I was diagnosed in 2009 with a chiaris malformation I also have loeys dietz syndrome type3 which caused an aortic aneurysm that year its a very rare disease
Surely there is someone in Lexington or Louisville? If not try the Mayfield Clinic in Cincinnati Ohio- a long way to go but your life is worth it. Prayers in the meantime
do u know of any Dr who treat/specialize in chiari I live south central ky n can't find anyone to help me the last two neurologist I've seen tried to kill me. I've got two young kids that need me around so I need to get better for them any help will be appreciated thanks
