Eosinophilic Esophagitis 

I was diagnosed yesterday and now I'm in the process of determining the cause.

So glad to finally have a diagnosis. So many times I’ve stopped eating and just stared off hoping for the pain and sensation to end. Can’t speak during these episodes, so the best I can do is give a thumbs up to reassure those around me I’m alright. The pain is horrible, can’t even swallow saliva, and the choking sensation is terrifying. Diaphragm spasms, neck aches. What sucks is I’m an athlete, so I need those high proteins and sometimes run into a trigger food! Finally said enough when I had an episode so bad I actually stopped breathing. It was nothing more than chicken broth, and just a spoonful…. Thankfully I had an endoscopy and I believe my eosinophils were around… 26? I think? High. My esophagus was constantly inflammed, to the point where a swallow study pill couldn’t pass by without pain. Anyway I was prescribed a PPI and that has helped so so much! Life is back to normal - in fact, it’s better than what used to be normal ☺️

I have recently been diagnosed as having EoE, thank you so much for making these video's and explaining the condition in such a clear way.

Thank you so much for this explanation. Im new in this journey and trying to understand how to help myself.

I thought this video was extremely educational, well presented, and understandable. Well done!

My poor Son has been suffering with EOE and excema since he was 5 yrs old. We got approved for Dupixent finally in 2020. He never wanted to eat textures until the Dupixent starting working. He's non-verbal & Autistic. We thought he didn't want textures cause of his Autism. Long story short after endoscopy (5 so far) he was on Omperazole and the Flovent. Then Dupixent was invented! Thank you Jesus! However after taking it 3 yrs now. It's not working as the past month. He hasn't been wanting to really eat and I smell vomit or acid in his mouth. I was hearing him gag and coughing like somthing stuck. Right now their telling me he can't eat food cause he's non-verbal and possible food impaction. So he's just drinking the Pediasure Peptides that's prescribed to him. We increased Dupixent recently now it's the waiting game... so if it helps. But unfortunately he got it prescribed for excema. And it's not approved for EOE patients under 88 lbs. I'm hearing the trails will be complete for his weight in 2025! Ugh. So praying the max amount of 400 mg Dupixent based on weight will even help.! Ugh this is a confusing, frustrating health problem. I feel so bad for him, and he's smaller for age cause of EOE too. So sorry this was major vent!! ❤🙏❤️

Very educational video! Your comment about the increasing numbers is spot on. My wife has EoE and was not diagnosed until 17 years old. She had many symptoms her entire childhood but it just wasn't caught. Thanks for spreading awareness!

The initial description is exactly what happened to me and how I got diagnosed for it

Fascinating and helpful video! 😁

My symptoms began 30 years ago after a severe bout of Adult Chicken Pox. I also contracted Valley Fever during the same time period. Esophagus inflammation lasted months, but as it remitted swallowing issues were mild. A relapse comes in the form of a seasonal sort of mild upper respiratory, virus-like infection with malaise lasting 3-10 days

I was diagnosed with EoE almost seven years ago, and while I have mostly good days, there are days that are insufferable in terms of even just trying to swallow my own spit. My insurance wouldn’t cover the prescriptions for inhalers, but one gastroenterologist was a Godsend, and told me to use Flonase in the back of my throat, and to ensure I rinse my mouth after, and neither eat nor drink anything for an hour after. It has definitely helped in my quality of life, though I wonder how often I should use the spray, especially during peak allergy season here on Kauai.

Thank you. My sister-in-law just revealed that she's been diagnosed with this condition, and made mention that it had a genetics component. Are there certain foods that are common triggers, or does that vary by people? Loved the style of the video, and the clarity of your explanations.

My husband has this. Last week he couldn’t eat or drink anything for just over 3 days, this is the longest time so far. When his oesophagus closes he produces a huge amount of thick sticky mucus which he continually ‘vomits’. The main culprits are bread and meat. He refuses to take any medication and will not call GP or attend A&E when he has an episode. It ruins mealtimes because we never know when it will happen, especially if eating out in a restaurant.

I have Twin 5yrs boys and they both have been diagnosed with it. One more severe than the other its been about a year and the flair upsa of throwing up and coughing than throwing up 😢 is stressful. 2nd biopsy already. SMH i have been trying to keep them away from all dairy and certain foods but they are picky eaters. Now it feels like i really don't have many choices on what to feed them. 😢

Just had my endoscopy & colonoscopy with biopsies last week. I just read my labs and was diagnosed with this and it said i had high eosinophils at 18. I dont understand what that means though. They also said i had gastritis and ive had GERD my whole life (34). Thanks for the educational video!

Thanks for the explanation. I'm 44 and was diagnosed a couple of months ago. I've been trying to figure out which foods are causing the problem, but I've been mostly unsuccessful. I've quit drinking mate and I've seen an improvement, but not 100%.

Hey, i got some questions about this cause i have been recently diagnosed with it, any chance i can contact you somewhere? Like via email, or any socials. I have alot of questions, and i suffer with anxiety, so it would really help me sleep at night if you helped me answer some of them.

Hi could you do one on Lymphosytic Esophagitis?

My blood test came back with high eosinophils and I have symptoms of EoE, does acid reflux cause the level of high eosinophils or something else, I don’t recall any allergies reaction :/

I'm having trouble being diagnosed with this the doctors telling me it could be anxiety, but it's litterally not the woman who performed the first endoscopy said she thinks it's eoe biopsy said it wasn't and now they won't listen to me, iv lost 55 pounds in 6 months just because I can't eat the food gets stuck at my Adams apple and you can see it bulging out

If my sons counts were 24 and 35 (don't know what areas of esophagus or what this really means), but his esophagus and stomach look normal on endoscopy, what is the criteria for definitive diagnosis of EoE? His GI doc wants him on 40mg of omeprazole for 3 months and repeat endo after. Could this just be GERD or stress related? He's had a really stressfull few months. We are testing for food allergies next week.

Hi, I'm looking for an opinion from you. A year ago I was diagnosed with EOE, with 25 eosinophils. After steroid therapy I had a complete remission, but given the complications of candidiasis that it caused me, I interrupted the treatment and tried therapy with proton pump inhibitors, but my Eosinophils at the end of the therapy were 30. I have always been left between 20 and 30. I decided to do the 6 food elimination diet, but after 8 weeks my eosinophils became 100, and 50 also in another part of my esophagus. Could anyone give me their opinion on how this was possible. The only explanation I can give myself is that during the diet I was eating too much of a food to which I am allergic. I await your opinion too.

I dont know if i have this,I’ve had chronic hives for about 7 years now.With that comes gerd(er visits they give me maloox mixed with lidocaine). It will bad to where i vomit and have nausea when i eat.It comes and goes throughout the years.I finally have a gi and allergist appointment. 🤞

I was diagnosed at 24. After a pregnancy with HG. Gerd is very common in my family. But I’m the first with EoE

Our son started rejecting a bottle as soon as he learned that he could--about 3 months. Eventually it led to having a G-tube placed and for 2 years he was getting the vast majority of his calories from feeds, which contributed to him falling behind developmentally (hunger and enjoyment of food are pretty good communication motivators). We finally found out that he has EOE recently. He does eat on his own now (varies a lot day to day), but not enough to thrive and gain weight as quickly as he needs to. Since learning of the biopsy results, we are trying to remove dairy entirely from his diet (unfortunate since cheese was one of his favorites, and probably the most calorie dense solid food he ate). Anyone with experience, any tips on handling this with a toddler that is unable to communicate well?

I'm thinking that I might have this. I had a really hard time swallowing some triscuts the other day, getting inner chest pain regularly through the day more and more. It also felt like I was punched in the nose (both sides for about 2 days). Im really not sure if thats related. Stool is not as consistent as it used to be, and is fairly loose lately. Ive gained about 20 pounds in the last year and that is unheard of for me. My wait has largely also been the same. Im in my mid thirties now. Partner has hsv so im wondering if i acquired it and its a version of that in my esophagus?

I 100% have this condition. I've also had eczema and hives for the last 15 or so years, for that I've stopped all the heavy steroid creams and just now resort to ice. And for the EOE I'm taking 20 mg Prilosec twice a day morning and night. I finally have insurance but if I to go to an allergist is there any chance to get on Dupixent? Or do they put you through a song and dance and make you wait several years before they prescribe it?

I wish you practiced in my area. The local gastro practice is a joke.

Are these “symptoms” very suspicious of this? very gradually get a lump in the throat feeling with a bit of tightness there come on and linger for a couple hours after I eat something then usually stops, but then will come back on without anything some other time, doesn’t affect my breathing at all though, sometimes the tightness discomfort it makes it harder to sleep though when it happening at night

What are your thoughts on dupixent? My doctor said he wants me to start using it. But im hesitant because I've heard other people talk about bad side effects from it.

I got diagnosed with EOE in 2021. I used to workout very regularly and heavy, but in the last years I continue to get cold symptoms the evening or next day after a workout. It makes my life really hard, as I always get sick after exercise. My suspicion is that acid / pepsines get up into my nasal system and cause some kind of throat infection. I also have ear pain when drinking carbonated beverages. Could that be possible?

Can acid reflux drive up the level of eosinophils?

I seem to get sudden attacks of this when eating certain foods. Chicken and rice especially. What is in these type of foods that trigger it?

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this is not a fascinating condition, its a living hell

I have eoe And I taken inhaler

Vegan crypto channel doing a solution for this live today 1:00 cst

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