Infantile Spasms, Causes And Treatment

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Did you know that infantile spasms can be a sign of something serious? In this video, we'll discuss the symptoms of infantile spasms and how to best treat them.
👇 Dr. Omar Danoun's Blog and website:
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The content on this video and this channel including information, content, references, and opinions are for informational purposes only. The Author does not provide any medical advice on this platform. By viewing and accessing or reading these content that does not establish any doctor-patient relationship and providing your medical information on the site or answering any comments does not establish any doctor-patient relationship. The information provided on this video and channel do not replace the services and opinions of qualified medical professionals and if you have any questions of medical nature, please refer to your doctor and qualified medical personnel for evaluation and management.
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#DrOmarDanoun #Epilepsy #InfantileSpasms #EPilepticSpasms

Опубликовано:

14 ноя 2022

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Комментарии : 165

@DrOmarDanoun Год назад

If you would like to make a consult with Dr Omar Danoun please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays Phone: +1-313-916-8443 Email: InternationalPatientServices@hfhs.org In USA call the clinic www.henryford.com/physician-directory/d/danoun-omar

@zainshaikh611 5 месяцев назад

Salaam Dr Omar, Can you make a video about NBEA gene related epilepsy please? How can it be cured? JazakAllah

@AlexisKuberski 5 месяцев назад

🤮

@MaaikevanBroekhovenIBCLC 5 месяцев назад

www.ncbi.nlm.nih.gov/pmc/articles/PMC6951394/ it's B12 also B1 and B6 possibly from bad diets.

@MaaikevanBroekhovenIBCLC 5 месяцев назад

Eating ketogenic may not solve it quickly enough

@mariachivers2503 Месяц назад

Thank you very much for your excellent video.

@rachx2396 8 месяцев назад

I have epilepsy and my daughter had west syndrome, I thought nothing of it for 4 weeks and 1 day I realised it was serious, later that day she started having multiple spasms so luckily I was already at the hospital. Vigabatrin worked well but she now has a development delay and autism.

@stratenamatka Год назад

Hello, we have a son with IS. Can you give us an advice, where to find a possible counselling? We have already started treatmnet with vigabatrine, but haven't reached the full dose yet.

@zainshaikh611 5 месяцев назад

Salaam Dr Omar, Can you make a video about NBEA gene related epilepsy please? How can it be cured? JazakAllah

@parrvatisureshkurup6795 Год назад

You are absolutely right doctor, my daughter was first diagonised with Infantile spasms and we avoided ACTH due to side effects and was not guided correctly in the earlier days, ( ACTH later didn't help) today she still suffers from epileptic seizures, however viganext is now given to her. Her Seizures were very severe due to hormonal changes, now in control as with age also seizure frequency reduces to a great extent. I must say now we are lucky to have you and many more sources for awareness which can help us to discuss it further with our neurologist. Thank you doctor

@stratenamatka Год назад

Hi, can I ask - at what age was ypur child diagnosed with infantile spasms? Is the developement normal now? Many thanks for answer

@parrvatisureshkurup6795 Год назад

@@stratenamatka 5months old , now seizures are under control though still a long way to go on the overall development as she had delayed milestones due to these spasms.

@panhasethavy5202 11 месяцев назад

I am here today coz I noticed my 3months baby showing those symptoms 😢😢😢😢

@parrvatisureshkurup6795 11 месяцев назад

@@panhasethavy5202 ohhhh, early intervention is critical, follow and visit a good neurologist asap

@kapilabishnoi7370 11 месяцев назад

@@parrvatisureshkurup6795IS Child is completely normal after treatment in all the cases of infantile spasm

@titan.cameraman.57 Год назад

Doc my son this may experience jerking hand ang leg muscle move it self then we ho to neuro pedia . Advise ro eeg the eeg is claer then the neu give a medince almost month from now somet still jerking an some is he jerking fast

@tinatijerina-ch2ev День назад

Mine doesn't do this that when my 9-month-old is on the floor he kicks his feet real hard in his hands and yells I hope this is normal behavior if not I'm taking him to the doctor

@ramachandrududuvvu9497 23 дня назад

My baby suffering developmental and epileptic encephalopathy reason of dnm gene mutation and nsf gene mutation ,any drug available these disease?

@Rasha22-zb2hh 6 месяцев назад

Excellent type of explanation,that’s very helpful I’m thankful for ur effort doctor 🫡 that helped me to memoirs the disease easily ❤️

@Official-ez2zo 8 месяцев назад

My daughter was diagnosed with IS at 9 months age. We don't really know when does it started but probably around 4-5 months age. It was rare as she would get this only after waking up from a deep sleep so we would just ignore it as if she is just getting out of deep sleep. We are still worried because we think we have delayed the treatment for 4-5 months. She has global developmental delays. We started with prednisolone for a month and then tapered off next month, the spasms were reduced in frequency and severity but didn't stop completely. Now we have started vigabatrin initially on 500mg but she was still getting episodes of spasms, now on 750mg and I still noticed it. Don't know what to do next.

@mistrz091 7 месяцев назад

We have a similar situation, we also have a dose of 750 mg, how is your child doing?

@user-gh7fz8oc2r 5 месяцев назад

Same, also tried keto diet and it didn't work for us. Lamotrigine has helped with development but not stopped the seizures. Now trying Clonazepam which seems to be helping how often the clusters appears and softening them

@live-pm4lb 4 месяца назад

🆘 pls does IS happen while baby is asleep?.. my baby jerks sometimes only while sleeping.. he's 5 months. Should I be worried??

@nz8320 Год назад

Thanks for this explanation My daughter has millers diekers syndrome type I lissencephally she is 5 months and I have noticed she maybe starting with some signs of these infantile spasms, what would be the best treatment modality in her case

@DrOmarDanoun Год назад

The treatments are mentioned in the video. Please discuss with your neurologist

@CofVempire Год назад

Our youngest has epilepsy...after getting serious help we knew he has the West - syndrome because he has another sickness...so beside the west-syndrome he has neurofybromatose type 1 (nf1)... Thank you for saying this to the world

@elis4993 2 месяца назад

Are the two linked. I'm just looking today... my baby did these fuss startle moves repetedly and recently I was googling his pigment marks and nf1 came up...

@user-ec6lo1ky4c 15 дней назад

@@elis4993 take your child to go see a pediatric neurologist asap

@chikajuliet5621 Год назад

My baby has the case, pls what do I do

@judithbeyuo6716 2 месяца назад

Please can it happen within 2 days post delivery?

@lexrivers6271 6 месяцев назад

Doc is it to a baby who have infantile spasm have a BCG?

@chaibaltazar3603 10 месяцев назад

Can baby have IS without developmental delays?

@ellmatic 11 месяцев назад

Thank you for the video. Does the baby need to be asleep during the EEG for the doctors to be able to tell if the baby has infantile spasms or can the baby be awake?

@mariaconstantino59 11 месяцев назад

Your baby does not need to be asleep. My son has had 3 video eeg. They range from 4 hours to 24 hours it just depends on what your doctor orders.

@parrvatisureshkurup6795 Год назад

Would need your advice to understand sudden giggles and cries in epileptic cases. Since last 2 months she has been constantly giggling, crying, ( quite for sometime) wakes up giggling restless and sleeplessness too. What can be the reason for this sudden emotional outburst. Please advice

@DrOmarDanoun Год назад

Can't provide medical advice without evaluating the patient... But in general there are some types of Seizures that are associated with emotions like laughing or giggling called gelastic seizures and crying called dycrastic seizures. Some have specific cause. Ask your neurologist

@parrvatisureshkurup6795 Год назад

@@DrOmarDanoun thank you so much.

@parrvatisureshkurup6795 Год назад

@@DrOmarDanoun can gelastic seizures develop in adulthood/ teens

@parrvatisureshkurup6795 Год назад

Pl respond

@nareshgunichetty6875 8 дней назад

What is the cure/treatment for infantile epileptic spasm?

@whipsandchains1 2 месяца назад

My daughter did this from infancy. She has seen multiple specialists for years with no diagnosis other than severe development delays. She is now 20 and you're telling me I think I just found out the cause from a you tube video?? She was never treated for anything. 😢

@dianagae3024 Месяц назад

So sad! Incredible how diagnosis can be missed.

@briwmi.c0h115 Месяц назад

my son too, i didnt bring him to doctor as i dont know how to call that siezure , but he is fine now he is 23 by Gods grace now.

@jasminedavis8256 Месяц назад

Hi! I know you don’t know me but my son is 19 months. He has seizures like this. Poor weight gain. Severe developmental delays. And a few other problems. We were diagnosed with Foxg1. It’s a rare genetic mutation that most doctors don’t know. Please get genetic testing done on your precious baby and it could give you the answers you are looking for. 💜💜

@whipsandchains1 Месяц назад

@jasminedavis8256 thank you! I googled foxg1 and it describes my daughter exactly.

@JayBee-wn1pp 7 дней назад

⁠@@jasminedavis8256 my son just had his EEG today and confirmed he’s now 2 1/2 years old with all that you listed. Will look up your diagnosis. Coincidentally my son’s name is Fox.

@namitabadi6619 9 месяцев назад

Infantile spasam is curerable or taking medicine life long.........plz tell in Hindi

@Akporotu Месяц назад

It’s sad I’m facing the same issue with my 17 months old daughter. @dr usman

@annettemozqueda5186 Месяц назад

My son had infantile spasms at the age of 7 months old...caught it within days of it beginning, he had to be hospitalized for a week for a for testing...he did get cured with adrenocorticotropin hormone high dose and tapered down for 9 weeks of treatment in order for his own brain to produce this hormone naturally, however, it caused a global developmental delay especially with speech and sensory input and output

@zordjevojka2378 24 дня назад

😊

@andreamoore4595 Год назад

Do you know much about IED, intermitent explosive disorder. I am just wondering if this is what is going on in sleep.

@DrOmarDanoun Год назад

Yes but that is different from epilepsy

@andreamoore4595 Год назад

@@DrOmarDanoun yes but I have been doing some research to try and get to the bottom of what's going on in sleep and it seems IED and temporal lobe epielpsy is closely linked to amygdala. When I was on tegretol I never had any 'seizures' and then neurologist changed my meds 5 years ago saying ot was pseudo epilepsy and put me on lamptrigine and since then I have had thus sleep issues every single night. Tegretol is used for IED. When I was 12 I am sure I was diagnosed with temporal lobe epielpsy and not frontal lobe epilepsy. So mabie this is the answer? It will be nice to sort this stuff out now. What are your thoughts please?

@fahadaf86 11 месяцев назад

I have a one-year-old daughter, and a month ago I noticed that she suddenly grabs her hand, often before and after sleeping..I want to know its cause and diagnosis..

@sunainasadia4641 Месяц назад

How is your child now

@AllAboutMadfut22 Год назад

my daughter get tuberous schelosis since born, now one years later, in indonesia my daughter medicine out of stock, sibital or phenobarbital. i am very sad. please help me doc

@DrOmarDanoun Год назад

Sorry to hear that.. Please discuss with your neurologist for alternatives

@ambermarie5605 Год назад

My baby is 3 months old and I have noticed her trying to sit up. She’ll arch her back and pick up her legs, with a little grunt sound, but I haven’t noticed her eyes or arms go up. I check her to make sure she doesn’t have any gases or needs to be burped. Im a first time mom and everything worries me 😅 I just do think it’s weird that it looks like she’s trying to sit up or is crunching up her body. Should I have her get checked? I’ve been reading so much about this and I’m worried 😢

@DrOmarDanoun Год назад

If you are concerned then ask the doctor why not

@hummasarfarazkhan9493 Год назад

Your.daughter.is.epileptic.my.daughter.was..infantial.spasm.epilepcy.and.have.fit.which.called.salam.fits..pless.concern.docter.and..make.a.test..EEG...

@VS-me4re Год назад

How’s your daughter now

@chaibaltazar3603 10 месяцев назад

How's your daughter now?

@hummasarfarazkhan9493 10 месяцев назад

@@VS-me4re she.is.no.more..at.the.age.of.nine.month.she.passed.away..her.epilipesy.was.not.cure.able.i.have.concern.many.doct.but.siezers.were.not.being.control.by..miedcien...she.went.on.vantilater.for.15.days.and.then...whith.in..twenty.days.she.passed.away...at.the.age.of.one.and.half.month..first.epiliptic..attack..was.occour...nine.month.she.alive......

@hadjirabenessalah6121 Год назад

هل هناك فيديو باللغة العربية

@DrOmarDanoun Год назад

نعم اسمه صرع الرضيع.. هناك قناة كاملة فقط بالعربية. د عمر دنون اسمها

@semharghebre119 Год назад

my 3 months old baby was diagnosed with neonatal seizure and was taking keppra.i noticed abnormal movement nd see a doctor.he done an egg ze result was normal.the Doctor told me to stop the medication.but he has this spams now,what i can do?the doc always told not to worry&he is to careless.shall a see another doctor.i am too afraid as i'm a first mom.

@DrOmarDanoun Год назад

Please discuss with your neurologist

@radflgkenea8773 Год назад

Thank You For The Video. my newborn son Is On Levitracitam At a Dose Of 0•33ml for the past two months and will continue for the third month. After That I Will Have Cheack Up With The Pediatrician, what should be the next procedure i should expect when i visit the pediatrician and what questions can i raise so that nothing is missed early on. Thanks

@DrOmarDanoun Год назад

I can't expect.. This is case by case

@raselhossain2576 Месяц назад

My baby just got such an itch doc I'm watching from Bangladesh My baby is 1 month 5 days old

@tle1015 5 месяцев назад

should ask this "dr." About what his thoughts on the safe and effective since birth.

@esthermwangi-sh8fm Год назад

My daughter used to have those signs on the first weeks after birth but nowadays I rarely sees those signs And I have never seek any medical attention cause I thought it's normal Should I be worried?

@Mahwis641 Год назад

Keep eye on her and notice her movements.... Main sign is development delay.. MAY Allah protect ur child.

@DrOmarDanoun Год назад

Hard to tell without evaluating the patient. Please discuss with your doctor. Reassuring things if the development is normal

@esthermwangi-sh8fm Год назад

@@DrOmarDanoun Okay .... Thank you

@princessokoji3836 5 месяцев назад

How old is ur son when the symptoms stop pls?

@jaysoncaabay2328 Год назад

My son have infantile spasms the pediatric neurologist provide Dilantin phenytion Phenobarbital And ivitra leveratecam It is helpful? Its been 5mos but my son still has headrops can you give any suggestions

@DrOmarDanoun Год назад

I can't provide medical advice online. But I put in the video the right treatment

@tggaming7969 6 месяцев назад

My son suffering from hydrocephalus Vp shunt done Now suffering from lS almost 7 Times a day for àbout 8 min Taking levtricetam 2ml valprin 3ml Sir please suggest me what to do

@sunainasadia4641 Месяц назад

Does levtricetam stop seizure?

@Mukarram781 7 месяцев назад

Hello my son is be having like that I don't know what to do please sir can you help me sir

@annettemozqueda5186 Месяц назад

Go to the ER ASAP....record his movements to show the nurses and dr.

@ThaChazo Год назад

My baby was diagnosed she's been having them for 12 to 16 weeks is she too late? Will she have irreversible damage??

@cherry2423 4 месяца назад

How is your baby now

@ThaChazo 4 месяца назад

@@cherry2423 unfortunately is been very hard to contain them. She still gets anywhere between 1 to 3 spasms daily. She's on a decent dose of Keppra and Onfi and on a 4:1 keto diet but nothing seems to fully work. She's going on 30 months but only weighs 20lbs😔😔

@cherry2423 4 месяца назад

God bless 🙏. Hope she will recover soon , Could you please let me know how you have identified this AND if movement is totally different from the normal movement

@ThaChazo 4 месяца назад

@@cherry2423 her spasms look like she's about to faint and lose consciousness but only last for a split second. (1 or 2 seconds max) but lately she freaks out and cries right after they occur. They scare her because her body shuts down for that split second.

@cherry2423 4 месяца назад

@@ThaChazo oh god , hope she recover soon

@Devoneakapimp Год назад

My 2 month old just started having the epileptic spasms . They were noticed when she was five weeks but the mother thought nothing of it as it occurred 2-3 times. However, today she has had over 40 of them. I’m not sure if this is considered catching it early or not. Nonetheless, what’s your best advice other than going straight to the neurologist.

@DrOmarDanoun Год назад

Yes straight to the neurologist for evaluation and based on the findings the treatment will be decided. The best treatment is mentioned in the video

@Devoneakapimp Год назад

@@DrOmarDanoun interesting. Have you ever heard of vitamin b6 being responsible in infants from over diluted formula? After being given sufficient formula, she had absolutely no spasms

@tracimartin9038 10 месяцев назад

are you saying that B6 helped or hurt?@@Devoneakapimp

@sunainasadia4641 Месяц назад

How was the spasms

@user-kq9wf3us5u 5 месяцев назад

مسا الخير دكتور عمر. شكرا مقدماُ على هذا الشرح المفصل. منذ تقريباً ٢٠ يوم تم تشخيص إبنتي عمرها ٥ أشهر بمتلازمة وست ، بدأنا العلاج بالكورتيزون و Vigabatrin الى الان تم عمل EGG خمس مرات خلال ٣ أسابيع والحمدلله هناك تطور ايجابي يوم عن يوم. تم عمل ايضاً رنين مغناطيسي للدماغ والحمدلله الدماغ سليم. العلاج استطاع ايقاف النوبات بشكل كامل، نحن مازلنا بأنتظار تحليل الوراثة لمعرفة اذا كان السبب وراثي. بسبب النوبات بعد اول اسبوع من العلاج فقدت إبنتي إمكانية البلع واصبحت تتناول الحليب عن طريق خرطوم من الأنف الى المعدة، بفضل الله منذ اسبوع استعادة خاصية البلع وأصبحت تستطيع الرضاعة بشكل طبيعي. الأطباء في النمسا بدأو هذا الأسبوع تقليل كميات الدواء بشكل تدريجي ليرو هل تعود النوبات في حال تقليل الدواء. سؤالي لحضرتك، هل يمكن ان تعيش ابنتي حياة طبيعي مع الاستمرار بالعلاج والمعالجة الفيزيائية؟ انا متفائل لأنها تتطور يوم عن يوم بشكل إيجابي. شكراً مقدماً وآسف على الاطاله

@dhanuja.m.s8312 Год назад

My nephew is 2 years old, infantile spasms detected on him at 3 months the treatment is going on, but not much improved, the neck bone is still weak we need to hold the head and head feels heavy. Any advice you can give me?

@DrOmarDanoun Год назад

I can't provide medical advice online. I mentioned the treatments and the way they are given but the final decision is to the treating pediatric neurologist

@jaysoncaabay2328 Год назад

@DrOmarDanoun Год назад

Thank you. Ask me in a NEW COMMENT any questions you may have about epilepsy and seizures

@camilleclemenceau5398 Год назад

Hello Doctor, I am a mom. My daughter sometimes just open her arms wide but she never lost eye contact with me during that and it only happen if she is alone laying on her back and we are not having contact with her. Also, I soon as I touch her it stops ! It doesn’t come in cluster. She does that one time then can make it again a few days/weeks away. What do you think ? My doctor thinks that she does that as a response to stress.

@giftfromabove2107 Год назад

Hello Doctor, please I need your help and insight I think my daughter may be having seizures. Can I send you a video?

@julissaaguilera9158 Год назад

@@camilleclemenceau5398 what the pediatric have tell you about it?

@camilleclemenceau5398 Год назад

@@julissaaguilera9158 Hi Julissa, We have been to a pediatric neurologist and did an EEG. She had 1 or 2 back to back crisis every week or two weeks since she was born. One day she has had 4 crisis the same week that’s when I started worrying and contacted a doctor. Results came back from the EEG and there is nothing to worry about ! She hasn’t done ANY crisis since ! (0 crisis in 5 or 6 weeks). The doctor said that sometimes infant do those scary things for a reason that they still ignore but those have no impact on their development or life. 1 out of 3 kids who does these scary movements is having benign crisis. So, do not freak out ! Go to your doctor, try to take videos, do an EEG and hopefully you will be just fine !

@julissaaguilera9158 Год назад

@@camilleclemenceau5398 thank you😪

@jyotsnatongare543 Год назад

My baby is 14 days old.sometimes suddenly she acts like she is choking and can't breath..she doesn't make any sound n jst feels like choking nd her hand goes wide.its really scary

@alchemist7582 Месяц назад

Mbase e lexoj mbas nje viti , si eshte fmija juaj tash ??

@oshoditemitayo1733 Год назад

My one month old baby girl is having this kind of shaking her hands and leg while bathing or laying down playing like something scares her, should I be worry about it 🙏

@DrOmarDanoun Год назад

Best to discuss this with your pediatrician for evaluation

@elgadarret510 Год назад

My son was diagnosed with IPC he is taking steroids but still having apposite...How can they completely go away today it lasted longer then usual please 🙏 😢 let me know which medicine will work better

@DrOmarDanoun Год назад

Treatments are mentioned.. Please discuss with your neurologist

@elgadarret510 Год назад

They went away now ty

@MaMvelase275 Год назад

My son makes them when he wake-up, Should I see a Dr ?

@DrOmarDanoun Год назад

Yes right away

@shoppeebudolchannel Год назад

My baby is having an unusual movements like this one seizure movement straighten her arms and legs but when i distract her or when you carry her she is not doing it shes doing it when shes playing and excited is it possible that its just her own movement

@DrOmarDanoun Год назад

Can't judge. Please see a pediatric neurologist for evaluation and treatment thank you

@sunainasadia4641 Месяц назад

How is your daughter pls reply pls .my daughter does the same

@sunainasadia4641 Месяц назад

How is your child pls reply pls. My daughter does the same

@mylifeasmrsmark4544 Год назад

How about those seizure like movements when the baby is breastfeeding?

@DrOmarDanoun Год назад

Best to record them with video and discuss with your neurologist

@AbdulRehman-ts4vv Год назад

Dr my baba 1 year old fut hend kapapta h sota h to ab jagta h to bhi hota h EEg karwya tha wo thek h Kuch Nahi sys delay milestone h please Dr reply please 🙏 help

@DrOmarDanoun Год назад

Sorry can't understand the language

@itsseemashaikh5561 Год назад

Aapka baby kisa hey

@AbdulRehman-ts4vv Год назад

@@itsseemashaikh5561 wesa hi h sis ABI bhi hota h kuvh kehty h kamzori ki waja SE Kuch Dr kehty h masla h koi

@AbdulRehman-ts4vv Год назад

@@DrOmarDanounEnglish language nothing

@itsseemashaikh5561 Год назад

@@AbdulRehman-ts4vv aapke baby ke problem batao details

@babyscarr3 Год назад

🗣️so basically if I have epilepsy my kids👨‍👧‍👦 🥺 will have epilepsy cause of genetic 🧬 😓I wish I could figure a way my kids wouldn't have it cause I'm only 24 and hard to deal with my epilepsy sezuire I don't want my kids going through the same things I'm going through it's very depressing 🥺💯

@DrOmarDanoun Год назад

Not necessarily. Please review the video on epilepsy and genetics