Everything still sucks - 2 years of long COVID (part 1) 

I find it very worrying for the long covid, and vaccine injured patients, that nobody is informing them of the role that breathing air has on inflammation. Everyone seems to be being told "your problem is inflammation", but nobody is advising them to consider looking into what it is they are breathing. Eat this anti inflammatory food, don't eat that inflammatory food, avoid psychological stress, etc etc. Even hyperbaric chambers showing benefits, which is just breathing clean air for a few hours a week. Do you think they pump the air from the city centre into a room at a higher pressure, and "add a bit of oxygen"? We all breathe air that causes the inflammatory process to go into overdrive, and we all, normally, have brakes that stop the inflammatory process from going into overdrive. Your brakes don't work at the moment, because coronavirus, or the vaccine wore them out, just like all the others who are suffering from inflammation. There are hundreds of studies explaining the mechanism by which the air we breathe causes all the problems you are experiencing. Your own experiences indicate it is playing a role. The question isn't, is the air you breathe playing a role, because the answer to that is yes, undoubtedly. The questions are, to what extent is it playing a role, what can you do to reduce it, and what will you gain by reducing it? These questions can only be answered at an individual level, because nobody is breathing exactly the same air and we all have different tolerances to the composition, and chemical instability of the air. The worst place for most of us, is in our car, unless equipped with very effective air purifying filters and knowledge of best practices to limit exposure. You say you live on a hill. I don't know which hill you live on, if for example you live on the hill of the race course, in certain meteorological conditions, you will be breathing, all day, the air pollution from the city that cannot escape because of the geological features of the area. You will be breathing levels of air pollution that have been known for decades to cause the symptoms you are experiencing "because of covid". Covid has caused your body to lose control of the inflammatory process, and you need to help it retake control, by limiting your exposure to air with a high OP (oxidative potential).

Any update on the nicotine patch?

Oh my gosh congrats on your recovery!! Did you improve slowly or did you suddenly see improvements? Did anything you try help? The idea of going on a long walk has felt forbidden to me for so long, but since I started using nicotine patches I'm daring to dream it'll be possible some day ✨

@@Chareads i was improving slowly and steadily every year, although it's SO SLOW especially at this age. Totally relate to looking at your bookshelf and seeing a graveyard, and also being in flight or fight 24/7 but wanting to just relax 😅 I remember November was really tough symptom wise and so December coincided with 1) going off Low Dose Naltroxone (helped massively with being able to just be able to have conversations for longer than 10 mins without a crash). I was on it for 2 years and terrified to go off it in case my cognitive functions declined again, but I think it was actually hindering me. I was on 4.5ml,if you haven't tried it I would absolutely suggest trying it, but only for like a year or so. And 2) I had to quit my job. I think the lack of stress around having to turn in Drs notes and feeling so guilty and ashamed for *still* being sick was taking up so much more mental space than I thought. So I've been off work since Jan 2021 but officially unemployed since Dec 23, and I am now hoping to get back into some form of employment by summer which is nuts! I never tried the nicotine patches cause I've lowkey been smoking on and off while having LC so I just assumed it wouldnt have an effect. So glad it's helping you! A lovely writer I know was wheelchair bound for 2 years with LC and can now cane walk with their help ❤️

Do tripple anticlot medication help, idea, support fibrinolysis. Do you know anything about spinal fluid test from LC patients, worth doing?

Have you any information on tibia puns though I've had CFS prior to getting my pin now I have fybromyalgia symptoms

Duration per session? Pressure? Pure oxygen?

@@TOPTICKTRADER it was at a ms Therapy centre mostly the least one as it was harder to get on deeper on think it was 26 duration 1 HR

Exercise is counterproductive for ME. Although helpful for many chronic conditions, for ME/CFS it leads to post-exertional malaise and can permanently lower your baseline. me-pedia.org/wiki/Exercise www.actionforme.org.uk/get-information/managing-your-symptoms/graded-exercise-therapy/

I don’t want it to come across as throwing shade at you at all. You seem like an intelligent, competent, and driven person. I just think the energy your putting into trying to solve your “fatigue” issues can be redirected to something more productive. As an example, I don’t think someone from a developing country has the privilege to even engage in trying to figure out their fatigue issues. They simply just go to work and do what needs to get done. Hoping the best for you. Good luck.

I have a private therapist, anti-depressants and anti-anxiety meds as described from 25:30. ME/CFS is a serious physical health condition. Saying that someone from a 'developing country' would 'simply just go to work and do what needs to get done' would be impossible if that person had moderate or severe ME. It's not the same as tiredness, it's not laziness or a lack of motivation. If I was feeling bad and forced myself to stand up I would pass out in minutes. If I went on a walk I would have to stay in bed for days. There is no choice involved.

@@Chareads I understand. Excuse my ignorance to the subject.

If only it was as simple as just getting on with your day and fatigue it’s not just fatigue as in your knackered I don’t understand why people can’t understand that, I don’t have cfs but I have autoimmune disease so the fatigue I totally understand and the only way I can discribe it is is walking in constant quick sand and drowning in every step so imagine trying to just quick sand your day to work it’s just not happening! X

I was born with low energy as a baby I slept 23 hrs a day at 17 I broke my tailbone triigred CFS pelvic pain 27 years later muscle pain is worst symptom on ldn then fatigue I've also had pots lost my mum to severe ms found out we both have heds autism adhd