This shocked me!! I had the exact surgery she's talking about because i was diagnosed with chiari last year (my symptoms: dizziness, headaches, feeling intoxicated and extreme lightheadedness, everything worsening while standing or sitting up). Well, nothing changed, i am now bed bound and only after 4 head surgeries and a VP Shunt Implant - I finally got the mecfs diagnosis.. at least I know now and also have some ideas what i can do about it, thanks to this amazing channel 💚🙏🏻 It should be common knowledge in neurosurgery and other feelds that chiari can be misdiagnosed as mecfs or fibromyalgia and so on, but also the other way around!!! This is so deeply frustrating.
I think that this has got to be my absolute favorite video to date. These are the answers to our problems that we desperately need. Thank you for caring and sharing. Thank you for the fun and laughter (always great medicine). Thank you so very much. God Bless you both. ❤
It is so fun, when you think about how different topics are connected. But you think it sounds kind of weird and if you would talk about it to someone else they would think you are crazy. And then you watch a video on this channel and there is a person who can talk about it so well and understandable and it dosn't sound crazy at all.
I came to the conclusion a couple of months ago that damaged fascia was definitely my missing puzzle piece. Caffeine and high cortisol damage fascia. I quit caffeine 6 months ago. This explains why I have been so stiff and in pain for a year!I’ve been doing the Block Therapy program. I’m seeing progress but it is slow-it’s a very painful process.
This would be an amazing adjunct to Block Therapy. It seems more foundational actually for people with hypersensitivities. Hope you keep seeing progress!
I have been listening to Deanna Hansen who does "Block Therapy" for fascia release. I bought her sampler program for $9 to try some beginning execises but it was too much. I kept reading other people's progress and I felt like such a failure. Now after listening to Satya I realize my nervous system needs to go slow and easy. I'm looking forward to joining her group!
This interview was amazing. Can't wait to start the practices as my nervous system is totally haywire!! I had so many Aha moments this might just be part of my missing puzzle piece❤
Just from the intro, this is EXACTLY what I have been looking for with more recent scientific info about fascia I’ve learned especially in my case. Thank you!!
Well, well, well. I knew there was a neck/head piece to this puzzle for MANY people and many conditions. But Dr Satya explained exactly what it is so well and it's nice to see the treatment approach she created is so simple and not time consuming. And she seems to think it's a piece (or the main cause) of many diagnoses that I wouldn't have thought had a neck/brain/head piece in. I hope she helps many, many people. ❤
Very interesting. I did one fascia release exercise from Human Garage recently and had a terrible reaction for 24 hrs. Anyone with CFS needs to be very careful.
@@Rachel-x5o Same for me with Rohlfing/Structural Integration, I mentioned Fibromyalgia and autoimmune, I crashed So hard after, our of commission for days and in a LOT of pain! She said she can see the progress in my body so I continued until I couldn't pay for it. I later found out there is a different approach with hypermobility. I'm surprised she didn't catch it, but most people haven't. I only recently did. And now it's a huge DUH
My neck is so tight from a biking accident. Tried the wavy stuff and realized it isn't the neck, but my entire body. It's all bracing 24/7. Just so used to it at this point. While doing yoga pre-neck accident my body was so silky smooth. This was a superb talk. Gave a lot of new things to think about. Thank you for everything you do!
@@revelation12_1 I have been to osteopaths, but it never lasted. Would feel better for about 10 minutes, then I got out of their office and I'd be just as stiff. I refuse to get adjustments when my neck is as braced as it is. Can make it 1000x worse. I signed up for Dr. Satya's program! It looks very promising.
Anything the FDA says to eat I just do the opposite. I recommend reading “Health and Beauty Mastery” by Julian Bannet, that book is a real eye opener about shocking stuff health industry is doing! I completely changed my habits
Great interview. Enjoyed hearing new information and especially the laughter! I don't understand people who are so critical of practitioner's charging for their services. How much study have they done to reach their qualifications? How many years have they been unable to work? How much debt are they in? I wonder if the people complaining would work for free? I do understand that no one should take advantage of anyone else, especially sick people, and prices should be reasonable. But we all have choice who we consult 🤷♀️😊
Another fascinating podcast. Thank you Raelan. I have looked for the self-assessment but couldn't find it? I have spent so much on programs and after more than 20 years with ME I am reluctant to sign up if I can't get a bit more indication that it fits for my symptoms. it isn't just the money, it is the frustration and disappointment.
One of your best interviews yet, really fascinating! Ties in with the collagen/cartilage degradation issues likely caused by inflammation and or pathogens. And of course the inflammation and immune system can often be helped with retraining and calming the nervous system so it's all starting to look less like a tangled ball of twine and more like a venn diagram 🤔
Talk about synchronicity! I’ve been looking for an at home fascia release program. This may be out there, but the chest fascia adhesions could be to protect the heart. We have so many memory cells in our heart, and those whose experienced trauma for a long time have a lot of painful memories. Perhaps our bodies are protecting our heart from experiencing more psychological / emotional pain (and if you are spiritual, this makes perfect sense to protect the heart chakra for trauma survivors).
This is extremely fascinating! I have that rib issue she speaks about. And I’ve had a lot of unexplained pain in the past (way before getting LC) and a PT actually did myofascial work on me a long time ago.
I certainly feel like I relate to this because I was so stressed behind a computer for 15 years and the year I got sick was so stressful and I wouldn’t leave my desk for hours. I’m learning to move my body and exercise and it’s helping me a lot but my NS likes to rebound with anxiety even I do expand.
Just subscribed to your channel and found your story inspirational. It makes your realise you are not alone in this journey. I’ve understood it is important to expose yourself to the pain, which can be fearful, but in doing so, it helps to send messages of safety, breathing into it, relax and you will learn to accept yourself.
I'm hoping people will be able to recommend a book or other resources for you but one I'm aware of is Yasmin Lambat of "SomaSensing Body Unwinding". She has some RU-vid content which might give you some ideas.
@minute 21, she spoke about pulling out of her on line program & proving free resources to use ..where is that link? How do I get that? Did she forgot to provide it to you Raelan?
I have been researching about the fascia as well! I have been receiving a lot of benefits from a modality called Flinchlock which was developed here in New Zealand
I'm not sure how the course delivery is structured, but it's possible you could learn the techniques and get support to tweak or "perfect" them in a month. :)
I felt so loose after the wave, but lost all stability in my neck, due to tightness all over my body. Had massive pains the entire day, night and continuing today. Just wanted to give a heads-up to those with severe neck injuries. I suspect the need to start bottom up with guidance from Dr. Satya. Is there a way to get in touch with her? Edit: I got a reply for Dr. Satya, and I've signed up for her course. It was a typical "too much, too fast" reaction. Got to start on the lower body like he says in the video.
@ minute 41 she talks about spinal fluid not freely flowing causing illnesses...thats why a doctor in Italy was doing a procedure to open the area...it reversed symptoms of MS.
Wow! She used to charge $2k for her recorded digital class! I'm so glad she shifted her greed into helping more people with a more accessible price point. $5/month like Tracy Rodriguez would truly reach the masses , if that's actually her goal like she says. Gate keeping healing modalities behind a $2k pay wall is another level of capitalist greed. She claims it has changed her life and made her more functional! Woa why not want to help as many people as possible! I bet dropping the price would make her more money honestly, people will forget about the subscription after healed, she'll still get her money It seems she had some sort of wake up call, perhaps that praying on desperate people who are in pain is unethical. Immoral and just overall s*****. It's a digital product that was pre-made. She charged $2,000 for it. Praying on desperate people isn't cool. Again, I'm glad she changed her pricing, I truly wonder what happened to wake her up to what she was doing. Maybe she took a class on predatory marketing or predatory pricing? Or trauma-informed sales and pricing? Was that what it was? These would be valuable classes for all people in this industry to take.
This is something I'm so frustrated with. People claim they got a calling to help people after being ill themselves, only to charge premiums. That's not ok. I'm not saying work for free, but if the goal is to help people, then the price should be manageable. Or at the very least have reduced rates for those really struggling and aren't able to work etc.
Thank you for saying what most of us are thinking.. I'm so sick & tired of being ripped off by health care "professional s" claiming to want to help us (the traumatized cash strapped people).
@@JamieR thank you! I agree, Tracy Rodriguez on IG and TT has a $5/month program with live coaching, live talks with Physical therapists and Occupational therapists. This ladies class was recorded from a retreat that I'm sure charged ar a luxury price point, then she slapped it on a website promising healing, but at $2k. To be clear her program now is a $49/month subscription, not sure if paid for a year up front or cancel anytime, I'm sure it's up front knowing her sales approach 🙄 With all that said, I've wanted to try her program since I discovered her, but haven't worked for years due to the chronic symptoms she describes - The same ones that made her bedridden - I guess she was lucky enough to have financial stability during her symptoms. I do think it's probably a very good program, it just may be hard for me to get past the fact that she was profit over people And without a real explanation as to why that changed, it might be hard to trust her intentions.
@@mkykta9140 yup I know :( it truly breaks my heart. I worked in a Functional Medicine Dr.s office, the amount of greed- people paying their $10k bill with multiple credit cards and taking out new lines of credit, all while at the end of the day the Doctor checks the numbers at the end of the day and gives me a high five. It's fucking grosse. To be clear tho, I do believe this program probably would help find relief and when I'm in the position I may try it as long as it's not a yearly commitment (that's shit too). Tracy Rodriguez on IG and TT address more hypermobility issues, yet cranial cervical instability can come from hypermobility... And creates more likelihood of the conditions that this doctor here. Dr. Satya describes. There's also a guy from the Netherlands that has a free class for chronic fatigue syndrome, I can't remember his name Daniel something. It's all online for free, he does offer one-on-one coaching at a completely reasonable rate last time I checked... Unfortunately, the program didn't totally resonate with me, I totally understand the concept but didn't resonate, but it probably will for many, I admire his decision to make it free, he healed himself and he wants to help others, truly help
@@JamieR It's $49 and you could possibly learn the material in a month (I'm not sure). I joined a different program and I was able to work through it in 2 months. The worst ones (IMO) are the courses that drip feed content so it takes 6 - 12 months.
I don't think that's possible. But- think about it. Why do some people with chiari are asymptomatic and some have terrible symptoms (while their MRI looks exactly the same). I think it's more about changing how your body reacts to it (aka nervous symptom work) and also, as she said, the Dura marta is full of fascia, so maybe you can change a bit regarding the pressure around the brain. I had the decompression done surgically and my symptoms are still here. I now know that it was MECFS after all, not Chiari.
Why do people get stuck when doing dnrs, and can't get beyond, seem like symptoms get worse while doing this, should you just try to not give them any attention, will this help, Helmut mentions this, please help
Worsening symptoms doing DNRS tells you it’s not a structural problem but a mind body issue and your brain detects a threat and sends the symptoms to “protect” you. Have you tried Raelans brain retraining program?
@@stevealexander1703 It’s common to have these reactions. To get worse before better. Let your body adjust. There are some YT videos with people talking about their experience with it. Check those out.
@@revelation12_1 yes. and a dried urine one that showed it is not peaking when I wake up in the wee hours and is too low in morning when I want to get moving.
@@deelicious1610 Have you had a thyroid panel run including TSH and Reverse T3? I believe you could benefit from the adrenal fatigue protocol by Dr. Wilson. He has a book. Getting your cortisol straightened out will fix your sleep. You probably have hormones that are out of balance. Have you visited a naturopathic doctor or functional medicine?
I feel like im dying, too. 😢 Pain for 13 weeks with no answers and multiple drs and no answers. So what dod she do? I wish people wouldn't even make these videos if you don't actually say what you DID to help
I have 3-4 mm cerebellar tonsillar ectopia(lying down mri). So I just need to do the swaying thing to improve? 😂 is there a connection between the fascia release techniques and the Chiari problem?
I had 4 unnecessary head surgeries done .. should have been one. Also because of chiari.. no symptom disappeared, I'm bed bound and I know now I have mecfs 🫠 do you have symptoms because of it?
it's interesting, but way too many complicated latin medical terms, hence people with brain fog (All with ME/CFS) have extreme difficulty to really understand what she is trying to tell us.
😔 It's tough. A big hug I am not sure which words you didn't understand. Fascia (is a broader concept of connective tissue). Fascial adhesions are like internal scars. Proprioception is our body's ability to balance. Maybe another day you can try again.
It’s interesting how everyone who supposedly had CFS and recovered now has their own paid program to get at the answers. Convenient. These people are gatekeeping knowledge from millions of sick people who can’t pay for it. Says a lot about a person when greed comes before compassion and care.
I can understand this sentiment. However if a person has spent a lot of time and money learning what it took to heal themselves they are allowed to make a living helping others. They have bills to pay like everyone else does. Some people share a lot of their knowledge freely on social media. Though I will agree there are those who have these $3000 dollar programs and don't share any free resources at all. Dr Sataya is not one of those.
