If you've come across this video and are curious what is on my belly, this video explains it! ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-WMxWNl1YSiM.html
As a colon cancer survivor I wore a bag for six months then thank the Lord it was reversed. I wish I had known you back then. I really struggled with mine with living in the country and no help. God Bless you for helping so many people. No one knows how awful it is to go thru this until you have experienced it. You are wonderful. Thank you.
My 2 year old son who has Hirschsprung’s loves watching your video when he is getting his bag changed, I think it helps him feel like he isn’t alone or different. Thank you
Hi My 9 year old was just diagnosed with hirchsprung disease and has a osteomyelitis bag we are so new to this any tips or suggestions? Do you know of a support group for Hirchsprung disease?
I just got an ostomy due to a colonic perforation due to a delayed thermal burn after a flexible sigmoidoscopy with full thickness resection (I was told I needed this procedure after I had a cancerous polyp removed in Feb). I got sepsis and had emergency surgery to remove the perforation and clean out infection. I’ve been devastated by it all. As a surgeon, can you tell me if this is a common outcome? I don’t remember even hearing it was possible. And, Turns out I was cancer free. Why is this procedure being done if a surgeon can’t tell they are injuring someone? Trying to understand why I’m going thru such pain😢
You are the cutest, most professional nurse patient and bravest of the brave. I'm just an outsider looking in. I wish you and Zak a continued wonderful happy life.
I'm a well seasoned nurse, but from ortho /neuro. I haven't changed a bag since school. I'm now in home care and have my first patient with a colostomy. Thank you for this video 🙏
I just got my bag 2 weeks ago. and I change it the first time myself today and this video helped me out a lot and I just want to thank you very much for putting this videos out.
You never think of nurses and doctors being sick. Thank you for allowing us into your life and on your journey. I can't Imagine going through that everyday. It's my mind that is healing. Thank you again for the education.
This was so so so helpful. I’m 17 and almost 18 and I just got a temp. Ileostomy for severe colonic inertia. Thank you Maggie!! I’ve been following you for awhile and you are just the best!
I work for a DME company and am training a group of reps in Ostomy supplies and this is by far the BEST video I have seen explaining how everything works together. Thank you for this! You're awesome!!!
Thank you so much for doing this video. My dad found out he has stage4 colon cancer on March 24, 2023. Now has a bag. I'm his daughter trying to learn about changing his bag. I found this video. Been a little stress about this. I know it will be easier after a little while doing this for him. Bless you over, above and beyond! Mary
Mary Myers I am very sorry to hear that first off, just wondered, and hope you don't mind me asking is your mum not around anymore? or can he not change it himself then? It is a hell of a lot for a daughter to take on, especially with a father, seriously feel for you! I am not surprised you are stressed and very concerned about it! On a final note is your Dad going to be OK because he has had the surgery, i'm hoping that is the case for you!
Thanks for sharing this, Maggie! I watched this out of curiosity because I have never heard of or seen such a thing. It is interesting to see what it looks like and I am amazed that an intestine can be left protruding through the skin without causing problems. Wow!
I’ve had an ileostomy for 20 years. My colon and rectum are removed and there is no way to be reconnected. It’s old hat these days. I really wish that I could have seen this when I first had surgery. Great job Maggie!
My Dear Friend of 51 years had a kidney transplant 17 years ago, she's been in the hospital for 6 weeks and now has an Ostemy Bag. Thank you for helping me to fully understand what she'll be going through. She did home dialysis for 9 years b4 her transplant, so I know she can handle this too. Thank you again!
I’m a Pharm Tech with a type 1 diabetic 7 year old. I was learning about insulin pumps & I landed here. I stayed because if any one in my family needs one of these I want them to know life isn’t over & if I’m strong & knowledgeable to get them thru those dark days I’m happy. Thank you for the knowledge & your bravery for sharing a private part of your life.
I wish RU-vid and this type of content existed when I was 16 and newly had an ostomy. There was SO MUCH trial and error and a lot of modifying existing products so they better met my needs. My favorite "hack" was filling a syringe with barrier paste (like stomahesive) and using that to apply a thin, much more precise line of the paste (because applying directly from the tube was basically useless and just a mess) around my stomach before and sometimes after applying the wafer because it helped the very liquid stool to not get under once everything was in place and especially after a day or two. It helped give me a little more wear time.
@@lawrencemays410 you have to pull the plunger out and fill it with the paste that way, but it then worked SO MUCH better than trying to squeeze a small or precise bit of paste from the tube.
Thank you, I was the "ostomy nurse" for my wife who had both an eliostomyu and later a geguostomy before I lost her in 2007 to cancers. Your video was super, it let me fase and remeber the experience. I think your videos are the best thing to educate the new folks who are facing ostomy's.
thanks - I am celebrating 6 years as a Bag Lady! - It was learn as I go - even though I had a great nurse and Dr after my surgery - One of the things I think is important is making sure the skin barrier is nice and dry and then dry off the stoma with paper towel - before I attach my new flange - thanks for the great video!
Thank you so much for this. You are such an intelligent & beautiful woman. My elderly mom had this and I never knew how she managed. She lived 15 years from age 72-87 & died in 2015.
Hi Maggie, i recently became an ostomy patient & after2 months of learning how to deal with my new norm, i guess i'm becoming an expert in cleaning & installing new pouch. I prefer changing by standing in front of a mirror where i can see the whole picture. I am using Hollister brand with 2 kinds. One that has a drainage opening where i can empty without changing the implement & the other is a close type. When at home i use the 1st kind so that i save time & supply. For sure, there's a surprising kind of output & when its too solid, make sure to pour a little amount of water to drain & it will discharge faster & less odor to deal with. Always make sure to add the Adapt deodorant before sealing the end of it. I find it very easy & comfortable doing this method & since iI was discharged from the hospital, I did on my own without the help of relatives or anyone. My nurse from the hospital tells me that i am doing a good job & she is my mentor too. One advise to patients with ostomy pouch, watch everything you eat because there is a big impact on the output & always make sure to chew food properly.. your video Maggie is very helpful. Thanks
Great video! Working in a Hosp for 15 years we had WOCN nurses that did all that for us. I am a Hospice nurse now and I need to change a bag in 2 days so I’m watching videos to get familiar. Looks easy enough. I heard she has a convatec, I believe 1 piece. I liked your video the best!!! Thank you!
Hi Maggie, I would like to thank you for being so brave to youtube your personal situation. You were a god send to me and many others. I did not have anyone to talk to about this or to ask questions. I have a surgeon but not a bowel Dr and the Ostomy nurses are overwhelmed so it can take 24 hrs to respond to messages or emails. My ptsd related to bag changes, food and showers was debilitating until your calm, humerous matter of fact imformative videos. I still dont have anyone to talk to about my colostmy but your videos and the carnivore diet have changed my life and attitude. Thank you ❤ Terri P.s Zack is a keeper
I don't have an ostomy bag or have any reasons to watch this other than to educate myself on what it is, what the patients have to go through and to remove stigma surrounding them! I love learning about medical procedures and who knows, maybe I will meet someone with a bag who will need some random stranger to understand and not be weirded out and ill be there for them. You just never know. I'm sure many patients appreciate you and your videos and I would just like to thank you for educating all of us with so much empathy, compassion and kindness! I can only hope if (or when lol) I will have a nurse take care of me, they will be as amazing as you are!
Hi Maggie 👋 I have an ilealconduit (urinary diversion). Your video is something I stumbled on looking for my surgery demo and it's so much the same. I just wanted to make sure that I was doing it right. You're so encouraging, I'm greatful that I ran across your video tonite.
My Mum just had surgery to remove her Anus, Rectum and Colon due to cancer and is having a stoma permanently. This video was helpful for incase i need to help her in her old age. thanks hope you are doing well.
Awesome video! Wish I could've seen something like this when I first got mine. I've had both a colostomy and a urostomy since 2010, and I've helped show a lot of the nurses at the hospital (because I'm there kinda often, unfortunately) 🙁 how I've learned to change my appliances. I use unscented baby wipes to clean my skin and keep them handy. I put skin prep all the way around my stoma, and use ostomy paste. I put a bead of it all the way around the opening of the flange, and then stick it on. I'm usually able to make my bags last a week at a time. I use ConvaTec high output colostomy bags. They have a tube opening with a cap, instead of the large Velcro opening. It's made to connect to an overnight bag. If your movements are formed, you can use warm water to soften and irrigate it. I find it much easier to hold onto while emptying, and much easier to clean after emptying.
Your content is the best! Wish I saw before my surgery as it would have helped with A LOT of my fears. But so happy to follow you now, and your patients have the best to learn from!
Very informative and well done. I have learned much about something I knew very little about. Your video has renewed my respect for anyone who has undergone a similar operation. Whomever the hospital is that you are working at is very lucky to have a person such as yourself on its staff. Again, very well done. God bless you and your family.
Thank you Maggie, your video's are very helpful to everyone dealing with Ostomys,I had a urostomy put on me due to bladder cancer, lost the bladder in 2022, I watched your videos back then and they helped me personally quite alot,thank you so Maggie.😊 💕
Just a curious person here who loves to learn. I should have been a nurse. 🥲 This is very helpful and informative and I'm sure you're changing lives with these videos. ❤️🩹 So Thank You.
I pray my chrons doesn’t get this bad, my heart goes out to those living with a stoma. My mom had one for a short period of time as well her symptoms were caused by lupus though
I had crohns for 6 years starting in 1969. I had my surgery in 1976. my life was so wretched and miserable. I knew surgery was the only way to get my life back. I told my consultant i was ready. The whole of my colon was removed as was my rectum. I will tell you honestly, not for one second i have regretted my decision. I literally had my life back. It was that momentous. I I hope things turn out for you, whatever you decided. An I ileostomy is not the end of the world. It was the restart of mine. (i was 26 when i had it done, I am 74 now, and in excellent health. My Crohns never returned.
Έχω και εγώ στομια αλλά δεν εχω αυτο που χρησιμοποιείτε εσείς 14 μήνες και τώρα θα ξανά χειρουργιθω για σύγκλιση του εντέρου....μπράβο σας πάντως για τις πληροφορίες να είστε καλά .....❤💋🙏🏻🇬🇷
This is so fucking cool. The fact that treatment like this exists is incredible and that the intestine can just poke out like that, and it's fine, is mindblowing.
Great video for nurses and new ostomates! I can't tell you how many nurses I've taught how to care ostomies, especially my mitrofanoff (it's debatable if that's an ostomy or not who knows). My ostomy bag changes in hospital often have half a dozen nurses in the room; new and experienced. I never mind and my hospital knows I'm happy to do it so they all troop on in 😊😊
Thank you for these videos. I have had a colostomy for a little over a year now, and I am very happy with it. I too have this "Tupperware" system by Hollister, and it works for me. Granted, it is hardly invisible, but that doesn't bother me. This week I went swimming with it for the first time, and it worked great. With a stoma swim girdle and a male swim suit, worked like a charm. The only thing, with Hollister you have to change the bag afterwards because the carbon gas filter gets saturated when it gets wet.
OMG my last bag change, My stoma became SUPER ACTIVE as I was getting ready to reapply. I use "Squishy gauze" (gauze rolls that I cut to about 12 inches and then fold the ends to the middle and then fold that in half). I soak the gauze with SODIUM CHLORIDE 0.9%. I can use it to clean around the stoma AND to catch output. I was so glad I had it because I needed 6 of them just to catch what decided to come out ... 3 rounds each using 2 gauzes. 99% of the time, I have irritation. I use stoma powder and skin barrier spray to "crust" the areas.
These are such great videos. I had one lesson in the hospital and was on my own after that. It was a nightmare. 6 years later I’m am doing ok. As a male I also have to shave the area.
I recall you used to have problems with you skin wicking and getting irritated. I think you also had trouble with your bag adhering to your skin. How did you resolve that? Your skin looks great now. From one ostomy patient to another, thank you.
I started using Flonase on my skin! It has been so helpful in healing it! While is was still in rough shape, Marathon helped protect the irritated skin
Thank you for doing these vids - so helpful and educational. One question I would have is.... I am horribly allergic to all adhesives - I don't know what I would do if I ever had to have this done.
I don't know if my comment is surprising but I'm a wife of 25 years to a man that has a colostomy and finally allowed me to help him during a severe crohns flare up because he could no longer do it for himself. He got the colostomy at 14 and was very private about its maintenance all during our marriage but never was a bit hesitant in the sex department. I'm glad he could be free around me to a point. It was never a hindrance to me. I married the man attached to it and not the other way around. Trial and error has been my MO during this awful time in our lives since he continues to be gravely ill and has been hospitalized for most of 2023. Please pray for him. Your videos have helped me a great deal. I wanted to find a way to manage it that suited me. He was so ill that he couldn't explain how HE DID IT. Thanks for helping me find a way and I think your videos are well done and informative.
I just saw an add for something about stealth belt to use for an ostomy it claims to help with leaks and irritations also put less weight on the bag maybe you should take a look it goes under clothes looks like your wearing nothing. Thought I bring it up. I don't have one but I love learning about it with you. It helps me know more about it and appreciate people who have it.
4:57 definitely try on the template really quick before cutting into the bag to see if there are any changes in your stoma especially right after surgery because mine started out pretty big and then kinda shrunk and changed over time
Thank you maggie..your video is very helpful.. I'm diagnosed as low rectal cancer...will having 3 major procedure in the near future..and im goong to wear stoma bag..your explanation very clear and im positive i can face my new life❤️
I had to learn to change and care my dads b/c he had a stroke after his intestines burst and he went septic. It also eventually got worse and gave him dementia when the sepsis got to his brain. I really wish YT was then the way it is now b/c a nurse came only once to teach me and went so fast I didnt learn much. I had to figure it out and there were so many accidents. I feel bad I didnt do better for him for so long. Eventually I got the hang of it but still had blow outs once a week. I went to a medical supply store before my wedding and told them I needed help b/c I was worried there would be an accident on my wedding day. The man there took over an hour with me, told me what soaps I should and should not use, how to get the best stick, what wipes never to use…all this stuff I needed to know for so long. My wedding day was accident free for dad. He couldnt get out of his wheelchair but they played a song for us and I held his hand for a while and then my brothers danced with me to finish it out. He lived one more year after that and we avoided so many accidents b/c of what the man at the supply store told me. If I had YT it wouldnt have taken me 3 years to find someone to help.
It seems easy, until your the one with with the ilostomy bag. It was so hard for me especially when the tape would unstick and an explosion would occur. Sleep was deprived and I would also get panic attacks. God will I will be getting a reverse, until than I'm still a nervous wreck. Thank you for the advice
So you’re telling me they put your intestine leading out your stomach and it’s like a wet organ on the outside of you and then they can put it back in sometimes with other people!? I feel so dumb but I am amazed. Humans are amazing. You are amazing!
thanks for having the courage to show this. interesting. I would never know. so is that part sticking out, part of your intestine? does it hurt to touch? interesting.
If you liked this video, keep your eyes on this playlist as I add more videos about ostomy care for nurses! ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-_EQae_aAem8.html
I noticed the extra space between ur stoma and the wafer ring. I was having trouble with skin irritation when my wafer size was to big. until i ordered it the same size as my stoma i was able to stop havin to use extra products. now my waste goes directly in the bag an not all around the sticky wafer. Does wafer size matter?
Hi, on July 20,1990, me, my mom and younger brother were in a car accident. My mom was hurt worse than me and my brother. Anyway, the Dr didn't know that her intestines were leaking until 7 days later. So, she had to have surgery and had to put a colostomy bag on her. But hers was an eliostomy. It was a dirty job helping her empty out her colostomy bag, but someone had to do it. She passed away Nov 25,2005. I miss her. I wanted to share this with you
Hello thank you for sharing. Dr. Took almost all my colon out 2016 and I seemed to be ok for a few year's now my Left side is Always in so MUCH PAIN and now it's anything I eat I'm in pain. Getting a cat scan in May. Not fast enough with what I'm going through. Did you or does anyone reading this ever had left side pain to where you feel like it's going to be the death of you? I do n ok can't get out of bed of time's anymore. I wake up in the night whining to the point it wakes up family in my home. Pain in lower left that goes around to front and stabbing me? Before surgery was like this and now it's worse? Can anyone explain if they go through this? Dr. Said he expected me to already had been back to him,but I've been fighting this pain so I didn't have to get the bag,but I just cannot fight it anymore. Right now I'm hurting and sick from the pain,but IDK how much more pain I can take without just going on to emergency room,but they don't know what to do really? Pain med's Do not help and I don't WON'T no medicine in me that doesn't help ya know? If anyone KNOW'S or understand's what I'm going through please let me know THANK you May GOD BLESS us all going through this.
@@gailholloway5537 ,hi, when my late mom used to wear a colostomy bag, she never complained about her side hurting or anything. But, it was a dirty job trying to help her empty 🫗 the bag out. Well, she actually did it herself when she'd use the bathroom. I no longer have my mom, I miss her everyday.
There’s one group of people You left out of this post. That’s Carers. This post is a great educational tool for them as well. This should also give Carers of Ostomy partners, friends and family the confidence to be able to care for the Ostomy Person and help them if needed…… ⚛️☮️🌏
Thanks for posting... I'm new to the whole thing, just 5 months...still dealing with the head stuff ie down mood, stigma PLUS accidents while sleeping...👉🇬🇧👈👉💎👈ps SUBSCRIBED UK
Have you found Hannah Whitton's channel yet? She has a stoma and lives in the UK, so has talked about things like what's available in the UK in terms of stoma care. I can't remember if her stoma content is on her main channel or her 2nd channel (More Hannah), but I'm pretty sure there's a playlist for it. She also had a baby last year, so there's some stomas in pregnancy videos too.
are ostomy products expensive in America.. I live in England so I don't pay for my products its covered by the NHS.. so I was curious how much its costs in USA x
I THINK YOU ARE A BEAUTIFUL GIRL WITH A GREAT ATTITUDE...THIS WOULD PROBABLY BREAK ME, I WAS STABBED 3 TIMES IN THE STOMACH THROUGH THE BOWEL BUT I NEVER HAD A BAG AND I THANK GOD FOR THAT, I THINK YOU'RE A GREAT SPOKESPERSON FOR THIS AND I CAN IMAGINE LOTS OF PEOPLE GAINING KNOWLEDGE THANKS TO YOU! I ALSO THINK YOU'RE SUPER CUTE! MUCH LOVE FROM AUSTRALIA ❤️🙏
I want to thank you for the video my wife is going to have one at some point. Am so nervous to scared 😳 am feeling helpless for the first time 😢 am a EMT but been in the medical field for many years. As many things and I work in the operating room for long time. But it is different feeling since this is my wife 😭 your video is very helpful 😊😊
I really cannot thank you enough for your videos and the information you have provided here. I live on the west coast of Ireland and was rushed to hospital 2 weeks ago with a ruptured bowel due to untreated damage from endometriosis. The healthcare system here on the west coast is an absolute joke. I have been left sitting in my own blood and waste every day by nurses and doctors with a leaking stoma bag that is connected to an overflow bag by my bed. I think my wound down the front is infected as it is oozing yellow green pus but it has been ignored. I feel so dirty and honestly like I have been treated like a wild animal. I have been so upset by the way I have been treated and not being able to help myself has really impacted my mental health. I have just changed my stoma bag for the first time with the help of this video. I don't have access to a mirror and it did not go perfectly BUT I am going to give myself some time to recoup and then give it a second attempt which I feel confident will go better. I know once I go home and can access a mirror it will be easier to see what I am doing. I am so proud of myself right now for getting this done and I know it is a huge step for me in feeling confident enough to leave this horrible place and people behind. It's really really terrible in here and the experience has pushed my usually positive mental attitude to breaking point of on a daily basis. Thank you again, I cannot put into words how much you have helped me.
Dear Maggie, I suffered with Ulcerative colitis from 20- 22yrs old. I was born with this problem however it stayed in the background til age 19. After 2.5 years of cramps, bloody stools, losing weight and becoming emaciated and weighing 98lbs.,, severely anemic, menstrual cycles stopped
CONTINUED: I collapsed right at the G.I. Dr's. office and was admitted to the hospital on the edge of death. I spent 1 month there...1 or 2 weeks inagonizing pain unwilling to have the total cholectomy. I finally agreed then went through with the surgery. I have had a Koch pouch 1 yr. Later and a Barnett's procedure 20 yrs later. I'm now 72 and I never had a role model like you to gain confidence and self esteem. But I've been blessed with courage to forge ahead. God bless you for your mission and clarity to erase all the embarrassment and feelings of inadequacy that usually goes along with the journey. I've been married for 50 years and adopted 2 kids, 5 grandchildren, and live a wonderful fulfilling life. I feel blessed! P.S. I am beautiful & confident. I am Candy...Roberts wife.
How long did it take you to truly "get used to" regularly seeing a piece of your colon just sticking out like that? Like, w/in the first day or 2 or however long after the surgery, were you like, "Oh shit!" when you actually saw it for the first time, or did you mentally-adjust pretty-quickly? Ngl, as necessary as it is, given your condition, seeing it just sticking out on your stomach is still kinda "surreal" to me. esp. from such a crucial part as the digestive system
I guess that is a very personal experience. I went into ER with what I thought was constipation and came out with a colostomy. I didn't mind very much, I learned to take care of it in a week or so. But here's my trick... I am 61 years old with a life long loving partner, so physical attraction or fear of repulsion did not play any role in it. Don't underestimate those factors.
I used hollister, used the elastic belt that clips onto the sides Of the bag and a custom made bag cover. Tried a stealth belt but felt it was too restrictive
Thanks for your info. 3 years ago, I called 911, when I got to ER, I passed out. I woke later in a hospital bed surrounded by doctors with masks. Was told I almost died. Then a few days or so after I got home, I developed a fistula around the stoma. Was told by the surgeon she couldn't fix it unless I got a reversal, which I was not eligible for because I had a short rectum. Having more issues, but right now checking around to see if this fistula can be fixed. The surgeon told me it was because I* was so thin!! I can't believe that. Do you have any suggestions for me???
thank you for the video, it helps a lot, I'm taking care of my mom, she's had a Colostomy recently, May I ask if you have tips to avoid leaking? much appreciated
The skin on your belly appears clear and has no redness. What are you doing with the skin to keep it from breaking down under the backplate? Can you advise about this.? Thank you in advance.🙏
Great video. My son had a colostomy bag when he was 7 years old. He had NID. Neuronal Intestinal Dysplasia. Do you know what NID is and how it effects the bowel movments?
My mom just had a ostomy bag. She's 4 weeks post-op and she's having the hardiest time stopping it from leaking. And her cut on her stomach and her stoma are right next to each other my question is how could she stop it from leaking and the best tips to help her
I currently have colon cancer. If i need surgery I'll have a permanent ostomy. I told my doctors i want whatever will give me the best quality of life.
How did you get your skin to clear up so much from one of your previous videos!? Amazing! For the past 3 years I've been having major skin irritations around my stoma. It would be super red and weepy, now it get this yellow crust on it when it dries up. It's been a depressing battle to get it under control and I would love any advise or tips. I've been to wound care, primary Dr, Derm and they all don't have any answers for me. I've tried anti-fungal medication, Holister bags, creams, steroid creams and it will go away for a couple days with steroid cream. But I feel like it comes back with force after that lol. Thank you!
I tried flonase! Its a steroid but the flange actually can stick to it! I had tried steroid creams but that would make the ostomy leak which added to the skin issues!
@@LetsTalkIBD Thank you for replying! I will have to give that a try and keep crossing my fingers that my skins heals and clears up 🙏 Feeling very defeated and hopeless.
