Im a 27 year survivor of Stage 4B Hodgkins. Im going to be 50 soon. You will survive for years to come. Thank you for putting yourself out there for others to see.
@@zerokillz1908 for my stage of 4 B the Oncologist thought it was 2 years or more. I didnt listen to the symptoms I had and ignored them. Thats why it progressed so far.
You will be okay, just keep fighting this thing, don't let it win, just believe that you will be okay and healthy and do everything it takes to get better
Holy wow I’m sorry you had to fight so long for your diagnosis. I had a single lump in my neck, no other symptoms and the GP had me see the specialist the next day and by the weekend the specialist called me with the news. I was stage 2b at that point. I was 19 at the time. I’m now 42, and I’m having lots of the symptoms you describe, hoping and praying I’m not going down that path again, surely that wouldn’t be fair. Hope you’re going well.
Hi! You are strong and braver than i was. I wanted to talk about it on youtube but i was shy and didn't have confidence even to look myself in a mirror. I had hockins lymphoma stage 3-4 and it was hell of a fight! I hope you are doing okay now! I wish you all the best. I only wish nobody has to go through it anymore
It takes a lot of courage to fight the disease and be victorious. Hats off to your brother and the entire family. What kind of treatment did he go through? Also did you had access to Car T cell therapy?
@@LYIZA what are the symptoms can you please share with me ? i have one lymph node swelling on my right parotid region i consult with ent dr he said that its just infection but i insested him plz perfom a bisopy so he write for biobsy that is usg guided fnac but the result was no melignent cell is seen so after one year the swelling just at is but after one year i have fever and i dignosed typohid i used the typohid course but low grade fever is still in my body about a month ago i noticed another small lymph node swelling in my neck, leg and abdomin i have low grade fever, night sweating but not too much feeling weakness please guide me i also heaving gas, little bit of constipation and dahirria iam 35 year old...
I just went to the doctor yesterday because I have lots of these symptoms, this is the third time I’ve been on antibiotics for the lymph nodes and they jsut keep swelling and the lady I jsut saw was literally teasing me and I’m 13 so I had to go with my mom and my mom spoke over me the whole time so that’s probably why the lady was teesing me because my mom told her I have had no fevers, the wrong info about the swelling and jsut everything, this video has helped me a lot tho thank you for making it Im jus scared that something is wrong with me and my mom will jsut like never let me say what’s wrong 😭😭
Why to such cute and young girl? My prayers are with you and everyone who is suffering with cancer. Treatment for hodgkin's is great and they tend to go well, kick cancer in it's butt.
My best friend is currently staying in hospital having aggressive chemo for Hodgkin’s lymphoma and she had the same issue with chronic itching which drove her nuts before she was properly diagnosed. That’s terrible that they didn’t take you seriously! How are you doing now on your journey?
@@GodsGirl48 I hear you on the MD's!! I had ungodly itching for over a year. I didn't bother with MD. Cause I KNEW they'd screw it up. Through a long process, AND other symptoms I deduce it was Celiac disease..... MD'S don't want to bother with sick people, seems they only want to do routine diagnostics. It is shameful.
JESUS CHRIST says " 3:45 By my stripes you are healed "Wonderful promise keeping God. Believe on the LORD JESUS CHRIST and you and your family will be saved. The prayer of faith will heal the sick.
I really needed this video. I'm going through these thing and I appreciate your post. I would love to reach out to you and ask if I could talk with your favorite Dr. I need direction at this point and I'm terrified. I have what I feel is a rushed fibromyalgia diagnosis. And I have other symptoms. I have the dizzy , tired, night sweats, can't walk up the steps with it exhaustion or pretty much any physical activity. I have the itchiness and tiredness.
Wauw ... took a lot of appointments again for them to diagnose ... there is something wrong with this medical world! You must have suffered so bad and what a journey ....
Hey, :) I just got diagnosed with Lymphoma today, not sure what stage I have to wait up to two weeks for a PET scan to find out from that. Its interesting you mention itchy skin, I would have never correlated the two, my legs would be soooo itchy! ❤
Hey I hope you're doing well! Thanks for sharing this. I have a bunch of concerning symptoms very similar to yours that have been persisting and no doctor seems to be willing to listen/take me seriously/investigate... it's interesting that so many tests you had done came back as 'ok' or 'normal', and then finally the PET scan was so obviously not ok. Was anyone able to explain to you why this was? I'm worried that I have something bad going on and that because the very few tests I haaaave have done were alright, were just the wrong tests, so that it'll just go undetected... not sure what my next move should be.
Sophie Rose Please turn to Jesus He loves you very much, i was ill for many years but the doctors couldn't really help me, i don't blame them, there was only so much that they could of done for me, Then Jesus gave me a miracle and healed me, He is the God of miracles, God has done amazing things in my life and in the life's of my family, He can do the same for you and yours, When you need Him call on Him, He is the God of comfort and will there for you when you call on Him, The bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, God saved someone i love from an illness leading to death, There is nothing impossible to God, It's as simple as asking Jesus into your heart and life to be your personal Lord and Saviour, confess your sins to Jesus, and Jesus will for give you, If you truly seek Him, Jesus will answer you, i know this because He answered me when i called out to Him
Have you seen the blood test for cancer? If you are over 50 years old you can purchase it online and get results. It literally test for 20 or so types of cancers. Not sure what it’s called but it real . $950 I believe it costs
Hi Rosa, I hope you are doing well. I stumbled across this video while researching my own symptoms. I seem to have a lot of the same symptoms that you had. I am wondering-did you have a very obvious lump anywhere that led you to believe it was lymphoma before you were diagnosed? I have had a small swollen lymph node in the back of my neck for two years. It has grown a little bit, but is still very small. I am scheduled for a CT scan next week. You are so strong and brave, thank you for sharing your story ❤️
Everything you said iam going through right now just saw a surgeon last week who's refused to do a biopsy because it was too small and they itch and burn and I feel it in my breast and now my groin they're doing a CT scan this Monday thank you and thank you to God this popped up on my for you and I really feel like this is a sign to build me up for what's coming I pray you are happy and doing well thank you so much
@@liv7708 I've seen a endocrinologist surgeon and they did MRIs and they don't see anything bad but they're referring me to a hit doctor now because all my blood results are normal but I still have the lymph nodes and I'm so very tired and they've been there since October so I guess we'll see what the head specialist thinks.
I was diagnosed with non-Hopkins lymphoma stage 4 cancer. My symptoms were severe nerve pain to the point where I couldn't lay on my back or sides and I couldn't sleep, I felt very nauseous, I felt extremely tired, and when getting up from a sitting position I would black out, and when I was working out I felt extremely light-headed and my heart would be pounding and I felt fatigued. After I had continuous blackouts I went to my PCP and told him I was having blackouts and he told me that it was all in my head.. All I can say is if you are having problems with your body like I did and if your doctor is not listening to you but you know something is wrong go to the hospital or get another doctor because my doctor almost killed me.
I remember one of my first symptom I had from non-Hopkins lymphoma was when I got up from a seated position and started feeling dizzy and my eyes were open and everything turned black and I almost fell forward.
I’m a 20 female in the army, I found a lump in my groin in February they said it was a abscess and did surgery, few months down the line my groin still wouldn’t heal, I had loads of tests and scans and they found out it wasn’t an abscess but no one could tell me what it was. I now have a second lump on the other side of my groin and I have nearly all of the symptoms you’ve spoken about? Do I talk to my doctor about this as a possibility or? I dunno why I’m even writing this comment guess I’m just scared that I’ll never find out what’s wrong with me
I have the big swollen lymph nodes in both sides of my groin, tingling down my legs, bone pain in my hips and legs. I have lost 30 lbs in 3 months, bruises all over my legs for no reason, fatigue and abdominal pain with severe bloating. I also have had a headache in the back of my head and behind my ears for the past 6 months everyday. Catcan showed an enlarged liver which my doctor said was from my diet which is contradictory because I am losing weight so fast. My doctor has brushed me off for months and at my last appointment told me "Its all in my head" and that I should see psychiatrist. I felt so frustrated and defeated. I know something is wrong. I just left the ER tonight because of my sore lymph nodes and achy legs I can barely stand up or walk and he suggested a biopsy on the nodes to check for Lymphoma which led me here. Please update what they found and Ill do the same!
Hi there hope you're doing good and recovered from this cancer but my niece didn't recover from this cancer it killed her she's died on 11.09.2020 fighted will the cancer for 2 years and 9 months well she's pain free now in God's hands with Jesus we miss her so much she was only 32 years old married with 2 beautiful kids we miss her so much one thing hope you recover from this cancer take care of your self lol
Can someone please give me an honest answer on what they think with me? I have had eosinophilia for 2 years on blood tests all other causes ruled out. "Asthma" like issues and sinus issues for years no cause. No asthma. No infection. Trouble exercising when really fit. Chest pain when laying down sometimes better when on side. Osteopenia diagnosed a few years ago even though extremely fit and lifting weights. Unexplained tailbone injury/ degeneration. (Only mild osteopenia) now a bony lump on my lumbar spine. I should of already seen the hematologist so now my head is spinning. I have also had tenderness as well as bone pain in the past around ribs, legs, hip bones (just when bag brushes) and other area's now it hurts to lay down on a hard surface cause lower back bone pain. Nothing SUPER painful but not nothing. Also my recent kidney tests have been off and from my understanding might have intra-renal damage which my doctor is clueless about and haven't followed up. I'm hoping it's just some autoimmune thing like I always thought I just keep seeing my symptoms add up with this and then I think surely it would of been picked up, but maybe not if they are too busy testing me for sinus infections and bone density scans instead 🤷♀️
Hey sweetie hope you are well xxx I have a lump on my left clavicle and i've been for ENT and scan and nothing showed up, 3 months later lump still there and I'm always tired and sweating and just don't feel right, other symptoms too but not related to lymphoma. Am I over reacting? Oh also achy hip and back but I'm 50 so maybe its because I'm getting older? Xxx
Hi there. I hope your doctors follow up... stay on top of things. Diet deficiencies cause problems too...Muscle aches could be relieved by magnesium. I use pill before sleep or an epsom salt foot bath. Yoga and stretching help to calm. I wish you the best be brave lady !!!
Hi! How are you? I have been feeling really sick these past few weeks, and your symptoms are very similar to mine. I worry that it might be lymphoma too. I hope you’re doing well ❤️
Thank you for sharing your story I’ve been ignoring swollen lymph nodes for years now and it’s looking a lot worse all the sudden so I’m going to get checked out rn
Yeah... same.. I relate to so much she's said and then the kicker was her pointing to the exact spot on her neck that my node is HELLA swollen at.. it's putting pressure on my carotid artery possibly. I definitely have felt it the last 2 days.. ironically I've been on antibiotics for a little less than a week so should be improving. The first lymph node I found was on the back of my head, there's also some sort of hard mass next to it. Ultra sound confirmed the lymph node but couldn't identify if the mass is cancerous or not. I'm getting everything kicked off this week with tests. Wish me luck. I certainly wish you the best.
@pranjal gupta Ended up going to the ER after running a fever, going thru serious chills while profusely sweating, abdominal pain, and major full body inflammation, especially intestinal. Spent 3 days there while they tried to determine what was going on. Ruled out any infectious disease cause, and found my blood test results were really concerning in some areas and "reassuring" in others (basically my organs weren't failing). My billiruben levels were 5.7 at admission and 6.5 the day prior to discharge so all we know for certain is my red blood cells are destroying themselves at a rapid pace and causing my liver to back-up with trying to 'digest' all the excessive blood red cells. I got a new primary physician the day of discharge and showed her my blood test results from the hospital (they did like 15 different kinds) and she immediately ordered 6 more for me to do to try to rule out / diagnose hemolytic anemia. Lymphoma seems to be something both the ER doctor and my primary doctor considered but don't currently believe is the cause. Most my lymph nodes have reduced in swelling but the one on the back of my head hasn't reduced size at all. That's personally quite concerning for me but 🤷♂️ Hopefully Monday I'll have a clear idea of what's going on and how to manage it properly. Since the ER discharge, I've significantly reduced sugar intake and increased animal fats and protein and veggies intake and kept hydrated and I'm feeling better all around. Energy is twice what it was 2 or 3 weeks ago. I was consuming OVER 200 grams of sugar per day any given day and exclusively ate fast food / vending machine snacks since around February. Didn't set myself up for health. Really trying to change that all around.
these milder symptoms have been happening to me exactly for months now. i discovered a marble sized mass underneath my jawline yesterday. i’m not a hypochondriac in the least bit, but ever since i’ve noticed the mass all of the other symptoms make sense. going to the hospital tomorrow morning
Hi! I’ve noticed a round mass above my collarbone and it’s isn’t squishy. It’s hard, almost like there is another round bone there. Would you say it’s a swollen lymph node?
@@mahionthebooks I hope you have had that looked at, masses in the supraclavicular region are oft suspicious for malignancy. I hope that it isn’t and you are okay
Are you ok now? I have these symptoms the groin pain is the worst! I can’t eat I’m bloated all the time. I can’t sleep I sweat a lot, I’m having headaches and sickness. My skin itches like it’s crawling, I get so tired but struggle to rest. My periods have changed too and they hurt more than they use to. I wish I knew what was wrong with me 😞 Thanku for sharing your story🥰
I have that same hard ball under my chin for a couple years now, two of em next to each other actually, theyre tiny tho, like a pea (normal), plus a damn near grape size one where this girl pointed on her neck when describing the 'concerning' lymph node. Oh, and one on the back of my head with a dime size solid, non moving mass anchored next to it, and two or three inches from that a very hard (bone?) that seems to pertrude from my skull underneath my scalp but that's been there for as long as I can remember. I never knew to worry about swollen lymph nodes that didn't go away and enlarged / hardened. Oops 🤧😩🥴
Dealing with some of the same symptoms going on 20 days now, a lump appeared on my neck right under my ear, then about a week later another one popped up next to it. It was super painful but now there’s just an awkward feeling to it, got put on Keflex and it did nothing. No sign of infection, but I did have a positive EBV blood test, yet nothing else is wrong. Got an ultrasound done and it came back as inflamed lymph nodes, but the lumps now feel like they formed together into a bigger hard one. Been so tired to where im taking 3 naps a day and it still doesn’t help, nausea is happening and headaches are coming up everyday when I rarely ever get them. I have an appointment to get a possible biopsy this Wednesday, hoping to figure out what’s wrong with me.
U have exactly like I have sweats at night a lympnode in my neck like a lump in my neck and it got bigger and bigger weight loss tired alot I have cough that won't get away chest pain sometimes left of my heart left side or middle sometimes its switches sides. Every where muscle cramps dokter told me u got vitamine deficiency.
There is a girl she has all the symptoms but she is still 99% sure she has nothing and that it is totally psychological as her doctors says. But the 1% inside of her still says you have all the symptoms tho and you suffer is it really psychological
