Hey Brooklyn, i hope you're well. I read your comment about being married with kids in spite of your CP which I think is great! I'm also a CP sufferer and i am 25 and I'm starting to think a lot about the possibility of marriage and kids etc and how that would play out given my condition. Tbh I worry a lot about if id be capable of accomplishing those things. My CP is mild and I'm fairly independent but these questions still pose a lot of worry in my mind. Do you have any advice? - God bless you and your family ❤
@@5hukran Hey, fellow mild cp'er here. I saw your comment and thought I might be able to help. Check out the channel 'charrise living with cerebral palsy'. She recently had a baby and gives a lot of advice 👍
It’s not what defines who we are but, if it feels comfortable just ask. It would definitely deflate the elephant in the room in a good way. Confidence is a big turn on for everyone isn’t it?
Im in EXACTLY the same condition. Its so nice to see someone else in a similar boat ! Im 22 and dont know anyone with a mild form . Thank you for sharing!
wow , I’ve finally met another adult who has spastic dieplegia ! I have it too ! it’s cool to hear how you deal with it too....Thank you for sharing this. Im really keen to find out more , about how it effects you compared to how it effects me.
@@matthewstruthers9775 The video and these comments are so inspiring. One of my 3 1/2 year old twins has this condition, and I have high hopes for her. She’s very smart and has a great personality and the biggest difficulty is with her legs. But I know she will eventually be able to walk like you. It’s just so nice to see people here that have their challenges but have good lives and found love and are happy. Seeing you makes me feel even more positive about my daughters future.
@@JosephDiPietro Thanks so much for sharing! It's good to hear that we aren't alone, and I hope the best for you and your daughter. Lots of physical therapy and stretching! :) Every day is like a reset and progress can seem slow, but seeing the improvement over time makes it worth it. I met a girl with the same condition, and you couldn't even tell she had a disability. I was blown away. :) Thanks again for reaching out!
I have CP but at 50 y I wasn’t able to find love or acceptance I turned into the invisible child than the invisible Adult am so pleased to know that others were able to be happy semi normal life thank u for sharing ❤
I have Cerebral Palsy, I'm a certified interior firefighter, I'm going to be starting my new job at a shipyard in a few weeks, I'm certified as a welder. Cerebral Palsy limits some stuff but you just gotta find things you can do and be the best you can be at it
Thank you Matthew for your CP video which is most interesting. I am affected on my left side , arm & leg. It has been a challenge over my life but thanks to terrific physiotherapists, swimming in warm water all helps the muscle spasms. I’m 67 now with a very helpful partner in my life. I’ve worked most of my life but admit as I become older the body is changing, after a few surgeries on arm & leg muscle spasms aren’t as bad as before. Good luck for the future Matthew & family, plus all other cp patients who have corresponded on this video
I have a hot lap pool to manage my CP spasticity and it’s been a game changer. I rebuilt my body after nearly dying from an post hysterectomy abdominal infection. I live a pretty good life, although I have chronic pain, I have my independence and a wonderful service dog.
I am a 57 year old male. With the same CP. I have had multiple procedures for muscle transfers and tendon transfers. I have a wonderful family with 3 beautiful kids and 4 grandchildren. I played tennis in high-school one year of baseball at a very small college and am a high school teacher. AD junct college psychology professor. Things kinda wear out over time. My back and hips now hurt the most. Stretching and swimming are helpful
I also have spastic co in my legs only awesome to see your video you rock ! You are a cp warrior ! Thank you for sharing No one understands the muscle tightness.. congratulations
I really want to compare notes and find out how Mathews experiences compare to mine, so I can get base line for the cerebral palsy experience. Relating to someone that doesn't have the cerebral palsy situation is difficult because they can't comprehend all the way Cerebral palsy impacts our lives. One of the biggest problems I face is trying to differentiate between experiences and situations that caused by cerebral palsy stigma or weather it is just normal bullshit that everyone puts up with. Lots of the time I can't tell and I think end up looking like an asshole, but don't like being taken advantage of either.
I’ve started dating a man with CP and just trying to learn more. He doesn’t have much use of his R hand and his R leg isn’t as strong. It’s a new experience for me.
I wish I could meet this guy I also have cerebral palsy I trained in martial arts for years coping with the disability I also make music the story is very inspiring stay strong bro🙏👍
Watching this videos is like looking in mirror, it kind of eerie, It is god damn rare to see someone else like me, I can tell you that I'm 40 with the same cerbral palsy as well and is first for me, it's like seeing a member of your own species for the first time. I'm pleasantly surprised you are married, and are happy more or less. As years have worn on, things for me have gotten harder and harder, the last few years especially. The older I get the more isolated I seem to become, when was in my 20's and early 30's this wasn't a problem, but I just turned 40 this year, people seemed to have become a lot more distant as a whole. I am trying to change my situation have taken steps to improve certain aspect of my life. I own a house, truck, dog so I am good financially but socially I might as well be living in the Sahara. This wasn't problem when I was younger, but now it's like have leprosy, the social isolation is brutal. I was wondering how old you are and if maybe you have experienced the same situation, and if so how do you combat the problem. People just flat out treat me like don't exist these days, I don't know what changed. Anyway I hope things keep better and better for you, best of luck man.
Thanks for sharing man. I'm sorry that you feel isolated, I personally haven't experienced that, but as you said, you didn't experience that in your 20's and early 30's, and I'm 28 years old. I guess I only notice it around 6 or 7 year olds who just stare at me as I walk past. That can get annoying sometimes, but I try to tell myself that they're just kids. I am very happy and I think a lot of that has to do with my family. My parents and siblings made sure growing up that I wasn't ever given any special treatment unless I absolutely needed help with something. I also force myself to talk to people and be super transparent. Has your back or legs or anything gotten worse as you've aged? I'd be curious to know, I try to keep exercising so my back doesn't give out. I hope this helps, and I wish you the best.
I understand you bro I just turned 40 and it was never an issue for me when I was younger I didn't even really care but as I'm older it hits me a lot different a psychologically
I’m in my mid 40’s, spastic CP and nobody can tell, unless they’re around me a lot. My Scissor gate is pretty much gone & stayed gone but I’ve dealt with a myriad of physical health problems since I was 26, so I’m back to wearing ankle foot orthotics and I have chronic pain. I want to meet you Matthew, because I grew up in Utah. Also, a friend of mine is trying to build a non profit for adults with CP… to better understand how it affects us each through aging. There’s no $ for that kind of research since most CP patients are on Medicaid. So it’s up to us, to pioneer the way and try to advocate for the lack of medical care and research for adults living with CP. my brother Brian also had CP, he died in a nursing home at 42. He had the non-spastic type and he was autistic… his care was often neglected due to his inability to communicate and advocate for himself and his lack of understanding to push to meet his PT milestones, as well as his inability to research whatever symptoms he had. I did the best I could for him but I needed more information from other adults with CP, especially with his type of CPA since I have the other kind. Anyone with CP who would like to reach out to me, may email me with subject line CEREBRAL PALSY ADULT & drop me their phone number to have a chat. MegsBiz2018@gmail please don’t market to me or send SPAM, thanks ✌️
Hey Matthew! I was also born with diplegic CP! I also am a musician and have been drumming for all of my life. I am a recent graduate of Berklee College of Music. I'd love to reach out to you musician to musician! Best Jonah Salen
I'm 38, I'm having spastic diplegia on my right side. Life has to go on. Be mentally strong 💪💪 at all time and self confidence. To loosen the muscle, regular accupunture does help your motor skill. Daily swimming makes you less stress and helps to reflex your muscles. For young cp patients please be strong. For parents of young cp .it's very important to train patient to be independent.
God bless him and everyone in the comments who has CP also. I don’t have it, nor do I know anyone who has this, I’m just here trying to find answers from god.
My kid cerbral palsy spasticity.. where brain surgery is done in right side. His left is weaker... He is 5 years old and got head control now... Sitting standing walking with support... Physiotherapy is going on daily....
I also have spastic diplegia. The tightness in my hip muscles make my back arch inwards and I always feel strain at the end of rhe day. Is there something I can do to fix that?
Yes, that is a common problem. Tight hip flexors, hamstrings and ankles are common. Do you have access to a physical therapist? They can help. Daily stretching is super important if you have tight muscles from cerebral palsy. Also, regular breaks during the day might help.
Mirakle it sounds like you have a tilted pelvis like me. I have spastic dieplegia , and your thigh muscles and hip flexors will be pulling your pelvis forward which alters your spine etc.....so to fix it , you need to look up hip flexor and thigh stretches....it’s painful to begin with , but if you keep going you will eventually help it. sadly you will have to do the stretches a lot especially if you walk a lot.
@@God1st1995 I always default to hamstrings and walking on a treadmill to force the muscles to fatigue and then relax. After that I stretch my hamstrings, and my inner thighs like crazy. I hope this helps.
I can put one of my feet down it's my lefty and my right almost touches the ground and my right leg mussels is tight I stretch when I walk. Pls help it would mean a lot to me.
My nephew has the same thing in the same areas as you. He’s 15 and having so much pain that he’s going to have surgery today. Both hips, both knees and some areas in his lower legs.
You should get surgery on your tendons in your legs. It helps a lot i had my tendons stretched in both my legs and it helped me tramendasly. But i am a lot older than you i am 45 years old. And it is hard getting older with. C p .
I really want to compare notes and find out how Mathews experiences compare to mine, so I can get base line for the cerebral palsy experience. Relating to someone that doesn't have the cerebral palsy situation is difficult because they can't comprehend all the way Cerebral palsy impacts our lives. One of the biggest problems I face is trying to differentiate between experiences and situations that caused by cerebral palsy stigma or weather it is just normal bullshit that everyone puts up with. Lots of the time I can't tell and I think end up looking like an asshole, but don't like being taken advantage of either.
I have spastic cp. I am 49. It mostly effects my balance and my gait a little bit. Mines mild too most people don't know I have it unless I tell them. The only time it is really noticable is when I am tired .
I'm 45. I have the same thing and it gets worse when I'm tired too. I got. Off work one night and i was tired and. Tripped on the carpet and broke my. Elbow .
@@jeremycarpenter5550 Wow . I rarely fall ,but the last time I did I was walking with too much confidence to the dance floor in heels and did not pay attention to the other dancers where I was going andtripped over someone's foot onto my knees. I really thought I broke my knees that's how bad it hurt.
I want. To learn how to dance but i need to get up the confidence to do it . have you seen the guy. With cp who. Is a ballet dancer. He is so inspiring to me because he is kicking c p butt. You have a awesome day . and you notice how i walk . i had problems with bunions on my feet before i had surgery to have them removed . do you have problems with that too. I'm just wondering. I'm 45 years old and. I have to take my time. Where ever i go . i live in florida. Its a beautiful state but the heat index is rough on my body. Meg you have a awesome month . and thank you for responding.
@@jeremycarpenter5550 I love dancing . I will have to see that guy send me the link if you have one. I have a tiktok of me dancing . I uploaded it but the comment section got disabled . I don't know why that happened,,but I ended up taking it down.
My partner has a mild form that effects her right size (leg and arm) other than that she’s fine. However she’s just started to get seizures, does anyone else have this issue as were trying to diagnose it but can’t find any answers.
I have a daughter 6 yes old,same spastic diplegi condition,but she can only walk or stans with support ,she's using posterior walker with AFO Shoe,when she walk I dont know ,daily i doing physio to her,botox injection also given,when I see result
I'm 24 living with it just wondering when I'll be able to have my own family and what kind of job I could have music is also a passion of mine I love singing and dancing
There is not yet a cure. But there is much you can do to help. Do you have access to physical or occupational therapists or to physicians who work with kids with cerebral palsy? They can help guide you. I also have several other videos on the Utah Neuro Rehabilitation channel that might help.
my parents stretched me every morning and night, every leg muscle you can think of. walking on a treadmill also helped a lot. That being said, that may not work as well for you guys, as my CP is in my legs, and it can affect so many different parts of the musculoskeletal system differently.
I have ataxic cerebral palsy and I still knock over things and am very shaky sometimes, I’m not trusted to do anything with knives (or cooking) in the kitchen. I used to not be able to walk in a straight line but I had walking and speech therapy and now everything has improved sort of.
I have the same condition...similiar waliking , and nothing noticiable in the upper body...just like you ...well, its life ...we got to work with what we have. By the way... do the surgery helped...im 46 now ...can surgery help me with my age? Thanks
There are many different surgeries. You could talk to a physician specializing in Physical Medicine and Rehabilitation or Orthopedics. Make sure they have a lot of experience in working with people with cerebral palsy.
Yes it can. I'm 45 years old and it helped a lot. I have it in both legs . i had surgery my tendons stretched in my legs. I have better balance and a better gate when i walk.
Periventricular leukomalacia is a type of brain injury that you can see in premature infants. Most infants with pvl do have cerebral palsy. Cerebral palsy is the disorder of movement and muscle tone that results from the pvl brain injury.
@@UtahNeuroRehabilitation thanks for reply. My baby have pvl by birth. he is one year old now. still not crawling, sitting, not grabbing things by his own, otherwise his grip is firm. He laughs on funny noises, listen songs, neck balance is 90% . He is not very socializing. are these signs of cerebral palsy. ( he suffered from IS at 9 months, now 5 months spasm free)
I have the same kind of CP, though pretty mild, I’ve been doing a video on RU-vid for years. It was difficult at first, but if you take it very slow and do it every day, it will loosen up your hips (my biggest problem area) and the rest of your body. I can’t believe the things I am able to do now. STRETCHING IS AMAZING! :) The video is: Fitness Blender Goodbye Stress Calming Stretching Routine. Don’t do or modify the stretches that are too difficult. Eventually, you may be able to work up to them. Sending loose muscle vibes your way!! ✌️
Hi everyone have a 15 month baby with cp due to brain injury at birth Arms and leg are affected I will like to have support or contact with someone who has cp I am very concerning he just started seating down for couple hour now Any ideas to help please
