please please let us know how it goes prolotherapy at Caring Medical, Ft Myers Florida. I have been trying to find someone to go with with me to get prolotherapy at Caring Medical for over a year. You need a companion to be accepted. Please what are your symptoms? Are you on the west coast? Who is your excellent upper cervical chiropractor who started saving my life ? What did they do for you? @@JacksonStar4757

Please keep us updated. Where is your chiro located? I’ve been suffering with this since 2007. It’s only getting worse!

Don’t do weights! I just really screwed myself up doing dumbbell front raises and developed tinnitus and ear fullness. It’s not worth it. I’m going crazy now

@@TheFortissimo1 I'm so sorry yes it's horrible when I found my upper cervical chiropractor I was in such bad shape I couldn't even walk half a block without about having a seizure idk if I actually had one or was just close to it and also could not carry a purse, drive my car or even dry my own hair. My UC is in Bridgeville, Pa. After almost 3 months of getting my atlas adjusted I was able to drive, fix my hair and do very minimal work and housework but still cannot lift or carry anything over a few pounds and have to watch my every move. I saw Dr Hauser in Feb he recommended a neck brace which has helped a lot but still not a cure bc anything I do with my arms makes me significantly worse. My first prolotherapy is scheduled the first week of November and I plan on documenting my progress on my channel! I'm a bit scared ofc I heard it's a painful procedure and a rough healing process for some ppl but I have to do something I can't keep living like this I'm only 36 yrs old n feel like I'm 90 and all the other drs wanna do is give u medication they don't even wanna acknowledge that I have a neck injury 😡

???

@@DynamicUnreal Ligaments are more prone to tearing due to this class of antibiotic.

@@beutel6116 During or anytime afterwards?

Unfortunately, we do not. However, we do see patients often from out of state. We also have a hotel partnership for set lower rates. If that is not an option, you can check the Ehlers Danlos Society's website where they have a list of EDS providers and one might treat this.

ask Myle Koby in Maryland. expert radiogists. i saw Dr. Hooly gilmere. then nurse in Ann Hoarbor. then seasonally mailed in scans adn reports to Dr. Farzser Cumings Hendersen sr in Md. then I had ict with Dr. Paolo bologneses in Ocensside. NY.

How do you know?

Because I have a brain and I can understand the body and how it works...…..(CCI) is a condition were the ligaments that hold the head on the neck are laxed/loose or overstretched. This causes instability, i.e the bones move to much whiles in motion. As you have lots of important nerves their, they become irritated and pinched. If your vegus nerve gets hit, you get POTS and all sort of symptoms were that nerve is going, your heart, headaches, brain fog, digestive issues. The only treatment is to treat these ligaments with regenerative medicine using PRP or Stem Cell therapy. This then tightens and strengthens the ligaments eliminating the instability your nerves don't get pinched no more and then healing can start and symptoms go away. What does Physical therapy do? may give you temp relief like chiropractic that's it!!!!! its not addressing the cause and fixing it!!!!!!! WAKE UP that's why they ask you to keep coming back.........its like taking paracetamol..... THE BEST SCAN TO DETERMINE YOU HAVE CCI IS THE DMX SCAN WHICH SHOWS YOUR BONES IN MONTION. PICL is the only real treatment for CCI.......Surgery is not recommended. centenoschultz.com/treatment/picl-procedure/ @@DynamicUnreal

Hi, could you please elaborate