It Started with a Hip Injury - Nina | Stage 4 Lymphoma (DLBCL) | The Patient Story 

WOW, this woman's father saved her life essentially, what a great loving dad!!

So thankful your Dad advocated for you - he knew something wasn’t right and took quick action.

dealing with a health challenge recently, this woman's cancer journey deeply resonated with me. In early 2020, I faced my own health crisis, navigating through pain and uncertainty. Her vivid account of denial, the quest for answers, and the emotional toll mirrors my own experience. Chemotherapy, with its physical and emotional hurdles like hair loss and nausea, became part of both our stories. I, too, leaned heavily on mental health and found solace in meditation during my challenging times. Her celebration of remission echoes the triumph I felt post-treatment, surrounded by the support of loved ones. However, the struggle to resume a normal life, grappling with lingering mental health issues despite physical recovery, mirrors my own post-recovery journey. Her wisdom on maintaining routines and integrating lessons from adversity into daily life resonates deeply. In this context, health, both physical and mental, is truly at the forefront of our shared experiences.

Seven years ago I had my second hip replacement surgery. I have severe arthritic damage to my body w/much pain from it and this replacement was expected and planned for. As is standard the portion of my thigh which was removed was sent for a pathology review. It was, in time, reviewed at four labs, all the way up to NIH. I was diagnosed with an obscure lymphoma/myloma, Waldenstroms Macroglobular amemia. I was 65. I am lucky as it is a very slow progressing cancer. There is a treatment available but it would make me initially much sicker than I am now and may not be effective. I am now 77. If this cancer begins out pacing the natural effects of aging, I will be treated. Cancer is sneaky. I am happy yours was found, and that you have healed your body. I feel confident your spirit will return to you gradually along the path you have chosen.

It’s been ten years since we lost my daughter’s partner he died of non hodgkinsons lymphoma. He was young and his GP kept sending him away with the wrong diagnosis for five months when he was treated nothing worked . The world has lost a beautiful young man to this disease

She's fortunate to have an Oncologist for a dad. The health care system in the USA usually waits until they bring you in on a stretcher unconscious before they take a patient seriously.

Congratulations on your remission. I pray you will live a long healthy life. 🙏

Why on earth would they NOT put a patient under to do a bone marrow biopsy? Barbaric!!!!! Outrageous. Unconscionable.

I had stage 3-4 non Hodgkins lymphoma 7 years ago the treatment was r chop which put me into remission it's a hard road and I wish you the best it is treatable and most treatments are successful I was fairly healthy non drinker non smoker and 42 years old and I responded well I can not imagine not having anyone to support you how brave you are all the best❤

My dad had large B cell non-hodgkins lymphoma twice. He had a nice, long 7 year remission between the 2, so he lived to be 87! I was his full time care giver the 2nd time, his last 10 months. My only "breaks" were leaving him to go run errands for a few hours when he was getting chemo. We did everything together, 24/7. His 1st round was a lump in his upper inner left thigh. 7 years later, it was a lump in his neck & i knew it was back. Good luck with your future treatments! City of Hope wouldn't accept my dad for his 2nd round of lymphoma probably because of his age. They had a limited number of spots to fill & we understood to give younger patients first priority.

Nina your superpowers come through in your well-told story here! Young with cancer at beginning of covid in nyc!!! Traumatic on so many levels. Psychological understanding and support woefully deficient in oncology. I went through treatment in Westchester Cty with last 2 treatments beginning of covid. More needs to be shared about cancer during covid. I am also a therapist. You clearly know this but in case helpful to others, your healthy, intentional, daily practices will likely and slowly improve your mental health. The transition from treatment to new sense of self takes longer than many of us cancer survivors expect. CancerCare in Nyc offers free psychotherapeutic support. Also young survivor groups help some. You're a beautiful force. Thanks for sharing your story. Wishing you wellness in 2024 🤗 Wendy

Nina in March of 2022 I was diagnosed with AML...Acute Myeloid Leukemia. I knew something was wrong but I kept pushing for answers. I hope you are still enjoying health. Thank you for sharing your "bald" pictures. In 2022 I lost my hair twice. I felt like everyone knew I was sick because of the way I looked. I am in remission now and finally have a full head of hair. I wish you so much grace, peace and health in 2024. This was written on New Years Day,2024!

Nina In October 2018 I was diagnosed with Non Hodgkins Lymphoma. It took a while to get a diagnosis and start treatment. I too had R-CHOP. In order to make it sound less nasty I used to call it Pork chop! I am 77 now and having the chemo treatment was a real struggle. Losing my hair was not an issue for me being a man. I had PET scans both before and after that showed that the Chemo had done its job and I was in remission. PET scans were new when I had my original scan and are a big advance in diagnosis. It took me a while to even refer to it as cancer. My before scan showed that I had an extensive problem and the after was almost completely clear. I still go to the hospital every 6 months and they are very good at checking me over and being encouraging. Unfortunately I had a heart attack 2 years later which was always a possibility but was very swiftly treated with a stent. I make sure to keep my weight down and exercise every day. I look forward each day and give thanks I am still healthy and thanks to my wife have coped with the mental side of things. John

You are amazing…..your sharing will definitely help many❣️

Thank you for sharing ❤. I pray you continue your healing.

You are so brave ! I wish you many many many healthy years ahead. God bless.

Continued all around good health!

Thank you for your story. You look so good as you speak so hope and pray you continue to get better and better. Blessings galore. Yes, mental health is so important so hopefully resources are available.

You are so brave. Thank you for this story. Life turns on a dime.

You are a bright, beautiful light. Praying for all the best for you!

Thankyou for sharing your story, you've handled it so well and you should definitely be proud of yourself. Thankfully your dad pushed for extra treatment, I hope you informed the medical team at the other hospital what happened as they sent you away with a missed diagnosis & its important they get this feedback so they dont make the mistake with others and send people away. Im thrilled your doing well now. ❤

You are a warrior. Thank you for sharing.

You are one strong young woman. I wish for you continued health & lots of love.

sending you loads of love. I hope you will live long and eventually a happy life.

Nina, you just fill my heart with happiness, you are amazing.

Thank you for sharing your journey, you are excellent at articulating. You are so spot on in regards to mental health and the more people realize its ok not to be all the time Anxiety and Depression can be controlled. After years of walking through life thinking things were just "normal" or just a part of living I finally sought professional help and was diagnosed. As soon as I was formally diagnosed and couid put a name to all these things going through my mind It felt like the weight of a car coming off of my shoulders.

You are golden ❤

So miraculous, the progress that has been made in treating this disease and its treatment side effects. Lost my beloved brother to it 25 years ago. The next year, new treatments were discovered, and the progress has continued. Glad to hear of your positive outcome! Stay strong, and thank you for sharing!

Your grace and warmth are heartening. I wish you health and well being. With much luv from NC

You are beautifully strong! Thank you for sharing your story.

Thank you for telling us this. I’m also a cancer survivor (breast) and a New Yorker (native Brooklynite). I can imagine how hard it was to have chemo during COVID. I wish you all the best.

I had a very similar experience with my diagnosis. I also could not freeze my eggs and went through a lot of the same side effects. I think it’s amazing that you are sharing your story. Good luck to you. I hope you have as many great days as possible.

I was in the ER in 2020 and it was awful not having anyone there to advocate for me. My wife was doing what she could from home on the phone, but I didn't know that. What I do know is that I would not have been treated like I was if she had been there with me. Best wishes in your journey through bumps and hills, twists and falls. I hope today is a good day.

Thank you for mentioning how hair loss and the cons of chemotherapy affect women. I have been with my mother going through this , and in turn lots of other women in the ward. I wrote an article how hard it is for women to not only battle their disease but also lose many attributes which are womanly. Was I shot down in flames by many...whom I presume have never been through chemo, or watched a woman go through chemo. The main retort was how shallow my comments were. In fact, they were anything but shallow and I was talking out of the mouths of the women I encountered. It was a double whammy to them....these were humans who have made the best of their selves every day of their lives and to have their hair, healthy features and personal beauty taken from them at their most vulnerable moment was very hard to cope with. My word, they did cope BUT it wasn't easy...and they had to adapt to the new look them. This does not make them shallow either...all women pride themselves on being the most healthy groomed person they can be. It's a 'girl's nature' to love the way she looks. There would be some who slinked in , in a hoodie as they were so embarrassed. They were fine again in the room with the wonderful group of baldies. It became their comfort zone...although it was definitely not comfortable. There is a true beauty to a woman struggling through any type of cancer and chemo ravages....a power within shines through. It's very obvious in your photos, of yourself. That fire to live is there and it shows, and it was in every woman in that Oncology Dept.

What a beautiful light you are! Thank you for sharing your journey and touching on so many aspects many people don't think about, especially for females. Best to you going forward...🕊️🙏❤️🕯️

My daughter in law’s mom has this same story. She has been seeing her doctors throughout her journey at Hershey Medical Hospital thankfully since they have been keeping her going for years now. God bless you in your journey ❤

Thank you for sharing your story with us.... sending ❤❤❤and hugs 🫂🫂🫂🫂

Nina - Interesting story well told. Mine started with a kidney stone. The stone may have saved my life. When the Doc saw the x-ray for the stone he told me to contact my Doctor and tell him "you may have Lymphoma - You have a very large lymph node in your groin." My Doc got the Onc, the Onc ordered the usual tests including a bone marrow test. He got the results at 4PM - Called me at 4.15 PM and I began R & B treatment at 8 AM the next day. My bone marrow was 95% infected with lymphoma. My very, very, very painful kidney stone may have saved my life. Life works in funny (occasionally painful) ways. I'm here on Jan 1st 2024 - So Nina - HAPPY New Year! And many more besides!

You are so lovely,articulate and bright. The clarity with which you described this event was so clear and detailed. I hope you are progressing toward healing. What is your profession might I ask? You sound like you’re in the medical profession.

THANK YOU. I HAD NON-HODGKINS AND TOOK R-CHOP 16 YRS. AGO. IT SOUNDS LIKE YESTERDAY TO HEAR YOU EXPLAIN YOUR EXPERIENCE. I HAD NO ONE WITH ME WHEN THE DR. TOLD ME AND LEFT...I FELT SO ALONE. MY HUBBY CAME IN SHORTLY AFTER AND WE WERE BOTH IN SHOCK. I HAD COME IN TO THE WE WITH 2 LONG BONES BROKEN AND A WEEK LATER SURGERY, WHICH I HAD BREATHING PROBLEMS AND THAT IS WHEN THEY DISCOVERED IT ON MY LEFT ADRENAL, BUT IT HAD TO BE SENT FOR DIAGNOSIS. I AM JUST NOW WORRIED ABOUT OTHER CANCERS...I AM 74

It seems the happiest souls with the warmest smiles get sickest early…

When I was in stage 1 lymphoma, I def knew something was WRONG. but they didn't/couldn't take me seriously for almost 1 year until I got to stage 2

So I understand the initial pain Sept 2017 I got off the riding mower with pain in the right butt check. Was on a steroid which helped. Dec 2017 still pain fatigue, couldn’t sit. Standing felt better. MRI of lumbar spine showed large mass around exiting nerve roots, cancer in muscles of butt, Mets to pelvis. Right leg with nerve pain. Stage 3B. I had 4 bone biopsies and 1 open biopsy to see type. Only one showed a few B cells. I was only put under for open biopsy. Went to Rush in Chicago for Diffuse large B cell lymphoma. Mets now to my femur rib. This was May 2018. And Sacrum. All from taking the drug Humida for 10 years. 10 radiation RX and R-CHOP TX WITH 6 Methotrexate RX injected into spine. Not put out. 2 back surgeries with fusion from L3 to sacrum due to compression fractures. In remission 5 years.

it is curious to me that the symptoms are so vague. We all have pain, night sweats go with menopause, hypoglycemia and thyroid disease, and most of us are told these symptoms are nothing to worry about

Very inspiring! I’ve been fighting triple negative breast cancer for the last year. I’ve had so much treatment and I’ve got 3 months until the finish line! I pray my cancer next comes back!

My immediate thought upon hearing my dx was 'Thank god my parents aren't here to worry about me.' And the journey started; was on my own with wonderful pets for company and to look after, a friend dropped off soup a couple times, other than that I was on my own. It was just one of those things in life that one needed to handle! :)

.Thank you for sharing I will have a positive thought for you. Atb John

18:20 Yes! Carnivore with no sugar or carbs. A wonderous healthy healing diet. So glad you are doing so well. Wishing you all the best.

So glad things are looking up. I see you are a tarheel, Go Heels!!

Wow, I hate that you had to be in the ER alone 😢 This happening during the worst of Covid had to be just awful.

Thank you

❤❤❤❤ sending hugs thinking of you ❤❤❤❤

Just got my bone marrow biopsy results back (I have stage 2 NHL) Awaiting my Oncologist appt in 7 days to understand the results. Bilateral mastectomy scheduled in two weeks. Will find out if any NHL is in the lymph nodes the lit up under my right arm. Blessings to you, I’m expecting good results, I have too much life to live!

Imagine a world where you can get your biopsy the very next morning. In my world, this is incredibly unusual, esp a biopsy where the doc puts you under.

Sounds a lot like mine. They said I had a herniated disc and had brutal pain. Mine was in 2012. But after a few months they found I had stage 4 Non-Hodgkin's. I had 8 rounds of chemo not the normal 6 rounds. I never had nausea. The smell of fatty meats did make me feel sick. But I did have to put hot sauce on everything. I did walk everyday except the day I got chemo and the day I got the neulasta shot. I did get neuropathy in my feet. And I concur that the bone marrow biopsy was not fun. It's been almost 12 years for me....one day at a time. Glad you made it through.

I’ve had MANY bone marrow biopsies over the last 17 years. Never been put under for any of them. Trick is to be as relaxed as possible. Get a very experienced technician (practice makes perfect). Asking for a LOT of lidocaine. I normally get triple the normal amount. Have the person talk you through every minute of the procedure. And having someone with you to hold your hand and make you laugh helps tremendously too. Never had excruciating pain, mostly lots of pressure. Nothing to be afraid of, actually fear makes it much more uncomfortable. 😊

Your dad is gorgeous, wow. The whole family is, actually. Glad things are going well for you.

If only every doctor took things as seriously her doctor father. The medical system gives zero craps about your pain if your results are coming back "normal" but you're still having issues.

My daughter was diagnosed at the abramson center as well. Dr Stadtmauer.

If this would have happened to me, I would have just let myself die. She is so blessed to have a family, friends, be beautiful with a beautiful life to live for.

The bone marrow part of these tests were the worse for me one minute in my life I had. Bit b 12 deficiency was being treated for that then was told I had blood cancer what a shock

My brother died of lymphoma 😢. He was 50. It was a 5 year fight and in the end he was so tired😢

During chemoradiation I lost 7 pounds one week and 8 pounds the next. The radiation onocolgist told be to eat everything, all the candy or ice cream I wanted; just eat. My treatment was at risk if I didn't put some weight back on.

Your worst night of your life was terrible and I wish nobody to go through that. My worst night was night 9 of the 9 days it took to pass this one exctremely painful kidney stone. I was by myself, too. Take care!

The physical therapists should have stopped your sessions sooner, not that it would have changed the outcome necessarily. Wishing you all the best Nina!!

Never in my personal or professional life as a doctor have I seen so many young people diagnosed with cancer - and cancer diagnosed at a late stage. What is going on?

God bless u🙏 I too had non Hodgkins in 2015. I feel every day I am lucky to be alive. I had a great medical team at the Cleveland Clinic. I was among 3 people who was diagnosed with this at my job within 8 years, sadly R-chop, stem cell & cart t didn’t work for one of my co workers and she passed in April 2023 she was diagnosed in 2020. I will always wonder if delayed treatment during that time contributed to her lack of response? She was a wonderful person, miss her.

Can you share what your diet consisted of when you began to cut out sugar and highly processed foods?

How many of you have experienced this? My mom went from having hip surgery to knee eplacement to restless legs syndrome to parkinsons disease. In her case one thing led to another. How common is this?

Pray god protects all my love from England ❤

OMG how melodramatic!🤭

Thomas Seyfried - press pulse therapy for managing cancer.

At the end @21:21 she said it's been a year since her diagnosis. But wasn't she diagnosed in 2020? Is she still okay?

Ive had lymphoma for 6 years pulmonary stage 1. Past two werks im having pain under my armpit for 3 weeks. It hurts to touch and all time. Also ive lost 65 lbs in a year.If anyone had lymphoma in their lymph nodes can u explain how it presented? This young ladies story was amazing ....that it was so insidious and only presented at stage 4. She dealt so well with it.

You are beautiful with n without hair. Love your smile. Cheers❤

❤

I've listened to about 5 of these stories and I keep noticing that Alot of the pivotal moments were during 2019 and 2020. There was a Pluto Saturn Conjunction during the time which was a huge transit for us. It does not happen often. Look it up.

Did you not have enlarged lymph nodes? Bless you

You are amazing!! I mean just the things you were able to will yourself into doing, like a very strict diet, meditation, controlling of your anxiety and depression, and I'm sure a lot more if given the time to tell the story of your battle in detail. You are an absolute beast!! In addition, I think you should know that you are absolutely beautiful. Forgive me in advance, because I think you should hear this. I'm a man and I often think like one, but I don't always say what I'm thinking. Having said that, your really hot!! Even during parts of your battle where you had no hair, your still hot!! What does all this mean, it means your the type of young women who is actually beautiful inside and out!!

Did you have swollen glands when you had the first biopsy, or they took a punt which gland to check ? I have terrible pain and i drench the sheets each night (even under air conditioning). Seems odd to me but I can't pinpoint what hurts most so I don't go to the Dr. Sounds stupid to say, "I hurt everywhere".

💟

What would have happened if the dad had not intervene? I hope she keeps her diet as clean as possible for the rest of her life.

❤❤❤🙏🙏🙏

Too many are developing Stage 4 cancers. Lots of younger people. You will hate this, but did you get the CV vaccination?

What kind of lymphoma did you have?

Your dad saved your life

I'm sorry but you ROCKED the shave look ❤! I know your shave was, in a much more serious category, but I have shaved my hair over 10 years ago and have not desired to switch back! You leak and exude femininity, hair and no hair ❤.

Join the club with having no one. Severe abdominal pain told I might die - no one there for me. Head injury, one dog killed, the other one dying of cancer - my parents shamed me for asking if they would help me make a vet appointment.

you are so beautiful. no matter what .

I hope everything gets better. I'm sure everyone will look after you because you are a pretty blonde, blue eyes and beautiful white woman.💯

Stage 4. Where was your cancer?

No

Not a miracle. That biopsy was privilege and connections. Glad you’re doing well but most people would have been sent home after that first trip to the ER no questions asked and no follow up.

Were you vaxxed? Just curious

How do you have that kind of increasing pain and not see an MD? And how can your dad schedule you for a biopsy when CT showed nothing? And how did you know you were immuno compromised if your blood work was fine? This story doesn’t add up.

C-19 jab??

Wondering if she had Covid injections ?

Your family has money? So you were taken serious!!

These cancer stories are always the same kind of cancer over and over again there’s hundreds of cancers out there different kinds you need different kinds of cancers to talk about not everybody experienced her kind of cancer people need to hear about their own kind of cancer also

Please read me it could save soo many lives, or at least give more time: Guy TENENBAUM's case about cancer and his protocol (he didn't use chemotherapy or radiotherapy): - a low-carb diet outside the fasting period (total elimination of carbohydrates/sugars) and eating OMAD (One Meal A Day) crucifers, garlic, onions, avocados, walnuts/almonds, olive oil and oily fish to avoid losing too much weight (avoid meat and cheese) - taking specific food supplements that Guy TENENBAUM has called TCC (The Cancer Cure) which correspond to his 5 essentials, with the dosage he took: * High-dose melatonin 30 mgr before going to bed (Phycocyanine or Lithotamne, but the most powerful would be melatonin): inhibition of SCOT (to use pure phycocyanine and lithotamne to increase the volume of SCOT inhibitors in addition to melatonin) * Allicin (either as a 2400 mg quality concentrated pill, or with crushed raw garlic): up/down stream of SCOT * Matcha green tea (with turmeric and ginger): up/down stream of SCOT * Metabolic treatment (metabloc): Alpha Lipoic Acid (or Sodium R Lipoate, 600mg 3 times a day, 1800mg in total) + Garcinia Cambodgia (Hydroxycitric Acid, 600mg 3 times a day, 1800mg in total) + CoQ10 (the transporter, 100mg morning noon evening) * Omega 3 in a DHA - EPA ratio (500mg DHA/200mg EPA): to fight keto paradox during ketogenic diet or the fasting phase * Bromelain (850mg to 5000 GDU) and Quercetin (500mg) for nodules * Berberine and Curcumin to block additional metabolic pathways - Alkalinise the body with a combination of baking soda and cider vinegar - if the body allows it: long fasting then the following month by short fasting and intermittent fasting + taking nutrients and minerals to avoid deficiencies (vitamin D3, Magnesium Bisglycinate and multivitamins)