For me the worst thing about PD is doing everything I took for granted before has become a challenge. Going out to a restaurant with family and friends I watch everyone having a good time, while I contemplate how am I going to walk out of here. This disease really sucks. I hope to God some effective treatments are coming soon.
JayMac you’re the best. All the same back at you and then some. Getting jumpstarted in the morning sucks. Waking up hours before I have to sucks more. Cramps in the legs is great exercise and sometimes hurts a lot more than it should. What’s the fun part? I have to plan everything from going to get the mail to doing laundry. Not big on sharing, none of my peeps need to know all the fun I’m having. Stay safe and strong.
Even the simplest tasks require gargantuan effort. People have difficulty understanding. Everything you said is totally 100% accurate. I fkn hate Parkinson's but I fight everyday to have some kind of life. In fact, this morning, getting back to bed I lost my balance and nearly fell. I caught myself, but my hand landed on my glasses and I bent them.
Hey Jeremy. I’m two years into diagnosis and am lucky to be able to do most things well though my left hand and arm are becoming rigid with tremors. ANXIETY is my biggest issue. I used to speak in front of large groups. Now just the thought puts me in a panic. Anyway, thanks for sharing with us. You make it easy to relate. Jack Mack
Fortunately, I have a mild case of PD. Hoping it stays that way! Yes, I have to modify the way I accomplish tasks too especially when the squirming sets in 30 minutes after I take my medicine. Once a week I sit down and parcel out my pills for the week during an on time; doing otherwise results in dropped bottles and flying pills. We have to be creative in figuring out how to get the job done. Sinatra sings another song just for us----'I Did it My Way."
Great video brother ❤ pd is everywhere! I went to local gym yesterday to work out. I haven't been in a gym since my younger days. I had a good workout, but everyone was looking at me. Unfortunately that made my symptoms start. Luckily I was minutes away from ending my workout. Today I actually signed up for 1 yr. Going back in few minutes.
Hey Jeremy i feel you! Fatigue kicks my butt. Even when i do sleep, i get vivid dreams and i wake up more tired than when i went to bed. One day at a time. Peace friend!
Nearly a year since diagnosis (though I’ve had symptoms about 2 years) and hanging in there. I’m most affected by diminished fine motor dexterity in my left hand, which impacts my ability to type. Writing is a big part of my job, so I’m trying to get used to dictation software. Otherwise my left arm moves slower that it did in the pre-PD days. A foot tremor makes folks think they make me nervous (they might, but the tremor has nothing to do with it). Hat tip on the Sinatra album…
The unpredictability is what really gives me the poops. Random symptoms. Random side effects. Never the same thing at the same time. Never the same result from the same actions. Random. Unpredictable. That’s my whinge😜
My Amantadine isn’t working so great. My left foot wants to turn in at different times and my left hand flicks out. I’ll need to discuss with the doc soon. My PD is still manageable but it’s definitely getting more annoying.
Hey Do you or anyone else experience nausea from the Levadopa? I sometimes can't make my dosage time due to an empty stomach. I some times take Ondansitron for nausea, but that's just as awful.
Can i add another thing i hate about PD? I hate levodopa. I'm literally afraid to eat in fears my meds won't take. I have lost 30 lbs. I have no more fat to lose.
This may help some of our friends...if you get leg cramps put a bar of soap between the sheets as soon as the cramp starts grab the soap with your hand or with your leg and rub the area. Also use a bar of soap to get out of bed...press down on mattress with soap in hand either making a fist or flat palm
