Roxli passed away April 9, 2020. Her tumor never disappeared. Perhaps, it shrinked significantly during radiation and doctors could not find it. Had the tumor disappeared she would had been the first survival case from such tumor. DIPG is a monster, it's cruel as can be.
my sister just got diagnosed and its hard to hope for a Miracle when were pretty much doomed. like i have to accept my sister is gonna die at 23 its so crazy
I was going to say DIPG has a 100% mortality rate. The highest of any malignancy. It's an incredibly rare neoplasm and so little is known in the grand scheme of oncological research particularly in neurological malignancies. I hope that one day the research we do can shed more light on brain tumor research because although small , the chance that they occur is still that. A chance. A life changing diagnosis. And a life means something. Oncology has been one of the most rewarding and humbling areas of research I've ever delved into in the short time I have researched, and my heart goes out to every family affected by DIPG.
@@arandomperson5434 When the tumor shrinks it relieves pressure to the brain and so the symptoms tend to dissapear for a while- some kids go back to "normal" function and their life is extended for a few months-so I guess you can call it remission.
This happen to my father in law his tumor was very tiny and could be hardly seen, after a year it return and more aggressive and now is in hospice ☹️ I wish there was a cure for all of this 😢❤️
THE SNOOZE BUTTON amen! GOD is so Good, the Good lord spared this life 3years ago I suffered a massive stroke my stroke lasted for 5hours before I was able to receive treatment, , although I’m disabled at the moment I’m grateful that GOD allowed this to happen, I was in the highway to Hell, GOD will use this stroke to bring glory to Christ, man says that I have permanent brain damage, I decree and declare that king Jesus has completely restored my brain
OTISIN GREENER are you blaming GOD for starvation? It’s funny how people like you are quick to blame GOD for the bad things of this world, you never give him thanks for the Good things case in point this little girl completely cancer free, you attack gOD when someone gives GOD the due Glory , it doesn’t hurt GOD with you being bitter at him
THE SNOOZE BUTTON it’s disgusting to see these scoffers come out in droves attacking the Devine works of GOD forgive them lord for they know what they do
Mis tumores cerebrales tambien desaparecieron un dia antes de mi cirugia programada. Me hicieron segumirnto con MRI como todo un año y uncamas aparecieron.
@@pelon22 Nada la verdad! Oraba dia y noche . Le pedia a Dios no faltarle a mis hijos . Era lo unico que hacia . Yo lo llamo un Milagro de Dios. Que mas?
@@pelon22 No nada. Si lis tumores me los descubrueron un 12 de Febrero del 2020 cuando la pandemia recien empezaba despues que una niche antes casi me moria del dolor de cabeza y espalda. Al dia sgte fui a urgencias, y me sacaron un CTI y luego resonancia y es ahi cuando me dicen que debo it urgente a iperacion para remover solo el de lado izquierdo del cerebelo por que el que estaba arriba casi en la corona de la cabeza , iba ser muy prlihroso tocar esa parte y que quizas con tratamiento de quimio lo iban a tratar. Entonces, me hicieron la fecha para la cirujia en 1 mes para el 20 de Marzo y dos dias antes de la cirujia promagramada , me fui a hacer la resonancia y al dia sgte la enfermera del cirujano me llama para cancelar la ooeravion por que no aparecian los tumores en la resonancia de un dia antes. Yo honestamente pense quizas se habian equivocado de paciente o habian mezclado mi resonancia con la de itra paciente , Tambien pense que quizas no me querian operar por el covid etc etc Pedi hablar con el mismo Dr Lee( Cirujano) y me dijo de que no el se l podia explicar en sus 25 años de csrrera, habia tenido dos pacientes con edte caso simiksr. A uno nunca le refgresaron y al otro si.
I'm sorry but that is not true. The cancer is still there and the little girl is still going to die within a few years or months. Once you have dipg it doesn't just disappear. It might be undetectable right now because of radiation but it's there for sure. It will come back.
Lol you’re another slow person aren’t you? Doctors run a series of labs of blood to test for cancer, maybe you should leave the testing and the results to the experts also you obviously don’t know GOD by saying cancer just doesn’t GOD by saying cancer just doesn’t despair it’s hilarious to hear you scoffers try to down play the work of GOD , GOD created the heavens and the earth in 7 days cancer is nothing for GOD to defeat
That's why they are still continuing aggressive treatment against it, because if you are diagnosed with DIPG, it will never fully dissapear unless you eliminate every single cell of the tumour.
You are slow...this type of cancer is NOT found in the blood but by MRI or CT scan. Study before you put down others. You make yourself look foolish, otherwise.
@@pilas3000 We aren't supported to question his decisions I had a child die and never doubted his plan for I knew she is with him Trust Pray and ACCEPT WHATEVER OUTCOME HE GIVES
@@michelemichele5441 we dont have the answers, yet here you are running around saying god has caused a miracle. Which is it? You either have the answers, or you're just making up stuff. Im going witj the latter.
Michele Michele Im sorry to hear of your loss , but atthe same time I’m very happy to hear That you’re not bitter with GOD GOD bless you my sister in Christ ♥️
@@zack2322 I’m sorry I’m just now seeing this. I do not need to provide proof. You can actually look it up. Her family has pages on Facebook. I am an advocate for this type of brain tumor. No one has been cured of it. It’s 100% fatal. Roxli passed away.
That girl is a lucky little thing! They need to see if they can replicate her experience with all the other kids who lost and continue to lose their battle with dipg! My best friends 9 yr old died from it in November
She actually died a couple years ago, so there has been no survivors… It might have gotten so small it wasn’t noticeable to the doctors and must’ve come back rapidly. Very sad.
h rex absolutely we praise GOD for the Good , and in all situations, you can sit there and be bitter with GOD it’s not hurting him , it’s only making you petty, what I find funny you don’t blame the Satan for the evil, Only Good comes from GOD , don’t be bitter, repent today, tomorrow isn’t promised the next 30seconds aren’t promised, you cannot control the day you are scheduled to meet your maker, make no mistake his word says every knee will bow to him and confess he is lord , you will have to give an account for on that salvation is free , you aren’t gaining anything by being bitter with your creator, it’s a wasted emotion, how can you condemn GODs plan his ways are above ours and his thoughts are above ours, GOD is the alpha and omega the beginning and the ending, meaning he knows all , god loves you his merciful, don’t wait repent today, GOD allowed me to suffer a massive stroke 3years ago, I could be bitter about it, but I thank GOD for allowing it to happen, you, the word ofGOD says he works all things out for our good, bad things happen in this world because of sin, I was the worst sinner known to man before my stroke , GOD spared my life, so I completely turn from sin , whereas I use to premeditate sin, once you are saved you will no longer want to sin, my mind set before, I was an an adult I should be able to go out and party, no more I serve my lord daily, what Satan meant to be a curse , GOD made it an incredible blessing
@@rsar61 Well nice job admitting your supposed omnipotent god cant prevent satan from running around and having any kind of evil influence on anyone or anything. What happens if i dont repent and die? What will your loving god do with my soul? Oh thats right, ill be condemned to eternal torture in hell simply for not believing.
h rex lol if you weren’t babbling about something you have no idea on what you’re talking about, you would know gOD has given everyone free will 🤦♂️, what do you think should happen to you if you don’t repent? So if you end up in hell , you’re only to blame, because of your Stoney heart , you cannot blame GOD for the eternal damnation of your soul you know you must repent
@@rsar61 oh really now? Thats interesting because im constantly bombarded by Christians with the parroted sentiment that god has a plan for us all, and that everthing happens through the will of god. Now here you are saying the opposite. Oh thats right, there are over thousands of denominations of christianity because you all interpret what the bible says to what feels best, not actually whats true.
@@nooraqueen2716 it did come back. DIPG is incredibly aggressive and it’s said that less than 1% survive. Mainly because those who have “survived” still have it even many years later, but the tumor is just stabilized and not growing. Unfortunately Roxli’s tumor did return, and she passed away last year.
agreed. considering how deadly DIPG and no 1 survives it. I'm shocked the doctors gave false hope. Just because it didnt show on the MRI doesn't mean it wasn't there.
