00:07 Discussing living with ME and cancer 02:28 Diagnosed with POTS, became paralyzed, and later diagnosed with breast cancer 08:12 Living with ME and Cancer - a discussion 11:08 Struggling with treatment decision and quality of life 16:33 Challenges in finding appropriate information and support for living with ME and Cancer 19:05 Challenges with processing and retaining information 23:56 Worst doctors for Women's Health Care paradoxically are other women 26:14 Need for better options for medical procedures for people who can't stand 30:30 Diagnosis and struggle with medical care. 32:32 Facing misdiagnosis and delayed diagnosis of thyroid cancer. 36:43 Raising awareness on ME and cancer stigma 38:48 Challenges in scheduling and treatment due to thyroid medication and allergic reaction 42:41 Cancer affects the whole family 44:40 Doctors need to keep up with new illnesses and treatments. 49:07 Struggle with medical disbelief and misdiagnosis 51:10 Living with ME and Cancer created social and familial challenges 54:58 Discussing the challenges of medical abuse and communication with children about cancer 57:22 Helping children understand the reality of cancer treatment 1:02:01 Family support and adaptation to changes. 1:04:24 Honest discussion about major illnesses is necessary. Crafted by Merlin AI.
Can we start a list on a website or Facebook of all doctors that we should avoid? I have been saying this for years. We need to know who will cause us harm or even death.
For legal reasons, it's hard to make such a list public--at least in the States--unless you can prove the doctors in question pose a danger to persons w/ M.E. So, it's still possible--and I've done it--but tricky. I'm able to take contemporaneous notes and sometimes I make voice notes when I get home, so I can prove everything I'm stating is true. Comes in handy. However, privately telling other persons w/ M.E. which doctors to avoid is always a-okay no matter what. For safety's sake, it's paramount.
