What are the most pressing ethical and legal issues encountered by exposome research consortia?
From participant-facing governance to the European Health Data Space, since 2020, the EHEN Working Group on Ethics and Law has facilitated many fruitful and lively exchanges of experiences on the ethical and regulatory challenges in exposome research. This presentation summarises and share the outcomes of these discussions.
About the presenter:
Daniel Groos is a legal researcher at HEAP consortia partner Lygature for their Health Law, Privacy & Ethics (HPE) portfolio.
He is part of the Ethics and Regulations Work Package of HEAP, and coordinator of the European Human Exposome Network (EHEN) Working Group on Ethics and Law.
His work is focused on privacy and data protection in large-scale research consortia.
30 окт 2024