The Myositis Association presents this session from the 2016 Annual Patient Conference in New Orleans. Dr. Conrad "Chris" Weihl responds to participants' questions about IBM.
The bureaucracy going on here is what's slowing down knowing more and even fixing it, for example I had posted here a comment not offensive at all, and it got removed :(. All I was saying I had found this invention I am using with TENs (TENs it is not invasive at all) and I believe it will help everybody ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-JAn9kj_jj8I.html It really made me feel bad, that means something like "I don't care about what you are going through :("
My treatment was the standard high doses of Prednisone to start and Methotrexate for a very short time. Prednisone dose was tapered off some, but I stopped taking it on my own. Side effects from both drugs were making me ill. During that time fairly agressive physical therapy with therapist stretching my legs and arms was done. Before all of this I stopped taking Lipitor. I had a little improvement from the treatment. I have went from not able to walk or get out of a chair or touch the top of my head to walking slowly with a cane. Most of my improvement came after I stopped taking the Prednisone and went to eating more things that helped produce nitric oxide in my body.
@@mikeschad6358 Not sure what will work for you as everyone is a little different as to how nutrition helps them, but beets are a great place to start. Beet juice is good, and also real foods. Meaning nothing from boxed foods or premade anything. Mediterranean diet is good, as long as it is real food. I also take a supplement that has a combination of l - arginine and l-citrulline once a day.
I was diagnosed with polymyositis over 20 years ago and it's gotten progressively worse in the past I'd say year-and-a-half I'm in pain and my legs are weak and I have to use a walker and a rollator now could I possibly have IBM
What is the likelihood that receiving Pfizer BiValent vaccine and Flu vaccine at the same time can bring on an autoimmune disease? My husband had a gradual onset after we both got our vaccines. We have not had a definitive diagnosis yet, we are still working on testing. My son took care of a patient in the ER that developed myositis after Covid illness.
Even better further updates, I was able to create mixes of Brain waves and are equilibrating my energies like magic, so my electrical invention is not needed. The quality of life is not at its best like with my invention would do me manually, but since nobody cares for humanity's best state of being (yeah because my invention will help humanity, not only me, it has just not been experienced by anybody so no one (only me) has good feedback on this unbeliavable discovery. Here are the brain waves I started using this month 4/2023: ru-vid.com/group/PLbNfxHgFwlloOOY989CqJU9zUndC9lr-c And here is my discovery again, awaiting to be invented which I know what is needed to create it: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-JAn9kj_jj8I.html
Wow, I had posted a comment here and it got removed, I felt so bad, basically that means they care less about people. The comment was not offensive at all. I was just saying I invented something with TENs to help myself which I tremendously believe will help everybody :(. ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-JAn9kj_jj8I.html
