Living with One of a Kind Genetics (A Rare Form of Trisomy 18) 

Really? What is the benefit of Georgia in this? Is this a life you would wish for your child? People don't see beyond their newborn being helpless in a diaper. It would break my heart if I would allow my daughter to live like this.

The thing is govt is mostly responsible for the problems we have today. Yet charge outrageous prices for Healthcare. With that being said, a lot of people have children when not fully stable or prepared for all of the possibilities that may happen

​@@lotuspocus76312I don't want to assume what your thoughts are as far as her / parents alternative ?

@@drewmoore365 It's as you know, not only gov..... But the cards are stacked. Between the so called health industry & many man made created toxins / gene & endocrine disruptors, just for starters. While many think it's no big deal or factor; but plays a huge roll in developmental risk issues.

@@lotuspocus76312​​⁠​⁠​​⁠​⁠​⁠Not a great look dude. That’s a vile comment to make and a vile worldview, fyi. I don’t know why you watch this channel, but it’s really not the place to suggest you know more than the families, doctors, etc. who are actually involved. I think it reflects poorly on you, whether you’re coming from a genuine place or just trying to troll. This channel gives people an opportunity to share their or their loved one’s stories on a fairly public platform. Everyone’s life is different. Do you think asking sincere questions and listening to the replies, not just arguing, could be a little more beneficial? Unless you’re just intending to be rude and pass judgement, which doesn’t feel appropriate here.

Right?? I mean, who do they think they are? It breaks my heart. They clearly don't understand anything about what makes a life worth living

So true, I have mild Cerebral Palsey and am legally blind and I get this crap.

That's people for you, ofcourse not all of them (I mean, it takes a lot of nerve to even say that out loud to someone, so it's a type of person), but unfortunately judging seems to be in all of us.

I'm confused as to what they'd do if they became disabled or their child.

It is devastating. How do we think WE get to make the decision on who should or should not live. Each person has their own experience living, whether good or bad. Just because you are uncomfortable with the idea of you being in that way doesn't mean that person is u happy at all. They can only know their experience as we can only know ours. All else is left to imagination which is all limited. Bless that beautiful child and I pray she continues receiving all the love. Her mother seems wonderful from this snippet of a video.

He is the best!

@@FierceGeorgiaOnMyMind Chris is wonderful. I wish I could meet him in person

Yes! He meets everyone where they need to be met. And in return everyone feels so safe around him. It's both a gift and a well-honed skill. He is wonderful. ❤

⁠@@isaacheres1354it’s been a few years since I’ve met him but he interviewed one of my friends and I briefly met him then before he interviewed Liz (her interview is on her as well)

One thing about Chris I've noticed. He's been wearing that same blue sweater since the channel started lol

It was wild

I am sure they have a list of routine questions they ask in these situations, but they should be sensitive to the families and reassure them it is routine follow-up.

It happened to me. I was treated like I was absolutely guilty. However once I heard the cries of the withdrawal ingredients babies (we were in the nice for a week) I all the sudden understood the social workers demeanor. I don't like what she did, but I do understand it now.

​@@nightyew2160 they really tried to get me to confess and I just kept stone walling her. She hated me, 😂

We have an amazing ped now. The first doctors practice is STILL open which is wild.

@@FierceGeorgiaOnMyMind I'm so glad to hear that!! Wow that's wild indeed that he's still doing his business... But happy to hear you found a great ped 🤗 Will never get used to stories about doctors who don't care about their patients feelings or situation

@HaDatWicht we had a rough start but we've found our circle now! I'm so glad to hear from other doctors about the standard of care.

As a medical receptionist myself, my jaw DROPPED. If my doctor asked me to relay most any diagnosis over the phone I would be shocked, much less something to this degree of severity.

I know that makes me sad and angry. Also, just telling her to just google trisomy is very insensitive. They should have had her come in instead of just making a phone call and offered the services of a genetist.

Oops trisomy 18

The whole thing is wild to look back on honestly.

You would think that private practice would imply more caution

I totally agree.❤️

Absolutely

Yes and amen to that

💝🙏💕

Thank you! Some doctors have the mentality that they are smarter and better than their patient. They will not listen when you tell them something’s not right. They do a lot of gaslighting.

Problem is that in the majority of times there's nothing wrong, even if the patient thinks so, that's just the daily experience for them. This condition for example is incredibly rare, so for a doctor to notice that if it's not super clear, can be hard. Doctors are people, unfortunately they deal with health so every little mistake or misdiagnosis is magnified 1000x. If a doctor is clearly not fit for the job or basically a criminal, sure that's something to deal with, otherwise I have the greatest respect for them.

It was surreal but it made me a stronger advocate.

Misogyny at it's finest!

​@@VincentGroenewoldNormally I would agree, but in this case I think they should have at least been able to pick up on the fact that she was not going to be born at 8 pounds. I am sure some of the questions, like "Were you out of the country?" are just routine, but blaming it on drugs when she had clearly been cautious going into the ER ten times makes it sound like they're just trying to find a way to deflect blame away from themselves. Also, just having her Google Trisomy 18 is really harsh. Personal interaction with someone with a decent bedside manner could have made a big difference for them.

Thank you.

She's beautiful and I love how she interacts. YOU are a beautiful mother! 💝🙏💕

Yes! I've heard it over and over to the point it's sad.. people do look away..I wish people were more aware 😢

It is that simple ❤

Thank you

​@@FierceGeorgiaOnMyMind❤

💝🙏💕

Hii! Thank you for chiming in! Is it ok if I ask how old you are?

How common is it for people with Trisomy 18 to live to adulthood?

Hello, sure not a problem; I will be 33 this month on the 29th and the information online states what Georgia’s mom has explained and that Chris has done a video of Trisomy 18 previously. I searched online that there’s two females who are nonverbal; however, one is wheelchair bond in her 40’s and a mom from Texas started a program called “The Chromosome 18 Registry & Research Society,” for her daughter.

By the way, I forgot to mention that I am verbal.

@@CarolynKhanhvyNgu that's incredible!

I totally agree.😊

He is amazing.

I'm doing it with my 1st grader right now. 👍💕

Well said! I feel exactly the same way!

At a funeral I saw a woman in a wheelchair who had dyed her hair a vibrant blue, so I went up to her and told her I liked her hair. Watching this channel gave me the courage to do that. Otherwise I might have been too shy. Everyone is different, and not everyone may want to be approached by strangers, but people who choose blue hair probably don't mind being noticed.

​@@nightyew2160 Love that. Thank you for sharing 😊

💜Jesus loves you so much! If you are going through something hard, he will help you get through this! Ilysm!😊💜

Little but fierce!

I was considered "failure to thrive" until I was in middle school. Big things can come in small packages! 💝🙏💕

This was on another video on RU-vid 😭

It was awful. I left a few terrible reviews.

@@FierceGeorgiaOnMyMindGeorgia is beautiful and precious ❤

Thank you.

Most of the time doctors get mad when you google medical problems. I wish her response would've been, "I'll google a new doctor's office."

That "cool chair" comment is genius.

I think a lot of people think about how much trouble and money will take to take care of a "special needs" baby

@@Dave-tk6lw I think about all the resources (trouble and money) that are wasted on keeping people alive who are so uneducated and ignorant that they would say something like that.

@@sharim yeah I agree with you

To me, it's a totally thoughtless thing to say. Some people are so immersed in the culture of death that they expect parents to murder or neglect their own child if she happens to be born with a disability. Really, even parents who are just putting in the legal minimum wouldn't do those things, so if you would say something like that to parents who actually love their kids, you clearly didn't think your opinion through.

@@Dave-tk6lw It may be trouble, but love is way more important then that.

Thank you 🩵

Thank you 😭😭😭

Thank you

Megan is amazing!!

For sure it is not for everyone. But you would be surprised how human spirit can pull itself together when required

You'd be amazed what you're capable of when you have no other choice.

Hes amazing!

Aww yay! He's the best!

❤

@@FierceGeorgiaOnMyMind ❤️🙏

Thank you. It's wild bc that pediatrician is still open.

He is! 😊

Thank you

Thank you

Crazy thing is, at our 3D ultrasound that we did for fun, she immediately noticed that she was measuring way too small and when I told my doctor, she told me they weren't real u/s techs and didn't know better than her and that I was measuring fine. And we had an emergency u/s at 37 weeks and they said she was fine.

@@FierceGeorgiaOnMyMind Wow! What an experience to go through!!! She's absolutely a beautiful little girl and I'm sure she's going to be doing amazing things! With the right therapies, the sky's the limit for her - my best to you all 🥰

He is the best