Liver Disease in Hospice Explained 

What other questions do you have about Hospice?

I was on Hospice 13 yrs ago. I had everything you mentioned in this video. Im on Lactulose to this day and Xifaxin now, I had a "Denver Drain" and had over 17 liters drained from my abdomen. I did stop drinking when I was put on Hospice. 13 yrs sober in November. The drain was removed when I was taken off Hospice because I was getting better. My mama, who I lost 14 yrs ago came to me and told me "God's not ready for you yet". God gave me a second chance at life and I thank him and my Amazing Hospice Nurse, Katosha. I'll never forget her. I'm now a "Granny of 2 amazing grand daughters. I know God kept me here for a reason. I use to be scared but I no longer am. I just pray that God lets me stay around long enough to see those grand kids grow up.

My dad passed in 2019 from alcoholic cirrhosis. It was not easy watching him suffer. I was 33. Only child. I miss him and love him so so much. He was in pain, but as soon as he was sent home on hospice and given morphine, he fell into a coma for 24 hours, then passed away peacefully. He was so brave and ready. Cant wait to see him again.

I was a heavy drinker. A beer or 2 during the day. 3 glass of wine at least , every night for years. Pretty much buzzed from wakeup, to bedtime. New years day this year i completely stopped. 10 months no drink.

I had all those symptoms from alcohol. 2 weeks stay in hospital. As today been 11 months sober. Everything seems to be back to normal . Still going to all my Dr appointments. Cravings will always linger around.. to all the people don’t give up. Take care .

I just want to say that I can’t thank you and all other hospice nurses enough for what you do for the families. My mom passed in March this year 🥺 Long story short, after she passed her funeral was nearly 30 days later. At the funeral her assigned nurse was the first one to get up and talk about my mom. That just shows what a great quality person she is. In my eyes she showed strength and courage when she didn’t even have to attend. What a caring person she is. Total respect for you nurses. Thank you!!

Great video! I had end stage liver disease caused primarily by undiagnosed hemochromatosis and alpha -1 Antitrypsin Deficiency. I had all of those symptoms you discussed except ascites. But the jaundice and itching was bad. Lactulose was nasty stuff. After two bouts with sepsis and the discovery of a hepatocellular carcinoma, I was placed on the transplant list. Less than a month later, after two false alarms, I got a new liver. That was 2 years ago, and I’m doing extremely well. Incidentally, I volunteer with hospice. I was blessed with a second chance at life, and feel compelled to serve in this manner. Thanks again for the videos. Short, concise, and to the point. By the way, I would like to see a video about what you feel you need most from your volunteers. Dos and don’t?? My hospice company has great training resources, but it’s always good to hear from other sources!

Your explanation of this disease and the comments offered by those who have/had a loved one afflicted by it are deeply appreciated. Thank you.

I witnessed my grandfather die from Liver cancer(the result of alcoholic cirrhosis) and it was the worse thing I have ever seen. Apparently he had Esophageal Varicies so he had 2 episodes of massive hemorrhaging from his mouth before he finally, mercifully died. He was at home, on home health/hospice care. When the bleeding started we were tried to call the Agency, but they never answered the phone (after hours?). So my mother, sister and I had to manage these terrible events by ourselves, with towels. We turned him on his side and I held a tupperware bowl to his mouth. He was fully conscious and very terrified, crying help me, help me. We tried to be calm and told him he was ok and that he was just feeling a little sick. The nurse only came once a day to take his vitals, check his catheter, bathe him, and tell us how long she thought he had. We were completely on our own. She came after he died, completely unaware that he had passed. He had already been taken to the funeral home. This happened in 1995. I hope that hospice care has improved since then because I think that my mother, sister, and I have PTSD are going through this horrific event.

My 84 year old Dad passed last month from this on 4/19 and was on home hospice care. He was a non drinker but had fatty liver disease and was getting drained every 2-3 weeks for a year. He was very itchy and uncomfortable the last month. RIP Dad! ❤😢

My husband died April 26th from end stage liver disease. His was from drinking. He suffered bad. Vomiting, pain, hepatic encephalopathy, dark urine, itchy skin, acites he was down to skin and bones when he passed….I forgot to mention he was on hospice care at home

Ascites is the worst. I watched my husband deal with it in 2021. He had the drainage procedure paracentesis several times, they extracted the hospital's maximum of five liters each time. He got huge temporary relief from it, before the fluid started collecting again. I remember rubbing lotion on his belly when the swelling got big, because the skin gets stretched so taught like a drum, the moisturizing helps with discomfort, a little bit. God it was rough near the end. I empathize with anyone going through this with their loved one

My mom has metastatic liver cancer from pancreatic cancer. It metastasized last November. She had a TACE done to help shrink the liver tumor. She’s still getting out most days, has a good appetite.. thankful for that ❤

My dad passed away almost 3 months ago from liver cancer. It’s sucha brutal disease and it was nonalcoholic 😢 he went through everything that is being mentioned in this video. I miss him so much can’t wait to see him again one day.

I was a hospice nurse in an 15 bed inpatient hospice center. Some patients regardless of diagnosis, we’re allowed to drink. The family brought the alcohol and it was kept in our med room. The doctor would write an order that they can have X amount every X hours. When you’re dying, you should be able to do what you want to do as long as it doesn’t hurt anyone else.

Years ago my Mom had colon cancer and I was visiting her for several days in the hospital. It was gut wrenching to see a relatively young man a few doors down from her in his 40's basically dying from liver disease and it was clear that alcohol. His family would gather around outside and inside his room basically waiting for him to pass. It was sad to see and I remember that scene still.

This couldn’t come at a more uncanny time; my best friend passed away in April 23 from pancreatic cancer that metastasized to her liver. She has so those symptoms. Five days before that, my friend was buried from what we all suspected liver disease from alcoholism. They tried draining and her heart stopped. In between those days, a young man I knew who just came out of rehab for alcohol, died. He had massive stomach pains. Not sure if bleeding ulcer (autopsy not released yet) or liver issues that he hasn’t addressed…so tragic 😢.

I am an RN and my 32 year old son has end stage liver disease. It’s been devastating.

They always said in nursing school, a 90 year old woman shouldn't have to beg for some salt. If you are dying, and alcohol helps with your mental health or stopping it will make you feel worse, drink.

Hie my Name is Tapiwa um a nurse in Zimbabwe doing Palliative care,I have seen most of your videos and they are very educational and true I face that everytime, Today um having a patient who is in the end of life state ,the doctor came and asked him not to put him on any drip

Had a friend who was a functioning alcoholic (beer) woke up, popped a can, all day. Worked his way up ladder & never missed a day, most people didn't know. After 30+ yrs he got pneumonia was in hospital & forced him into cold turkey with no meds ease it. He died there. Always felt that had a big part in his death. This was about 30 yrs ago now. Realize there might have been other internal health issues.. Still miss him.💔🙏 Good to know Hospice home care will work with patients about this.❤️

A friend's husband was having trouble breathing. He was fit and hardly ever had a drink. When at the doctor's office, they did an xray of his lungs. The doctor told them that his lungs looked great, but part of his liver was caught on the xray and it looked swollen. He had liver cancer! He died within 3 months after going through terrible torture....many strokes and symptoms explained in this video. So awful! Thank god for hospise.

Confort and peace is all I want and dignity.

My 40 year old son passed on 11/27/23. He had so many health issues. Started out with Diabetes not well controlled, enlarged spleen, choiliocyctis. Then over time liver disease, peritonitis which led to kidney failure, respitory failure and severe septic shock. I will miss him so much.

Hello, My mother in Law has stage 3 pancreatic cancer due to chronic alcolholism as well. She didn't stop smoking and drinking neither, even if at this point her pancreas Can't digest a single drop of alcohol 😢 It wouldn't change a thing at this stage if she would stop anyway. WE ARE looking at her slowly killing her safe for the past 20 years. And now it's the final chapter. Alcoolism is a beast. Thank you very much for your Time . Greetings from Belgium 🌸

My dog had liver disease. Given a month to live. I had her fluid drained every month . She lived for over a year and was very active and lived very well until the last week of her life. one day she just stopped eating and 4 days later passed away. Vet said she was not in any pain. She just stopped breathing.

I lost my boyfriend to ESLD in 2019 due to alcoholism. Your videos have helped me so much during the grieving process. I'm grateful he's no longer in pain, and I know we'll be together someday.

This is very helpful and very accurate for my wife is experiencing with kidney and liver disease. Especially having the implanted drain put in before going into hospice as some hospice companies kick you off hospice if you go into the hospital, even if it's for a procedure that makes hospice more tolerable. I just want to add that my wife's cirrhosis of the liver was caused by the chemotherapy she underwent during two bouts with lymphoma. So that's another way that someone can go into liver failure. Hope this helpful.

In 2020, my friend passed away from cirrhosis of the liver. It was a sad way to die. Thank you for talking about this subject.

Thank you so much for each and every one of your videos. My Mom is currently at the end of her life and you have helped me so much-which in turn has allowed me to help her. She has cancer that started in her cervix and has spread, we don’t know exactly how much, but 3 years ago it was labeled as having stage 4A cancer. She has been on actively dying protocol twice now-and you have walked me through everything!!! Thank you so much.

My Dad never drank and died from cirrhosis and really had a terrible death. They did not put in a drain and he swelled beyond belief where his skin was actually melting away and he was leaking out. It is a terrible death.

My granddaughter passed from end stage liver failure at age 35. Caused by Lupus, she also had kidney failure. She had to be drained 4 times but she’d fill right back up. She had severe infection in the end and suffered terribly. She begged me to put her in hospice for a week but I finally admitted her, but she passed within 6 hours. I wish I would’ve found your site long before.

Thank you Nurse Julie for this informative video. I have metastatic breast cancer spread to my liver 4-1/2 years ago. I’ve been on oral chemotherapy since I was diagnosed. The cancer mutated recently, so I was changed to another type of oral chemo, which has harsher side effects. I’m grateful to currently feel well with all things considered. My blood work was perfect today! This video was a huge blessing when I discovered it. I’m a positive and optimistic person who believes knowledge is power. This video brings me comfort to know what to expect when I approach end stage liver disease. Now, I am prepared with knowledge to make my final days more comfortable and without fear of the unknown. My oncologist doesn’t want to talk with me about what to expect at the of my life. I am extremely grateful to have found this video. I’ve saved and downloaded it. I’m sure that I’ll watch it many more times before end stage arrives for me. Thank you again for this valuable service you offer many people around the world who are facing, or have a loved one facing, the end stage of life. May you be abundantly blessed for your loving service. - Gail

Ascites feels very weird compared to being bloated - when I had it bad it literally felt like I was 9 months pregnant with twins - very very painful - please, drink responsibly

I have non alcoholic cirrhosis of the liver. So this is what I have to look forward to! My doctor says so far I'm doing good. Thank you for all your videos. Starr from Sumter SC.

My mother died of this at 55 a couple years ago now. She was an alcoholic had liver damage but hadn’t drank for about 20 years. In 2020 she had an operation on her foot which got infected. This resulted in her not being able to stand up at my house so had to call an ambulance, she went into hospital that night then went into a coma then when in the coma had a seizure that the hospital couldn’t get under control. She was in a coma for a week then transferred to palliative care. I stayed with her pretty much 24/7 in palliative, she did regain consciousness but could never really talk, she did start to recover in my opinion, but had hepatic encephalopathy. One night I woke up to her having a seizure which lasted for 3 hours the hospital couldn’t get the seizure under control, she never regained consciousness after that and died a week later. I think more awareness of the seizure side needs to be made, it was a really horrible thing to witness, and to not being able to do anything to help. To me it seemed she was aware of what was happening and she looked scared.

I wish my dad had hospice at end of life. It could have been so different for him. I stumbled upon your videos the other night and it led me to search for volunteer opportunities for hospice in my area. I want to be there for someone the way I wish someone could have been there for my dad. Thank you for your videos.

You made this so clear. I’m a lay person and I completely understood about the don’t worry if they want to keep drinking or whatever. They are in the last stages of their life and there’s no recovering from this. Hospice is to make them comfortable until the inevitable happens. AND GET THAT TUBE FIR ASCITES BEFORE GOING INTO HOSPICE. I’m healthy and all my family are at the moment but this should be really helpful for someone going through this difficult time in their life or a loved ones life.

My Father's undiagnosed colon cancer metastasized to his liver. The hospital sent him home without his glasses or his dentures because according to them" he won't need them". The only medication my father was offered by hospice was morphine. The tumor rose from his abdomen like the size of an orange. He was skin and bones at his death.

1955 to 2005 R.I.P. my big Brother. He was told that he had about three years to live,and he died three years later.I miss you every day.I think about you every day.The what if's get to me all of the time.What if we did this,what if we did that?I love you Tim !

I'm saving this because my husband is a long time heavy alcholic and the whites of his eyes are bright yellow and refuses to see a doctor

That’s good information! My fil died of liver disease and was in hospice care. He had ascites and his doctor did not place a drainage tube for drainage. Wish the family knew more about what we could have asked for to help him ease his discomfort besides morphine. Thanks for sharing!

My husband has liver disease due to diabetes. He’s on the transplant list but still living life actively right now. He already struggles with these symptoms but he is managing them so far. Thanks for all of this info. You mean so much to me!

You are such a sweet soul I am so glad the people that need hospice has a wonderful loving nurse like you, I can tell you were meant for this job, bless your heard, God bless you!!

Thank you Nurse Julie for educating people. Knowledge is such a powerful thing. It helped me tremendously as I was with my little bro during his last 2 weeks dying of end stage liver disease. Alls I did was read and research everything the whole time. This helped me to manage myself and enable me to except and understand the things I could not change. I learned a lot . Doesn’t change the whole in my heart he left but it did change my whole experience of being by his side which enabled me to be strong and compassionate and understanding. Learning what the body does and all. It helped me to focus in on the very most important thing I could have and did which was loving him with all my heart and soul to the very end with no questions. That is exactly what we both needed. Knowledge is a beautiful and it is strong enough to see you thru the toughest times.

Lost my mom, my buddy, in 2020 (hell year) she had non alcoholic liver disease. She had all of the symptoms you have talked about. Was on hospice for 11 hours.

Thank you for this. It confirmed that my mother died the typical way from liver cancer. I wish we had home hospice at the time (1982). She was in a hospice facility. Thank you for all of your content. I watch to help myself deal PTSD from my mothers death. Love and Peace ❤✌

My wife of 35 years passed last week from Diabetes, ESRD and congestive Heart failure. Thank you so much, Julie, for the information you provide.

Julie, thanks for seeing and answering my question about death from liver disease. This was extremely helpful for me to see. I just had a fibroscan, MRE, MRI today for my liver and will have the liver biopsy next Friday. Being educated along the way is crucial so we can indeed advocate for ourselves.

My husband recently passed away from Wilson's disease. He had cirrhosis due to Wilson's disease. 4 years of suffering, I don't wish this on anyone. He was pitiful. When we came to find out what he had, his esophagus ruptured, not many people live through that, he was in a coma for a month. He lived 4 years after. He was unable to get a doner liver because his other organs had been compromised. At the end, I was the only one taking care of him, his mind was starting to get bad and I was the only one he would let take care of him. I know not every situation is the same, and I hope I'm not scaring anyone, but I wish there was more education on Wilson's disease. I will forever be torchered, he passed very quick, I was dressing him, he laid back in my arms and he was gone, that fast. He bled out from his mouth and nose. And that will always be what I see in my mind. Today would have been his 58th birthday..I'm a widow at 45. Thank you for the education that you give Nurse Julie, I think you are awesome.

Hi my husband has end stage HCC from hep B, on hospice.. Has Jaundice and confusion but not ascites. I am confused??? Can you please explain why this is ??? Thank you. You have brought me so much knowledge and comfort and his hospice have found your videos a great tool to signpost other families ❤

Thank you Julie! My mother passed 10 years ago in hospice facility in Michigan. They were horrible! She had awful bedsores which kept her in constant pain and they were so rough with her, she cried. I live out of state. By the time I got there she had passed. She was alone in room with her eyes wide open. My sister had left 10 minutes before, but still.

My daughter’s father has been an alcoholic for decades. He lives in the Midwest and I brought her out east to rebuild our lives. She is an amazing women with 3 kids the oldest of which just graduated from a prestigious college and has an amazing job. Her youngest has never met this grandfather. Her husband and all the kids are currently traveling to see her dad. I was notified a couple of weeks ago that he had been in the hospital with an enlarged abdomen and they drain him of much liquid. Until I saw this video I was not aware of the actual cause. Thank you for your video as I am sure this trip was ordained to be a gift to them all. ❤ learning the power of love is the reason for this life!

Thank you for sharing all of this. My husband lived with non-alcoholic liver failure for four years. He lived with all of the symptoms you described. He received a new liver last September, but when they biopsied the old liver they discovered he had bile duct cancer. And it had spread. He died in February. He was just about to go on hospice and I wish we'd done it sooner. His cancer fight was short, brutal, and ended abruptly. I wish we'd understood more of what he was facing and dealing with.

Thank you, Nurse Julie. I wish I had someone like you around when my dad was dying from liver cancer in July 2019. You are an amazing person and the world is a better place for having you in it.

My wife had pancreatic cancer, which spread to the liver. This was 2002, and being given 3 months and lasted 10+…after her 2nd paracentesis, she mentioned once to me “I could murder a Bacardi & coke”. Instead, I pressed her dilaudid button, and the subject never came up again. Also: The hospice nurse refused to come out the night she died, because the roads were icy. I called the state police, they offered to drive her. Again, she refused. As I was preparing her Thorazine @ 4:30 am, her breathing began to get erratic, and by 4:35, she passed in my arms. No tears, just relief. However, I made sure the hospice nurse who promised her earlier that year that she’d be there “No matter what”, was fired. And 6 months later, the county coroner came by to lobby for her job. I went to where they were going to have a judge re-instate her, and gave testimony. She was not re-hired….My reasoning being I was able to handle it alone, but would the next people she bailed out on be able to? And she never said 2 words to me, or apologized, or disputed the facts. That small county needed a hospice nurse, and they finally hired a REAL one.

You are such a blessing. Thank you for educating us with so much important information that we can use. You are so smart and watching your videos helps so many of us from so much suffering thank you love you so much.

I think you are doing a great service by educating people about death and dying.It's something we don't want to think about,but is so necessary.Education is power,and this way,as patients,we don't need to be in the dark.I have my faith in Jesus and eternal life with Him when I take my last breath.My prayers go out to those who are in pain today,and that they would surround themselves with loving people.🙏

I LOVE HOW YOU EDUCATE PEOPLE ! THANKS FOR THE TIME YOU TAKE FOR ALL OF US!❤

My son died May 19. 24 from cirrhosis. IIt was horrific and (I have been so traumatized by what he went through,I don't think I will ever be the same. WE had hospice but it still was sheer hell for him and he was such a good man. I don't think there is a worse way to die. He stopped drinking in September and never wanted it again but it was too late. His liver was destroyed. I can't imagine anyone beig well enough at end stage to even think of wanting alcohol after going through all that misery.

lost my aunt about 10 hours ago. She went super fast in the last 36 hours. I was shocked to see the fluid retention in her hands and arms. A month ago, hef legs looked like elephant legs. Hospice helped her have the peaceful, painless death she wanted. She only got diagnosed a year or so ago. she had recurrent UTI, very dark urine, abdominal swelling, recurring cellulitis, fluid retention, pain for several months before she was found to have had fatty liver and non-alcoholic cirrhosis. It would have been a horrible, agonizing death much more stressful to watch if not for the comfort meds.

My team has been treating a lady for stomach cancer with cannabis oil. She was also on the liver transplant list. After her latest scan, they informed her that she doesn't need a transplant now. No more abnormalities.

My mother in love has NASH- in the end it was a bacterial infection growing on the lead wires right at her heart valves. She was struggling so bad- it was causing her to back up with ammonia- made her super lethargic and almost like she was intoxicated. Getting her to take the lactulose was a whole other issue- it was absolutely horrifying to watch her pass this way. They didn't know what was happening until two days before she passed. Three months of illness, mostly in patient. We got her home and 12-1/2 hours later she peacefully passed. ❤. Thanks for educating - things I wish I had known for sure!

My husband had this along with numerous other issues. He stopped the vodka about a year and a half before his death but the damage was already done. Along with all the other health issues, it was just too much for his body. Good old lactulose...it worked for the ammonia and I am glad. We had lots of diapers to change, but that was ok because we just laughed about it and went on with what time he had left.

I pray I get a compassionate person to care for me if my time comes

Not scared. I have this. Symptom management is key.

Also from Hep C cirrhosis. My little sister passed away in 06 from it. She lived in Maine and her dr told they don’t do liver transplants for that reason. I’m sorry that’s not true. They do liver transplant for all types of liver diseases. Anyways so my sister passed from it in hospice 😢

Please do one on bone cancer. What to expect. Thank you

I have stage C congestive heart failure with preserved ejection faction, and stage 3B kidney disease. They are going to put a fistula in my arm soon. So I likely have a few years, but your videos are helping. Can you talk about my diseases at some point?

We made the decision on Friday to move my mom to Hospice care for her non-alcoholic cirrhosis, it's been an incredibly difficult decision, but we are hoping it is the right one. She's been struggling with her fluid buildup and her mental state has greatly deteriorated over the last few weeks and now she has congestive heart failure. She's 80 years old so we had to look at her quality of life and decide what she would have wanted if she was still in her right mind. All she wants to do is sleep all the time and refuses to take any medications, eat or drink anything.

Thank you for sharing. My dad passed in 2021 and had ascites with cirrhosis. His dr drained this fluid twice while hospitalized, but NO ONE- not his dr nor his hospice team- ever mentioned a draining tube. My daddy suffered through it.

an amazing fact is that many people pay a lot of money to destroy their liver and lungs. they work hard at it too, doing it every day for many years. alcohol & tobacco products are the major contributors to liver and lung damage.

My biological mother died from liver disease .I never knew her . Thank you for filling in parts of my past . That's interesting to know .

I would appreciate a session on what to expect for a bed bound person in their late 90s.

Always a joy listening to your comforting videos. Thanks very much. The comfort you bring is a blessing although I am in no end of life crisis but rather someone who thinks we should be focussed on the expectation instead of on denial.

Excellent over view! Always love your teachings and experiences. Nurse Lisa

Thank for this video my best friends husband has liver CA for over a year now we celebrate him every day. Thanks for the info hes not on hospice. Hospice yet but I will sudjest the drain

I am so glad that you made this video. I was just recently diagnosed with cirrhosis. My liver is still compensating and I'm not in end stage. However, my disease in one year progressed from a fibroscore of F2 to F4. I hope that when the time comes, I get a kind and compassionate nurse like you when I will eventually go into hospice. Hopefully that won't come for several more years.

My brother is going to die. I can't believe it. They told him he had only weeks left over 6 months ago and he just drinks more every time it gets worse. I don't know what im going to do without my brother. I feel selfish for thinking this. It's always just been me and my big brother. I already miss you bro

Hello Julie, you are such an amazing help and have brought such comfort. My mom is in hospice for Alzheimer's Dementia. She checks all of the boxes in your video that explained the end stages of that disease. However, I viewed this one because she is extremely jaundiced and had abdominal swelling. She was prescribed Lasix which she is still on. She is steadily losing weight and we just do our best to keep her comfortable at home. She is still eating (pureed foods and Ensure/Boost) and always wants lots of water (diabetes surfaced as well). I'm not sure what brought on her "sudden" liver issues. Her bloodwork was not good but not the worst. One of the nurses mentioned that some people have much higher bilirubin levels but don't always present as yellow as my mom is presenting. Is this just a part of the overall breakdown of the body?

Thank you Julie for this . As I wrote you previously my 82 yr old mother ( non alcoholic) is stage 4 liver cancer . As a continuation to this can you explain further what this means .. *She sleeps most of the day *She is lucid and has good conversations But moments later she seems to be in another world .. she stares into oblivion and stays there for long periods Pray tell what your experience is with this ? Thank-you greatly for your videos you are truly a Gift 🎁 💝

I am actively dying from cerebral systemic lupus and am in so much pain all the time, what is your experience handling someone who is dying from systemic cerebral lupus? Love, light and peace to everyone here...

I have cholangiocarcinoma stage 4 that has spread to my liver. I already have 2 external biliary drains and I have paracentesis done regularly. I'm not at the hospice stage yet but your videos are very informative

Thank you, I'm only 44 but I have Lupus and it gave me NASH from fatty liver and I am end stage now. I have a 19 year old and I don't know how to explain this to him. I also wondered how I feel etc but my 5 specialists had ZERO information for me.

Thanks Julie, This is great info. I am NAFLD 3-4 and have been scared s**t less about eventually ending up in hospital debilitated and in pain. This video gives me a lot of encouragement. Thanks for demystifying all this about death, dying and what might be “out there”. My greetings from Sydney.

My mil after vax and boaster got a turbo cancer where one evening she started to complain about pain in her arm and she unveiled her lower arm it was swollen like a sausage. By the time she was transported to the hospital the tumor inside her bone had exploded her bone. She had surgery to repair that bone but shortly after the cancer metastasized to other parts of her bones mostly the spine and it finally got into her liver. She’s still alive but her doctor said he was some kind of miracle! It’s so hard watching your family member succumb!

My mother in law died of liver disease. The hospice nurse didn't help manage her pain at all. We had to give😢 her morphine for the pain. Her last day she was crying out in pain. Her live in wouldn't tell us where her pain medication was, he wouldn't call the nurse, so in all fairness there wasn't much the nurse could do if she didn't know. It was the most horrible death ive seen to date. What should or could we have done for her?😢

I'm so glad I came across this channel.i lost my loved on may 2 2023 he kept the seriousness of his illness a secret he was a type 1 diabetic he had a severe foot ulcer which made his system septic he was n hospice 4.25.2023 it happened so suddenly to process he was dying.he wanted me to make his medical decisions I barely was able to process doctor coming then hospice he had said don't tell his family it was no closure his sister came n disrespecting him as well as me.he didn't pass peacefully she talking about him really bad knowing what was happening how to get closure to much was un said. He passed a week after being n hospice. Need grief support I've goggled to find a place didn't know it was so difficult.thank you lost

I have two siblings w alcoholic cirrhosis. My oldest sister and oldest brother. My brother just had a transplant a week ago and is doing great! He's been sober a year before that. My sister is limping along and refuses transplant. I'm the youngest of 4, all my siblings are alcoholics, my parents were also. Please educate everyone you can about how toxic alcohol is. I've seen my siblings turn glowing yellow, get tapped for ascites multiple times, bleed out of their nose and eyes, my sis had an aneurysm. Low platlets. ICU multiple times. And nevermind the HE when they act completely insane or aggressive. This disease will break your heart in ways you didn't know were possible.

My Dad recently got taken off chemo and was given 6 months but is in alot of pain and having to go in every 9-10 days to have a paracentesis done.. He's having alot of trouble eating, if he's not vomiting he's constipated . I moved back in with him and my mom about 5 yrs ago when he just had prostate cancer to help , I'm so glad i can be here for him but its so hard to watch him decline and suffer

I would say this to for end stage liver disease from alcohol if they are big time drinkers suddenly stopping can bring on withdrawls and DTs so if they want to stop the hospice team needs to be aware of it.

You're RU-vid channel is priceless ❤

I find watching and listening to your comments very informative,I have liver cancer I'm not sure which cancer I have but I'm going to keep watching your videos

love this channel . . . and this lady.

My sister at 59 died of nonalcoholic liver disease...no one ever drained the fluid she was in awful pain and was in a coma state when she was found in bed from the ammonia levels she went to the hospital for about 3 weeks got to come home but went back in always had to get blood but never drained the fluid ..I wish I had been educated on this thanks for the video..she died at 59 😢😢

My husband d passed 2010 of Liver disease. The abdominal swelling was excruciating. I didn't know a drain could be placed. Good ol VA.

Thanks for the information. My Dad and Brother were alcoholics and while on Hospice I saw all what you have pointed out. Both of them would have sips of Beer a few times a day for comfort.

Thank you Julie for that information. I'm terminal... My adrenal cancer has returned & there is a small spot on my liver. So I know hospice is in my future.

Great info as always, Julie! ❤

I am curious have you had any patients with angiosarcoma? My mom was just diagnosed 89 years old, just went on hospice. It seems several of her drs have been mesmerized by her case because its so rare. It came from radiation treatment of breast cancer 19 years ago.