Trach Tubes, Ventilators & medical challenges are my life! I love to share info I have gained and tips and tricks which are helpful. I have been using a ventilator since 2016 and got my tracheostomy tube in 2017. Having chronic medical conditions such as Mitochondrial Disease, postural orthostatic tachycardia syndrome, mast cell activation syndrome, etc., keeps me at home and in bed most of the day. Despite all this, I continue forth with a cheerful heart and always looking for the good in everything. May this channel be a blessing to others.
I have to look for a new primary care because mine refuses to run the simplest of kidney function tests and would rather send me to the ER to get traumatized or to a specialist, who will be a 6-month wait, than order them. This was the last straw type of thing, she has been medically gaslighting me and neglecting my healthcare for years now.
I recently got changed to a bivona trach tube by my Dr. I'm having trouble getting used to it mainly because I'm scared of it coming out and not being able to put it back in since I have no experience with it. My question is. Is it easy for it to come out by accident
I'm glad that you're doing better you sound a lot better too the information in the video was very informative I learned a lot from your channel❤ sending spoons
Thank you for this video. We were advised by my dad's doctors that he will be possibly shifted to tracheostomy if his breathing wont improve. I now know what to watch out for.
Hello. I have a tracheosotmy tube because I have respiratory failure. For more details, please watch the following video: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-ZFFA928Rqsw.html
Wow I can’t believe they really treated you that way I think no matter what they should help a person with any condition or if they have Insurance or not!! Hope you can get all the help & care you need!!
Hi I just got a tract because of smoking cigarettes doctor had to do an amazing surgery and now I have cancer stage 1/2 just started radiation for the first week going on my 2nd it’s been so much & am a single parent of a 5 yr old & 15 yr old trying to do everything I can to fight this cancer!! If you don’t mind me asking what was the reason cause your drug use what was it if you don’t mind me asking? What are your diagnosis? Hope & pray you can get through this and recover
Thank you for sharing some of your story with me. I hope all goes well with radiation and beating the cancer. I have a chronic, progressive medical condition called Mitochondrial Disease. It affects my muscles and most of my organs. As far as drug use, I have never done drugs in my life. The medical doctor in the video decided since I had many symptoms and irregular test results, the only thing which could explain it was drug use. In reality, I have a chronic, progressive medical condition which was causing all the issues.
So sorry to hear about this. I feel the hospitals/clinics could have managed and communicated the closures better especially doctors should tell their patients if they will be moving their practice nearby or to some other states, etc. this just isn't right. Anyway wishing you the best in re-establishing your new medical care providers and gambatte!!
I am glad you had a good medical team and hope you find a very nice replacement team . My husband and I are just starting building a care team for him waiting to meet with a pulmonologist wh8ch where we live are scarce . Hopefulf he can suggest a good RT that we can call when needed.
A primary care doctor suspected it and referred me on to a cardiologist who diagnosed me with POTS. The journey to getting a diagnosis was a very long one. I am releasing a video next week on my other RU-vid channel which details the long road to getting the correct diagnosis. The video will be released next week Thursday (July 18) on my other channel: www.youtube.com/@GodisMyStrength
So blessed to find your channel and me watching such beautiful and strong women ❤ my mother is suffering from oral cancer and doctor told us that she have to get tracheostomy praying for her to get well soon and glad that i found your channel...gave me lot of strength ma'am.... Always keep smiling❤
Thank you for sharing. I am sorry your doctor retired, but I am glad you were given notice. Each state has its own procedures and rules. So there may be a state which has a law regarding this, but as far as I know, there is no law which requires a clinic or doctor to notify patients ahead of time of a doctor's departure. It is courtesy to do so to give patients time to find new providers. There are legal implications which can arise when a doctor does not warn a patient of the termination of the relationship such as a patient suing for medical abandonment. Medical abandonment occurs when a patient feels a doctor-patient relationship was terminated improperly. Medical abandonment falls under malpractice. Most legal experts advise giving patients a 30-day notice about the termination of a doctor-patient relationship to give the patient time to find a new provider. It is generally thought 30 days is enough time for a patient to establish care with a new provider. (Most medical abandonment cases are dismissed if a notice of 30 days or more is given to the patient to find a new provider.) However, this is not a law, just a safeguard to prevent a medical malpractice lawsuit.
I have one question, durian the change after disconnecting your oxygen supply do you hold your breath or do you keep breathing, just curious. Will appreciate your response. Thanks in advance God bless you.
This is one reason I don't like going to doctors. The last "clinic" I went to was THE last one I will EVER go to! They misdiagnosed me with bronchitis. Well, there is a BIG difference between bronchitis and CONGESTIVE HEART FAILURE, which the hospital diagnosed me with. I now have an implanted defibrillator in my chest. So, I am VERY skittish in clinics! I DO hope and pray that you find the appropriate medical accommodations you need.
Thank you for sharing some of your story with me. I am so sorry this happened to you. I am glad the hospital was able to properly diagnose you. Thank you for your well wishes. All my best to you.
Are the hiccups a frequent occurrence or do they only happen once in a while? If they only happen once in a while, doing anything which changes the breathing pattern (such as laughing, holding one's breath, scaring someone, etc.) will help get rid of the hiccups. If it is a frequent issue, it may require an evaluation by a medical provider. There are medicines which can help with frequent, persistent hiccups.
