Charley's Fund is named for Tracy and Benjy Seckler's son, Charley, who, to the casual observer, is simply a quirky little kid with irresistible curls and a mischievous sense of humor. Charley's devilish smile belies what is going on inside his body, for his muscles are deteriorating at an alarming pace. Unless a cure or treatment for Duchenne Muscular Dystrophy is found, Charley will lose his ability to walk by adolescence, and subsequently lose all muscle function. Like all boys with Duchenne, he will die from respiratory or heart failure in his late teens or early twenties. Charley's Fund was incorporated four months after the diagnosis. By refusing to surrender, the Seckler's turned a basic assumption on its head -- that the most complicated problems require a phd or an expert to come up with solutions. Their experience teaches us that in fact, it is determination and innovation that can drive toward a solution. And that determination and innovation can come from anyone.
In the spirit of ideas worth spreading, TEDx is a program of local, self-organized events that bring people together to share a TED-like experience. At a TEDx event, TEDTalks video and live speakers combine to spark deep discussion and connection in a small group. These local, self-organized events are branded TEDx, where x = independently organized TED event. The TED Conference provides general guidance for the TEDx program, but individual TEDx events are self-organized.* (*Subject to certain rules and regulations)
6 июн 2024
