Fibromyalgia and Epilepsy

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Welcome to our Living with Epilepsy Series as our founder Natalie Boehm discusses what Fibromyalgia is, Fibromyalgia and Epilepsy, diagnosis, signs, symptoms, and treatment options.
If you have any further questions, feel free to email us at info@defeatingepilepsy.org.
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Опубликовано:

14 окт 2024

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Комментарии : 6

@Lillymae-gq4oe 8 месяцев назад

I’ve had fibromyalgia for over 20yrs. I often get PNES, doctor feels it’s due to FND. I’m currently waiting to see a neurologist for assessment

@DefeatingEpilepsyFoundation 8 месяцев назад

I was diagnosed in 2021. I have had some PNES, but I also get epileptic seizures. I wish you the very best at your assessment. Make sure to take notes of what you need to discuss with them so you don't forget to ask any questions. We also have a video about PNES.

@KarrierBag 5 месяцев назад

I was diagnosed in 2015 with Fibro and in May 2023 with Epilepsy, I am a man in the UK and one of the few who have both apparently. Pop on to that a heart condition (diagnosed July 2023) .... am only 56 and unable to work, move my boat I live on or do much at all, so far nearly died 3 times because of what's going on in my life, am awaiting the boat being lifted out so I can live on dry land.

@DefeatingEpilepsyFoundation 5 месяцев назад

I'm sorry to hear you are dealing with both. I have been diagnosed with both and it is very painful and difficult to deal with. I'm so sorry also to hear about your heart trouble, you are dealing with a lot. Please let me know if you need any resources or if I can help in any way.

@clentgubalane8792 Год назад

Does the anti-radiation eyeglasses 👓 have so many benefits for us who have an epilepsy?

@DefeatingEpilepsyFoundation Год назад

I could not find any specifics when it came to anti-radiation eyeglasses, but polaroid sunglass or blue-toned lenses are good for people who are photosensitive.