HE GOT ADMITTED TO THE HOSPITAL 

Just keep advocating for him. Trust your mom instinct. I hope he gets the help he needs. Best of luck to both of you. 💗

Positive step - you got Griffin admitted. Positive step - you pushed up the swallow test. Positive step - they're running tests. Your doing it Emily...keep on doing it, kind but firm - push on through - you are your childs BEST voice. Love from Scotland x

As a social worker, I can tell you that if you weren't bringing him as often as you are, and you brought him in dehydrated and perhaps malnourished, they would more than likely open a case. You are doing the right thing.

Him smiling in the background at the beginning melted my heart❤❤ 🙏🏽🙏🏽 for you all

My sons tonsils weren't touching but he would choke. When they were removed he was fine and never choked again.

we were on state insurance when I was little it took 10 tonsillitis's and 6 strep throat in a 9 month period before they would remove my tonsils they were so big they were a millimeter from touching the surgeon said they were obstructing my air way when I would eat my oxygen level would drop to 94 you got to get mean before they will do anything prayers for you and Will and Griffen

Praying for Griffin & his mommy and daddy during this ordeal, prayers for healing & patience🙏🏻❤️

We've had to deal with different issues, but we've totally been where you are. We've spent so many days in the hospital not knowing what our daughter's medical issues were, but basically refusing to leave until we had a better plan. Keep sticking to your guns! Praying for you! 🙏

Go mom! You got this! MANY HUGS AND PRAYERS..

Go to a different children's hospital girl!! Your an amazing mom and I know your putting all your time and energy into fighting for your son, but if you were told before that his tonsils were too big, I would go to a different children's hospital and get another opinion

Get a special needs lawyer an sue the hell out of the hospital because if you don't the hospital is just going to keep messing you around untill your having to plan a funeral but get a special needs lawyer an fight to have his tonsils removed because a mothers instinct is always 95% of the time right

Big healing vibes and hugs to you all, I can’t imagine mumma xxx

You just keep pushing. You know your son the best. Sorry the doctors are treating you that way. Remember no matter what they say you are strong, don't give up. If you need to get mad.

Sending much love, light, prayers, and an abundance of beautiful healing blessings. 🙏🙏🙏🙏

My daughter has a genetic syndrome and she just had her tonsils & adenoids removed they weren’t touching! Keep pushing mumma.. Actually I did tell them about some sleep apnea she was sometimes having so maybe that’s why they agreed without much trouble..

angelman advocate from the clinic...call them. the insurance companies control the drs, hospitals and it's not about the patient anymore. bless your family!

Momma instincts are real!!! You are doing a great job!! Keep advocating for him!! I love your sweet family! Praying for Griffin❤️❤️

Praying for Griffin and you and Will. This is so hard but you have to keep advocating for him. Something is definitely wrong. Prayers for the doctors to realize what is wrong.

Aww... Griffin is so lucky you’re his mom! Praying they figure this out really quickly! Many huge to you mom! Praying for you all!

Im really praying they figure out whats wrong with Griffin so, they can fix the problem. Youre a great mom Emily. ❤❤

I so so hope the people in hospital start taking you more seriously and Mr. Griffin feels better soon! Sending positive vibes!!

Oh my gosh how frustrating for you. Keep fighting for him. Prayers going up for you all and that God sends a person into your life that knows what to do for him.

Keep doing what your doing your a great mom. And your taking good care of your baby. Wish you the best for. Griffin. Prayers from LaSalle. Michigan

Ask to speak to the patient services manager. You’re the mom. Trust your gut. You know your child better than any doctor. Prayers!

Some doctors just don’t care. I had something similar happen with my kid, but it wasn’t his tonsils. The medication he was taking was making him not want to eat or drink and though he wasn’t loosing a lot of weight, he was very tired and cranky all the time. It took a lot of fighting on my behalf to have the doctors finally realize that it was in fact the medication and not a behavioral thing like they kept telling me. Keep asking for answers, get second opinions, ask questions until something is done.

Praying for you all. Keep up the amazing work you are a great mom

I am so so sorry to hear you are going thru this! I can’t believe the doctors aren’t helping way more!!! 😱😱😭😭😡😡 Praying for poor Griffin! And for you and will and whole family!

Stay strong mama. YOU are wonderful Emily x

You are an amazing mother,continue to follow your instincts. Yes at least you got him admitted first step. Will continue to pray .

Emily!!! You are a wonderful mother. Hope will is liking his new routes. Wish I could post my phone number. I have been watching you and your green carpet for years. Haha Hope rest of the babes are doing well. Posey stole my heart! Lol she is growing up way to fast.

You are doing such an amazing job with him . I will say prayers he gets the right doctor who listens to you .

Buy him some Pediasure! Talk to his pediatrician about it first, but it should be enough to keep him full and healthy until he can start eating solid food again (especially if they put off the swallow test). He doesn't need to have solid food to have a good quality of life. I have an ex who had a 2-year-old son (at the time, the "kid" is in his 20s now) that had a feeding tube and he only had Pediasure for his meals. I don't think this is happening with Griffin, but my ex's son had a hernia in his esophagus and it was causing him to throw up whenever he ate by mouth, so they put in a feeding tube (directly into his stomach). I'm also surprised you had to bring your own food for him when a children's hospital should definitely have Pediasure on hand.

COME TO MEXICOOO!!!!! 🇲🇽 I’m pretty sure doctors here will be able to do something about it without bringing up so much crap. My husband got his removed at 10 and hasn’t had any problems since.

Hello! I have written a comment when I first subscribed to your channel. It never occurred to me that When I was talking about ALex (my grandson) that he also cannot swallow well. We noticed when he was four yrs. old. He was diagnosed with Angelman Syndrome. He cannot chew hard food. He is almost 34 yrs. old and we cut up all food that is not soft enough to swallow. We cook his vegetables and there are foods he cannot eat at all. We notice an effort to chew but no success. Even bread has to be broken up. Be patient with the medical persons, they have to justify a surgery. Putting Griffey ‘under’ for tonsil removal is a risk in itself. Soft foods may be the answer. Your emotions are understandable..Hope all goes well!

I hope you got answers and needed help! Sending so much love and prayers!

Sending Prayers 🙏🙏

You’re a great mom and doing what you need to do for him. Unfortunately it does take some time to get to the bottom of stuff like this and it is appropriate to look at everything cuz you don’t want to miss something. Hang in there and don’t doubt yourself! xo

Praying for you all and I had to wait a year to get my gallbladder removed and it took going to the ER every week sick to get help.

You are a wonderful mommy! You are doing the best for your child. Thank the Lord that he has such a sweet personality!

I know you moved mountains to move from NY to Colorado to get better services, but I wish so much you lived out here in Northern California. The hospitals here are very responsive and I can’t imagine you not being heard. Keep fighting Emily and Will should put his two cents in too, because the sad thing is that sometimes a mother’s instinct gets looked at as over reacting, which completely sucks. Sending blessings 💜💚💜

my grandson 5 had his first case of tonsilitis and was hospitalised couldn't eat or drink....he is having them out in the next few months as well as his androids.. he also has add and is an active little boy.....hope Griffin gets the help he needs quickly !!

Prayers for all of you, don't let stupid comments bring you down. You know him better than anyone.

Keep pushing Emily! You are doing the right thing!

I'm glad they admitted him. Thankfully you've been able to get liquids and baby food in him, but something has to give. Praying they'll look at this situation with a new perspective and give Griffin the help he needs. Stay strong, Emily! Hugs from West Texas!

hope he gets better soon i I'll be keeping your beautiful family in my prayers 🙏 ❤

I had Botox injections multiple times into my neck and once it got into my swallowing muscles. Sometimes Botox migrates further than it’s supposed to. If it’s Botox it shouldn’t be getting worse though and should resolve within a few weeks.

Praying for you and the family and poor Griffin. Hope they finally do what needs to be done. Your an amazing mom. ❤🙏. I am new on your channel

Keep fighting and trust your gut! If it’s not the tonsils then tell them you are NOT leaving till you find some answers there is SOMETHING going on

Emily you are doing the right thing. Keep on being his advocate. Sometimes it takes you have to continue to fight for what you think is right. I know that its hard but both you and Will have the strength to fight for your baby boy Griffin. I'm going to be praying that everything goes your way. That the doctors will see what he's going through and what your going through as a mother. We love you and your family. Prayers work Emily 🙏 ❤

PLEASE ALWAYS trust your mothers instinct. My middle kid would have been dead if I hadn't trusted mine. I was told so many times he was ok even though he had failure to thrive , his kidneys totally failed at 10 months old!! I knew something was wrong!!

Prayers! 🙏🏼

Keep fighting for him mon! You are right I think about his tonsils! Why not take them out they are not really needed! You and Griffin and your family are in my prayers!

If this is ongoing he should have a scope and biopsies of his esophagus done. He could have EoE or something else with his esophagus.

Hi this might be strange thing to say why don’t a dr or a nurse feed him regular food and see what happens.. they need to do something sending prayer and hope they help you out poor Griffin sending love and hugs 🤗 ❤️💙💕

BIG HUGS MOM. YOU ARE AMAZING

That's frustrating. I'm praying you guys find a solution for him soon!

It’s his tonsils! There is barely any room in there to swallow food! Why won’t they just take them out? I’m so sorry you guys are being treated like this.

Hope Griffin is doing well, have a great happy day

Prayers are with Griffin: 🙏🙏🙏

Sending you huge hugs and prayers Emily

You are your sons voice so keep advocating for him. You are a wonderful mom

My heart hurts for you! I so understand your frustration! Medicine is such a process of elimination. I pray that they figure this out soon for all of you!!💞

mom life. we need to keep fighting for our kids. hugs and prayers!

Can you put the actual date the footage is from?

Emily, I feel for you! I went through the same thing and like I commented in your last vlog my daughter was 17 before they took hers out. When she recovered she said mom I never felt so good. My food doesn't feel like it's getting stuck anymore and I don't have to chew it until it's mush. I live in Syracuse, NY and my friend was her pediatrician and she also felt like they needed to come out years before they did but still no one would take them out.

Time to call a news station and get it shown nationally and maybe a Dr will reach out???

Good wishes little man l hope you feel better soon love from NZ

He needs his Tonsils and more than likely his Adenoids removed! My daughters Tonsils were that big, I had to explain she STOPPED BREATHING when sleeping. Apnea episodes are not a joke.. neither is choking! Oh Emily I feel so much for you guys right now. In Australia they would have had his Tonsils out !

Hope you get some answers soon, sending love, hugs and prayers to you and your family 💕💕🤗🤗🙏🙏

Praying for your sweet boy please get help xxxxx

Huge Hugs to Griffen,Your an amazing Momma ❤️🙏also,my deepest condolences to Boulder City,The fallen Officer,his family,victims,families,community 🙏💔🦋🕊

I'm keeping you guys in my prayers

Praying for him keep in my prayers i too had surgery i cant see blind lasic eye laser surgery in home recovery alot of surgerys

Praying for him

Just want to mention that each time you do a botox injection...its a new procedure. If they get it off and it effects numbing the throats ability to work with swallowing...that will be a whole other story. Swollen tonsils and the throwing up and gagging and his afraid to eat should all be addressed too. Do you have an angelmans dr? They should be who handles his case. Er and general hospital dont know him or you. You have to get very specific and explain exactly how long youve been working on this and that swallow study should help to know if its from botox or a reation and adversion to eating and choking from swollen tonsils. They need to understand your 24/7 with him you and husband missing work and have 5 other children that have to be attended to and Griffin with this choking constantly is the only thing you can focus on and would not be reaching out and stopping the caring for the whole family if it was insugnificant. Ask direct questions. They wont be able to give you an answer to and get their gears working. Find out if angelman association can help you. Is their a support group. You need to talk to your flock. Mommas who have experience especially with botox and large tonsils and swallowing choking issues. I know its overwhelming but while grigfin rest do some research or get someone to do it for you! Its gonna be ok but it is so sad and agravating what lengths you got to go to for every possible thing! Deep breath! Find an angel group and talk to a director!

Emily please get a second opinion. And do you think maybe the nurses and doctors think it's not as bad as you say it is because of the way Griffin always seems happy no matter how rough he feels. Isn't there any other hospital for children around y'all within a hour or so from your home? I don't know I feel like I'm getting so frustrated with this hospital and I'm not even there. I'm praying y'all get all the help that little boy needs.

Don’t let them rule that out as a child I always had really big tonsils and would also choke while eating, at 16 I got them removed and it stopped all the choking I was experiencing. If u believe the issue is his tonsils continue to fight so they can have them removed. Maybe try a different hospital.

GET MEAN!!! CALL IN A PATIENT ADVOCATE. YOU ARE HIS VOICE. DON'T LET THEM INTIMIDATE YOU

I hope she feel better soon I am praying for all

For me this is a strange and heartbreaking story. Here in Belgium they just take them out. It's a standard procedure. I hope he gets the needed help fast.

Dysphagia is fairly common in kids who have disabilities, it's not related to the tonsils. Many of these kids end up with feeding tubes if it can't be helped. I hope they investigate further, it sounds like this is why they're reluctant to blame it on the tonsils.

Hi from New Zealand, what happens if he gets sick ? Given the change in the seasons and the fact his siblings go to school his chances of catching something are increased especially with his little body not being in full capacity (Eating/drinking). If he develops some sort of infection in his throat it could be catastrophic. Not trying to instill fear but surely it's a valid arguing point with the Doctors. Griffins safety must come first!

Keep strong for him

Hope he feels better

Praying for you.

If I was there I would help him. I hope he is ok

Just so you know your son is in my prayers and so are you 🙏🏽🙏🏽👍🏿😊

Prayers for you and Griffin. I can’t iMovie how scared and upset you are and I pray and hope someone listens to you and actually hears you because this is absolutely ridiculous. It’s like how much swollen does my child’s tonsils need to get ? Like he’s probably scared to eat that’s why he’s decreased in eating like every time he eats what he loves he’s choking . Like what else could it be? It’s like yeah his body is still allowing him to do the bare minimum in breathing and getting some food in bud it’s like your tonsils should never be that bug and the fact that it’s not a cause for concern until they are touching is absurd! Like I can’t imagine how not only scary this is for you but also exhausting and frustrating because your gut is telling you that something absolutely just isn’t right with your son and I just wish people would take mamas seriously when they say that because that’s your child the very child you carried in your body you know everything about your kid so when your gut is telling you something isn’t right snd it needs to be fixed it should be taken seriously. Plus I mean seriously now if “something scratched his throat “ it would be healed by now but that still doesn’t explain his tonsils being so large like they maybe would’ve have gotten a little irritated if something scratched them but they wouldn’t have gotten so large I’m not a doctor but logically that doesn’t even make sense it just like no. But prayers it’s figured out so Griffin and your family can get back to your lives and that scare and worry and frustration is lifted.

Make sure to do the survey they send you. The unit you're on will see it/ that's how compensation is continued to the unit via insurance blah blah. Lol Good luck with everything!

Sending prayer

Send my prayers out to you

I hesitate to comment but I must in fairness to you. You should have a serious talk with the doctor about the role play. I had my tonsils out when I was about 12, I'm now 82. I had my appendix out when I was four. They used to take them out almost indiscriminately. However they have discovered they have an important role later in life. I don't know what that is exactly. I know you're concerned and I appreciate that. You have to advocate for your children, as only a mother can. You're an angel in disguise. I hate to see you so upset because your health matters too. You are wonderful mom. My heart goes out to you. I'm praying that everything will be all right. I wish you the very best. I love you very much! ☘️☘️💕💕🙏🙏🙏🙏

CALL IN DISABILITY SERVICES

i hope things get better for you and for Griffin Do you have a better childrens hospital ?

Possibly go to a top notch snoring center? They shrink tonsils.

Good job Emily ❤️‼️ The dark circles under his eyes 💔‼️ BEST MOM EVER ❤️‼️

This is horrible! Tonsillectomy are such a routine procedure. I don't understand why they need a swollow study to take them out. Inflamed and swollen Tonsils in a child that struggles to eat. Get his tonsils out!

You need to go somewhere else & keep that report open with the patient advocacy. Then afterwards, you can go back & say yes it's the tonsils, they've been removed & he's fine now. And get a special needs lawyer too, they can do more of the fighting for you & you can focus more on Griffin & the other kiddos. Get as many people on board with you as you can to help you fight. Oh, & although it shouldn't make a difference, sometimes it can change things if Dad takes the child in. They listen better, which yes, is maddening. Plus, the swallow study could show that it's the tonsils.

I have a terribly sensitive gag reflex. As soon as I get a swollen throat I throw up due to my throat being "wrong" if I swallow my meds wrong I throw up. Maybe Griffin's swollen throat is having a similar issue. Keep being pushy about getting the little man help.

Do you know what the first thing an ER Dr looks at on your chart...before he sees you? Your insurance. Trust no one and question everything.