Thanks so much, I am in the process of being diagnosed and you helped me a great deal. Your journey re the lymph node biopsy is the same, too close for needle. You give me hope. All the best to you.
I have that same thing, a soft spot right near my collar bone, it's tender & I have been running a slight temperature for 5 days. Thank you for posting, God bless you and keep you♡
Thanks, it's so hard, I have some fear about what lies ahead. You are such a strong person to have gotten through this. I will need to take inspiration from your videos over the coming months.
I am going through this horrible process. It is not diagnosed yet but I have all the symptoms. I feel lots of compassion for all of you going through this. Sticking together is the best thing to do.
I'm just waiting for my needle biopsy after my doctor found a lump in my neck. They also found a mass in my chest. I've been in tears trying to come to terms with what is happening. It looks like a long and difficult journey to recover and certainly a life changing experience. I guess all you can do is focus on being positive, eating well, and having belief.
I was just referred to oncology. I've been begging for Dr to help for agonist a year. Low lymphocytes and platelets, low iron adsorption, low immunoglobulins. Hyperthyroidism, sternum pain (thymus I think) choking, breathing struggles. It's been tough.
Cynthia, previously I have been diagnosed with ascites and lymphadenopathy and my lymph nodes are growing in number and size and I'm losing tons of weight despite my high-calorie intake. I'm so desperate to get my health back and resume my normal life because no matter what doctor, surgeon or hospital I go to ''they fixated in telling me that there is no treatment for my condition and they just sent me home and then I come home empty handed knowing that my condition is still persist. Can you briefly tell me What are PET scan and the process of it? What is the first test for a person like me to consider to rule out lymphoma? I have always wished nothing but the best for my family and friends, can't believe I have to go through so much worse especially in this holiday season. Their -delayed or false-treatment sucks the life out of me. xoxx
Hi tanya hope your keeping well and make full recovery, I was diagnosed with low grade non hodgkin lymphoma in December 2018 i started my chemo in January 2019 and i received a total of 8 lots of chemo and I'm now half way through my 2 year maintenance treatment, love from Scotland
@@Random_Butts will never be cured, what my consultant said to me in February was at the moment there is no sign of lymphoma at moment but because it's got a habit of coming back and I'm 60 there is every possibility I'll need more treatment at somepoint but they can't put any time limits on when that will be, hope you're keeping well yourself
Hi Tonia, thanks for sharing your story. It sounds like you were very proactive in quickly getting diagnosed. However, you also went on treatment really quickly. How did you decide going through with treatment? Did you look for info also on what would happen if you didn't get treatment for your type of cancer? Any answers would help. Just want to understand a bit more about your thinking process. And glad everything is looking more positive now for you.
I did not want to wait for the desease to spread any further since it was at stage 3. I did do a lot of research and this treatment had 90% success rate. I did not feel I had enough time to explore trial treatments. my dad past away from stomach cancer and my mom is a breast cancer survivor that went through chemo therapy. I hope this helps.
I had HL stage 4B. Had a long hard treatment which put me in the hospital 4 times. 3 times was in ICU. Beat and am 8 months out. Just dealing with side affects neuropathy being the worse. My immune system isn't recovering and looking into immune deficiency. My my symptoms were large lump in my chest, Tiredness and night sweats leaving me drenched.
Hello everyone. I have non-follicular Hodgkin's lymphoma or NHFL. Can I just add a comment that I hope will help everyone with lymphoma? We go through a lot of biopsies. I was diagnosed three years ago and had a node removed in my neck. My scar was quite pronounced. Don't know how many stitches. However, I used the aloe vera plant (the actual plant sap, cut the leave down the middle and take the sap and rub it on the scar) to rub on my scar every day for weeks and even cellotaped the plant sap to my neck when I went to bed. Did this for weeks. To this day there is no visible scar. If you want to be scar free from your biopsy, please use this plant. By the way, I don't sell plants, just in case anyone asks. I bought mine from Amazon and kept the pieces that I cut from the plant that I used in the fridge in tin foil until I needed more, just to keep them fresh. It really works. No more scars. Hope this helps.
I had Hodgkin's Lymphoma 2B. Finished my treatment May 6th last year. I had multiple lymph nodes on my neck. I had a nose scope to make sure the swelling wasn't in my throat. I was very 'lucky' that it was in an area that was easy for the needle biopsy. The results were inconclusive with A typical cells so they had to take out one of the larger lymph nodes. I had local anesthesia for the removal since I was pretty calm about the whole removal. After the biopsy and two diffrent CT scan I got my port placed the same way with the conscious anesthesia. For me the chemo was a roller coaster of feeling down then feeling 'normal' just in time for the next treatment. I will say that the effects build up over each session. Let your doctor know everything that is going on with you as far as how you feel and want side effect you are having. As far as the headaches I found that keeping hydrate is a major thing with them. I would wake up with my head pounding and after having a few large glasses of water things would start to feel better even without pain meds. Good luck to you girl I'm 30yrs old and fought the battle and beat it. You will do great!
I had affected lymph nodes in my neck on both sides, arm pits and chest above my diagram. I had one large one on the left side of my neck that was my clue in. Vi could only find the one large one and two smaller on my neck. I don't remember the exact total.
censedfear Mine did have a very slow growth. For me the signs of night sweats and horrible itching was what stuck out. The node was also swollen for 3months without going down. Best thing is to be examined and if needed biopsied.
Carolyn Ponder can you please tell me if you had excruciating pain due to the lumps. I was also diagnosed with hodgkin's last year, but recovered without chemo but I still feel so much pain due to these lumps on my neck and armpit. Did you have any pain when you were diagnosed too?
I have a question...do you happen to know the size of the lymph node above your collarbone on your ultrasound?? I have the exact same thing you described and on ultrasound it was 1.2 x 0.4 x 0.9 cm, yet they said it was "normal". But based on ALL of the information I have found, it is NOT normal for a supraclavicular lymph node to be that big. I'm very concerned. :(
GOD be with you and GOD-willing u be cured of it. Keep Strong. How is it going for you with the chemo and are the lymph nodes responding to it by shrinking away?
Yasmin Padia yes my PET scan showed that all lymph nodes are normal. thank God. I just had my 7th treatment so I have 5 more to go. I am doing good the worst symptoms are body ache on day 5 and 6.
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Hi, how inflamed were your lymph nodes at the time you got the ultrasound done? I have had some inflamed lymph nodes in my neck over the neck bone, doctor scheduled an ultrasound that showed them, but the doctor said they are not too big to be concerned, 11mm the largest. He also said he wanted to rule out lymphoma, which he did right after the ultrasound. He said this is nothing and I should wait for them to go away naturally... I felt super relieved, but two more months and they are still there so I started to worry again, that is why I ask. Thank you and hope you are doing well. 😊
I feel the same way I had one confirmed in my neck another node on my thyroid and then I have this even bigger one in my groin that I haven't gotten checked out yet cuz it only popped up a few days ago... I think. But the symptoms I'm experiencing total itchiness all over my entire body it's driving me nuts I keep thinking there's a bug crawling on me it's driving me insane. And I bought antifungals for the bottom of my feet but I don't know if that's really even working my feet are still itchy. I have to be on anti nausea pills for last couple years now because if I don't I'll puke so much at all mess up my teeth in my esophagus and I always losing too much weight. But nothing is going on so I don't really know what to do from here. I have a colonoscopy here in a couple days but I got sick and I don't know if they'll do max sedation anesthesia with chest congestion
How old are you by the way? Im 36 and think I may have it. I have 2 lumps in neck and night sweating. I have body itching but no rash. Getting a ultrasound monday.
I’m currently waiting to get CT scans on Monday. I’m very scared as I have multiple nodes enlarged all over my body. None are huge, but they began to increase in number. I was wondering if you had blood work done before your biopsy. My blood work has been normal, but not sure if lymphoma can go under the radar. Hope you’re doing well!
My Hodgkins Lymphoma story My scans were of my neck/chest and abdomen and apparently showed no adenopathy or any abnormalities. Gonna get a couple more scans (MRI and ultrasound) in other areas. What’s odd is that the CT didn’t show a lymph node that’s around 1.1 cm in my neck. The oncologist who I’m seeing for this initially mentioned a biopsy, but didn’t say anything at the followup. I’ll be seeing him again next week after these other exams. Still a bit lost as to the cause of my symptoms. Most of my bloodwork (a lot of things were checked) seems fine. Hemoglobin and red blood cells are a little out of range, but they don’t seem too worrisome to the doc. Thanks for the reply by the way!
Hello. I have this multiple swollen lymph nodes which is about a pea size over my right colar bone, and below my ear lobe. At first i just notice 3 lumps. It didn't increase in size. Instead it increases in numbers. Rn i can feel it, it's on my left neck area. Just in a few months.then, I went to the dr, they prescribed me with some antibiotics. 3 visits, with different dose of antibiotics, but the swollen lymph nodes never goes away. On 15 march i will have an appointment with the dr again and they will decide whether i have to do the biopsy or not. Honestly i am pretty scared. Cause the lumps grows a lot just in a glimpse. I have some symptoms too which i thought it might be normal, like flues and night sweats.
Hi... did u have any symptoms or was the lump the only thing you recognised?? Also... did u straight away go the doctors after feeling the lump or did u wait a couple days or weeks? Really happy ur healthier now btw and done with chemo!
iman safeen I did have flu before and my legs were itching in the evening which I thought was from dry skin also I had red rash patch on my hand the size of a coin so I decided to get it checked out and scheduled appointment the same week
My dad is doing chemo now and is very suck and not allowed to eat raw food and raw juices. Dis your doctor ok for raw food or did you just went ahead against the doctor’s advice?
Hamid S what do you mean 14 chemos and no results? If there are no results after 14 sessions then the doctors need to reconsider the medication they are giving you! Please brother let them know that you are worried! May God cure you.
1 Month ago i was visiting and they said nothing to worry if lymp dont grow its fine. You have tonsilitis and reflux drink immune system drops and spray your throat another drugs (feel like drinking oil) after using over 1 month my nodes started to shrink but still im concerned when i woke up my nodes are allmost similiar size you cant see them but you can touch. after 1.5hour my one nodes becomes very small and you can barely touch. I guess i got virus and micro tonsilitis never had any flue or childish diseas at young age. Honestly doctors are pain if you talk about this topic they just ignore you give stupid test check etc who show you are fine. got checked 1 time and said im fine just white blood cells idk ho to call them bit to low. Got antibiotics and thats it. if nothing changes over this week gonna visit doctor again :( for another chek up scared as hell.
This is currently something I am getting checked for, although symptoms vary, i have some common symptoms along with a pea sized swollen node behind my ear that they initially thought was from an infection, but it didn't go away with antibiotics. I haven't heard much about my chest xray which I'm guessing is good or they would have called. I've had suspicion about lymphoma for a few months now. 2 years ago I and Epstein Barr virus and have been dealing health problems additional to what I already had. I just found out that epstein Barr could cause lymphoma.
Hey trying to see if you have an update on everything? I recently just tested positive for recent Epstein Barr Virus, however my blood work looks a little weird, but my doctor said it could just be the mono working through me. I've had swollen lymph nodes under my jaw and chin for over a year now, and have had a rash that my GP said looks like pityriasis rosea for 1 month. Seems like you have a similar experience and wanted to know if you went back for further testing?
i'm also diagnosed for hodgkin lymphoma stage 3 and now i'm already for finished for my 3rd cycle chemotherapy out of 6. can i know your regime ? is it ABVD or BEACOPP ?
My Hodgkins Lymphoma story ow my regime is day 1-3 day 8 until day 21 means every cycle is 3 weeks. do you have any injectuion after the chemo ? like naepogen ?
Try to eat and drink to keep energy. I did 14 but after the 7th I had harf time eating and got so weak. You have to push through. I unfortunately stopped after 14th time. You can do it just stay positive
Hi I'm 21 and I've essentially been rather ill with swelling and edema, I had a x ray and the shadow produced on my right side suited the basis for lymphoma. I have a CT scan in a few days and I'm terrified. What advice do you have to keep calm and positive as I'm really kind of on edge at the moment Hahaga. I don't know yet however the evidence is weighing up and yeah. I hope you are going strong and any advice is graciously welcome :) xx
JonnyT121 I know what you are going through, I was very scared and could not sleep waiting for testing and the results. I tried to think positive so that is what I recommend for you because yours might turn out to be non cancer. If it is hodgkins just know it is treatable and you will get through it. I am having my 12th treatment tomorrow which is my last one and I did fine and was able to work through it from home. God bless you, I will say a prayer for you.
My Hodgkins Lymphoma story thankyou so much I've definitely thought more positive and it's kept me more grounded and less depressed. I'll keep you updated as and when if you like!
My Hodgkins Lymphoma story Hello again! Quick update, I've seen my Haematologist and she is rather convinced it's lymphoma. My CT scan showed I had a mass in my anterior medistinal (space between lungs at the front if my chest) that is 10cm in its max dimension! A good note however is that they spotted no other masses anywhere else, however my PET scan in a few days will say definitely if that's the case. I had a ultrasound biopsy under local anesthetic yesterday and that went rather well indeed. Hopefully by the end of next week Or so I will know exactly what I'm dealing with! Also I'm graduating next week so I'm looking forward to that. We are all trying to keep positive but every now and then I just sense impending doom hahaha, but I have youth and good fitness and all round health on my side hahaha and they say it's usually very treatable. I hope everything is going fantastic with you and you're staying strong! Yours Jonathan x
scared beyond belief man i’ve had a swollen lymph node in my neck for about 2 months and i noticed one when i was feeling under my arms and doing all this research i’m basically convinced i have it as well.
Hi I had 2 small pea size bumps that appeared a few months they didn’t hurt but didn’t go away. a few weeks ago they got really swollen or inflamed and they hurted. I went to the doctor and she sent me to get a ct scan but I’m just gonna have it next Tuesday. the swelling went down but they are still there. I also noticed now under my jaw I have some that are tender. I noticed when I brush with the makeup. I’m a little scared. Usually my hubby will tell me if it’s just me and my anxiety but this time he says he sees and feels them too. I want to think it’s nothing but idk now.
I've had a small lump for 6 months and the doctors aren't concerned it seems like they want it to get bigger and bigger before they want to biopsy anything. I've been in pain for months. Collar bone ahces. Chest pains. Shooting pains down arms. Aching armpits... But its all in my head i guess? I don't understand why they refuse to biopsy. I've never had lumps on my neck. Mine is about the size of a pinto bean. They dont care. Nobody cares. I have two swollen nodes. But they're both under 2cm big and they dont care about lumps under 2cm. One is 1.5 cm btw. NO! They say, it needs to be 2cm!!!
And God if the man went to God alone and said in the name of God, the merciful, the merciful 100 am and 100 times evening will go for the victim of the condition of leaving alcohol
