Elizabeth Thiele, MD, PhD, describes what sunflower syndrome is and reacts to the significance of recent data presented on the use of fenfluramine as add-on treatment for children and young adults.
Me too! I just now got a 96 hour EEG with video ordered for me to prove to my neurologist of my condition. As weird as it sounds I'm excited that I can show them what I'm going through
My grand daughter has been diagnosed with epilepsy. But she still “fluffed” , a friend of my daughter saw an episode on tic tok and sent it to my daughter, who then passed it on to me. And it is what my darling granddaughter does may times a day. Now her Specialist has not diagnosed her with this , however I was wondering if there was anywhere in Australia that you know of the are doing research into this. Thank you.
