Speaking on UK talk show, Loose Women, former Sex Pistols singer John Lydon has admitted he has been really struggling to care for his wife Nora, who has Alzheimer's.
He’s brilliant isn’t he. I dealt with dementia with my mum, it was constant day in day out for about 5 years. She regressed quite rapidly. She went through a phase when she though I was my dad, which was a bit awkward. She then regressed to her childhood, and finally she didn’t know who I or my siblings were, it was awful. It’s a terrible disease, and to be honest it was a blessing when she finally slipped away. But here’s the thing. About two hours before she passed away, she suddenly grabbed my hand and said goodbye rob. She hadn’t known me for a year. I feel at peace with that.
@@barrybarry5803 well I applaud you for that , it’s so hard to do, personally I found it very distressing to see my mother regress so much, especially as she became quite aggressive at the end. But it affects people in different ways, no one is the same.
All the best to you Rob. It’s a horrible disease and it hurts seeing somebody you love go through it. Im glad you’ve found some peace in what happened with your mum.
@@archibaldchimpin The point hes trying to make is that dementia can actually be a calm and peacefeul death because of the short memory span and how the indidvidual is oblivious to whats going on around them. Its not like getting eaten away by cancer where you are constantly in pain and decaying.
@@raymondvaughan6262 never been scared of telling the truth. He was the only one who stood up and spoke about the atrocities that were happening at the BBC, he openly talked about Jimmy Savile who at the time could do no wrong but in actual fact was using his fame and works of charity to abuse children. For that he is a legend in my eyes, it takes immense guts to stand against such a massive establishment. Remember he was the only one who did, the only one.
Nora was a cool person. I got to know her a bit a few years back while I waited on a client who lived nearby. Lydon would walk past, grunt hello on a good day, decent fellow, not mean or anything like that. Nora and I spoke in German (She's German by birth.) so that likely was a bit of why he kept his distance. I am saddened to read about her dementia - not fair to such a person as she. After her daughter died, she took in, cared for her grandkids... as I said, cool person. Glad Lydon has stuck by her side - good on you, John. Well done!
This guy is a genius, he saved my life, not Sid Vicious with heroin, John Lydon is the real deal and people hate him i don't know why, i love you John, thanks for the positive vibe!
I don't like the man because years after his fame he was sitting in an expensive London cafe dressed in his hunting gear talking to some toff and complaining of the youth of today choosing not to vote. That is, these young kids see no point given Liberal / Labour / Con are all working for the same people keeping that status Quo, but millionaire Lydon now (despite his millions coming from fans while he preached anti-government and inequality with every breath) didn't like that notion. HE wanted the conservatives to stay in - so he could continue drinking £12 cups of Earl Grey in that cafe. Prick. Phoney. Liar. Member of the Establishment. Sorry for his wife of course. My Dad suffered the same fate.
I hear you, had to look after my Dad who had dementia for four years, it wasn't pretty, but there were some very golden moments also, until he left us last November. Respect to anyone who takes this on.
Me too. Lost my mom last year, but she suffered from dementia for about four years. The last year of her life she was bedbound as well, which was probably for the best because she would have been a danger to herself and others if she was still ambulatory.
We are taking this on right now. My father who was a doctor of tropical medicine for years and retired two years ago is beginning to show the first signs of dementia. He can’t look after himself properly. My sister goes to clean his house every week and every week the place is a pigsty. She recently turned up and could smell gas outside the house. She let herself in and discovered that he’d left a gas burner on without being lit. It had filled the house with gas. Luckily it was heavier than air and had settled on the ground in all the rooms of the house. My sister open4d all the doors and windows and switched all the overhead fans on and the standing fans too. My father was ashen faced and looked unwell. My sister made him his favourite lunch and he wolfed it down and some colour returned to his face. My Sisters man decided that he looked so grey because he’d been exposed to gas for so long. It’s a worry and we don’t know what we are going to do with him.
i was a carer until they got rid of me when i got sick i had some dealings with people with dementia the man i looked after had been a top surgeon but didn't recognize his own wife another woman from cornwall thought she'd left her keys in the bank but they were in a cupboard my heart goes out to anyone dealing with any of this stuff
John, we all know how special she was to you. I hope it was as peaceful as possible, and that this time of grief, goes as well for you, as it can. You took care of her as long as you could, and she was as lucky to have you, as you were her. Be proud of yourself about that.
John lydon is a great person and knows how to inspire people.. thank you John. I have been a fan for 30 years, listening to both p.i.l and sex pistols ❤️ I can only Imagine your battle because i have worked with Alzheimers for 20 years. And i just love the fact that not two days are the same. Nora is very lucky❤️ in my work i watch families abandon their loved ones because they can't cope with the Alzheimer..... Best of luck and greets from Denmark
All the best to Nora and your family, John. Of course, your work has influenced my music and your general belief in “someone simply being themselves”, has had the biggest impact on not just my music, or writing, but how I approach society. However (knowing you will probably never read this anyway) I will still send this message, from one human being to another who has watched (multiple) loved ones suffer from the demon of Alzheimers Disease, and I can empathize, (none were my significant partner) but still, it’s a heartbreaking process that supersedes any silly debates or disagreements. It can rip your heart in two, however, your force of character will find a way though it as it always has. I’m pretty sure you’d agree that you know no other way. So from a fellow musician, and every person sort of fella, I wish you all the best though the unbearable struggles that you all are enduring.
Im a full time carer for my mum, who has alzheimer's,it's a bizar existance, with all sorts of hurdles and difficulties,its very stressfull for the carer,the victim of this terrable disease i think is probably unaware of most problems,but i dont know.Good luck to all you carers,your going to need a strong head as its very mentally challenging.Keep strong John,im with you on this.
@@mrsweedwalker Thank you Anna,its turning out to be the hardest job for sure,i still think there is more that could be done to help the carers,im on £67 a week for 24hr care,,but to get someone in they charge over £1000 a week!!!!,i know its not about the money,but this cant be right,can it?
@@enoz.j3506 Unless people experience this first hand, they don’t realize the astronomical costs in hiring care for someone with dementia. Caregiving almost always falls on a spouse or family member who can’t afford those costs. The caregiver is trying to hold down a job and keep a roof over their own head… Terrible situation of which many people are left to endure with little or no support. It’s not right at all!
Never fail to tell someone you love that you love them. Never blow off a chance to embrace those you love thinking "I'll catch it next time." It is not "here today, gone tomorrow." It is "here today, gone later the same day." and next time never comes. God bless you John Lyndon and your Wife Nora. Been there, done that, it sucks.
Its bloody hard John - but your love for Nora is inspirational - I'm fortunate to have my soul mate for the last 40 years. I read your book "Anger is an Energy" and very similar thought process to you. I'm caring for my dear old Mum (92) and regardless of age, dealing Alzheimer's is a shitty thing - especially when they don't recognise you anymore. But I like to think that locked deep inside she does - sadly it just can't show through anymore. As we say down here mate "Kia Kaha" - stay strong - you are a pillar - and if you need to lean on Rambo I'm sure he won't mind at all. - RESPECT.
They do. Before my Nana passed away (two days prior) she went from non verbal, confused with no memory of anything to fully aware and had her memory. She knew she was dying but seemed pretty accepting, she just asked how we all were. I dont think she even remembered the delirium much. This is called Terminal Lucidity
You once said something I'd tried to tell people for years.....THEY ARE STILL THE SAME PERSON, THEY HAVENT GONE ANYWHERE....you were right. See you on 25th Glasgow
Don't think just cos someone has fame life is a bed of roses. From Sid to Ari and now this John gas been through the mill. Only for the grace of God etc.🧡
Yeah Jonny rotten I love him how can you hate this truly lovely caring human being he's been so good lookin after his very ill wife .he's a lively fella and still very handsome to .we love you John .
The police harassment got to the point where his flat was being raided constantly, they never found anything to justify it though. I certainly don't blame him for leaving England under those circumstances. Plus, he reported in his book that his health improved in the climate of California.
Yr an Anarchist forever but I believe the contemporary Christ. True Honest Man for all times who terrifies the Establishment. Not greedy...and Loves and Adores his wife. You are the perfect Man.
He's become the boring old fart he railed against in his youth. If he's not bleating on about how he lost his memory when young he's now bleating on about how hard it is for him looking after his wife. Well Mr Lydon I work with the elderly and at least you have cash to look after your wife. Most people don't and just silently get on with it. Dementia is tragic and all too common.
If you work with dementia patients you should know firsthand how hard it is. Clocking in is different than being full time carer. You get to go home,he gets to watch the love of his life get sicker 24/7. I have respect for anybody who sticks with their loved ones ,its not easy. I just hope he gets support and respite for himself as well.
The reason “most people just silently go on with it” is because they have the luxury of privacy in bad times. They aren’t famous so they don’t have the media and fans prying into their personal business asking what they are up to. I don’t believe Mr.Lydon gets any pleasure from having to publically explain this.
