Low Dose Naltrexone (LDN) Changed My Life! 

It’s also important to make lifestyle changes while on LDN and not rely on it entirely. Diet, exercise, and self care are a must. For me LDN effect was immediate but I was also doing many other things that I think at that point only LDN could address so it helped tremendously.

Thank you for your video .💞 I'm taking LDN since September 2020. Brainfog and POTS went away. Energy ist better. The pains are VERY slowly getting better. Love from Austria 🇱🇻

One of my docs told me that it was impossible for me to have both Lyme and EDS. He’s no longer my doctor.

Young lady you have gave the best video on ldn I have seen yet thankyóu

The one who found LDN I want to meet him/her and fall on my knees and say thank you.

Thanks so much for sharing your experience with this. I have never heard of it and looked at one of the links you posted and was amazed at all the different conditions listed on there that it could help people with - it's incredible! I am so glad it is helping you! I am also so sorry to hear where you were at your worst and everything you have gone through to get to where you are now. You are working so hard and it's paying off. I hope things continue to improve for you. Thanks again for sharing your story with us

Hi Rachael. I received my giraffe from Etsy, with your beautiful embroidery. Thank you. You are very talented. As to this current video, it sounds like your journey is taking a positive up-turn. Thank God for that. Keep fighting the good fight. 🌹🌹🌹🙏🙏🙏😇😇😇

What a lovely and hard working spirit. Very best to you.

Thank you so much for this video. I've been looking into LDN after reading about it in a RA book. I'm cautiously optimistic that it might help and your video gave me a bit more hope.

I'm so happy for you! It's changed mine too, with autoimmune issues, ME/CFS and tick disease. I think it's also great for depression, watched a video on that today. Out of five doctors on my team only one knew about LDN and I am so thankful! The key is to start slow and low and work up to 4.5.

So glad it’s been helping you! I’ve been on it a few years as well.

Watching my favourite inspiration makes my day expecially when she is educating people

I'm very thankful that my doctor knows about it and prescribed it to me. He's the one who told me about it.

I found out about LDN while I was looking for fibro, lyme disease treatments being desperate. My doctor prescribed it and I'm waiting for the RX to be filled. I'm so glad to hear it has helped you, gives me hope.

Thank you for this information. I am starting LDN in one month for RA, Chron’s and chronic pain and inflammation. None of the 5 RA drugs I have taken have worked, over the past 6 years; most of them caused me unbearable side effects, even worsened my RA to the extreme (using Humira for a year). I’m starting LDN at 1.5. I currently take L-Theanine and Melatonin for sleep and have a wonderfully restful sleep.

Very helpful thanks. Starting now with 1mg. I have HEDS. Love to chat more about that

Story of my life. A lot of doctors don't know about LDN, I went to the ER once and the nurse suggested that I was under treatment for substance abuse.

Thanks for your encouraging report Rachael, I too have battled Lyme, in remission we think and a host of other auto immunes. I was Dx'd w adrenal insufficiency around 11 yrs ago and was put on Cortef and have been on it for all this time. About a year ago I was DX'd w osteopenia which is the warning for Osteoperosis. My Dr thinks it's from the corticosteroid even though it's low dose and I was told it would not harm me. Well I feel it has. I eat nutrient dense foods and should not be in this shape at 53. I also feel it damaged my renal pathways. So I have been weaning off for about 6 months and have gone down from 20 mgs per day to 2 mgs per day which is amazing but the pain an fatigue is ...well...you know. My new Dr wants me to go on Naltrexone and gave me super low dose Trokes but like you I hyper react to EVERYTHING, so I have had it for a month and have been afraid to take them. I too am researching everything to be sure I feel good about taking it. So I may have more questions for you later but is it something you can wean off of later in time? Thanks so much! Sue

Doctor today told me this is only for alcohol abuse and he isn't prescribing me. Not ever seeing him again.

I’ve just started the process of getting a prescription for LDN! I have EDS/POTS/ME and really hope it gives some relief.

Hi Rachael, I very happy to hear you are doing well. I too take LDN and, after a few months, it helped with chronic pain (the future is less gloomy). I am looking forward to fatigue reduction. Take care and stay well during these difficult times. From Fay (a fellow hEDS, Chiari, MCAS, and POTS) xx

Thanks for sharing!

this has helped me recently with CFS/ME. normally, i struggle so much with waking up. LDN lets me get up and stay alert.

I just found this video! I am looking to start LDN and not many videos explain how to start at very low doses and titrate up to what dose works for you. I have Fibro, Lupus and Chronic Fatigue Syndrome and Adrenal issues. It is so important to get inflammation under control in folks like us before it causes more conditions like Crohns, Colitis, RA, etc. Thank you so much for this video!!!

LDN completely changed my life. My rheumatologist prescribed me this, I have high inflammation and positive ana speckled bloodwork but don't cone back positive for lupus or RA. LDN has given me sooo many more good days than bad and am able to live a way normal life. I've had no negative side effects so far besides insomnia so i was put back on a low dose sleep medication.

I used to take LDN and when I had to change Drs due to her no longer being in network with my insurance my new Dr refused to refill it. Said it was dangerous long term. But, I can honestly say I never felt better than what I did when I was taking it. I have an appointment with the Dr that prescribed it before and see if I can get back on it. I have an auto immune disorder and live in constant pain due to inflammation. That helped tremendously with my pain and inflammation. Also, I lost about 20 pounds without trying. She had told me that was a “good” side effect if you’re overweight. I’ve finally decided I’m willing to pay out of pocket to get back on it.

Yay! Today I found a doc who has no problems prescribing LDN for M. E./CFS. Before that no-one would. I've waited 10 years for this! 😁 I'll be getting it this evening (the pharmicist here delivers for free). I'll update and let you know if it helps! Even if it doesn't - surely it is worth a try. 🎉

LDN really helped me too! It helped with my chronic widespread pain, but not so much with high pain flares. I take my LDN around dinner time because it did cause sleep issues when I took it closer to bed. I get mine in pills but I was jealous of your gummies until you said they tasted bad! 😆

I'm on EDS spectrum and it led to lyme and chronic infections. I was about to try LDN but went with reiki, but I'm thinking that LDN probably would have made a huge impact too. In addition to reiki I do lots of supplements and a raw vegetable heavy Mediterranean diet it is absolutely changing my life I was bed bound and having near death experiences and now I'm dancing and back to daily activities.

I'm on LDN with Fibro, likely hEDS, POTS, likely MCAS, etc. Biggest thing I notice with LDN is it significantly improves my pain. I t makes me dizzy so I take it before bed. Intense dreams stopped after a couple weeks.

Thank you so much for sharing 😀 My doc here in Australia has recommended this to me for Interstitial cystitis/ME/Fibro/Endometriosis. I'm nervous about insomnia side effects. I already have terrible light broken sleep and nightmares.

Started LDN 4 days ago, no relief yet but praying 🙏

I Take LDN for my Hashimoto’s. I take 4mg daily. It has changed my life!

I have been on it for 3 months now. I started at .5 and added the same weekly. I really noticed pain reduction in my back at around 4 and am at 4.5 now. It seems to be getting better daily. I plan to stay at 4.5 as that is the recommended dose. I notice if I take it an hour prior to sleep there is less dreams. Good luck. Definitely a wonderful drug. I feel very clear headed and rested, more energy and the runners high affect is fantastic.

You should do Dr Brooke Goldners goodbye autoimmune protocol. Life changing

This is a very informative video thank you for sharing I was born with congenital issues and have been experiencing chronic pain on my life I tried everything from injections to pain psychiatrists and much more today I saw my doctor and she told me about this LDN I'm looking forward to the journey she's going to start me at 1.5mg I'm praying for so much relief God bless you young lady and may God bless us all in Jesus name

Thanks for sharing your experience with LDN. Have you ever heard of Coimbra Protocol to treat autoimune deseases? - Best wishes

I hope you continue to improve. I have been taking ldn sublingually for 3 weeks now. How long did it take to really notice a change in your overall health and wellbeing?

I'm so glad for you! Does your cervical fusion helped too? What type of EDS you have? Are you still taking Lyme medication?

I'm very glad it worked for you & very proud of you always! I did get it after watching your first video about it but unfortunately I couldn't tolerate even the 0.25 mg dose! I don't know why! It makes me very tired & sleepy! I've undiagnosed autoimmune disorder & adrenal insufficiency!

Hey girl, thank you so much for sharing your story :) I started LDN right around the time you did and it’s so encouraging to hear it has helped so me. If you don’t mind, could you share some of your symptoms of adrenal insufficiency that you have had?

I have chronic back pain and chronic fatigue syndrome. I’ve had both for 24 years. I’m going to talk to my doctor. I’ll be in touch. Thank you.

Hello Rachael, I hope you see this. Here in Denmark the professor in chronic pain i talked to, told me to use the LDN first thing in the morning, and not at night. Because it would often interfere with sleep. There isnt a big difference in overall effects. This is an old post so i hope you have found this out already

Glad this has fast forward.

Tysm 🥰

Hi, I was wondering which compounding pharmacy offers the gelatin form? I cannot find one in my area. Thank you for the testimonial!

Also try cycling if possible. After a few months every day you will notice a big improvement. I also cut out all sugar. There’s a great book called “How I Cured My Arthritis” which has a lot of good info on autoimmune diseases.

I am waiting for my LDN to arrive in the mail and so hopeful it will help with my Lyme induced SIBO. I did not even bother going through my primary - I ordered it online via a service that has an ordering MD who prescribes it.

I have read that taking the liquid form allows much slower and more consistently accurate titration up or down. For example, 1.0 mg, then 1.1 mg, with the change every other day versus daily.

من در ایران زندگی میکنم و الان ۲ ماه هست مصرف نالترکسون رو شروع کردم و این دارو به نظر من به هر کسی که به هر چیزی وسواس دارد کار میدهد. خداروشکر من الان خوبم و زندگیم تغییر کرده است.

I have been ill for 30 years, the first 5 completely confined to a wheelchair. I've spent tens of thousands in different supplements trying to 'fix' myself hecause my HMO wouldn't. I saw a new doctor yesterday and it was the first time anyone ever mentioned LDN to me. He told me to go home and read about it. 🙌 I understand having a body that overreacts to everything. May I ask how often you have increased your dosage?

Their are many that also have immediate results 🌻

Hi Rachael, Do you share anyware what type of treatment, and which doctor/practitioner you go to? Also wondering what type of adrenal insufficiency you refer to, and what the symptoms are? I have been trying to find out if I am having adrenal insuficiency as well, without luck with doctors, as I am not positive for Addison´s disease,but dealing with extreme symptoms of adrenal issues which are debilitating, and holding me to the bed. Really appreciate you sharing

So happy to hear of your LDN therapy and that it is working for you. And it should work even better for you the longer you are staying on it. Only thing I would recommend is that you do whatever you can to switch to nighttime dosing. LDN works by significantly increasing the number of Endorphin hormones (as much as a 3X increase). While you are getting for sure benefits taking it in the AM. You will get even greater benefits by taking it at night -- usually between 10 - 11 PM. That is because your body produces MOST of the Endorphin hormones (through the Brain's Pituitary Gland) that support your Immune System during the Overnight hours (1-5 AM) per the Circadium Rythm. So talking LDN between 10 - 11 PM will cause you to get the greatest BOOST in Endorphins from the medication. Even if you have to use Sleep Meds to take LDN at night---there should be no problem. Not aware of any conflict with taking LDN with sleep meds. At any rate, I have been taking LDN now for over an incredible 10 years now. LDN is without doubt my MOST important medication. I truly believe I would not live very long if I were ever to go off it. I take it for my Hashimot's autoimmune disorder. And like you -- I was extremely sick to the point of being nonfunctional before being able to get on my LDN medicastion. I am also a patient advocate for LDN. Not as active as I used to be. Got frustrated because so many Doctors still refuse to accept LDN and prescribe it. The main problem with LDN is that it is still not supported very much at all by Mainstream Doctors who are generally married at the hip to only very expensive Big Pharma medicines that mostly don't work at all in comparison to LDN which does. The other thing many doctors do not like about LDN is that is very cheap. Only about a $1 per dose generally. A cheap dollar per day drug like LDN simply gets easily dismissed by a majority of Doctors. Unfortunately. Finally, I did put out my own RU-vid advocacy video for LDN a few years ago. I think it is certainly one of the best things I have ever done and I still get steady views from people interested in LDN. Here is a link to it if interested in my experiences with LDN. ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-w8nylF-uGvQ.html

Thanks for the great information. I have POTS. Have you found that LDN helps crashes? I have terrible Exercise Intolerance and really need help.

If you don't mind me asking, what protocols does your Lyme doctor prescribe for you? I'm curious in hearing testimonials from others dealing with this terrible disease.

Hi Rachael I am happy you are are recovering from your condition. I was wondering if you are taking LDN now.

I started using a liquid version of LDN (preservative free). A syringe is used to get it out of the bottle. It is a 4.5mg strength, but I used a little amount & slowly titrated it up. If I got any bad vivid dreams I would reduce the quantity. It took a while to get results. But they were great. Now I have titrated it down. That is the new train of thought. It works. I woman in England (MS pt) said it took 2 years before she could be wheelchair free. Dr Bihari (now deceased) was responsible for figuring out the benefits of it.

So pleased for you! 😀...I am in the UK and going to ask my doctor if I can try it ( not sure if he will say yes though) ..Can I ask which brand you take? Also I worry about the fillers...( I have Fibromyalgia) ...hate being in pain all the time 😣xxx

Isn't it strange that most doctors don't know about naltrexone 🤔

I have long covid for 2 years now.... I have chronic fatigue, brain fog, memory loss, skin rashes, severe chest pain etc..... I have Dr appointment this week and I hope I can get my Dr to prescribe LDN for me.... What dosage size dosage do you take? Thank you for the information......

I got given 5mg and wasn't told to taper. Big mistake, felt even worse fatigue, constipation and brain fog. I've started tapering again

I’ve been on it for 9 years. Never coming off.

Can you explain more about the adrenal issue? Was it like adrenaline rushes?

Where did you get the gel form of the LDN?

I’ve been on LDN at 4.5mg compounded pills for about 1 year for EDS/POTS/MCAS/Gastroparesis. I take it in the morning because it disrupts my sleep. Originally it was prescribed to help with pain, which it hasn’t. At all. However, I have noticed a marked improvement (from severe down to moderate most days) in my fatigue levels, brain fog, POTS symptoms, and MCAS reaction severity. I noticed the improvement in fatigue after a couple of months. But the other improvements I didn’t notice until 6-9 months after I started taking it. It’s certainly been immensely helpful.

I started at 0.75 and in process of working up. The first dose it felt like a niacin flush- like my brain was squeezing. Only that one time though. Seems like when I increase the dosage the dreams get weird.

I know this is an old video but did LDN help with the barometric pain?. I have C4,5,6, Stenosis and Chiari Malformation and will get results of C.T. scan this week for Cervical Instability and I have Psoriatic Arthritis and all my conditions 10 times worse when wet , or stormy weather. I think it might help. x

How are you doing now my friend?

How do you get the gelatin or drops form?

are you still taking this and is it still working?

Thanks so much for sharing! I was prescribed this recently, but have been hesitant. My doctors will no longer give me tramadol (or anything stronger) They barely even want to give me Flexeril, but I need it to sleep & was denied Medical Marijuana . I have Lupus/Fibro/Endo and more... I have found that the only thing that has been helping me get thru this pain recently , is a glass or two of wine. I'm just wondering if I take the low dose naltrexone, if I will not be able to drink , as I know in higher doses it's used to treat addiction. I know most of my meds I'm not supposed to drink on, so that's not what I'm referring to lol.

Did prp help at all? Did you continue doing that?

Cant stop hearing about ldn....wondering how I can get ahold of some? Seems like it helps so many

I wonder if you would continue to improve even more if you increased to 3.0. Maybe not though 😊 trust your gut! I worked up to 4.5 in one month (kinda quick) but had a gut feeling that would be best for my fatigue and fibromyalgia. Best wishes ❤

Naltrexone I been on it for a week 50 mg I feel sick most of time should lower my dose ,it's my first time use it ,I try to lose weight

I recently saw a video by a doctor that uses LDN a lot in his clinical practice, and he basically said there's no magic to the 4.5 mg dose. It just happens to be kind of in the middle of the range. Based on all I've seen it is good advice to start out at a lower dose. The reason to increase is to get more benefit, but if it starts to cause harm, go back down to the previous dose. I've seen people say they are "cured" on 1.5 mg, but they're still talking about wanting to get up to the 4.5. Why? No need. There's a Dr Younger that wants to study dextronaltrexone which is a form where you might be able to take higher doses without the side effects. This will be for people who seem to need a higher dose, but can't tolerate it.

All your other afflictions, are from Lyme and/or co infection. I was completely healthy 34 yo male at the time. 1 tick bite and 10 years later, I still suffer. I am getting ready to try ldn. What are you doing for treatment?

I read some people can experience insomnia on LDN and you said you did as well. Has anyone else experienced this? Is insomnia a common side effects? My doctor wants me to try it for Mast Cell Activation Syndrome.

I have a hard time getting it. I really need it and felt wonderful when on it for a year but then a turn if events led to not having refills and new docs won’t prescribe it bc they don’t know what it does.

Have you looked into microdosing iboga?? Or psilocybin? Lots on line for research

Thank you❣️ sweet vid😍..Can you take kratom with LDN?!🙄..😖.. and if you start with disulfiram (for lyme💚) can I still take LDN then?!.

I just started talking 1.5. I have Addison's and EDS. I'm hoping for some relief from fatigue.

Where can you get this?

Have you tried CBD Oil for the chronic Pain?

Hi Racheal I know this was put out a long time ago can I ask what Country your in please? I’m in Uk & iv been prescribed 0.5mg LDN but The doctors can only get 50mg tablets any feedback would be fantastic thanks for putting this out there

I started at 1.12. One week later jumped to 2.25. I have felt awful the past 3 weeks. I swear it is making me worse. I have had so much nausea and migraine and insomnia but I can't tell if it is coincidence or not so idk if I should quit. It helped me in the past. Should I start over at a smaller dose? Is there any benefit to using the gel?

I just got ldn prescribed for long haul covid and chronic fatigue syndrome, brain fog, I nearly died of covid last year and suffered an ischemic stroke from the covid. I was on life support for 16 days etc. I'm excited to try this since I'm at such a low point in life quality of life wise. I'm very scared to take my first dose bc I have such bad panic attacks. It's for 1mg. Is side affects bad for this medicine? So nervous Thank you for your story and hope.

Has anyone taken LDN and then stopped? It is hard to come off of if necessary? I’ve had trouble with other drugs with that in the past! 🙏🏼❤️Tia.

I thought this medication was used to treat addictions. My doctor wants to prescribe me for a food addiction I also have A.I.

Sorry you can’t sleep. I dosed up to 4.5mg over 20 days. I got nauseous and insomnia but it wore off. My crps in my feet is starting to go away and I can jog on a treadmill again!

I trying to lose weight is the best thing to take if don't have a addiction,

what dose for weight loss

Hi Rachel, do you still take this or any medications still? Sorry if too personal, not my intentions

I had the worst experience on it... I took my first dose of 1.5 a week ago and all my symptoms did come back really bad and I have not taken another dose again. I do plan to take it again but at a really low dose, I am just trying to get back to my baseline before I try. Kind of scared.

CBD works really well for sleep while on LDN :)

Doctor Behari invented the protocol.

Is 50mg too much?

I have a good doctor, and he prescribed me LDN for my POTS/MCAS/chronic pain but I am too scared to try it. 😖 Edit: I should add I also already have vivid dreams and nightmares and restless sleep so I really don't want that to get worse.

Anyone connecting POTS with vaccine injuries??