Living With Motor Neuron Disease

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My life with MND. New video now out, will be making more in the next few weeks :)
If anyone would like me to make another video on any updates, or answer any questions on my life living with MND just ask. I'd be happy to make another video even if it's only for one person. I also made a Tumblr account where I'll be putting diary entries on my daily life with MND, maybe it'll help one of you? link to my Tumblr is below...
www.tumblr.com/blog/dealingwit...
Also, my email got hacked, and logging into RU-vid has been a bit of a pain, so I might be making a new RU-vid account and continue my videos on there, but I shall keep you posted. Thanks so much for the messages and the kind words, you've all helped so much. For any new people watching this vid, don't hesitate to inbox me :)

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10 май 2012

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Комментарии : 130

@LucyQuinn94 8 лет назад

My father got diagnosed with MND last October, and in that time he's completely lost his voice and it's absolutely breaking me. I just can't seem to get to grips with it all. Thankyou for making this video because it does help me and other people realise that we're not alone, actually hearing someone speak about it does help. I hope you and your family are doing okay.

@TheDrOctopus 8 лет назад

Thank you for the comment Lucy, I really appreciate it 😊 really sorry to hear about your father, it's incredibly difficult to go through but it'll make you even stronger as a family and together you'll over come and struggles that lay ahead. I wanna make another video when I am finally back home, can you think of any ideas that may be able to help yourself?

@AnnyHammy 9 лет назад

My Nan lost her fight to MND 5 years ago. I'm now doing charity work to support the MND Association and to spread awareness, as many people have never heard of the illness. Seeing videos like this, knowing that there are other people going through the same thing really makes a difference, so I'd like to say thankyou for sharing your experiences with this horrific disease. I wish you and your family all the love in the world through tough moments like these. All the best x

@TheDrOctopus 9 лет назад

Sorry to hear about your Nan passing away. It's a tough and crappy battle. I'm glad you are raising awareness, I try to do a little charity work myself. Would one day like to try a marathon, but I need to get a whole lot fitter first! wishing yourself and your family all the best x

@helbentable 10 лет назад

So sorry for your dad and you and the rest of your family. You have a hard road ahead sadly, my wonderful mum was diagnosed with this hateful cruel dreadful disease in June 2010 and she passed away in November 2011 she fought it all the way but you cant win with it. She was only 62 was fit and healthy it just came out of nowhere. I feel so sorry for all the people and families who have to endure this awful disease. Please continue to raise awareness. It is so underexposed with limited funds.

@jessfretwell2848 10 лет назад

My mum died from Motor Neurone Disease 18 years ago today when I was 22.She was 61 and suffered with it for 5 years. Me and my dad used to do most of the caring for her ourselves. She didn't lose her speech but couldn't do anything for herself. It's an awful disease to deal with. I understand what it's like and what you're going through.

@TheDrOctopus 10 лет назад

Sorry to hear about your mum, it really is a crappy disease.. I wish there was more funding into the research for it

@Spookbodybag 10 лет назад

Living with my dad who also has mnd it's a soul destroying illness :( seeing my dad getting weaker by the day :( keeping strong for my mum & my dad making the most I have left with my dad I wouldn't wish this on anyone and have great time and thoughts for anyone going through it

@TheDrOctopus 10 лет назад

It's one nasty disease, but as you said the important thing is making the most out of the time together. I hope you and your family are coping as well as you can, sending my love to you all

@TheDrOctopus 11 лет назад

I'm very sorry to hear about your mum, I struggle to deal with it at 18, I can hardly imagine having to deal with it all at 13, but you are very strong for getting through it. And I agree with what you say, it's all about making the best out of every day :) Thank you for the comment was very nice of you, I hope you and your family are coping okay at present times, if ever you'd like a chat I'm only an email away

@zaaraadam2245 9 лет назад

hello Ben. hope your well. i have an uncle who has MND... every day he's getting worse and worse. i don't know what to do. i try to keep things really normal, but he just breaks down all the time. its just so tough. i never knew such disease existed... we need more videos like your, just to help others cope.. and just to talk about it. means a lot. wishing you all the best, and your family, lots of love.

@TheDrOctopus 9 лет назад

I'm sorry to hear about your uncle getting this dreadful disease. It's such a difficult disease to deal with. The first few months were really difficult for my dad and he was really angry and finding it hard to manage his emotions. Then his mood changed as he grew more accepting of the situation. It didn't exactly make him feel better but it gave him a slightly more positive out look on what is a very negative position to be in. As your uncle adapts to the disease you may find he starts to become calmer like my dad did. Everyone deals with it in different ways and it's such a hard thing to manage. Best thing you can do is try to keep things as normal as you can. My dad just wanted to try and forget about the disease as much as he could so we would always watch films together, I'd take him for walks in his wheel chair if I could. Your all hanging in there really well, just stay strong and spend as much time together as possible. Spending time together was the thing that made my dad want to live as long as he did, and he said gave him the best quality of life that he could have had. Sending my love to all of you through this dark and complicated time

@zaaraadam2245 9 лет назад

thank you so much Ben, your advise means a lot. we watched Fawlty towers today.. he just cried and laughed. Hes getting a lift fitted in and a ramp outside the house. lets take it one day at a time. xx thank you.

@TheDrOctopus 9 лет назад

Sounds very similar to my dad too. We had a big ramp outside as well which was a massive help. Watching tv is a great way to escape it for at least half an hour. Great way to spend time together as a family also. You're all doing the right things and all incredibly strong. Hang in there and if you need any advice or a chat I'm only a message away xx

@hannelehiidenkari1129 3 года назад

Keep on doing these videos; they are giving some light in a hopeless situation.You are very young but your family must be very proud of you; I am.

@TheDrOctopus 10 лет назад

Aimee Bieber Hello Aimee sorry for the late reply. Very sorry to hear about your mother, MND is a absolutely horrible disease :/ I hope you and your family are all coping okay despite such terrible times. It's tough here but we just try to take each day as it comes. Some are better than others but mostly I just feel frustrated and confused. Sure hope future generations never have to endure this. Sending my love and support to yourself and all your family

@TheTime67 10 лет назад

My dad passed away when I was 14 because of it. Im 17 now and about to head for university. I sometimes get angry about it the whole situation, but now I feel like it actually made me grow up faster and now I see the world completely differently.

@TheDrOctopus 10 лет назад

That's terrible.. It was bad enough for me when I was 18 I can't imagine dealing with all this being even younger. It certainly makes you grow up way faster.. I hope you and your family are all coping okay, I hope university can give you a fresh new start I'm wishing you all the best buddy

@gopromax6924 9 лет назад

I'm 13 and my dad is currently fighting MND. it sucks to see him not be able to socialise and talk to my friends parents. I also keep in mind that he may not see me graduate and go to university so I just have to try my hardest in everything I do while he's around so he can be proud of me. Although, I always tell myself that things could be worse and that it is great that he can still walk around. I miss having conversations with him about my rugby games and the news but I think it is great that he cam still come and watch. Also thanks for the video it made me feel a lot better about the whole situation.

@TheDrOctopus 9 лет назад

My heart really goes out to you mate. I was 18 when my dad was diagnosed and had a lot more life experience and I found that insanely hard. I can't imagine going through it all at an even younger age. You're coping extremely well though and your outlook on the situation is inspirational. Nothing I say can really help or make things any better but take every day to remember how much you mean to your dad and how much he means to you. He'll be insanely proud of you. Live for the moment and make sure you spend plenty of time together doing whatever you can, even if it's just watching films. Also take a little time to yourself every now and then for a breather. Take care, my love goes out to yourself and all of your family. You'll get very far in life and your dad will always know that

@gopromax6924 9 лет назад

Thank you it's nice to know that someone else knows what it feels like to go through something like this :)

@redbutterflynine 6 лет назад

Prayers, how are things going

@cybersniper3975 8 лет назад

my great uncle has MND and this made me understand so thank you Ben genuinely thank you

@TheDrOctopus 8 лет назад

So glad this was helpful to you, stay strong and take each day as it comes

@cybersniper3975 8 лет назад

Ben Terry ☺

@TheDrOctopus 10 лет назад

very sorry to hear about your nan :( I can relate to everything you have said. I'm often told that I am dealing with it well, and on the outside I guess I am but on the inside it's a emotional ride.. Dealing with the emotions is that hardest part but I hope you're able to find your own way that works for you. If you need a chat I'm only a message away. I wish you all the best, stay strong and try to stay positive, my thoughts are with you and your family :)

@kirstywilliams6108 11 лет назад

what a lovely video, I watched it because I like to be able to relate to my patients reliatives and you have made me more aware. I hope everything is going alright for you all the best withe your future your a sweet lad xxx

@TheDrOctopus 11 лет назад

Thanks buddy couldn't agree more :) I hope you and your family are coping as well as what is possible

@SwoopysOutdoors 11 лет назад

I hope you and your family stay positive and strong. My mum got it about four years ago and passed away two years ago. Its really hard, especially because when she passed away i was only thirteen. It's just so unfair, but all i can say is that you need to value all the time you have left with your dad, because i always wish i had the chance to relive the time when my mum was sick, because i was always out. Stay strong, its hard but you will get through it.

@TheDrOctopus 11 лет назад

Thanks very much Kirsty that's very sweet of you to say :) it's helpers like yourself that make things so much easier for carers like us, so thank you for all that you do. I hope you are well, thank you for the kind comment :) xxx

@MickyMick2 11 лет назад

Sorry to hear about your dad!! My mum was diagnosed with motor neurone disease last November and im just looking through youtube to see other families stories. Its very hard to watch but there are worse things that could happen. A young boy aged 9 was diagnosed shortly after my mum. Thats the only way i can get through it!!

@TheDrOctopus 11 лет назад

I'm very sorry to hear that... It sounds like he was diagnosed similar time and had it for roughly the same amount of time as my dad before being diagnosed. I hope you and your family are coping as well as what's possible. When you have a really bad day don't hesitate to inbox me. Sometimes the only thing that will help is to talk to someone who truly knows what you're actually going through. I wish you all the best, stay strong!

@TheDrOctopus 10 лет назад

Sorry to hear about your grandad, it really is one awful disease, watching the deterioration is something that no one can get used to, it's always a on going battle. Wishing you and your family all the best, stay strong

@TheDrOctopus 11 лет назад

Hey Andy, I'm sure it's still very hard, I'd imagine it takes years and years to be able to take the next day that little bit easier, but after all your help and support I'm sure your mum passed away very proud and very grateful to yourself and the rest of your family, and it sounds like you did all you could do to make things as comfortable as possible for her. I'm from the Kent area, how about yourself? it seems common in Kent unfortunately :/ we have nurses round a fair bit too

@TheDrOctopus 11 лет назад

I'm very sorry to hear about your father. I can completely relate to how you're feeling too. When my friends ask how my dad is I give a brief reply and change the subject, mostly because I don't feel they'd fully understand it all, and it's just not worth talking to them about it. However now you know someone who genuinely understands what you're going through, so when you feel like you've got no one to talk to, never hesitate to send me a message, I'm more than happy to talk to you :)

@jasonm371 11 лет назад

Been through the exact same in the last year its not easy but my advice would be to spend as much time as possible with your dad and enjoy every second with him :)

@FBMX2 11 лет назад

Keep positive mate your dad will need you to keep that way. My mum was diganosed with MND in august last year 2012 but she had the symptoms well before that.(at least 2 years) Sadly she passed away in November 2012 she will be missed. If you need any advice just message. all the best with your family.

@beverleywoods 11 лет назад

you have a lovely positive attitude.... stay strong.. my thoughts are with you and your family... i am concerned about how my son feels as he is only 14, my husband is only 47..so sad but you have to cope and make the most of what time we have together special x

@TheDrOctopus 11 лет назад

Very sorry to hear about your mum, that is awful :/ I hope you and your family are coping okay, my kind regards to you and your family also, and thank you :) If ever you'd like a chat also, I'd be more than happy to do so

@TheDrOctopus 10 лет назад

Very sorry to hear about your father... It's a tricky road but if you need a chat or have any questions I am only a message away. Wishing you, and your family all the best, stay strong buddy

@MsKerryanne 6 лет назад

Love you videos and you are doing well.. I too am from England so I know how much you care as English are so well known for it.. I am sure you are a great help to your parents... I know how you feel as when I was told about my heart problem and for a while I went around looking at people smoking and drinking etc and I thought why are they dying.. Take care I am thinking of you..

@TheDrOctopus 6 лет назад

MsKerryanne thank you for the lovely comment, that's very kind! I couldn't see the second comment on the other video unfortunately 😢 I hope you're doing okay. It's very frustrating seeing people who don't take care of themselves what so ever and then see a loved one who's kept physically active their whole life suffer from a disease that destroys them, unfortunately you see more and more of it in the UK as the days go by.. hope yourself and your family are well was lovely to hear from you 😊

@raddad86 9 лет назад

Be strong...and remember your loved ones are there to help. Best wishes

@TheDrOctopus 9 лет назад

Thanks buddy loved ones are the most important part of healing. Hope all is well your end take care 😊

@davidkellar6732 5 лет назад

Good for you man keep telling ppl. Study it your good at it

@kaseycalvert1070 10 лет назад

My mum passed away from MND in 2012 after having it for less than 6 months. Everyday I still think about her and hope for a cure for this horrible disease.

@TheDrOctopus 9 лет назад

Very sorry to hear about your mother. The disease is absolutely devastating, and not something we can ever get over even after they have passed away. I guess it's about learning to adapt and hope that in time things get easier. For me personally I just try to do the things that I know would have made my father proud. Hang in there, and take it day by day like myself. Sending my love to yourself and your family through dark times

@Red88Rex 8 лет назад

Not sure how old you are, but you have a wonderful and very mature attitude about life :)

@TheDrOctopus 8 лет назад

Thank you that's really kind of you to say! Was 18 in this video, 22 now 😊

@FBMX2 11 лет назад

Yes she had the peg fitted as she lost her appetite, she wasn't keen at first about having it fitted, but once she did she was ok with it. I done all the feeding & medication through the peg with a syringe 3 times a day for 6 weeks it extended her life & she was happy to have the extra time with us & as us with her. I was trying to keep her going till xmas but unfortunately she didn't make it, the last week of her life wasn't good at all. She had the love of her family around her until the end.

@TheDrOctopus 11 лет назад

Thank you!! :) and you're very right! unfortunately I don't think MND will be properly researched until someone famous (just like the queen) is unfortunate enough to get it herself. You're very right!

@bentheillusionist3021 8 лет назад

yh this helped my auntie died of this a couple of years ago and then it spread to my grandma and she died a couple of months back and my mums a triplet so one of the triplets died and all of them are dying now and my mum has got to the point were she gets tired going up the stairs and im only 13 with a twin brother and a sister and my dad is running a marathon for mnd and has raised around 18,000 pounds for the mnda (motor nuron disease association) and u understand wat im going through but yh i wish i couldve spent more time wiv my grandma and my auntie and thats why im helping dad with the washing and helping mum gets dressed so yh then again this video really helped my thank you

@TheDrOctopus 8 лет назад

Thank you for the comment, sounds like you've got one amazing and strong family. You sound like a very strong your lad as well. keep staying positive, it's a struggle but you're doing all the right things. Stay strong, sending my love to yourself and all the family

@redbutterflynine 6 лет назад

Prayers for you and your family. How are things going ?

@stewarttownsend8506 11 лет назад

i love you. you vidio i feel the same way n it feels nice to say im not on my own. my mum has it but it's progressing rather fast. so thank you :)

@MrSphinx2007 10 лет назад

Stay strong buddy:)

@2496TheTrev 11 лет назад

my name is debbie my brother was diagnosed at 53 years old, and it progressed fast, but he did survive for two years and 8 months its a monster of a desease. all i can say is take it as it comes, dont think too far away, and enjoy every day x x be strong xx you will get threw lots of love xxx

@TheDrOctopus 11 лет назад

I'm very sorry to hear that, that must have been a absolutely awful :/ at least she was able to adjust to the PEG though, and she had you and the family around her. It couldn't have been easy, needless to say I'm pretty scared of the future. The present is tough, the future is going to be even tougher though...

@TheDrOctopus 11 лет назад

Aww thanks very much buddy! comments like that make my day :) I'm very sorry to hear about your mum though, just remember that you're not alone. If you'd like me to post a video on anything else or answer any questions never hesitate to ask. I hope things at home stay as well as they can, I wish you and your family all the best

@TheDrOctopus 11 лет назад

I'm very sorry to hear that he has MND, I'm glad you found the video of some use, if you have any questions, or want to hear of some more personal experience I am more than happy to help you :) I hope you and your boyfriend are doing okay, stay strong :)

@paulmorgan3311 6 лет назад

Well done Ben helped me a lot Paul. In Dublin

@TheDrOctopus 6 лет назад

John Smith thanks very much for the comment, very glad you found the video useful. My regards to yourself and all the family 😊

@TheDrOctopus 11 лет назад

I'm very sorry to hear that, I hope you and your family are coping okay also, I'm only a message away if you'd like a chat xxx

@FBMX2 11 лет назад

Sorry to hear that Ben, at least he's still in good spirits & your dad has the love of the family around him thats ideal. Yea me & family not too bad its still painful to say the least but thats grief. We done everything we could to make her comfortable right till the end. she passed in her sleep. At least now she is at peace & no discomfort. Yes you should do a video update as its been a while. So what part of the U.K. are you from Ben? Do u have a Neuro team that comes round to visit your dad?

@keelydobrowolsky3735 7 лет назад

I hope that one day that scientists will find a cure for ALS (Motor Neuron Disease) and then anyone who is diagnosed with MND will be able to survive. I'm sorry to hear about this. I hope things get better for you soon. xx

@D665 10 лет назад

thanks for that, glad its not just me feeling that way, how old is your dad and what stage is he at with motor neuron disease as my nan its just the talking, drinking and eating stage she can still move about but her mind isnt with it tbh which doesnt help things at all :( im staying positive with help from my family, friends and pets :) i hope ur still okay and the rest of ur family take care XxXxX

@Cruella-Deville 10 лет назад

Hi there Ben we haven't heard from you in a while. Just a thought while watching some vids, you're name came up as I'm subbed to you. How are you? How are things? You're father and the rest of the family? I am ok I am waiting to see a former Neurologist now a Professor as part of an ongoing assessment of my Primary Lateral Sclerosis. I remember you gave me some useful tips on clothing. I hope to hear from you on youtube in the near future! Bye for now take care Jen Fuller.

@TheDrOctopus 10 лет назад

Hey Jen, thank you for the message. I'm pretty so-so. Good days and bad days my father has not been too great lately so it affects the rest of us a fair deal. How has things been for you lately? do you know when you'll be able to see the neurologist? I hope you are holding up okay it's lovely to hear from you again

@FBMX2 11 лет назад

I'm from Surrey Ben not far from yourself, yea the nurses can be a great help with advice & support.. Has your dad had a PEG fitted yet for feeding? Stay strong Ben.

@TheDrOctopus 11 лет назад

Thanks for the kind words :) it's very difficult trying to maintain a positive attitude, but sometimes it's the only thing to get me through the days... I hope your family is well, it's even more unfortunate that your son is even younger than myself, I hope he is able to find ways of coping okay. If he needs a friend to talk to he's welcome to send me a message, as are yourself. I hope you are all doing as well as you can, wishing you all the best, my thoughts are with you all xx

@D665 10 лет назад

hi there, my nan has been diagnosed with motor neurone earlier this yr, she is 84 as well :( it isnt nice and do you ever get people say 2 you 'ur strong, u seem 2 handle it well' a couple of people have said that but thats not true, i just dont know how 2 express my emotions easily, i just keep quiet about it, which probs isnt a gd idea, so sorry about ur dad :( hope u're coping okay, every now and then i get a bit annoyed like u do, you seem like a nice guy as well, good luck 2 u and ur family

@2496TheTrev 11 лет назад

how old is your dad ? STEVE was my brother i am trevors wife this is his email.steve was 53 when he diagnosed. he didnt have the peg either because he didnt want to be kept alive just to exsist. every day was a new day, all you can do is be there for each other, its very very hard to say the least, but you will draw comfort that you were there for your dad at the end of the day.

@TheDrOctopus 11 лет назад

Hello Andy, he's not great unfortunately, he can't do anything by himself now so it's quite hard work at home, but we try our best to keep his spirits high. in himself he is extremely strong, and stays strong for all of us and still laughs and enjoys being with all the family and stuff :) was considering maybe posting another video on how things are today, as this video was posted a little while back, so might do that once I get some time. How are you? I hope you and your family are doing okay?

@rachelthompson8462 11 лет назад

Hey my dad recently passed away because of MND I hope you and your family are coping ok xxx

@opinionator4533 7 лет назад

Hey Ben . Love the videos. How have you been lately?

@TheDrOctopus 7 лет назад

Opinionator thank you! All has been okay my end, keeping pretty busy these days which is nice, how are you doing? 😊

@opinionator4533 7 лет назад

All good, Keep up the good work, you are really helping people by raising awareness as well as providing them with a space to cope/discuss. Inspirational and very brave of you. you're parents will be proud.

@BridlingtonWarrior 10 лет назад

I send my condolence

@fourshore502 3 года назад

It seems to be quite common in people that do a lot of weight training such as soldiers and athletes for some reason!

@TheDrOctopus 10 лет назад

My dad is 52 and he's permanently on his oxygen supply and is struggling to eat food. He can't move what so ever but can talk fairly well so long as he has his oxygen supply. How well can your nan move so far? sorry to hear her mind isn't quite the same, I bet that makes things a bit more tricky. I hope all your family are coping okay with it, if you have any questions never hesitate to ask :) take care I'm wishing you all the best xxx

@cali6845 11 лет назад

YOUR A GREAT PERSON IF MORE PEOPLE WERE LIKE YOU WE WOULD FIND A CURE. IF THE QUEEN HAD THIS DISEASE THEY WOULD PAY MORE ATTENTION.

@stevebubbs 10 лет назад

thanks

@medward6239 9 лет назад

Thanks I have it too..

@saurabhsharma-id2jy 8 лет назад

Yes brother I would like know that link and support!!

@TheDrOctopus 8 лет назад

Type in 'weekend wipeout MND - no white flags' on Facebook and join the group, have a community of amazing people who help each other in the same situation. Has been a big help to me personally. MNDA website offers a lot of great information and advice also. There's also a page called 'kidz zone weekend wipeout MND' for the younger people, which I'm an admin of. Hope one of these will be useful to you, they're excellent pages to be a part of and you'll be welcomed 😊

@TheDrOctopus 11 лет назад

Ah cool yeah not too far at all! unfortunately my father doesn't wish to have a PEG fitted :/ he doesn't want anything that will make him live any longer than he has to, since there's no hope of a cure. It's hard to think about, but I guess it's all about quality of life. It can be hard to keep him happy at the best of times and the PEG would just put his mood lower :/ did your mother have one fitted? if so how did she find it? I hope you are well

@TheDrOctopus 11 лет назад

That's okay, if you'd like me to post a video on anything MND related I'd be more than happy to do so, I'm glad you liked it :)

@maryamkaramkhel6353 3 года назад

You can only be positive about MND if you are old. To be 60 and lose 20 years is not the same as being in your 20s and losing 60 years. For the avarage patient this perspective works. They can also think about how their lives would have been getting it in their 20s or 30s. Nobody in their 70s or beyond should feel like it was an injustice that they got it, when some get it in their 20s. Having MND old is a horrible ending, having it in your 20s is a horrible life.

@2496TheTrev 11 лет назад

how long has your dad had it ,what age was he, and what age is he know, we live in surrey, a place called byfleet. dont be afraid of the future,enjoy each day as much as poss hold your dads hand have heart to heart chats, remenissing take pictures even if your dad does not look his best.we cryed together every time we were together and when that was out the way, we carried on as if everything was ok, crying heals the soul xxxx sending love and strength to you all xxxxxx

@TheDrOctopus 10 лет назад

Hello Harry, in some of my other videos I mention a few ways that I try to deal with sadness and depression, and hopefully you may find them useful. A few ways that work for me are to keep busy and productive, however you may find that talking about problems may work for yourself. If you'd like to do that feel free to message me and I'll happily listen, and will be able to relate to your problems. I hope you find this of some use. Take care and I hope you find a way that works for you :)

@emilyjane9606 11 лет назад

I found out about 4 years ago my dad has MND and i'm 16... And i've found i can't really tell my friends or anyone cause they just don't get how i'm feeling

@TheDrOctopus 11 лет назад

Thanks very much! I have sent you a email :) let me know once you have recieved it :)

@haroldng5897 9 лет назад

Hi Ben, Im from Hong Kong and I think i have some of the symptoms of the mnd So basically when im holding light things, my hand always vibrates and its really annoying. And when Im writting my hand vibrates too but my handwriting is still the same as before, so its not a problem. Im just worried that I might have it. By the way, I am so sorry that your dad has MND. If you read this, please reply. Yours faithfully, Harold

@TheDrOctopus 9 лет назад

Hello buddy was literally in Hong Kong 12 hours ago! In regards to symptoms I had something similar when my father was Ill. My hand would always twitch and shake. It went on for a few months and the more i noticed it the worse it got. I think it was a mix of high stress and also me believing that there was something wrong with me and my body reacting to that like a vicious circle. If you notice any muscle weakness, or an inability to grip things or hold things without dropping them then I'd go and see a doctor for further advice. If it is just vibrations and twitching it may be nothing like mine. Although if you notice it getting worse or you can't grip things etc then see a doctor. Personally, I wouldn't be too concerned by it. For me it went away and was mostly of my own subconscious doing but as I said if it continues and it is really worrying pop in and see the doctor.

@haroldng5897 9 лет назад

Haha how was Hong Kong did you try the dim sum? And my calfs are always tight and I cant relax in that area. Or is it just my subconscious' doing again?

@TheDrOctopus 9 лет назад

Unfortunately it was just a stop over flight returning from the Philippines, although seeing Hong Kong is on my to visit list for the future 😊 tight calfs may also be all down to stress. People carry tension in different areas. For me I carry tension in my shoulders. Best thing to do is get a deep tissue massage as it is most likely just stress. Don't worry yourself as I don't think these are anything to worry about as far as I have seen. It's stuff I have been through and I'm okay but if any other symptoms grow consult a doctor just to confirm 😊

@haroldng5897 9 лет назад

Ok thanks! If you ever go to Hong Kong, go to this restaurant. Yat Tung Heen, Great Eagle Centre, 23 Harbour Road, Wan Chai, Hong Kong. Thanks again!

@saurabhsharma-id2jy 8 лет назад

Hello Ben I'm from India and I'm just 19years old.i have problem in to hold object,writing and running from last year. I was very active in sports but now i can't play and dance.my Right hand and right leg getting weak.its quite depressing how I'll survive

@TheDrOctopus 8 лет назад

I'm sorry to hear about that, was it confirmed to be MND? Wishing you all the best, stay strong and if ever you need any help, support or advice feel free to ask me anything

@FBMX2 11 лет назад

Thanks Ben, Hows your dad getting on? Yes if you want to have a chat i would be ok with that. Cheers Andy.

@UpasanaDeka 7 лет назад

Why aren't you making further videos about MND and others anymore?

@TheDrOctopus 7 лет назад

Upasana Deka work has written me out of time, but I definitely plan to make another video again as soon as I can. Not too sure what specifically to make it on so if there's anything you have in mind I'll do my best to make a video about it as soon as I can 😊

@saurabhsharma-id2jy 8 лет назад

Hello Ben its confirmed that I have MND and my lower motor never are effected its quite stressful and my family is not financially sound doctor told me that upper motor never never be effected BT how I'll manage brother without financial sport

@TheDrOctopus 8 лет назад

I'm sorry to hear that, my heart goes out to you. The stress of it all is crazy, just stay strong and take each day as it comes. There's some fantastic support groups out there, with lots of people in similar conditions to yourself. If you'd like any links to the pages let me know x

@Cjtpine 3 года назад

What were your symptoms?

@sianmatthews2699 8 лет назад

Going to my neurogolist on 30 October. Also have a problem with the clutch leg/foot. Highly frustrating. Walking not great either :(

@TheDrOctopus 8 лет назад

Wishing you all the best, I hope it all goes okay. It's insanely stressful not knowing the results, but keep your head up, my thoughts are with you

@sianmatthews2699 8 лет назад

+Ben Terry Thank you Ben. And sorry, bad spelling. Was meant to be neurologist!

@tonylanie 8 лет назад

Ben, i just got told i have mnd yesterday, im scared. i dont know what to do.

@c418vgytre 8 лет назад

+Tony Crowther live your life.

@TheDrOctopus 8 лет назад

Hey really sorry for the very late reply, how are you doing at the moment, given the situation? If there's any advice you'd like or any way I can help I'm only a message away

@LetsMakeGhosts 5 лет назад

Can I ask how you are doing now?

@PS-os6sr 5 лет назад

Wait! Why only males?? So far I've seen 5-6 videos and it is always the males... Does it affect more a particular sex?

@davidkellar6732 5 лет назад

In in period five yrs went doing push-ups maybe 50 to not even five ppl don't understand

@janheard3826 5 лет назад

Anyfing abaht mo’or neuron disease

@harebell6850 6 лет назад

How are you now, Ben.

@TheDrOctopus 6 лет назад

Hare Bell I’m not too bad thank you, still struggle every now and then but life’s got me busy which is good and the future is looking okay, so I’m staying optimistic :) don’t think I’ll ever be fully okay after everything but things are getting better and I know that’s what my dad would have wanted. Hope everything is okay your end also?

@harebell6850 6 лет назад

Thank you, my life is okay and I am grateful everyday. As a parent myself, I can assure you that is what your Dad wanted the most. Apart from that, I know he will have been so proud of you everyday. I hope you and your family have a good Christmas. Best wishes for 2018. Stay strong and keep looking forward. xx

@TheDrOctopus 6 лет назад

Hare Bell thank you that’s very nice of you! Wishing yourself and all the family well and hope you all have a fantastic Christmas and a great new year too! thank you for your comments, they really are lovely to read :) xx

@FBMX2 11 лет назад

Hi Ben Don't be scared just be strong for your dad mate thats what he will need. If you want to chat off here just click on my youtube user name & send me a pivate e-mail. Keep strong! Andy.