Dealing with Loose Ostomy Output (When It's Already Happening) | Let's Talk IBD

Подписаться 218 тыс.

Просмотров 20 тыс.

50% 1

Loose and watery ostomy output is annoying to deal with, particularly when you're away from the home! Here are some tips I've learned over the years!
Using Diet to Manage Output Video: • What I Eat in a Day wi...
𝙎𝙩𝙪𝙙𝙮 𝙙𝙚𝙩𝙖𝙞𝙡𝙨:
csuci.qualtrics.com/jfe/form/...
We're looking for participants who:
(a) Are 18 or older,
(b) Have been diagnosed with Crohn's disease,
(c) Own a smartphone, and
(d) Live in the United States.
The study involves using a mobile app for 15 minutes daily over two months to track your symptoms. In return, you'll receive six months of free access to a chronic illness tracking app.
★ Consider donating your 𝙪𝙣𝙪𝙨𝙚𝙙 𝙤𝙨𝙩𝙤𝙢𝙮 𝙨𝙪𝙥𝙥𝙡𝙞𝙚𝙨 or 𝙛𝙪𝙣𝙙𝙨 to Friends of Ostomates Worldwide! www.fowusa.org/donate/
For 𝙗𝙪𝙨𝙞𝙣𝙚𝙨𝙨 & 𝙘𝙤𝙡𝙡𝙖𝙗𝙤𝙧𝙖𝙩𝙞𝙤𝙣𝙨 requests ONLY, please reach out at maggie@redefined-agency.com!
𝙒𝙤𝙣𝙙𝙚𝙧 𝙬𝙝𝙖𝙩 𝙄 𝙪𝙨𝙚 𝙛𝙤𝙧 𝙢𝙮 𝙫𝙞𝙙𝙚𝙤𝙨?
◈ Camera: amzn.to/3QFyF6P
◈ Vlogging Microphone: amzn.to/3SogUdr
◈ Sit-Down Filming Mic: amzn.to/49g03j4
◈Music Software: share.epidemicsound.com/2vs2jc
◈Editing Software: Adobe Premiere Pro
𝙇𝙤𝙤𝙠𝙞𝙣𝙜 𝙛𝙤𝙧 𝙬𝙖𝙮𝙨 𝙩𝙤 𝙨𝙪𝙥𝙥𝙤𝙧𝙩 𝙢𝙮 𝙘𝙝𝙖𝙣𝙣𝙚𝙡?
◈ Become a Channel Member! / @letstalkibd
◈ Intimate Rose Get $5 off Coupon at www.intimaterose.com/?ref=LET...
◈ Let's Talk IBD Gear www.letstalkibd.shop/
◈ Amazon Favorites www.amazon.com/shop/letstalkibd
Links within this description may be affiliate/sponsored links in which I receive compensation from purchases made. Thank you for supporting my channel!
*This video is not meant to diagnose or treat any illness or condition. This is for entertainment purposes and to get you thinking! Please ALWAYS refer to your physician for medical care.
Having difficulties hearing this video? Please click the "CC" button on the bottom left of the video screen!
Hi, I'm Maggie and I have Crohn's disease. I am thrilled to be here sharing my personal experiences with Inflammatory Bowel Disease as well as living with an ostomy. I'm proud to share a little bit from a clinical experience as well, having worked as a GI pediatric nurse and ostomy telehealth nurse. I am so glad you are here. ♥ #ibd #crohnsdisease #ostomy

Опубликовано:

15 июл 2024

Ссылка:

Скачать:

Готовим ссылку...

Добавить в:

Мой плейлист

Посмотреть позже

Комментарии : 87

@LetsTalkIBD 24 дня назад

𝙎𝙩𝙪𝙙𝙮 𝙙𝙚𝙩𝙖𝙞𝙡𝙨: csuci.qualtrics.com/jfe/form/SV_8vjY6aSQXWhoI3s We're looking for participants who: (a) Are 18 or older, (b) Have been diagnosed with Crohn's disease, (c) Own a smartphone, and (d) Live in the United States. The study involves using a mobile app for 15 minutes daily over two months to track your symptoms. In return, you'll receive six months of free access to a chronic illness tracking app.

@ireneferrante2313 16 дней назад

Retired nurse here,you are doing a wonderful job here! Giving honest much needed helpful information. I have recommended your channel to my co-workers and patients! Keep up the good work! ❤

@michaelandkrystaltucker6091 22 дня назад

Newer subscriber here. My mom got an ostomy at the end of last year after radiation and just had a corrective surgery to it this month (her stoma retracted in and needed to have it pulled forward at least flush again). I've been loving learning more and sending her your videos. It's been a difficult adjustment for her but I like having some understanding of her situation to better support her.

@michalinabliss8984 21 день назад

My husband has died but there was a time in his life when he had a temporary stoma and there was very little help available. Thank you for what you’re doing.

@Julie-ys3qz 18 дней назад

💔

@karencull9518 22 дня назад

I always wear high wasted jeans no matter the consistency of output. But when it's loose, I slow down the fluids I drink and get in lots,of starches. BTW Maggie, you look so cool and comfortable.😎

@marciadichiara5688 22 дня назад

You are wonderful with explaining all. To all who suffer my prayers go up for you. Lost my sister due to crohns and gastroparesis side effects. U are all warriors

@modernenergy682 22 дня назад

I don't have an ostomy but re: biker shorts. I personally wear shorts from Thigh Society. They are pricey but I have had mine for a couple of years. I have the "cooling" kind. They are very soft, stretchy, absorb moisture and keep you cool. They also come in different colors and lengths. I think they will be perfect for people with ostomy.

@emilyscarborough60 22 дня назад

My Doctor told me I could take immodium was very loose. Actually Amazon has plenty of immodium at $11 a box. I scrolled down and found Anazon's brand. The ingredients were EXACTLY the same only Amazon brand was $3.75. quite a SAVING!

@helenm6474 20 дней назад

Imodium has never done a thing to change my output, I don’t know why as it seems to help a lot of people, but glad you found a cheaper supply

@ibdandme 20 дней назад

Immodium does not work for me at all, but I found Psyllium Husk powder works for me, I mix it with a bit of yogurt.

@tomistartzman7355 22 дня назад

Hi, I have to tell you, I use the higher waist underwear. They provide some security with the bag keeping it tucked closer to my body. Works really well. Since I am new to having a colostomy, I appreciate all your suggestions. They have truly helped me.

@kimberlyshirey5741 22 дня назад

The Walmart panties work great! My wound clinic nurse told me to get some & try them So glad i did Cause they also worked for me when i went from just wound Packing to having a wound vac ( By the way i hated that) So girl get you some of those Walmart panties You won't regret it 😊 And i live in Georgia And Yes the heat here is Miserable!!! Always glad to see your updates & Videos!! 🩷🩷🩷

@jean-marieharris4201 22 дня назад

I use high waisted underwear but I also have a Stealthbelt that I wear 90%of the time. That was a game changer for me.

@cgomez77 24 дня назад

Thank you for thinking of so many relevant topics and bringing them up!!!

@Sandgee62 22 дня назад

My go to is ileosorb gel packets. Has saved me too many times to mention. I have short bowel syndrome and must hydrate a lot. Tried all the other ideas to thicken, the packets for me are by far the best. And yes, just a bit of air does help make things fall better.

@louiseperry6643 22 дня назад

I've had my stoma for over30 years and l still have struggles, and awful days nothing gets better still have leaks.

@gildamolinar5155 22 дня назад

😢

@ShyAnn291 22 дня назад

I’ve had mine for 24 years, and I also have leaks sometimes.

@menmykrazycat8129 22 дня назад

Thanks for all the info Maggie, you’re the best 😊 On the topic of not eating before (fill in the blank lol). I’ve had a (retracted) colostomy for almost 3 years, it took me a long time to figure out which flange, barrier rings, paste worked for me to prevent leaks. That being said, my stoma is hit or miss as to when it’s going to be active & doesn’t correlate with really anything. If I was standing up to a wedding or was flying somewhere, I’d feel more confident knowing it wasn’t going to do its thing at a bad time, so I’d refrain from eating much. To thicken it up, a banana & a piece of white bread with peanut butter works great. To thin it out I do watermelon & a couple bottles of Gatorade Zero. Within an hour or 2, both work like a charm. 👍🏼❤

@nadinecooper8709 22 дня назад

Maidenform boy shorts underwear are the best. They go over the ostomy bag and also then there are no "pantylines." They hold in the ostomy but they are also cute!

@lohikarhu734 20 дней назад

You are a very cool person! You talk clearly and openly about a topic that is often a 'problem' for people to discuss...good on ya!

@lisasallery7860 22 дня назад

My trick for a loose output is a bowl of instant porridge. Oats so simple makes perfect sachets for 1 portion and it can be microwaved in 2 minutes. Starving is no good as it just makes your output like water. I’ve tried marshmallows or jelly sweets.

@jodil1209 21 день назад

I am learning so much from you and I am pretty new to this. Thank you so much for making these vlogs.

@melsattitude8668 16 дней назад

I so appreciate these videos.

@katrichards1495 21 день назад

I had an ileostomy in 1986, set up a system that somewhat worked for me. I am amazed by the advancement in care since then. I so appreciate your video as well as the suggestions from your commenters, and will try many of them soon.

@karenshepler7128 22 дня назад

Thanks for sharing with us 😊

@melaniethies379 22 дня назад

Hi Maggie it was so nice to see you

@ibdandme 22 дня назад

I know exactly what you are talking about, I also have very loose output, and yes it tend to burn the skin much quicker when it is so loose. Thank you for the video. ❤❤

@LadiiieS 20 дней назад

Calita Intimates is my fave underwear brand! I switched exclusively to their high waisted boyshorts and they are super comfy and work perfectly for ostomys! Canadian, women owned small business so its nice to support.

@sheribayens4898 22 дня назад

Hi Maggie! I have a permanent ileostomy that I received in 1996 at the age of 17 due to Crohn's Disease. In terms of "hiding" your appliance when you have high output, have you ever considered investing in special ostomy underwear called "Ostomates?" They are a game changer with keeping your appliance separate from your skin. They help with panicking as well. Wearing regular underwear causes sweating between your appliance and your skin. Regular underwear also just doesn't work in hiding my appliance. My ostomy underwear hides my appliance so well people don't believe me when I tell them I have an ileostomy!! I hope this helps!❤️

@ShyAnn291 22 дня назад

Where do you get them?

@sheribayens4898 20 дней назад

@@ShyAnn291I get mine online. There are many companies that sell them online, but I get mine from a company called Ostomy Secrets. Go check it out!

@davidlaroche4537 22 дня назад

As a guy, I use suspenders since a belt presses right where my colostomy sits. Very uncomfortable. Your suggestions are helpful. I also find that what I eat affects my output. Mushrooms are the worst since they blow up my Ostomy bag like a balloon. I avoid them…❤

@TallulahMorgana 22 дня назад

Just started the video, you mentioned a heatwave whereas here in England it is cold, with temperatures below average and still wearing a winter/Autumn coat in June! x EDIT: okay so apparently this week is supposed to be hot for us, and I confirm that my walk this morning was warm!

@danas.daily.digest 22 дня назад

I use Walmart high waisted underwear almost daily! It’s just the right amount of support and not too hot in the summer!

@terria3648 22 дня назад

Wish I could wear regular clothes I have parastomal hernia that I had surgery for last June that let loose 24 hours after surgery and the mesh wrapped around the bowel. Couldn’t eat or drink anything for a week before they figured out what was wrong had to have the surgery again a week later and now have another hernia and was told they probably won’t do surgery again. So the right side of my stomach sticks out and very difficult to wear clothes like I did before. I had ulcerative colitis.

@wondertwin13 22 дня назад

Were in the same boat.

@mimmie-qj2ti 22 дня назад

I also have a hernia under my stoma. The left side of my belly sticks out a lot. I’m very conscious of it too. I try to wear tops to help cover it. My boyfriend is very supportive and he cares about me so that helps!

@darlagreene2805 21 день назад

Same issue but left side.

@lolal1026 21 день назад

Hopefully there's someone out there who can design some type of undergarments for those who have ostomys

@michellegallick5719 22 дня назад

I think I know the Wal-Mart underwear you’re talking about! I don’t have an ostomy but wear them and love them. So comfortable! I hope you are able to try them and they work for you.

@alfredorodriguez3078 22 дня назад

You should try the brava protection sheet from Coloplast I bought a hole punch that I use too cut the sheet into a nice circle and I have no leaks at all and my ostomy last one week before I change to a new one and I shower with it and it never peels off

@mandybarnett3647 12 дней назад

You do a great job here! I found that Knix smooth wear ( primarily for minor leaks). They are comfortable and moisture wicking is something I advocate! The bras..meh...but for ostomy..it's all about the Knix..the smoothness of them and great stretch at the top and you can really be a bit more comfortable..the ostomy seems to fill without issue. I went to a normal pantie. Like no spanx ! I think that having the ostomy on the outside of the pantie..less sweaty moments..and honestly I empty as much as you from this description...yeast likes skin...and creates sores! I get more that way than from leaks. The Diamonds for the extra time...awesome! I told my hubby that due to recent CoVid issues it was better to change an ostomy than wrestle the potty papers! I said men have things a little easier...he got me a little urinal that is small..and I carry it on hikes. No more trying to " time" everything all the time!

@jmiller92027 21 день назад

I don't have an mating but I sure know what it is like to have a leaky output. I have a drain for bile that puts out 1-2 liters each day. My bag broke at the grocery store last week. That was a fun one. ❤

@saraha3556 22 дня назад

I love your dress! Looks comfortable too!

@jodij6280 22 дня назад

I'm in a wheelchair and getting on a plane at 11 am for a 3 hour flight. My stoma is active on and off for 3 hours after I eat. Which means I would have to eat at 8 am. I'm not hungry that early and the thought of eating just to eat is unappealing. I could eat something I know would probably be okay but I'd be stressed and that also triggers my stoma. So I might as well just wait until I get there.

@shenazpatel8195 22 дня назад

Hi Maggie Lomitil also helps control diarrhea!!! Loose bowel...gels are awesome!!! Thanks

@CattyT1 22 дня назад

My colostomy usually is well behaved with a change once a day Unless I’m out with friends when the minute we arrive somewhere the bag fills and blows up, threatening to explode! How does it know!

@joanieroten8648 22 дня назад

Can you share the link of the underwear from Walmart or do a video sharing garment you feel help like you use to do in the past? Thank you ❤

@aspin63610 2 дня назад

I can’t stand high wasted clothing because it always seems to sit on my stoma. Though I have found for the summer maternity shorts that the waist comes way up over my stomach and is stretchy and supportive. Otherwise I have found loose dresses comfortable. My scrubs are also comfortable but I usually push the waist down so it doesn’t rest on my stoma

@nooralhuda8124 22 дня назад

Good luck I wish there was a translation for your videos, iam kurdish I can understand English but a little.

@melodysmithey3172 22 дня назад

I have IBS and I am going for a colonoscopy after my last one in 2019. Kinda nervous about what they might find.

@DunoonVanRijn-dx1hr 24 дня назад

❤

@lesleyharris525 19 дней назад

My best tip is jellybabies, the gelatine will thicken the output.❤

@ghost105st 21 день назад

It Is hot in New Mexico albuquerque USA

@richkerr8589 22 дня назад

its been fun over here in Oakmont ,Pa with this heat !!

@exit1983 22 дня назад

Yup here too, in north Jersey yuck!!

@carolinecoughenour2547 22 дня назад

I am from Pittsburgh too!

@cherylhurst7093 22 дня назад

I live 35 miles.east of Pittsburgh. Sweltering and the flies are awful this year. I am In a rural area.

@stardecelles1720 22 дня назад

I had IBS all my life but in November of 2022 I had emergency surgery due to blockage according to the doctors . Was in coma for 3 weeks had a vent a tracheotomy was in hospitalization for 5 months and have had 3 more surgeries plus in and out hospital throughout that time with sodium dropping and dehydration .so I am curtly fighting to get my Ileostomy to thicken which is hard so any ideas would be appreciated ❤️

@touriamira8053 22 дня назад

May I ask what exactly had caused you that blockage ? Get well soon 🙏🙏

@fredjones4163 22 дня назад

I have found porridge and banana for breakfast and flapjacks during the day with another bowl of porridge before bed very helpful for thickening my output. It is so individual. Hope you find a solution that works for you and sorry you have had such an awful time. 🇬🇧❤️

@jackielong9927 21 день назад

🙏🙏🙏

@streetsvillecc4812 22 дня назад

I’ve had my ostomy 14 years I have a huge hernia it’s heavy ! I have very loose every now and then no reason that I have found it just happens .

@alfredorodriguez3078 22 дня назад

My output is super thick barely any liquid in the bag

@streetsvillecc4812 22 дня назад

What can I wear for a hernia ?

@thewisepowerchair2369 22 дня назад

Maggie, different subject entirely. Have been sampling colostomy bags. The pelican platinum two piece. I blew into the bag.The vent does not work. I like being able to put my fingers under the ring on the baseplate. Starting from the top, press all the way round. I found a section at the bottom did not clip onto the ring. When I tried the other way, from the bottom upwards, there was a section at the top that would not clip in. Any ideas, Maggie? I felt disappointed. Coloplast never sent any bags. Not too keen on their customer service. Convatec. Two-piece.You cannot put your fingers under the baseplate. I do not as yet have a stoma (been let down twice). I put the baseplate on my abdomen and gently pressed the bag on, which never attached and I had to press harder which caused me pain. Convatec one piece. I like this bag. I could not do a blowtest as the hole in baseplate is wider, but I like how the material is attached to the vent and has slits. I also like that there is room for two or three faecal movements before one would need to change. I plan on seeing what barrier rings Convatec have.

@beckyearlene7282 22 дня назад

I am getting one soon because I have water bowels and incontinence bowel and urine. I'm scared to death cause mine is always water and a lot

@beckyearlene7282 22 дня назад

My bowel died from Blunt force abdominal injury from hit headon by drunk driver

@JL-fh3po День назад

I have an ileostomy. Whenever I eat my lunch and dinner, my stoma will discharge water fast & furious amounting to 250 ml to 300ml and has to empty the bag immediately (often has to stop my meals to drain it). I tried taking 2 Loperamide and 1 Lomotil pills 30 minutes before food but it doesn't help. Does anyone has the same issue and how to do resolve it?

@robinthornton8282 22 дня назад

After my c-section I couldn't stand bikini panties anymore, so I wear me some grannie panties! Lol. They're more comfortable for me and they give you support for your ostomy. IMO

@malinnesse3876 22 дня назад

☀️🌼

@virginiahamel8973 22 дня назад

Try marshmellows

@chrisjohanson9284 22 дня назад

🙏❤️👍😊😎🌞🌹

@user-xk8xu8dq3i 22 дня назад

@hossin_m_16v.. 13 дней назад

سلام من میخوامت❤❤❤❤❤

@wondertwin13 22 дня назад

Also, Amazon sells packs of high waisted thongs😊

@user-vq1wv6jt2t 6 дней назад

I don’t get why you are concerned. It’s not going to affect you…just means PIF finally have the power to build a new stadium and splash out on top players to bring success faster. If we break ffp rules, let’s worry about that in the future. Get over yourself. You go on about wanting to win things. Now is the chance. If you don’t like it then go and support another club. Amanda has done the job what she was brought in to do and she done a great job. She is responsible for her own finances and has nothing to do with the club or the fans. You don’t know what has gone on behind closed doors. Stop scaremongering fans. Ffs.

@LetsTalkIBD 6 дней назад

I'm very confused... assuming this comment is not meant for this video?

@josephferrante713 11 дней назад

During the four months I was outfitted with my ileostomy I had several accidents mishaps or whatever you want to call them. The worst one was when one night I wasn't fully asleep I rolled over in bed and the seal between the bag and me just burst and I had liquid poop EVERY WHERE. It was all over me my hands my legs my torso my face just about every square inch of the bed sheets were soaked and the smell I don't have to say anymore about that she came downstairs and help me clean everything up. You want to know how I dealt with it I laid on the bed and cried like a baby

@fredjones4163 22 дня назад

I was diagnosed with IBS in 2013, I kept going back to GP and was once referred to a gastroenterologist. The pain got worse and worse then inflammation skyrocketed. GP referred me back to the hospital last year and this time I had MRI and CT scans along with colonoscopy’s. Told I had Crohn’s disease not IBS. Things got worse and I ended up having emergency surgery for an enormous bowel blockage caused by the untreated Crohn’s. Now I sport a temporary ileostomy. I have really high and loose output which is managed with a high dose of Loperamide and smaller dose of codeine both 4 times a day. I have electrolyte drinks too to ensure the health of my kidneys. I have more recently found that a bowl of porridge and a banana for breakfast really thicken up my output and through the day if things do get a bit loose I eat oat flapjacks. I end the day on another bowl of porridge to ensure thicker output overnight, less time getting up and going to the loo. I’m now reducing the loperamide slowly. None of the suggested foods (jelly babies, marshmallows or raw jelly) worked for me.