Hello Patrick. Can you look at the Itaconate shunt hypothesis by Rob Phair and Ron Davis? It's pretty interesting and may explain ME/CFS once and for all.
I've looked at it a bit before Angel. Might do a video on it some day but my feeling is that it is one just one dysfunction among many inter-related dysfunctions
Hi Patrick, thanks that sounds really interesting. Having been incredibly fit and competing in cycling, I had a very adverse reaction within 20 mins of a AZ vaccine in 21, I’ve been thru all shades of hell since and still not working, but I still meet all the NICE criteria for ME, getting no where with dr on any front but what has helped is recognising that some physical and cognitive things cause crashes and not crashing through pacing has improved things a lot. I have had to become very knowledgeable in order to brief the enquiry module4 with support groups and am very aware of work by Prof Carmen Scheibenbogen showing similarities of ME & LC and other similarities with Lyme. I thought this was going to be another angle on heart rate variability which I’m familiar with, I’ll contact the company so I’m on there email list, this sounds well worth trying when available. Many thanks
Glad you found it of interest, Simon. Yes, it is a different take on a pacing monitor alright. Personally, I think Scheibenbogen and Wirth have worked it out. It takes a bit of effort to get your head around their ideas but, once you do, I think that is what ME/CFS basically is (though there will be variations around the edges in people). You might find my 'drug to cure ME/CFS' video interesting if you have not seen it already.
Look up the RU-vid channel 'ME Ireland' and my talk there titled 'ME/CFS and thirst' in which I describe my whole awful experience with that symptom and how I resolved it. Or look up the health rising blog I wrote 'Why are some ME/CFS patients so thirsty? Have they been historically misdiagnosed as psychogenic water drinkers?' I hope those resources can help you. It's a horrid symptom.
I haven't used it but it looks really helpful. It only warns of possible crashes from high heart-rate but that's still very handy. Sorry can't be of more help.
Thank you! I do have a question: Might this device help for metabolic stress with other causes than ME/CFS or LC? Or are those protein markers linked to those two conditions specifically (as opposed to the metabolic stress itself)? What I have is very similar, but I'm not sure if it can be considered ME because, thankfully, I don't have much pain. So while it may be atypical moderate ME/CFS, I usually cite the symptom lists for Persistent post-concussion syndrome, Chemo brain and now LC too as the most similar, even though it isn't either of those conditions. (In Dutch it falls under the very broad category of 'NAH', which is considerably broader than English 'brain damage' usually).
You are very welcome! Well, I don't know about what exactly the measured protein is but the streasure4health website states it also has implications for type 1 diabetes. I don't know whether it will have implications beyond type 1 diabetes and ME/CFS and Long Covid, but those are the two indications it is being developed for.
@@me-cfs-strategiesforhealing They're going to give their results in November in a Long Covid Conference. Seems unlikely to have completely negative results if they're going to present their findings in a Conference?
@@me-cfs-strategiesforhealing thankyou for your reply. I have m.e and fibromyalgia and autoimmune hepatitis. Is fibromyalgia and m.e an autoimmune disease!! It's been an horrendous 10 years with these 3 diseases ....I absolutely pray for some treatment 🙏 I'm so glad I found your channel
Hi Christine. ME/CFS autoimmunity is different from other illnesses. The body is not attacking itself but the autoantibodies are instead blocking various functions to further heighten ME/CFS pathomechanisms. Not everybody with ME/CFS has the autoantibodies and, among those that do have them, the degree will be different. Testing can be done via cell trend lab (see my video on testing) though that is a little tricky if outside of Germany (though not impossible). So in ME/CFS, autoimmunity is best thought of as a secondary dysfunction that can be brought on by the illness and make the overall situation additionally worse, but the degree to which it does this will depend on person to person.
Thank you JP, that's kind of you! Yes, I'm fine. I haven't posted any videos in a while as I am working on a book about ME/CFS. I hope it will be out by November and - after a bit of a break - I'll be back on RU-vid
