Thank you for this video! Looking at you TALK, has given me even more hope! I love that you shared this. Thank you!!! You're wonderful and God bless you!!
Tomorrow is a big day for my brother who will be getting a tracheostomy due to his neuromuscular disease. You have given us hope. Thank you for this information.
Same here!! I am watching this because my mother is going through the same thing due to a neuromuscular disease as well! She will be getting her trach tomorrow (May 12th). :-)
I hope all went well with your brother getting his tracheostomy tube. If you have any questions or concerns, please feel free to contact me. You can reach out either here on RU-vid or through email: life.with.a.vent@gmail.com
@@kitkatpoetess I hope all went well with your mother getting her tracheostomy tube. If you have any questions or concerns, please feel free to contact me. You can reach out either here on RU-vid or through email: life.with.a.vent@gmail.com
I hope everything went well with your brothers tracheostomy. My mom is getting one tomorrow. You are right Life with a Vent has given us hope and information.
Thank you so much. I start working with a new client tomorrow with a trach and vent. I found ur channel yesterday and intent to watch all your videos to brush up and add to my education. I loved ur story at the end. I actually found the last myth strange that people think that. I guess as a nurse it’s common sense that you just assume ppl know the two do not correlate. But I totally see now how others could think that. Thanks for sharing that church story it gave me a lot insight onto your perspective and social stigmas
Thank you for your kind words. I hope all goes well with your new client. If you have any questions or concerns, please feel free to contact me. All my best to you!
My dear, I want to thank you so much for talking about this is sure 😍 I’ve had my trach for 4 years now do to throat cancer, I’m one of those that never smoked in my life! I’m in pretty good health except I have an awful lot that I deal with. I’m not on a ventilator, but I also can’t speak very well. I have a lot of mucus that I deal with! Your the only vloger that has yet to talk about this. 👏🏻👏🏻👏🏻👏🏻👏🏻 new subscriber here 😍🤗🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼TY
Thank you so much for your kind words. I am sorry to hear about the throat cancer and that you have a lot you deal with. I hope all the challenges you face get easier and easier with each passing day.
Im so happy to came across your channel. You gave me confidence. My husband had a severe heart attack with complications and still in icu with ventilator. Doctors said tracheostomy may be needed in the future. Thank you for sharing and sending positive vibes to us!!😊
Thank you so much for sharing. My family has had a very difficult time trying to make the decision to move forward with a trach for my mother. We were very concerned about the amount of secretions she has and the possibility of infection. This video gives me a little ease about the situation.
Hello. I am sorry to hear of your mother's health challenges. I hope all goes well as you and your family move forward. If you have any questions or concerns, please feel free to contact me.
The last myth and story really had me thinking. I never really noticed people acting condescending towards me because of my tracheostomy. I felt second hand pissed off just listening to you describe how that lady treated you. It really does suck that people can be ignorant about things despite having good intentions. I’ve only had a trach for less than a year (about 7 months) and I’ve yet to encounter someone like that, but props to you for keeping your cool in that situation.
I am so glad you have never any experiences like that. Unfortunately, I have had this happen many times to me. I used to get really angry and upset. Now, I just ignore it and go on with my day.
Thank you for this. I am very impressed with your self control considering the way Deborah talked to you! Also, unrelated to your content, I just wanted to tell you that your hair curls are so pretty!
Thanks for your positive attitude. This was quite helpful. I've had a trach for 6 weeks and am heading down the total laryngectomy route in a couple of weeks. The trach is both a mental and physical drain on me but education and patience are paramount.
I am so sorry the trach has been such a drain on you. I hope it become easier and easier with each passing day. l I hope all goes well for you with the laryngectomy.
My mother has been diagnosed with Vocal Cord Paresis. She just recieved Treacheostomy few days ago and is recovering in the hospital. You channel gives hope to me and intent to watch all your videos so that I can help my mother. As per the doctors Treacheostomy will save her from uneccessary ICU/ventilator support (8 times in past 1.5 yr) and when her nerves repair themselves she can be back to breathing normally.
I hope all goes well with your mother's recovery. If you have any questions or concerns, please feel free to contact me. All my best to you and your mother.
You have a lovely story-telling voice. Sorry if it’s a weirdly specific compliment, but your cadence and tone are so calming. Reminds me of when teachers would read a book aloud. Thank you for sharing, now I can better support someone I know who will be getting a trach soon.
My partner is having this same procedure done this week. So hearing you and knowing everything we’ve been told isn’t always the case is giving me the hope he will be able to get through this. Truly thank you for being so positive and transparent.
Thank you for sharing this with me. I hope everything goes well. If you have any questions or concerns, please feel free to contact me, either here on RU-vid or through Facebook, Instagram, MeWe or email (life.with.a.vent@gmail.com)
Ty very much for this video. My mother is currently on a ventilator in the ICU and doctors want us to consider a tracheostomy and I immediately go on the web and start researching life expectancy only to find out it’s very low. I cannot express enough how much this helps.
Thank you thank you thank you so much for this amazing video. A family member made the wrong choice to go to a for-profit liberal hospital, they didn't even want to keep him on ventilator or do trach but only recommended life ending options. They tried to scare everyone that a trach would be the worst quality of life for your loved one & why would you want to do that? What the heck... they acted like getting a trach would be the end of life for a patient but, like you said, it's actually a LIFE SAVING procedure. God bless you for sharing & spreading positive truth!!!
You're a very brave woman...I hope o have your strength. I'm a week out of the hospital with a trach and it certainly is a challenge to deal with.Im not going to detail the challenges as I don't want to plant any seeds in anybodies head. I'll know in a few months if I have to have my tongue,voicebox and pharynx removed.I got throat cancer about 3 years ago and went through chemo/rad...the cancer is gone but the radiation did a lot of damage. Of course there are physical challenges and very real limitations to this new reality but I'm my opinion so much of the challenge is psychological.If you're lucky you'll have a loving and supporting family but you do have to find some strength in yourself..perhaps the kind of strength you've never needed to have before.You will still have bad days and you will have better days.At the moment I'm still full of dread and sometimes at night in bed it can be intense,nightmarish.I hope matters improve soon. Wishing you continued strength..you're clearly a wonderful young woman.
Thank you for sharing some of your story with me. I am sorry you have been through so much. That is great advice. I hope things go well for you. All my best to you.
Thank yo for this channel. I have a tracheostomy for sleep apnea though no vent. People have labelled me as unintelligent and as a smoker even though I was 11 when my Trach was installed.
Thank you for sharing this. My dad is on ventilator for the last 18 days due to poor lungs functioning (TB infection) which means he retains lot of CO2 during breathing. Doctors are now advising to go for tracheostomy. We are very worried as he is 73 and very weak. If we go ahead we hope this will be the good decisions and will help Dad to get rid of ventilator soon.
Its nice to find this channel! Its very fascinating to hear these things from you, especially when I was doing a little research about this subject. Can you answer this question for me? Is it different from each person to how long they need a tracheostomy vent?
Thank you for your kind words. Ventilators and tracheostomies can be used for different reasons. They can be used as a short term solution to a problem such as a person is struggling to breathe due to an infection. In this case, the trach and vent are only used until the person recovers from the infection and is able to maintain his breathing needs on his own. (Many of these people often only get endotracheal tubes (a tube which goes through the mouth and down to the airways) and are disconnected from the vent and have the tube removed before they are discharged from the hospital.) Some infants and very young children may need ventilators and trachs due to a condition present at birth (such as a deformity, small lungs, etc.). These youngsters often can be weened from the ventilator as the body grows and learns how to adapt to the medical issue. Many of the young children can have the trach removed once they learn how to breathe on their own. Other reasons for needing a trach and vent are often for long-term respiratory needs such as a person is paralyzed, and the lungs no longer receive the needed information from the body to breathe on its own. Or, perhaps a person has a disease such as ALS in which the nerves and muscles deteriorate and can no longer sustain a person's breathing needs. In instances such as these, the need for the vent and trach will continue for the rest of the person's life.
Hello, thank you for sharing and you are so right with the way certain people respond. I am blind and my wife had total larunxjectomy her whole voice box is removed. Life is very tough and it doesnt help when people are this way, my wife many times experiences that other people think she is def just cause she cant speak they start doing hand gestures or talking loud neither of these things help. I think you have explained it very well and thanks for bringing to the attention , also now she cant use electro larynx cause its too painful, so she uses her iphone with a text to speech app tp type what she wants to say.. and yes here it comes most people have no patience to wait till she is done typing it all has t obe hurry hurry and what they do then , they start to finish her sentences and try to speak for her but that is not what she was going t osay at all!!.. its frustrating for her and i cannot see that makes it double up hard .. sorry long comment :) greets thanks for reading Mak , keep up your positive attitute
So she does not have a trach her airway and esophagus are permently separated and there for the tube in her stoma is called a larytube and not a trach , a lot of medical personal dont even know this. Ok thanks i just wanted to add this.
Hello. Thank you for sharing some of your wife's struggles with me. I am so sorry she canno use the electrolarynx. Has she checked into a transesophageal voice prosthesis? Also, has she tried esophageal speech? Here is a link to an article wrttien by Duke University about the transesophageal voice prosthesis: www.dukehealth.org/blog/tracheoesophageal-puncture-tep-surgery-and-tracheoesophageal-voice-prosthesis-help-people
Yes, thank you for the clarification. I have experienced this confusion with medical staff. I made a video called Laryngectomy versus Tracheostomy. What is the Difference? Here is a link to that video if you wish to view it: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-JO8-4kFCe2E.html
I listened to your video and you explain it very well and in understandable way, it is not easy for a person to wrap theri mind around this by just telling them this the first time i have noticed its hard for them to imagine what actually happens. Thanks for making this video, greets Mak :)
@@LifewithaVent hello, yes we have heard about TEP but she is hasistant cause she has heard they dont last long and issues with food getting stuck. Also the current ENT says he is not the guy to put this in, so if anything we have to find one that does. Greets Mak
My father had a stroke at the age of 80. He had a tracheostomy and after a few days hated the prognosis of having his lungs cleaned,. It was uncomfortable. The doctors removed it and he passed away 48 hour later, with morphine. Im shocked and confused. I wish you the best. Im sure its a different issue.
Thank you for sharing some of your story with me. I am so sorry to hear this. I cannot imagine everything you must be going through. My sincere sympathies. If I can be of any assistance, please let me know. May your father's memory be a blessing.
To life with event I also wanted to let you know if I had my way I would like every video with being blind for some reason I don’t know if it’s my phone or what it is it’s not letting me like all your videos so I want you to know I’ve tried to like all your videos and so far I’ve been only able to like one sorry about that but keep up your great positive attitude keep up your great positive attitude you’re amazing sorry about the long post I just have so much to say because you’re so amazing hope you understand
Tomorrow we will be talking with my mom's doctor about getting this for her to help her breathe because she had had to be intubated three times in three weeks. I am praying that things helps her and she can come home and be with the people who love and care for her.
I am sorry to hear of your mom's health challenges these last few weeks. I hope all goes well meeting with your mom's doctor. All my best to you and your mom.
They have stopped putting vents in people because covid they let people die doesn't anyone understand the majority of doctors let covid come in the way of there job also financial barriers will kill us I give a big middle finger to all of it Jesus is here though the greatest healer
My wife was on ventilator for 3 months after C cection she deliver triplets only some amniotic fluid infiltrate in her blood and causing lots problem so doctor decided to put her in a coma to protect the brain 🧠 she wake up after 2 and third month was a nightmare she fight the machine because she was in delirium.... after that she begins to get tired of it.....i exercise with her still connected do small walks then Doctor make her practice breathing alone no assistance until she didn't need it......in mean time i have to babysit her ,wipe her but give her a bath 🛁 later feed her instead of 3 babies i got 4 now she kick as she completely recover and we expect twins.....of course i am ageing at accelerate it rate because of fears.......we have 3 months until the they are here
I didn’t know people behaved that way I always figured they were treated like an adult but I’ve noticed some of their behaviors when they find out about my sickle cell
Thanks for this beautiful video. My dad also has a trache after a severe vehicular accident. I know it depends on the situation but do you have an idea as to the chances to full recovery from tracheostomy? Like being able to live life without a trache again? Thanks so much!
Hello. I am so sorry to hear your dad was in an accident. I hope he is recovering and is on the road to better health. The likelihood of being able to live without the use of a tracheostomy depends on what is causing the person to need the tracheostomy tube. Does the person have damage to the nerves, muscles, spine, brain, etc.? Is the damage permanent? Are there any underlying diseases contributing to the condition? Without a full medical workup and detailed medical report, I could not even speculate the likelihood of living without a tracheostomy. The best people to ask are your dad's medical team. They should be able to give you an idea if they believe he will ever be able to live without a tracheostomy. All the best to you and your dad!
Is it uncomfortable or is it something you get used to? My mum is in a medically induced coma and I have to decide if this is something should would want.
It is slightly uncomfortable for the first week, as the airway heals from the procedure and gets used to the tracheostomy tube. After that, the body gets used to it. I wish you and your mum all the best.
THANK YOU AND GOD BLESS YOU FOR THIS INFORMATION I'M NOT YELLING AT YOU I'VE HAD CORNEA TRANSPLANTS AND SOMETIMES I NEED TO USE CAPITAL LETTERS WHEN I USE MY VOICE TO TEXT THANK YOU FOR PROVIDING THIS INFORMATION ✝️🙏🏾💙
My mom has to have tracheotomy surgery in a few hours an I’m so scared 😟.. not knowing if I made the right decision? if the doctors are making a mistake? If she can still possibly breath on her own if the tube wasn’t there? She was fine before she went in… now she needs this tracheotomy and a feeding tube😭🙏🏽. I’m terrified I won’t ever hear her voice again 😭😭 an that I’m altering her…😩😭.. we don’t want it done but they say she has to have it. I’m so torn 💔😭🙏🏽
I hope everything went well today. I hope you are able to find peace and comfort. If there is anything I can do for you, please let me know. All my best to you and your family.
I'm on oxygen (just through a nasal cannula) and the #1 assumption I get is "did I have covid." Like bruh, other diseases exist. Then you get all those people who praise you for simply existing. "You're so brave" "you're an inspiration." I'm just trying to live just like everyone else
Hello. It takes time to regain the ability to speak. It took me about a month after getting a tracheostomy tube before I was able to say words. It took several months before I was able to speak clearly.
Hello. I just released a video talk about how to talk with a tracheostomy tube. Perhaps it may be of interest to you and/or your ex-husband. Here is the link to the video if you wish to view it: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-FSL57g7iIN8.html
I still cannot understand how some people would think that people with tracheotomy have decreased intelligence. Like whut? What lead them to think that? I just cant comprehend.
It is unfortunate some people believe if you have a medical device then you have decreased mental capacity. This thought process may come from personal experience. For example, the person may know someone who was in an accident and needed a tracheostomy. The accident also caused a brain injury and a decline in mental capacity. The person then makes the assumption other people who also have a tracheostomy also have mental impairment.
I'm educated enough to know ppl need them for a many many reasons. You dont need a vent with a trach. I know an old man who got one to cure his sleep apnea. Other options were exhausted and the trach gives him more oxygen flow while hes awake. More oxygen saturation. So it was for 2 reasons. But he doesnt need a vent
What a wonderful video. Thank you for sharing. If you wouldn’t mind, I have a question about tracheotomy and pain. My mother had surgery on the 5th of July. She did well and 2 days later was off the ventilator, sitting,talking,and joking. Then a nurse didn’t clear air from the art line and sent air to her brain causing my mom a stroke and she had to be put back on the ventilator (tubes down throat). 2 weeks ago they did a tracheotomy to help wean her from the ventilator. She was going 12 hours without the ventilator, so they put a collar on the Trach and changed took her off of the ventilator. Now the bubble thing on her Trach is hooked straight up to just oxygen. They said within 2 days they would be replacing the Trach tube with a smaller size. My question though, pertains to pain. Does one need pain meds (strong pain meds) 2 weeks after having a tracheotomy? Is there a need for extended pain management from getting a tracheotomy? Thanks in advance.
@@NorthnSouthHomestead Hello. Wow, I am so sorry your mother has been through so much! As far as pain and getting a trach, there should be very little pain. When I got my trach, they had me on a pain pump. I never pushed the button to get pain medicine because the pain was only about 2 or 3 on the pain scale. They disconnected the pain pump a few days after surgery. Once the pain pump was disconnected, no more pain meds were administered. From my experience, getting a trach was more of a discomfort than actual pain. The trach causes irritation. It is like having a scratchy throat. With each passing day, the irritation became less. Extended pain management should not be necessary. If you have any other questions or concerns, please let me know. I hope all goes well with your mother.
My 5 year old client has a trach. He does not like being outside in the cold, when it’s excessively hot or when it’s windy. His school makes him go outside anyways. Do you have any tips or advice for us? Makes me sad that they do not consider how upset it makes him.
Thank you for sharing some of your story with me. Does he wear anything over his trach? For example, does he wear a heat and moisture exchanger or a trach bib cover? These both will prevent air from directly entering the trach tube. This should help with wind and cold and hot weather.
My Brother is a covid survived. He is home, trached and on 4 liter of oxygen.....forever. How productive or what will his life be like now? He gets around well with Walker.
Hello. The best person to answer this question would be your brother's medical provider. The medical provider has all your brother's health information and would best be able to answer this question. All my best to you and your brother.
My mother has stage 4 lung cancer and is currently intubated. doctor wanted to go over options for her such as trachostomy, but she would need a peg tube or something like to eat
I am sorry to hear about your mother's poor health. I hope all goes well for her. (For what it is worth, I am still able to swallow. I am able to eat by mouth, and I do not have a feeding tube.) All the best to you and your mother.
@@LifewithaVent yes the hospital said that if we were to go thru with the trach process and if she able to pass the swallowing test then they would be able to do speaking valve and what not. but its all in steps
Hi my name is Tia’s and I just wanted to say you are amazing I love your channel what is your name if you don’t mind me asking and oh my gosh I just want to say I was a pound and a half when I was born back in 1982 and I had and still have bronchopulmonary dysplasia so I use a trilogy for my sleeping if I take naps or I’m resting or anything so go trilogy go I love trilogies so I love watching your videos your story is amazing I can really relate to a lot of things you’re going through but keep up the great fight stay strong you’re amazing I would love to meet you someday if you ever come to Minnesota if you want me asking what state are you in and do you have a Facebook. That was supposed to be if you don’t mind me asking what state are you and I am in Minnesota and do you have a Facebook sorry if some of this doesn’t make sense I am blind so hope you understand thanks if you can respond to me that would be really cool but if you can’t I understand
Hello. It is so nice to meet you. Thank you for sharing some of your story with me. I really appreciate that. Also, thank you for your kind words. They mean a lot to me. I have a Facebook page. If you would like to friend request me, here is the link to my page: facebook.com/life.with.a.vent/ I have not travel plans to Minnesota, but if I ever find myself in that state, I will let you know. I live in Texas.
I have never had severe sepsis due to my tracheostomy tube. I very rarely take antibiotics. If I do get an infection such as an ear in infection which requires antibiotics, it is usually just amoxicillin or other common antibiotics.
Hello. If you would like more information about speaking with a tracheostomy tube, I released a video today on that topic. Here is the link to the video if you wish to view it: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-FSL57g7iIN8.html
Thank you for your kind words. Yes, I have considered a career in medicine. On October 10, I will be releasing a video which gives a brief history of my life and my pursuit of medicine.
Hello. It took me about 1 month to begin to speak normally. if you would more information on how to speak with a tracheostomy tube, please see the video: How to Talk with a Tracheostomy Tube. ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-FSL57g7iIN8.html
Is the trach tube in the hospital the same as the one the person would use at home? My father is in the hospital with a tracheostomy tube and he can't talk. If he needs it permanently, will he be able to talk when he gets home
The trach tubes used in hospital are the same ones used in the home. Your father may or may not be able to talk with a trach tube. For more information on how to talk with a trach tube, please see the following video: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-FSL57g7iIN8.html
Just remember one thing just because you have a disability you’re no different than anybody else on this planet I’m totally blind I was treated just like any other child would be treated I wasn’t treated any different than anybody else will be treated I don’t want to get me down I don’t want to stop me from doing anything I’ll do what I wanna do i’ve been working for a company named acme markets for 20 years I bag groceries
Excellent advice. Thank you for sharing some of your story with me. I am so happy you have been able to live without letting your blindness hinder you. Your determination and attitude are inspiring.
Need help, trying to find a device that is fairly loud. My friend who has a trach doesn’t speak because his device is not very loud and hard to understand so he chooses not to speak. Any other devices out there that work extremely well in large crowds?
I am sorry to hear about the challenges your friend is having. It sounds as though your friend had a laryngectomy and has a device he uses to create/amplify his speech. I apologize. I am not very familiar in this area. I have my vocal cords and am able to speak. I did do a search and found this video about a device called a TruTone. It may be of benefit to your friend. Here is a link to a demonstration video on the device: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-AYydnhu6NbU.html
You can sit in the hot tub or go in the water up to your waist. But if you actually want to go underwater, it is not safe to do so. Water will go down the tracheostomy tube and will go directly into your lungs.
@@janiskanal5477 A person's ability to speak depends on many things such as nerve function, muscle function, functioning vocal cords, mental cognition, etc. If any of these are impaired, a person may not be able to speak. For example, if a person has an endotracheal tube, he will not be able to speak. If the person is sedated, he will not be able to speak.
@@LifewithaVent I have a friend that uses a tracheotomy and a vent. She has a cuffs tracheotomy and when the cuff is inflated and she is on a ventilator she can not speak but if the cuff is not inflated she can speak. She uses a speaking valve
@@LifewithaVent omg I pray maybe one day you can get off of it some how. I have a trachea as well sometimes I can talk other times no sound and can only breath through my tube. Peace and blessings to you, I was so ashamed of going out and doing things again but now I have decided to just get out and live life. Thank you for inspiring me more to just live my life like everyone else even if they are not like us.
@@psychologicalgmo7808 Thank you for your kind words. I hope you find the courage to face the world and live as normally as possible. All my best to you!
A person can eat with a cuffed tracheostomy tube, but an evaluation needs to be done first to make sure the person does not aspirate when swallowing. For information about how to swallow and how to inflate or deflate a cuffed tracheostomy tube, please go to 3:25 in the following video: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-edd16Ro57eo.html
Hello. I give some tips on how to speak in the following video: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-edd16Ro57eo.html For information on speaking, please go to 1:35 in the video.
That comment u made about people that have a trach r not smart was ridiculous. I can’t believe peeps think like that. Like that person I heard the other day say that men who wear flip flops r weak and r not manlie. People r stupid lol. Sending u good luck take care.
No problem I’m glad I was able to share some of my story with you have you ever thought about becoming an amateur radio operator there are a lot of people with disabilities that are amateur radio operators if you want to become an amateur radio operator look up amateur radio crash course on RU-vid I think you’ll have a lot of fun I’ve been an amateur radio operator for almost 24 years
I ask bc I’ve been trying to figure out what’s underlying my condition for 5+ years. With our medical background, I believe we can eventually figure it out
My underlying condition is Mitochondrial Disease. I have looked into seeing a functional medicine doctor, but all the ones I have investigated do not take health insurance. (I have been informed it will be about $5,000-$10,000 just for the initial work-up. That is way out of my price range.) Instead, i have worked with an herbalist, Naturopathic Medicine Doctor and other modes of holistic medicine. I hope you are able to figure out your underlying condition.
I have had a temporary trach years ago because they wired my jaw or teeth closed Funny story someone told me a funny story and I accidentally squirted chocolate milk through my trach and hit my friends dress