Focal Seizures with Impaired Awareness 

Absolutely brilliant presentation especially demonstrating how an adult who has this condition can reassure others & maintain their dignity

I like that he didn't say sorry bc it's nothing he could control

When my seizures first started, there were different types, and not everyone told me what they'd witnessed. This was one type I'd have liked to know was happening, so I could report it to the neurologist. I started to wonder about comments in meetings such as, "and she's back. " Nobody told me until years after leaving work that I was having this type of seizure, among others. So if you witness this, please tell the patient.

so accurate. This is pretty similar to my focal seizures. I actually showed this video to a colleague recently as a way of preparing them for how to respond.

Obviously this omission a simulation, but that is almost identical to how my mom reacts and handles my focal point seizures (according to my sister!) I have multiple types of seizure, but for the focal ones, she’s just as calm as encouraging like this, even though I can’t really hear her. Obviously she has to react differently to my Tonic Clonic seizures, but the one thing that doesn’t change (unless it’s a major episode or I’m injured and need emergency care, which is fairly rare) is that when I “come to” (from the focal point seizures) or get more aware after the postictal state after my TCs, she always puts her hand on my cheek, smiles, and says “Hey! Welcome back!” like I just dozed off for a moment. Her being so amazing, strong, and positive is one of the biggest reasons I’m able to handle the fear and stress of intractable and frequent seizures. She’s honestly my angel! On another note, I had a TC seizure while my mom, my little sister, and I were waiting for the bus once. It wasn’t too bad of one (at least compared to some I’ve had) but others waiting nearby kind of freaked out. One woman shrieked (my sister’s words) for someone to call 911, which my mother refuted and calmed the woman down, but my sister absolutely went off on a teenage boy who pulled out his phone and started recording and narrating what was happening; not to help or anything, but as if I was a circus freak and he wanted to post the next viral video! My sister very angrily yelling at him and blocking his camera’s view put an end to the recording, thankfully, but my mom scolding (and slightly shaming) him in front of his friends, thought NOT on video or anything, just a firm “Why would you try to get a video of my daughter sick and hurting? For views? Please, explain why this is funny or cool to see? What would your parents think?” got him to delete the short amount of footage he took and he apologized to me, even though I don’t remember it. I am truly lucky to have such good support during my seizures!

I didn’t know I was having them until my friend witnessed me having one. I Just thought I was tired and therefore blanking out. I pretty much feel normal after it. It’s before it that I feel strange

Follow the advice. Also, when they come out of it, reassure them they are OK. Don’t hold back on telling them what happened. Please. Once, someone refused to tell me what happened and it really got me upset (on top of that all happening).

One thing I’ve learned is that sometimes these seizures can affect memory. The person may have a period of time after the seizure (maybe between 10 and 30 minutes) where they will not form new memories. Consequently they may not be aware that they’ve had a seizure at all. It may be useful to record when the seizure happened and how long it lasted. Then check in with them 30-60 minutes later to see whether they know about the seizure.

My girlfriend has seizures similar to these. She can even talk in a very basic way, she can say yes or no, but when asked anything specific like “What day is it?” she’ll just smile and giggle. It’s kind of like a little girl takes over.

This is excellent. I have focal TLE, and this information is vitally important for others to know concerning the presentation of certain types of seizures. Well done.

So, that's what it looks like. 30 years of the same and I kind of get an idea how, I appear to others. Answers a lot of questions, that friends and family have tried to describe. Thanks.

We experience it everyday with my sibling.... really pray everyone who goes through this has recovery 🙏🙏

Thank you for these videos. I just found out my son may be prone to focal seizures and it's really important for me to know what signs to look for.

I have been dealing with this for a while now, but now as a healthcare worker, it’s even more important that I face my own health problems. This is one of them. Too often do I find myself stumbling for a seat, or a place to lean, my mind a blank as I am struck with a sudden blow of confusion over all senses. No matter what I do, I eat well, sleep well, etc., it creeps up on me and I’m not lost of all sense but I might just as well be. I mean I really am grateful that of all the times, I haven’t fallen and hit my head. I’ve seen the horrible outcomes. It makes me wonder if I’m simply anemic or if it’s something more. The repeated movements, the loss of spacial awareness, the disassociation, the inability to speak. It’s quite jarring, and I hate it

Very well done, quick and to the point Thank you

LOVE IT! So helpful and gives a good idea how to navigate waiting out the post ictal disorientation

Off topic but the bald guy is a good actor and handsome

Love it. Lol I do not go back to thinking after mine. Last time I just kinda kept walking into my wall. 😂 my provider was really calm and for the first time I wasn’t terrified after waking.

This is a really good video! The acting is very good.

It's really useful presentation Thank you

Glad I ain't alone in this.

Thank you for this video, I hope it's still the same for us who have no memory of it happening and no memory of the conversations immediately after, my work colleagues have been super supportive since 1 has a daughter and another a sister with a similar condition. For the last 2 years I had no idea what this was and was told stress and anxiety, but after working on these, the fugue states just kept getting worse! Finally have a diagnosis that makes sense and on the right track, thank you.

After 5 years together, my wife suddenly just started having these. She was having them for two weeks before telling me and today she came clean about. She had one as she was telling me about it and it freaked me completely out.

I have complex partial seizures and I did share of my symptoms to my family so they would know how to deal with me it’s scary and scares my family no history having this just started last month a full blow anyway it’s good to have awareness to share . Thank you for sharing ❤

My husband had two episodes back to back where he was speaking and he started stuttering and his eyes went unfocused. I put my hand on him to let him know I'm there. He is conscious of them he just can't stop. He had one going down the stairs and luckily didn't fall but it scared me half to death.

Great video this is one type of seizures I have know I know the name of it. just had one a coupe days ago why I was at the table eating.

Rly interesting to see this actually. My seizures have jus been straight out me staring, then I'm unconscious shaking and foaming from my mouth.

Thank you for this. Family member has epilepsy after traumatic brain injury, but in denial. Has a lot of focal seizures. Good to know what to look for.

Drugs used to treat "complex partial seizures" (new name:- focal seizures with impaired awareness) Carbamezepine Oxcarbazepine Lamotrigine Topiramate Valproate Gabapentin Refractory cases:- Vigabatrin (only if possible benefits outweighs the vision loss)

I get complex focal seizures, but at least once every one/two weeks the amnesia continues as a postictal effect, so it feels like I’m having the seizure for 30 minutes 😭

I wish there was always someone to help like this. I once fainted because of a seizure. Two or three people helped me up, but before I fully recovered, they were all gone.

When I first started having seizures…mine were all tonic clonic and then suddenly changed to focal around 2023

But my mind is trying hard to stay focuse on what im.doing or where I'm at but sometimes I forget

I have this but mine are much milder and only last 20 seconds. The only way I know if I’ve had one, except when told, is if I can feel a memory gap is missing as 0 memory of anything I do or say is ‘logged’

I'm trying to understand mine I just started having focal seizures with syncope

Most of the time when I was about to have focal impaired awareness I got an aura like change in dimension of the room but i can communicate with anyone to tell them that i am about to have seizure and after having seizures I am usually tired and sometimes alert and after and hour or two I usually have postictal headache.. I have taken medication but sometimes I have seizure even with medication. The reason why I have focal impaired awareness seizure is due to Left Mesial Temporal Epidermoid Cyst of about 3cms

So did he know he was having that ? Is there rapid heart to this ?

My dad always tries to stop the convulsions with force and he has no idea how painful that is for me. Idc if he just puts his hands where I’m hitting/punching but literally restraining me is soooo painful and makes it last longer than it should. I know he means well, but god that hurts.

This happens to me every day

❤❤

I have these and theyre awful! Prayers for anyone who have these or any type of seizures! They get really serious!

Is it possible for them to last longer?

My friend has woken up on the floor in different rooms of his house. No memory of how he got there. I believe he had noctural focal seizures.

My focal awareness seizures are very violent

I hate biting my lips and destroying them. Hard to eat for a couple weeks.

I had an avm and had seizures since I was 18. I was put on both of medication. But after alot or reading and research. I stopped my medicine years ago. I only have water therapy. But I don't take room temperature water. I take near to hot water. I am seizure free for every 2 years. My seizures can't go because my brain has scarring. But still I'm happy and living a normal life. I advise you all to do this too. It's also beneficial for ther diseases ans illnesses. Good luck all❤ Read tonic clonic vide messages from me for mote guidance. Good luck all

This looks similar to those episodes I have. I feel dizzy and as a teenager I ran out the classroom. I know what's happening though and can talk but it's scary because it feels I'm not in my body.

Can I translate it into Arabic?

Great video thankyou but I would add "call the ambulance if you have any doubt about the person and /or this is their first sezuire"

It's psuedo clouded if anything.like hang over from pills

This looks more like a absent seizure

I need to learn this to get away from my work