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"How I Survived Survival Mode:" Hay's Autoimmune Vasculitis & Behcet's Disease Story 

Arthritis Life
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Trigger warning: This episode includes discussions of near-death experiences, medical trauma and decisions about quality of life versus prolonging life, which may be a sensitive topic for those triggered by the topic of ending life. If you are having a mental health crisis or are struggling with suicidal thoughts, in the US you may call “988” for the Suicide and Crisis Lifeline which is staffed 24 hours a day.
Hay shares raw wisdom from her autoimmune vasculitis journey, from days of living breath to breath in survival mode to learning to live life to its fullest within constraints.
Hay and Cheryl urge fellow chronic illness warriors to resist trying to fit their experience into a tidy narrative and instead ride the waves of uncertainty. While extremely challenging, Hay notes that “deep calls unto deep”, allowing shared humanity and connections based on what unites us all.
For full episode show notes and links, please go to the show page on the Arthritis Life Website at: arthritis.theenthusiasticlife...
MEDICAL DISCLAIMER:
All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
EPISODE SPONSORS:
Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in March 2023, and learn more at: arthritis.theenthusiasticlife...
**FIND MORE ARTHRITIS TIPS AND LIFE HACKS on Cheryl’s website:
arthritis.theenthusiasticlife...
**STAY CONNECTED ON:
Arthritis Life Instagram: / arthritis_life_cheryl
Arthritis Life Tiktok: / arthritislife
Arthritis Life Facebook Page: / arthritislife
Cheryl’s Twitter: / realcc
Arthritis Life Facebook Group: / arthritislifepodcastan...
** ARTHRITIS SUPPORT GROUP:
Join Rheum to THRIVE, a support group & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected: arthritis.theenthusiasticlife...
** Learn how confidently manage pain, fatigue, social and emotional life with RA in my “RA Roadmap” self-paced course: arthritis.theenthusiasticlife...
**Medical disclaimer:
All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

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1 авг 2024

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Комментарии : 2   
@angela798
@angela798 5 месяцев назад
Hey Cheryl, thank you so much for this episode, which I had somehow missed until today! You are an excellent interviewer and beautiful person. I was diagnosed with Neuro Behcet's about 18 months ago (you might remember I was in your Rheum 2 Thrive at the time and had to drop out). As it is a rare disease it has been hard to find others to connect with who share the experience. I related to some of Hay's story and appreciated her wise words. Also i really appreciate you sharing a perspective from a Behcet's person. I am one of the people Hay mentioned who is cooped up at home but still wanting to connect with others so this episode was very meaningful to me. Love what you do Cheryl, please keep it up ❤
@ArthritisLife
@ArthritisLife 3 месяца назад
Thank YOU so much for your kind words! I do remember you from the group and I'm so glad you got a diagnosis but am sorry it's something as rare as Neuro Behcet's
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