She is explaining exactly how I'm feeling right now, yesterday was my day off so I said okay I'm just going to relax in my couch and watch movies. I got up this morning with shoulder stiffness muscle spasm I can barely text. Living with RA so far has been the hardest thing for me.
@@kealynbosrock9905mine as well! The first Rheumatologist I had was a wonderful doc. He passed away years ago and I’ve never found another one like him! 😢
Do you ever just watch a completely mobile person and miss when you could do things? Do they ever think about how lucky they are to just stand up from a chair and walk away, without thinking about it? Without having to be mindful of how to use your body so you don’t fall, so you can minimize pain, or so you can look normal? When I wake up, I instantly feel the pain throughout my body. “Oh, this again” my mind says. What indignities will I face today? I see people older than me walking so carelessly, so strong and free. I never appreciated that when it was me. Now I pay the price.
Hi, Sara. We are so sorry that you are experiencing this. You are 100% correct. Most people take the simple things their bodies can do for granted. Thank you for having the courage to share this story and insight. We are here for you.
I want to cry, my mom has had RA for years but she was never diagnosed so noone took it seriously. She was always constantly saying she was hurting, she couldn't sleep from the pain and this year her eyesight suddenly started getting bad. She only got diagnosed a few weeks ago and I'm trying to learn about RA as much as I can so that I can be there for her
Have heard about one Dr. Oziegbe who cures R.A with herbal combinations. I contacted him for my dad's a month ago and there has been incredible changes. Pains have stopped and he's walking strong as before. It's amazing how he has proven wrong the general claim of no cure for R.A. Many thanks to him... contact him on oziegbee2@gmail.com or through whatsaap +1(701)510-4473 and thank me later!!!
Just been diagnosed, after years of misunderstood misery, just like you, I have been researching, looks like many people have received great relief from Moringa powder, look it up😉. I am going to get some tomorrow. Best of luck on your journey.
I was finally able to get the answers from rheumatology and I was given hydrochloriquin and it's not doing anything. My eyes are getting bad and seeing spots . Very light sensitive. Is it a symptom of Ra
@@suziecarr1566 Some cases of RA can get to the eyes so it could be because of that. My mother uses methotrexate along with plaquenil (hydroxychloroquine). But one of the medicines cannot be used by those whose RA affects the eyes (which they find out from eye tests) so I believe that may be why they only gave you one of them. Using both of them really helps her and decreases the inflamation of her RA. May I ask how long have you used the medicine? Because for my mother it became effective after using it for a while. Maybe you could ask your doctor about the medicine and whether there are other options
I just got the news ftom my doctor that i have RA. And now i realize this why i have the stiffness &join pain everyday. I been depressed and having a hard time thanking about it.
This is so true. I’ve had RA for 20 yrs & my Rheumatologist has tried every single medication there is on the market. I’m on Kevzara now. One day I’m somewhat ok & the next day I don’t feel like getting out of bed. I was diagnosed at 38 yrs old.
Thanks for this video was diagnosed with oesarthritis and rheumatoid arthritis sometimes im up and sometimes im down. Trying to always say to remind myself things could be worst and to be thankful for everything we take for granted.
My thumb, after i wake up i feel like its really stiff and when i move it, it moves with pops in my joints. I almost jump with that mini second of pain....
I have RA and get cracking in my joints. I struggle with stiffness in my spine and hips. Interesting that you mention the neck because I get specific popping in my neck. I'm happy to answer any other questions you have :)
i was diagnosed 6 years ago. I've tried everything. Diet, medications, working out, heat/cold. etc. I'm a 34 year old male with no family history of RA. i'm a motorcycle mechanic and it's hard to keep a job when i have to call out so much or have others help me perform different tasks. Methotrexate makes my hair fall out (when i'm not on medication my hair doesnt fall out or thin at all and i have great hair otherwise) and just makes me feel poisoned every weekend. I see videos and meet older people with advanced RA and how disfigured they've become and can't do much of anything. I'm extremely stressed and worried about my future. it's either live with pain every day and be unable to work, or feel like i'm dying and just stay in bed. It's affected my relationships, my work, my happiness, my mental clarity, on and on. Everything pops and cracks. I can't smoke weed or take pain medication. I'm thinking this is the end.
Hope you're doing okay now Charlie .. Sorry to hear you were diagnosed with RA at such a young age. I was diagnosed last year and am still coming to terms with it. I hope you've found some young people like yourself with RA who can be supportive for you ... Stay strong, positive and hopeful - I'm sure with time there will be new treatments that can eliminate all symptoms. I've just started drinking pomegranate juice, and not sure if it's just my imagination but I feel a lot better with minimal pain and stiffness. I think the natural remedies help as much as the medications at times. Best of luck and good wishes to you .. never forget you're a warrior!! ❤️
Charlie. So very sorry. Same here but I'm much older. It has ruined my life. Recently I've been changing things in my diet. Recently gave up coffee and cream my most favorite😢 but it seems to help. Each is so different. Try yourself. Give up 1 thing for 2 weeks see if it makes a difference. See if it's worse when you start eating that again. Arnica somewhat helps the pain. Both sublingual and the gel. Have a good journey, a good life and hope for remission for you.
Thank you for all the information and encouragement just been diagnosed with R.A .you've helped me understand my symptoms and feel ready to cope.GOD BLESS YOU
Thank you for this video. Special thank you to the two ladies who shared their experience. I have a compromised immune system and my journey with this disease is slow and painful. I have always advocated for myself . I was losing hope and this segment has made me pick up my socks and keep going. :-)
RA is a kind of cancer. Currently, we do not have a good synthetic medicine to treat it. all medicine use for RA contain so serious side effect but not really work to stop the pain. when we do not have medicine for it, we should not stop to looking alternative treatment. like natural products. The natural Canadian products are all licensed with high level medical check before to have a licensed do not see any chinese doctor as the formula of chinese medicine may not meet the safe standard. use a Canadian high standard natural product you will feel better. try to study the product ARTHRON 5. 1 of 100 people have RA today, you are not the only one.
I have RA in age of 1 years old 🥺. I'm still alive with this. Now my age is 25. I'm from a poor family. I'm from Bangladesh county where have no perfect treatment or therapy. I can't think my future because i have no future 😭. My full body effected & i have to live & die with that🥲. My hight is only 4.7 feet 🥺. & No boys come to merriad me or make me as GF become in the world no body went a sick life partner after all 🥲. My parents think after there dead who will take care of me. I pray to die everyday.
Not just joints. Let's talk about organ involvement. And, let's redefine the term. It should be called RHEUMATOUD DISEASE bc the term arthritis minimizes it's severity. Lastly, let's talk about the medication tour we have to take with all of the side effects.
I know. I've told so many doctors even my organs feel strained and tired when I'm exhausted and have always gotten a blank stare, like I'm making things up!
Look into adjusting your diet first and foremost. Cut out as much sugar as you can from your diet. Cut out processed foods. Eat a lot more fruits and vegetables. No one likes to hear you should lose weight--but just losing 7 lbs made my pain go away except when I intake too much sugar. Investigate gut health for RA treatment. Studies show that less than 50% of RA patients are happy with their medication treatments. I truly don't believe enough investigation has been done on this disease to have effective drugs. It seems every medication prescribed causes new issues - hair loss, liver issues, stomach issues, etc.
I have RA, and eczema with it. Isolation is real for me... My eczema has spread to my hands now. I got RA at 36. The eczema started at the age of 22/23, after a treatment of antidepressants( clinical depression). Never thought it was gonna turn into all this.
Exactly what l have dealt with for years now! trying to get a doctor to help me because In the beginning l didn’t look sick but l felt really bad , leaning on the sick to wash dishes hard time sleeping every way l laid l hurt sick feeling like someone with flu every day , when l first started going to a doctor I was in my twenties but none of them thought l was sick , l hurt all over my body , l have suffered with this stuff 🙏💕🙏
Hi. I have done the same thing. Before you know it, it's normal to take all day and still can't finish because of pain and exhaustion. I've went off and on to doctors for 25 years and I finally realized that no one believed me. It got to the point where I thought I wasn't able to communicate properly! Some doctors would just ignore me. Finally, after all that time, I remembered a doctor that my daughter saw for something and he seemed to stick out, like he listened. I found him, almost 2 hours away and he did a blood test for RA. Haven't gotten to see rheumatologist yet, and am barely functioning. Hopefully, you can find a doctor that will do the blood test. And that you'll be set up with a good rheumatologist. 🙏🙏
I had the same experience,first diagnosed with lupus but after seeing a rheumatologist,he then told me,I don’t have lupus but it’s rheumatoid arthritis 😔
@Dorris Tammy mam will that herbal cure rheumatoid arthritis? My son has it he had already 3x steroid injections and expensive medicines but no good results pls help me
Am 22 years old, i diagnosed RA 2 weeks ago(maybe longer time ago i got this desease), Today it's the worse day ever every joint including my jaw my neck my spine my foot my hands Keep poping and cracking, i can't work im so scared
hello sir, nice video on RA. my grandmother was also suffering from this condition and her age is 72 years. she went to many hospitals but didn't get relief from any hospitals. at last, he visited planet Ayurveda they gave him an RA care pack and now she is fine. thanks to planet Ayurveda
Bella.Early morning take salt water bath.if u have tub sit f 15 mnts in this hot water.eat morninga leaves in any type of dal or soup.or take moringa powder u will get from pharmacy.or any herbal shop.
Suffering for 7 year now with RA at 30 ,both hands both feet bothe knees is twisted ,looks like a 70 year old ,some day I don't want God to wake me up ,I'm learning to find a natural way to deal with it .life hard with it ,I'm totally a loner .
I have had RA since 2015 and fibromyalga too the thing that annoyes me is that meds for RA trigger a fibromyalga flare how good is that NOT lol (if I don't laugh I will cry )
I need a better relationship with my RA doctor, visits feel detached and literally take less than five minutes. I feel very dismissed by him. I want to be treated as a whole person.
Thank managed medical care for that feeling....they took the doctors an divided them up so now you have to see 8 docs a nf none of them share info to even help
I treated my ra ,anaemia and high platlet count with no drugs .I looked at leaky gut gave up wheat gluten grains meat dairy sugar high carbs processed food refined and any crap food. I ate low carb veg,fish,tumeric black pepper,gluten-free oats with cherry's ,blueberries msm powder and morninga,cherries and blueberries.i only used coconut or goats milk.papaya, strawberry, pineapple, blueberries and goat yoghurt as a sweet u need a treat, I hobbled my skinny muscle less body to a leisure club ,I was too weak too swim.without a float and too scared to leave the shallow end,followed by sauna and jacuzzi.after 3months iswim 4o lengths and 1hour in the gym.my anaemia and platlet count are normal, my rheumatologist doesn't want to see me for 1year.all I have is morning finger stiffness for a few minutes.im now fitter and healthier than before I was ill I'm 68 and can now run.ps it's important to research vitamins and minerals and think I can beat this.good luck with any treatment you take.
Bradley James Hi, I see you said you cut out grains, would that be including quinoa. My mom was recently diagnosed and I’m helping her meal prep. She wants to think brown rice is fine but I have a feeling it will still cause inflammation. Thanks for your detailed comment!
Forget about vegan diets, eat all the Chic Fil A you want. Eliminate stress and anxiety, get your finances in order, and don't forget about your spiritual side...I personally like The Parables in NT.
I am concerned about flare ups and/or side effects with my medications. Have you taken the vaccine? If so, did you have a flare up or interaction with your medications?
@@chasityamore6135 I didn't get to take vaccine so idk. However I contacted Covid within the same time I made the comment above. I have this issue where I can not go into any ac environment, I'll get; weak, low grade fever, and hibernation mode and the blood in my veins feel extra hot ( hot mess I feel super sick) however I could use my fan. And ever since I contacted covid and recover I now CANNOT turn my fan on! I am sick just as if I was in the AC. I am fustrated and hot. I am 22 and I don't know how I'll ever work again when my profession is in the office and being home hot and can't use fan is depressing and I live in Jamaica. Funny thing too is that when I caught covid ALL my RA symptoms went dormant. I didn't go back on the meds until In the last week of recovery. But I'll advise people to stay on medications when you have covid too
@@pursedelighted9020 It's gonna be okay. You just need to find a treatment that will work for you.. I was miserable until I got on a biologic. It saved my life. Talk to your doctor and see what your options can be. Theres always a light at the end of the tunnel .
@A rose is a rose Hello. I started having more blood work show signs of Lupus and a little bit of RA all together. After finding out, I quickly got on a biologic called "benlysta." It started working a little after a month and I have not stopped feeling amazing since then. I still am on a 200 mg dose of plaquenil daily but I take a weekly injection. I hope this helps, feel better.
I’ve had this for almost 3 years and in the beginning it was horrible pain and after treatment for a year it got better and it got to a point where I didn’t feel pain anymore and now the process is starting to go back to the start my body is hurting and I refuse to go back into treatment again I’ve lost so much because of this shit I can’t play football anymore I can’t go and do things all my friends do I’m only fucking 17 man I’ve been exercising and eating very healthy and lost so much weight and planning on more but if this is going to be my life going back and forth to treatment I refuse to live because I have no hope
I hate having to go to the hospital every week for infusions and fuck physical therapy I’m tired of taking fucking pills I’m tired of giving myself injections I’m tired of these fucking doctors giving me advice that doesn’t help I’m tired of waking up every morning not being able to move correctly and having to ask my ducking brothers to help me put my shoes on because my fingers are to weak I’m just so tired of everything
I already hated my life as it was before this and now I hate it even more I don’t wanna live anymore I’m so over it I don’t want to have to sit in a room with a doctor anymore with my mom crying because she can’t bare to see me in the condition I’m in and how it’s affecting my mental life is just not meant for everyone man and I’m starting to feel that way about myself
@@joellecortijo1886 Hey there, I get you... Truly do.Was just diagnosed 2 weeks ago. I really hope you are ok and feeling much better now. We are all in this, just please trust that, this too shall pass. Hugs!
@@joellecortijo1886 Son at least you have been diagnosed, l have had the same pain Also l feel like l have the flu everyday of my life, dealing with different symptoms almost on a daily basis l stopped going to doctors for 3 years because they didn’t seem to take me serious, l feel so bad l couldn’t even get ready to go to a Doctor anymore so l gave up had this mess for 20 years l keep trying to go l too want to feel normal my doctor years ago tested my blood for certain autoimmune diseases and said l had RA but the Doctor left the place where l was going then l started going elsewhere. , haven’t had a doctor yet that took me seriously and now with this pandemic going on , not many doctors want to work , son lam 73 years old and don’t have many years left l know how you feel but you have a whole life ahead of you , hang in there try to eat as healthy as possible because what you put in your body has a lot to do with any disease’ especially stay away from sugar !!! try the Keto diet you can even find the things in your own grocery store that is put out for the Keto diet , you will actually feel better because you have your youth on your side ! I will keep you in my Prayers l have a Prayer list ! keep trucking son one day you will be happy you did ! God Bless You and yours 🙏💙 Amen 🙏
You have to keep moving the best you can everyday... you have to live with this disease u gets really bad. So called days..good days ad very bad days! !!
Yes they can :) I have RA and was diagnosed at age 25. RA generally doesn't greatly shorten life expectancy but it is really important to manage your disease well :)
I got authorized realpage thought I Cry and if hurt real bad I've been get shot in my knee this do not help I need a whole knee replacement my knee I cannot do stuff for myself every time I walk this hurt real bad and this made me cry
Hi, I was just wondering what medications work best for RA. I've been diagnosed and I'm not sure what I should use. I gave lots of pain and inflammation.
i take Methotraxate. for the first 2 years of taking it i took it in pill form and i couldn’t stand it. Now i am on the injection form and it makes me a feel a lot better. Diet and exercise is so so important, the medication itself isn’t going to make you feel 100%. Try to treat your RA ASAP, you don’t want to cause permanent damage.
@@netabeauty6379 thank you for the information, I will ask my rheumotologist if she can prescribe it as an injection. I'm working on my diet and I try to exercise every day but the pain is just too much to handle. 😔
hayatwahob i completely get you when you say you’re in pain. it’ll get better trust me. once you begin the treatment you can start to do physiotherapy which will also help a lot with movement. i don’t know if you know this but taking warm showers and baths really help with stiffness especially in mornings. just have hope, i hope you start to feel better.
Hie.I’ve been taking methotrexate, Salazopyrin,,Prednisone,celicoxib..those have worked well for me,I even forget I have arthritis,but better consult a rheumatologist coz prescriptions differ as well basing on the severity of your condition and any other underlying problems
I joke but I pop and click when I move all over. My Rheumatologist said it was normal. He recommended more exercise. My biggest problem is headaches. Anyone know what works on those headaches? Feels and maybe is a migraine. Was just diagnosed 2 weeks ago.
I am 52 and have some sort of RA😔 my left elbow keeps popping out when I hold something and push forward. My bones are wilted and my specialist says I have something. I got denied twice for A.I.S.H which I would like to get in order to live in a carehome because I can't care for myself like cooking and personal care. My helper in trying to get A.I.S.H Terri Sims from St Paul Alberta Works says I am a waste of time 😭 maybe she is racist because I am Native Aboriginal.
I DON’T KNOW WHY THIS DOCTOR DO NOT TELL THE PEOPLE THAT THIS PAIN IS BECAUSE THE BREAT 🍞 THE GLUTEN , THE CHEESE, MILK AND THE FRYING FOOD 🥘 WE EATING EVERY DAY . YES EVERYTHING WE EAT; AND LET OURS IN THE COOL WITH THIS SUFFERING. 😔
I have pain in bones for weeks now like throbbing pain it come and go quickly then later it will come back again in other area of my body I cant go to clinic or hospital now bec of covid can anyone tell me about this and what should I do for home treatment
I let it get the best off me am 26 only starting to do other things in life for ages fort I could not as well not self medicating is hard you wanna be normal it feels like am stuck in the past embracing this seems difficult just saying RA
I can't walk and sit properly, i can't get sound sleep due to pain, i have rashes in my skin, reduced vision, its difficult to breathe....... Why all these 😭 But nowadays I'm feeling better but have to take painkillers
