But it's very difficult to make memories when you are in need of so many accommodations! I have no one to go places with, because no one can accept me having so many needs. I'm an inconvenience to people, I'm dependant on people for help, and my family is just not willing to go that extra mile for me. I've been ill for 21 years and my family is tired of helping me all the time. My fatigue is getting worse and worse, so I'm home 23 hours a day. Not really a life worth living. I COULD do more things in my life, go places and do stuff, if I had someone willing to accommodate and help me. But when you're socially isolated and the few people you have close are too tired to help, it just won't happen. I don't want to bother people more than I already do. I'm so grateful for the support I get on a daily basis, so I feel I can't ask for more. But I also feel my life is just wasting away and I have done nothing of worth, which makes me depressed. The depression makes me even more tired, and I do even less. I don't know how to get a life worth living when you have chronic mental illnesses??
Saw your smile in the thumbnail, and just posted so i had to watch. Thank you for the smiles and laughter and a tear. I needed that like you needed this event. Please keep up the good work.
we definitely avoided some of the bigger crowds and managed it pretty well with accommodations! i’d 100% recommend this as a more family friendly festival. there are things to do in the daytime that are kid friendly too!!❤
@@Aerialists_journey you will get there with time ❤ allowing yourself patience and time to accept yourself (even behind closed doors) is a process and you’ll find your own balance with practice! :)
My parents don’t really accept me so I’m almost always masking and I’ll lock my door to be myself but they get mad when I lock it…I’m in a pickle Thank god for friends who I can be even a sliver of myself around. Cherish those moments
Aw I absolutely adore Rick Astley I'm so glad you got to meet and see him he's such a lovely genuine person and I'm so glad your health has been improving too :).
This video has been such a joy to watch! I also am a queer autistic with FND :) Music has been a solace throughout my whole life, my main reason for persevering when chronic illness robs all joy and hope from me. I've learned at lot about managing FND and it's been a rocky journey but I'm a bit more able to adapt things and pace myself. Last time I was at a concert was in 2022 seeing Florence and The Machine - I've been a massive fan of hers for a LONG time but it was truly heartbreaking experience because despite resting loads and planning ahead - my pain got so bad that I was just dissociated throughout the whole experience and standing amongst thousands of people having fun whilst I could feel my whole body getting stiff and stabbing me and nothing around me felt real. At the end of the gig I had to yell out at a member of staff to help me cause I was in so much pain I couldn't move my body without internally screaming in pain. I believed after that experience, my FND was always going to rob me of musical events and I really mourned for that. Fast forward to now, and seeing your video has made me genuinely feel hopeful and encourage myself that I WILL manage to go to gigs again (I just need to adapt things WAY more and try to advocate for myself to prevent the flare-ups post-gig from being worse). I'm so pleased you enjoyed the festival and I'm glad that the wheelchair attachment has just opened up so much more freedom for you. I got a mobility scooter last winter and idk where I'd be without it.
Thank you so much for taking us with you! This is my "local festival" and I've been 4 times as an able-bodied person- I just love it, every year it's a bit different! But I've been nervous to try it over the past 3 years since becoming disabled (and COVID)! I knew I'd need a Batec/TriRide because it is set on acres of land, hilly, rocky land, but I'd never heard of a Street Jet! I've checked out finance for it, as they're pricey brand new/outright, but they're cheaper than the others. Did you have any difficulties with the StreetJet? (Aside from falling out, you poor thing!😅) It was joyous to see Latitude again and it was empowering to see you on the accessible platforms, zipping about and meeting the one and only, Mr Astley! 😂🎉❤ Hopefully you go again next year and I'll see you around, both zipping about the park! Plus, we always used to camp ourselves but considering hiring the Bell Tents to save the effort that comes with tent assembly!
Hey. Are you going to do a vlog reviewing the visible armband? I would love some longer form content reviewing it as I’ve been very interested in purchasing one to help my pots
Hey Zara! Nice to see you like this, and with your wheelchair. Looks like you had fun, and i can notice the excitement in your voice and your face You rock it🥰 Also, was that the same Ruby as in your past school vlogs? Greetings👋👍
Woohoo! Love to see all this joy! ❤🎉 I've missed the last several videos, but do my eyes spy a Polar armband? Are you also trying out Visible? I have been since February, and the pacing insights are helpful for managing!
I just wanted to recommend a book to you it's called "Autism a sign of natural evolution" and fun fact, my aunt wrote it and it's great right now I'm halfway through it and it's actually really a short book like it only has 128 pages and I absolutely love it I just want to recommend it I hope you can find it somewhere so yeah I just want to say that! Love from Bulgaria!❤❤ And the authors name is Asia Dimitrova (My aunt) ❤❤
im so bored. maybe i should just become a trans sportsman and win the whole olimpic women devision. maybe i can still do it his year, just need one day of training and laying of the bad foods...
seriously.. the best people in this world did feel emotional pain or even punished themselves for other peoples mistakes, out of love. And its much easyer for you, than for me, cus you are a freak. 😄
but then again, that fact prevents you to do good... so its a charmed circle. you are no good, and i cannot gather my strenghts for such a hopeless bilbo. And the only thing to do is to follow the Jesus's teaching. Lets say.. not judge others. But if someone mentions this you get angry and start spitting around and try to scratch your eyes out, and put fingers in the ears, so to speak.. And if i say i dont appreciate transvestides, gays, murderers and other too evil to mention's mentality and push for acceptence of this mindset, i am not braking the old or the new law, because you should speak about obvious sin. You should just keep silent about sins that other people cannot see.
@@ab5722 but i dont like this videos, and i rarely watch it... but i like to comment. and this invalids and such do nothing good anyway so this is the perfect place to comment a little and let some stress go..
@@ab5722 but dont worry, i am selling my computer and will live a happy peacefull life, with fire burning in the winter and with stone and wood furniture. Already have a hurd of goats, and a field. just need to get some small tractor.. im also a cook, so i can get a job anywhere in the world. Cooking, making cheese, a fire stove, picking blueberries, maybe mushrooms, cooking marmalades from fruits, maybe even have candles instead of electric lights, hmm.., going to mass every day, maybe join a quire, hmm.. maybe even do some forest work, also have my own forest...
and the rest of you can all live on the internet. the real world will be a much better place, with all the wickedness contained in this imaginary electricity world that you bilbos created.
