Such a great video. Tip #1...yes! Only recently did I realise the importance of showing up as-is so my doctors can see every little symptom like the dark circles, skin colour and nail beds.
I am a rheumatologist giving a talk on this very topic for the Sjogren's Foundation in a few weeks (the conference is also on POTS and related disorders). I stumbled on your video. Great tips and it is, of course, very helpful to hear veteran patients' experiences and recommendations. Thanks and hope your health continues to improve. Keep giving back!
Thank you so much! I have POTS and Fibro and was on medication in my country. I just moved to the US. And I am scared of my first appoitment. I left my cardiologist and internist back in my country and I just don't know how to start :(
thank you for the tips!!! I got injured at work and i couldn't use my right hand! I would always show up to my doctors appts in slacks and cardigans and some makeup. Its easy to apply foundation with my left hand and mascara too, but my doctor told me that i looked pretty great for being in pain, after this comment i was like hell no! So i stopped going in my work clothes and stopped trying to look "ok" now i just go in like jeans and dressed down and don't try to look as good!
