Having chronic illness has made me feel like dating is too hard, and it is easier to be alone.

How do you find people dying from terminal illnesses? Not people with just illnesses, but people that are guaranteed to die within a certain amount of time from their illness.?

omg i’m in san diego and looking for a cardiologist for pots

PLS make a video about, how does POTS affect Bp with positional change? also, is it possible to have high BP along with POTS? PLS,

Vaccine

Y’all are both so beautiful and so sweet to share you journeys with us. How wonderful to be on this journey as sisters! God bless you both! ❤

No way thit happening at my doctor's office she never ask questions.

You both talk over each other so much it's hard to listen

huh, well, I guess since I was just diagnosed, I should tell my brother, who has been telling me he gets dizzy for ages. Sisters, hey. gosh. I guess that's a family link that supports a genetic root cause, maybe.

Glad I found you! I have POTS,EDS hyper mobility, and Dermatographism, so pretty positive Mass Cell. Trying a low histamine diet now, it’s day 2. I’ve been in a lot of pain and my POTS symptoms are through the roof. Hopefully this diet will help.

Hey, Tres, Good to see you

This is exactly what I am going through right now. It feels like I can’t eat anything. And I’m always anxious with that feeling like my throat is closing. Thank you so much for sharing. This is so helpful!

Thank you for sharing your stories with me. I have EDS and Epilepsy and they both are challenging at times. I either subluxation or dislocate or I have to deal with seizures. My neurologist is the one who diagnosed me with both of them.

Ladies. We have to detox our livers!!

Hi ladies. Great video. Im ugly because of my histamin bucket is full. But soon I will be pretty I hope

I think honesty is the best policy. It feels wrong to hide it in order to get someone hooked on ur personality first. There's like 3 days each month i can get out of bed, so this probably isn't for me anyway.

I can relate to so much of what you said! Not diagnosed yet but I know this is it because only atarax helps and a lot of my issues went away when I learned about histamine and started a low histamine diet. It’s still confusing…like I bought two mangos from the store, ate one that very day and I was fine. Ate the second a week later and my mouth was burning and my throat felt as though it was swelling up a bit. I guess that weeks time of sitting out was enough to raise the histamine It’s scary. Then sometimes I plain forget about what’s safe- ate ham (smoked meats are high histamine) and got quite sick. Too much physical activity brings it on as well. What is causing this!!? Why do so many people have it!? Also, what was the medicine your doctor put you on? Do you think it made a lot of difference for you? I take atarax, but sometimes it barely helps.

Great video, I’ve watched it multiple times . I love how both of you are well spoken on these topics. It’s very important to have these conversations. I wasn’t diagnosed with my chronic illness until my late 20s, trying to work without understanding, communication and reasonable accommodations. Burned me out and hurt my reputation.

I did not get diagnosed with Ehlers Danslos Syndrome till I was 68, but learned that 2 common issues sern in people with that are POTS & MCAD, both of which I have. POTS is under control now that my inflammation is better controlled. I wish I had known about the EDS when I was younger, I am nearly crippled now from repeated joint injuries. So perhaps, ask your doctor to send you to a geneticist for evaulation. The Ehlers Danslos Society has lots of videos on YT & their webpage about it too.

I went through hell for 8 years after I was diagnosed with fibromyalgia and dermatomyositis. My family on my father and mother side have allergies since birth. I had severe allergic reactions to pork, chocolate, milk, peanuts, but fine with any other nuts, alcohol, animal fur, feathers, smoke, cold weather, etc. The list doesn't end. I passed most my life with all kind of allergy symptoms although I never had asthma. I was always passing out. Eleven years ago I woke up paralyzed. No strength in my muscles. I had fibromyalgia and dermatomyositis. Well I was allergic to all the treatments that is normally use for these conditions. These treatments caused me diabetes, blindness, an enlargement liver, migraines and a lost of 50 lbs in 4 days. Foward 8 years later I found a Primary Care Physician that specializes in difficult cases. It took her less than 10 minutes to tell me I had Mass Cell Activation syndrome, EDS, Pots, Dermatomyositis and fibromyalgia. She had read my Hospital Records with all test results prior to see me. I was already in a blocker A and b cause my Insurance didn't cover my meds for Dermatomyositis. However, she added the Cromolyn as an inhaler and also ingested. Also, advice me in how to manage my Pots, EDS lymphedema. It took 8 months with low histamine diet, supplements, certains exercises, massages but I feel much better. I look back to my life and I can't believe that I was able to endure so much misery fir such a long time. By the time I wasn't able to move my body was giving up. I am so incredibly happy that I was able to find a doctor that helped me so much in such a short time. My other Doctors were very great but had no knowledge of why I was allergic to everything or how could they treat me. At least they bought time until I was able to find my new Doctor. I don't look disabled, and people get very confuse when I say I can't participate in certain activities or eat certain food. And is something that I have to deal constantly even with other Doctors. At least I have the strength and the clarity now to defend myself.

I think I have this to a lesser degree. When I was 18, I was bitten by a tick and contracted Lyme disease. I spent the next couple of years, pretty sick. It started with GI issues. Chronic constipation that was set off by a myriad of food intolerances. Severe gluten sensitivity. Soy intolerance. If I ate at a Chinese restaurant, I was sick for days after I'd eat. I eliminated gluten and changed my diet. I lost weight and started feeling better after I "recovered" (or so I thought) I'm in my mid 30's now and I'm experiencing a lot of very weird symptoms relating to MCAS. I'll have different symptoms that usually take 3-4 weeks to resolve. A couple of years ago, I started drinking a lot of Kombucha tea and eating Kimchi (both fermented and high in histamines). I was putting my body in shock. I developed globus pharyngis. It's the sensation of having a lump in your throat (though nothing's there). That finally went away, but I would notice random different parts of my body being affected by different things. There'd be times where I'd have severe insomnia which nothing I took, helped that in any way. Then I'd have periods of having really irregular heartbeat/palpitations. Then that would go away and I'd have abdominal bloating or diarrhea. Once that resolved, I might have bladder issues or skin rashes. These ailments were never at the same time. They'd move around, appear and then leave as quickly as they came. I still have severe seasonal allergies and allergies to dust mites. I'm currently dealing with random numbness and tingling in my extremities. Occasional muscle fasciculations (twitching). I've started to eliminate high histamine foods and take anti-inflammatory supplements such as Quercetin, Vitamin C, Curcumin, and Luteolin,

Great advice. With my fibromyalgia the hardest part for me is maintaining my quality of work with chronic pain .

Been 10 years of no help from drs. They said it's just stress . Thank you for videos

Simply amazing!!! I needed these reminders. Especially on not wasting energy and feeling guilty for not helping everyone clear up as much as you'd like. I swear this could be so helpful to so many people! Thank you so much for spending your valuable energy making this :)

Hi, I’ve got horrendous hives all over my body - I’m almost certain it’s due to stress. So do you think I should go on the histamine diet - be strict? X

Thank you so much.

I was thinking about using a cotton sheet instead of clothing

I am a rheumatologist giving a talk on this very topic for the Sjogren's Foundation in a few weeks (the conference is also on POTS and related disorders). I stumbled on your video. Great tips and it is, of course, very helpful to hear veteran patients' experiences and recommendations. Thanks and hope your health continues to improve. Keep giving back!

Thank you so much! I have POTS and Fibro and was on medication in my country. I just moved to the US. And I am scared of my first appoitment. I left my cardiologist and internist back in my country and I just don't know how to start :(

What protein do you recommend? I feel like I'm not eating enough.

Do you take any supplements to help your gut? Or flushing symptoms?

Can you take enzymes? Would that help or make it worse? I know I have this but the test is hard to diagnose 🙏

Good video. But, the volume on phone is at its highest and your voices aren't loud enough. Project your voices more and speak louder in the future. :)

I just found your channel and I wanted to thank you because I found it really comforting.

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How is ur pots

Which brand of yogurt does NOT contain S.Thermophilus ?

I think I may have this. I also have POTS. Could you please link your list of foods that you eat to lower histamines? The link above and in some comments do not work. Thank you!

Hi ladies!! Thank you so much for your wonderful advocacy and for sharing your stories. What was that you were saying about water retention and salt? I’ve been going through some chronic conditions and am resonating with some of the signs and symptoms you mentioned, I will have to look into a table test!

I don't see the list

I’m suffering from this. I don’t know what to do.

Jesus love you 💓

Interesting and informative podcast. Thanks for posting it.

This is such an important topic. I don't think most people repose how damaging mold is t be body. PJ Harlow was spot on. I Agree with the bucket theory as well. Thank you for putting a spotlight on this. P J Harlow is a wealth of sensible knowledge, it's too bad that the only way we usually learn is when we have already fallen down the rabbit hole.

I’m 21 and really needed this. I have crebv and alpd. It’s been rough. I’m in cosmetology school.I’m trying to figure out how I’m gonna balance this I get flare ups.

I’m going through the same thing.

I've been searching for info on Low histamine diet. Would you guys consider doing a "What We Eat In Day" A lot of the websites that list foods are all different. I also realize everyone is different too. It would be nice to see an example of what your meals look like.

Thanks for this ladies. Covered many areas I had concerns about. I have fibromyalgia and lupus. My pain level are very high

interviewer keeps interrupting :(((