Man With Fatal Skin Condition Plans His Own Funeral | BAFTA-Winning Documentary | Real Stories

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Jonny Kennedy: The Man Whose Skin Fell Off (BAFTA-AWARD WINNING DOCUMENTARY) | Real Stories
Jonny Kennedy is a man with a lot to do. He’s got just four months to move home, meet Nell McAndrew, fly a plane, visit Downing Street... and plan his own funeral.
So Johnny decided to work with filmmaker Patrick Collerton to document his last months, resulting in this uplifting, confounding and provocatively humorous story. Though not shying away from the grim reality, the film is a celebration of a life lived to the full. It features an interview with his mother Edna who has been his life-long carer and now faces the prospect of Johnny’s death with disarming mixed feelings.
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Produced by YIPP FILMS
The Man Whose Skin Fell Off (BAFTA-AWARD-WINNING DOCUMENTARY) - Real Stories

Опубликовано:

21 дек 2016

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Комментарии : 6 тыс.

@dr.vegapunkPhD 4 года назад

“Constant wanking just doesnt go well with the condition” that man was a comedic genius. RIP

@pinkpanther8574 4 года назад

😋 100% Man right there. Oh so many people could use Jonnys tounge in cheek appreciation. 😇 yes, includes me.

@donnayork816 4 года назад

Lol. He had a wicked witty personality despite all his pain.Seemed like a great guy and what a wonderful mother and family. The mother is a saint, what pain in her heart to have to watch her son suffer all those years and take care of his every need.

@booboobearsugarbear9109 4 года назад

She really broke at the end when they played his favorite song at the funeral 😞😞😞 I feel so bad for her and Johnny's family!!! Johnny shouldn't of died :'( he shouldn't of went through that...he has the best personality any person could have...his determination and strong Will just blows me away...I wish I could've met him 😞😪

@pinkpanther8574 4 года назад

@@booboobearsugarbear9109 Aww HUGGLES Sister. He was here to teach, no doubt . He had ALOT to say and it was granted that he could. Xoxo

@pinkpanther8574 4 года назад

@@donnayork816 I shed tears SO MUCH wen changing his back bandages 😔 Ive got pesticide Roundup ?boils?? Scab and ITCH. 1st shower and i wentt to my knees. Thank you Miss Donna for hearing me.

@CourtneyMarie-ep6ez 5 лет назад

Wait....so he put a symbol on his coffin that doesn’t have anything to do with anything just to confuse people?? This man was a GENIUS!!

@InedibleMuffin 5 лет назад

Not only that, he specially asked for the *Heinz baked beans label*. On his coffin. He's amazing.

@liztrainer895 5 лет назад

CourtneyMarie 6661 Never knew u could design ur own coffin.

@drobles394 5 лет назад

fun guy!

@greenearthblueskies8556 4 года назад

He definitively got the last laugh 😂

@pandachan3223 4 года назад

@@liztrainer895 you can, but usually people don't know when they will die, and when they do, they don't want to think about it

@ChAnElLe1290 3 года назад

Eighteen years after his death Jonny has made me smile, laugh, and now cry. What a devastating loss. I hope you're in peace now, Jonny.

@ralphhoutz2285 3 года назад

Amen.

@sosigakaweinerman869 3 года назад

Amen.

@bastian6173 3 года назад

He's not really gone. His spirit is living on.

@labellavita23 3 года назад

@@bastian6173 atats

@janainaquadrosquadroscomde3672 2 года назад

Jesus Christ is powerful Peace Holy and Saviour in World amen 🙏💗is Really

@KotasMama Год назад

i think about jonny a lot. even 19 years after his death he’s still making an impact on people. rip ❤

@carolwilder2289 Год назад

Amen!

@cheftornado1114 Год назад

I also think of him often. He’s around!

@obscurelyvague 27 дней назад

@KotasMama I am not religious but I have watched this video over and over a few times. It seems that psychologically it is good preparation . I am not expecting to leave this earth soon but it gives you something to think about.

@GeeklingNo1 4 года назад

Dude just sat there watching his coffin being made and designing the whole thing like a boss!

@lillylove3508 4 года назад

Normal'sWayOverrated My great grand aunt did the same, but with the headstone on the grave as well. She thought she was poor, but as we started to take over her bills and bank accounts, we discovered she was a millionaire. She was thrilled and went bananas with the grave stone, picking the most beautiful and expensive stone, inscriptions, lanterns etc. From living a life in poverty, she got buried as a royal. The fun thing is that after her gravestone was put up, (she is buried at the most posh graveyard) everyone copied her stone and style, so now everyone has the exact copy. I bet she is laughing out loud up there in heaven, loving that she started a trend. ❤️

@almostskater3210 4 года назад

@@lillylove3508 How do you not know you have a million dollars?

@josefine9163 4 года назад

Billsama Bin Clinten I was thinking the same.

@johnnyallenshaneprater4870 4 года назад

@@lillylove3508 wait what? She thought she was poor, and didnt have any idea she was a millionaire?? Let me guess then everyone stood up and clapped after all that happened

@jamesfranxx6151 3 года назад

@@lillylove3508 well it must be true i seen it on the internet and who would lie on the internet

@beabeatrix299 4 года назад

I can imagine him saying “alright bye then” before he dies

@nunungnurulfitria6836 4 года назад

Bineapple Bizza 😭😭😭 RIP Johnny

@erengrad6950 4 года назад

Bineapple Bizza no man don’t say that. It’s funny but thinking about him kicking the bucket makes me feel horrible for him.

@sydneyhendrickson9174 4 года назад

Erengrad 45 honestly, it was probably peaceful for him to be able to let go and relieve himself from all the suffering he had to endure. I imagine he is happy where he is now and that’s what matters the most to me at least

@mustachiomustache5591 3 года назад

lol

@xrtic9135 3 года назад

ME and him r both boys ily 4erver

@TiaBivens Год назад

“Any severe friction, such as constant wanking” 😂😂😂 I love his sense of humor, even in the worst of times he stays positive and just wants to make people smile. This is my second time now watching this documentary and I’m sure I’ll be back in the future for those laughs. RIP ❤️

@isabellejubinville641 2 года назад

What got me at the end... his mother, sitting there in clear grief, yet still mouthing the words to her sons favourite song. Such a heartfelt moment of love.

@brotherpigeons8395 7 лет назад

He's savage as hell. Looked death in the face and spat in its eye.

@frankgarofalo7722 7 лет назад

Chicken Tenders aye I believe he would.

@batheandrelaxinmyshit6344 6 лет назад

Gavin Macpherson-Smith please explain what you mean by beej. Is beej another word for beetroot?

@MsAdams1053 6 лет назад

If he said wanking alone was painful, what makes you think a BJ wouldn't be?

@manza19cm 6 лет назад

Sanjyukyu Hime skin would come off in her mouth. Your welcome for the visual.

@AstroMartine 5 лет назад

he never went through puberty though, which I guess means no physical desires?

@marypeters4576 4 года назад

Here it is 2020 and I'm just hearing about this and watching it for the first time. What an amazing man Jonny was. R.I.P. JONNY.. who else is just watching this for the first time in 2020?

@raemeewentzel9356 4 года назад

I am,im 30 minutes in,and im crying my ars off.what an awesome amazing person he was,right?

@kx80moto 4 года назад

Me too ouff so toutching

@amoywilliams1828 4 года назад

It give me tears RIP Jonny

@kujju18 4 года назад

Mary Peters yup just started watching.

@robynbyrne6970 4 года назад

Im actually just sitting here watching it now. March 13, 2020. What an amazing man Johnny was, I absolutely love his personality. R.I.P Johnny Fly with the angels now

@moodykimwele2564 2 года назад

The part where his bandages were being changed, just killed me. I just realized I don't have problems. RIP Johnny

@MelonieG85 2 года назад

I know 😭😭💔

@alisaishere 2 года назад

I sit here with a list of chronic illnesses and genetic illnesses, and I have to admit that even at my worst, I still couldn't compare to the agony of that bandage change.

@bastian6173 2 года назад

We all have our problems! His should minimize yours! "Others have it worse" is useful at times but don't forget that we all sit in the same boat, we're all humans and we all share the same fate of aging, sickness and death. But yeah, Jonny is a hero!

@dorcusnisa Год назад

it made me reflect on my life ,and i realized how stupid and ungrateful horrible person i have been..damn me, i wont take life and family for granted anymore

@meganmcclory1137 Год назад

Same

@jntwst 7 месяцев назад

I first saw this documentary a few years ago and watch it now and then for gratitude and perspective. I have a blistering skin condition called Porphyria Cutania Tarda that I acquired after receiving massive doses of antibiotics to fight MRSA. The antibiotics damaged my liver to the point that my sun-exposed skin is very fragile and often becomes a sore or lesion if I’ve banged it or somehow injured myself. It's ugly and embarrassing, and especially painful when people stare. When I get to the point of feeling sorry for myself I have to remember that there are people who have more suffering and hardship. Jonny Kennedy has shown me through his courage and humor that I can pick myself up and move forward. God bless Jonny and his family for participating in this document to bring about EB awareness and help all of us who are going through something that there is so much to be grateful for even in the darkest situations. Rest in Peace, Jonny 🩵🕊️✝️

@kookootrix1978 Месяц назад

Wishing you the best! 💙

@debrah4241 5 лет назад

His mother deserves "the best nurse" award. He survived so long without dying from a wound infection. RIP Johnny.

@crazyasian68 5 лет назад

@Severin Dahl ooo edgy

@deby7821 5 лет назад

@Severin Dahl Hate women much ???

@JackiHamm 5 лет назад

Severin Dahl Be a better person.

@Shamariah2011 4 года назад

Worse, she had to man up so to speak. Because not only was he in pain buthe washerson! Imagine how it felt for him thatjust to cry hurt too much.

@moniquenovak-nichelson9769 4 года назад

Right 36 years!!!

@ericbrady5529 3 года назад

Dude made me laugh and cry 18 years in the future, he lives forever now

@figgynewton939 2 года назад

Ikr, he made me laugh with the constant wanking comment, then talking about seeing down that chicks shirt🤣🤣🤣... The world lost a wonderful funny soul the day he passed away, SOOOOOO sad😓... Rip❤️❤️❤️❤️🌹🌹🌹🌹

@shannonbriggs100 2 года назад

I love him, absolutely hilarious. Not sitting about sulking and moaning about the cards he’s been dealt, instead he’s cracking jokes and making the most out of his life. God bless him and I hope in heaven he’s having a blast.

@robert351 4 месяца назад

There is no heaven do you have avedence there is?

@DanielThomas808 4 года назад

I could never in a million years have the strength that he had.

@darwinwilliams485 4 года назад

Same here 😥, and I complaint about my life.

@werearethedreamteam3724 4 года назад

I don't think no one would want to live like a f that's a freackin nightmare man

@bricktea3645 4 года назад

U would if u lived through the pain that he had

@rbivgq1734 4 года назад

really humbles you huh, does to me, all the things we take for granted like our health, i like to think im strong but i dont think i am.

@oussematoussli8085 4 года назад

such a great comment " Daniel Thomas " thanks so much that's the greatest phrase in all man kind through all the history except when Logan paul filmed a body or when Ricegum promoted a false money baiting game thanks for existing i really started believing that the reason god created us just so you can create this comment ! now after you wrote this comment. We can peacefully die and god can finally kill us all

@dnsoulx 4 года назад

this dude put the heinz bean logo in his coffin, what mad man i love him

@marjunordman2797 4 года назад

Absolute madlad

@cthulhuhoops 4 года назад

@@marjunordman2797 the maddest of lads, we respect

@amandaroman3471 4 года назад

Definatly a legend! I’ve seen many videos about his life and it never stopped amazing me how he can have such an amazing outlook on life and be so funny like that with what he had to go thru. Ugh. I hear “eb” and immediently cringe. It has to be the worse condition I’ve ever seen... just so heartbreaking and imagining how much pain he must have been in all of his life ... just don’t know how he did it and I’ll always admire that about him and look up to him for sure!! ANYWAYS I’m rambling sorry lol I was gnna say I thought the coffin idea was genious and want to do a similar idea on my casket too lol :)

@enolgrenior159 3 года назад

@@marjunordman2797 jjjjjjjjjjjjjjjjjjjjjjjjjjjjjhjjjhjjjjhjhhhhjj

@user-ob5bj3xi8u 3 года назад

@ak on your comment was not needed 🤪

@ScotlandsYard 3 года назад

I'm glad they changed it to, "The MAN whose skin fell off", rather than "The BOY whose skin fell off". Rest In Peace and fly in the sky Jonny!

@GhostsOfJenova 3 года назад

His mother deserves to be sainted because the fact that Johnny lived as long as he did is a goddamn miracle.

@TheBrokenLock 2 года назад

especially with the type he has- it seems he has RDEB which is the most severe form of EB you can have, and the life expectancy is just 30 years

@AlessioGiandomenicoMameli 2 года назад

In my opinion, it would have been very better making an abortion, in order to avoid this painful life to her son. Don't you agree?

@lucykerslake5423 2 года назад

@@AlessioGiandomenicoMameli They mentioned that the interuterine test wasn't available at the time she was pregnant, so she didn't know. She says during the video that she would have aborted if she had known.

@tempestzz5682 2 года назад

@@AlessioGiandomenicoMameli chiaramente non hai visto o capito quello che è stato detto nel video,la madre dice chiaramente che l'avrebbe fatto se ci fosse stato il test per saperlo in anticipo...

@24bidy 2 года назад

@@AlessioGiandomenicoMameli Yes I would never want my child to suffer so much It would kill me

@yaboi7179 5 лет назад

The fact he joked and humored with his situation, but then cried to his mother about it. It broke me man. I can relate to that and I know how it feels. Smiling through the pain and laughing at fear. He deserved better, he was so strong and I'm glad he was able to live life to his fullest.

@findyourpixiedusteveryday6344 4 года назад

just a big virtual hug for you! feeling the same here... and at the same time, watching this, makes me count all my blessings another time and feel really really grateful for all my flaws, mistakes and shortcomings ...

@constanzerodriguezalvarez9477 4 года назад

I'm agree. What a lovely soul and man. R. I. P. Jonny 🌠

@jamsulit2111 4 года назад

"Smiling through the pain and laughing at fear"... Man, I cannot express how much I was touched by these words of yours.

@robynbyrne6970 4 года назад

Me too, he had just an amazing personality! R.I.P Johnny

@Airmen1939 4 года назад

Man was a true soilder

@maura3927 4 года назад

He's got that old Hollywood star type personality- one line zingers and sarcasm.

@hopefuldavid3320 3 года назад

Where?

@tj-8422 3 года назад

True wit.

@Venus_Phoenix 3 года назад

Almost like that short guy with the glasses that came in the Jumanji movie I think his name is Danny Devito

@sparkplugpeggy4910 3 года назад

MAURA YOU NAILED IT!

@2-d_in_a_bag 2 года назад

accurate!

@leahmarshall1593 3 года назад

Watching him get his bandages changed was excruciating. I just burst into tears. I have so much love for him and yet don't know him personally. He has the most amazing personality, and I believe we all could learn something from him. Thankfully he is no longer inside the body that caused him so much pain. May you fly high Johnny Rest Peacefully

@mom4u412012 2 года назад

Extremely painful. I hated being in same room when my nephew had to go through it

@leahmarshall1593 2 года назад

@@mom4u412012 I am so sorry. It is so unfair for anyone to have to go through that. whether seeing it or experiencing it.

@mom4u412012 2 года назад

@@leahmarshall1593 thanks. I miss mike everyday. But glad his pain is gone

@iminyourhead9936 2 года назад

That's a really nice comment Leah. I know you're a nice person. I found it very sad too and it really those put things in perspective about problems we have in our own life's. I'm not making light of anyone's personal problems but very few people have had to deal with conditions like poor Jonny. Have a nice day.

@leahmarshall1593 2 года назад

@@iminyourhead9936 Thank you. Yes you are so right, it definitely makes certain issues in our day to day lives seem silly in the grand scheme of things. I hope your experiencing happiness and success

@ItsToioko 2 года назад

It is January 2022. I have watched this so many times dealing with my own illness. Crying myself to sleep and realizing after watching this and wiping my tears away and knowing it could always be worse and to be thankful to still be alive after 27 years on this earth. The joy he has brought me and the perspective he has given me has always made me feel better. Thank you Johnny.

@Coyoteari 4 года назад

“I want people sitting at my funeral nudging each other going ‘what’s with the Heinz beans logo’” I would’ve loved to be friends with this guy he’s basically bilbo baggins

@ninastankewich9576 3 года назад

А что за заболевание у чела

@colt5189 3 года назад

Though he ended up getting cremated with ashes thrown.

@Johnnyrocks34 3 года назад

He had funny wit. God bless him!

@jackiejamieson7884 4 года назад

I have cancer and was given a year 3 months ago but I'm fighting with chemotherapy and radiation so far.

@EK-dt4cp 4 года назад

jackie Jamieson sending you lots of love ❤️

@mercyr6105 4 года назад

❤

@Gleyi07 4 года назад

My dad was diagnosed with cancer at age 22 and was given 6 months left to live. He just turned 62 🙏🏻 Thank God❤️ My father says he healed him self by staying positive and believing he would get better. Attitude is everything. Sending you lots of love❤️🙏🏻

@jackiejamieson7884 4 года назад

@@Gleyi07 thanks so much I've been trying to stay positive I also believe our mental state plays a very large roll in our ability to heal. I'm glad to hear about your dad I lost my father to cancer when I was 18 and he was my best friend. I appreciate you taking the time to comment that every single positive message or reply I get actually means so much to me so ty again!!❤

@robertbunton6394 4 года назад

How are you doing now sweetie

@Incompetences 2 года назад

I spent the whole documentary bawling my eyes out. I wish he could have gotten the love he so desperately deserved and ached for, but I'm glad he got it from his family. It's obvious that he was greatly loved and is obviously sorely missed. His mother was an absolute angel. You left a mark on the world, Jonny, even all these years later. You made a difference.

@philpeate6938 10 месяцев назад

20 years later and I still return once in a while to watch Johnny again!

@Lucy-fn9rj 3 года назад

despite being 36, jonny acted exactly like a 90-year-old who acts young

@tylork8025 3 года назад

I had a 90 year old friend when I was 12. He told me "I might be older, but my mind is still as ridiculous as it was when I was your age, maybe just a little more zany from being in this world."

@sox5474 3 года назад

he’s an old soul 😌

@evalevy2909 3 года назад

He's been through alot.

@codyrichey810 2 года назад

He was still a virgin

@Ethan2Tone 2 года назад

@@codyrichey810 no different from yourself.

@whoangelnever 4 года назад

19:44 “I never knew the words... I was always a crap singerrrr...” We didn’t deserve Johnny.

@marypeters4576 4 года назад

I started laughing out loud so hard at that part. He was very funny.

@yochaz2u 4 года назад

I just caught this. Man he was a great guy.

@keepcrying4110 4 года назад

You bad asf 😂🤤 but rip

@werearethedreamteam3724 4 года назад

Yeah I thought he was pretty funny.

@TTeeee 3 года назад

I didn't catch that. I was just like, it doesn't sound like he's singing the same words as everyone else. Lol

@andriebester 3 года назад

I salute Jonny's mother for her unfailing dedication. What strength of character!

@flutterbree 2 года назад

19:24 Hearing him sing the "lyrics" in church made me LOSE it. This guy had some funnies. I know his humor was to help him cope with his stuff and make it easier for people to talk to him, but hot damn did he do it well.

@RandomCorvid 3 года назад

When a man no longer fears his death, he lives his life to the fullest.

@gw7208 4 года назад

The body is just a vessel, the heart just a pump, this mans spirit is as bright as any beacon I've ever laid eye's upon.

@cassandrakite4957 4 года назад

Well said👏

@humboldtharry4248 4 года назад

G W. I sometimes get the feeling that people like Johnny are being prepared for a higher spiritual purpose. Not to sound cliche but he must be an angel in training to weather this torment with such a powerful attitude.

@daveurbex 3 года назад

You meet him in a parallel reality - any quantum state is possible.

@tabby73 3 года назад

@@humboldtharry4248 You could very well be right! Very bright he was - and is!

@maxmorgan2297 3 года назад

beautiful words:)

@jf31 3 года назад

looking at the comments , its amazing how many have seen this and return to see it again. Johnny is reminding us to never forget him.

@RavenPartida209 2 года назад

Can't believe its going to be 18 yrs since he has passed. Was good to see this again. 💐💐🕯️💐💐

@AngelDust666 4 года назад

This man looked death in the eye, and gave it the middle finger!

@patelpelat4658 4 года назад

Two fingers, we are in England !

@TheKarahan2011 4 года назад

Even grim reaper must've smiled to johnny and welcomed him.

@dyztroyax4628 4 года назад

Thats the opposite of the truth.

@deidragovan9552 3 года назад

Pretty much

@natelovestotank2363 3 года назад

Because he knew he wasn’t going to have it much longer

@mackenziec2516 5 лет назад

TO laugh and joke while you’re getting your own coffin made takes an incredible type of person

@leeenoch8847 4 года назад

Death is another part of life

@greenearthblueskies8556 4 года назад

Jimmy B.S. Roastbeef as WE know it

@joshuatasker5275 4 года назад

It's not even a happy thing weirdos its whether you know jesus or not.

@EllawoodBlues 4 года назад

Right!? What a pure beautiful soul

@sandramunch179 4 года назад

I think if u dont joke about it, it Will Be 2 hard.

@LTF1138 2 года назад

I saw this on tv when I was 14 or 15 years old, I’m 32 now and watch it every other year or so. Such an amazing person.

@jeniferburton5235 11 месяцев назад

I wish I would have known Jonny personally (along with everyone else), but he was half a world away and I was only 21 years old.

@GSF179 2 года назад

This documentary broke my heart. Makes me ashamed for ever complaining how difficult life is. That guy is a trooper and a real man.

@lisaburks2 4 года назад

I just watched Johnny's video. He passed in 2003 and even tho it's been 17 years since his death, he is still an inspiration. God bless Johnny and his family

@birdv.378 3 года назад

When I first saw this I just had my daughter and when he passed my daughter turned 1. I'll never forget you Jonny Kennedy 😇❤

@Sheltieshangrila 5 лет назад

"Such as constant wanking." LOL. God bless him. He was such a character. I hope he is happy and pain free now. RIP Jonny.

@Sheltieshangrila 5 лет назад

@Bartek270 Because he made a joke that was funny. What is wrong with you?!? 193 other people got it. Apparently you did not.

@micusferreiro3789 4 года назад

He can't be happy or pain free, he died

@somethingaboutbeauty8245 4 года назад

@@Sheltieshangrila don't even give trolls the time of day. I know what ya mean. 💖

@melswanson502 4 года назад

Anyone who doesn't realize he's now pain free and happy, has never been in pain.

@chanda6973 4 года назад

@@micusferreiro3789 your disgusting. he was living with a condition that made him have to have his skin torn off everyday and now he doesnt have to suffer. ofc hes happy and pain free now. death was what made him happy. rip jonny

@popslibra6885 3 года назад

I have found myself watching such stories randomly whilst I was dipping into depression and it is amazing how the courage and drive people such as Johnny have made a difference of telling myself try each day pick yourself up it's going to be ok. He's such a remarkable person...

@TheGong00zler 2 года назад

Same

@MaddiesMamaRN 2 года назад

I do the same, except for me, I watch to remind myself that there's always someone else in more pain than myself. I have a condition in my brain that is proving to be inoperable, after 3 brain surgeries attempting to treat this condition. I was told it was potentially inoperable, but I chose to attempt the surgeries anyways, and they all failed. So I'm in a lot of pain every day. I get depressed as well, and I watch these documentaries to remind myself that even though I'm suffering, there are so many others that are facing death, and they do so bravely. So I put my faith, and my life, in God's hands, and I get through the days the best way I know how. Some days it's one hour at a time, some days it's one second at a time. I hope you're doing well today! 💙 Megan in North Carolina 💙

@kathy411 Год назад

Sometimes random things are just what we need to help us through another day. Pops libra I hope you’re doing well

@mercedesprecht-matuschek6026 Год назад

@@MaddiesMamaRN My thoughts and prayers are with you. My fears feels for you. I have several autoimmune conditions which destroy my organs and severe spine issues. The pain is constant and excruciating, the depression deep. Have been like this for over 6 years. I am alone. Came across Johnny's story today and it taught me a lot about humility, endurance, courage. I have always been strong but must admit that lately the pain and what it has done to my life has taken its toll! Johnny's story has given me a new ray of light out of this darkness. I pray for comfort and peace for you. God is with you. A very gentle hug. Mercedes in Virginia

@MaddiesMamaRN Год назад

@@mercedesprecht-matuschek6026 I'm hugging you right back! 💙

@andrewwright7567 2 года назад

I have never heard a human be so humble and at peace with his journey,,,,fly high Jonny i know your everywhere

@paddicakes963 5 лет назад

He lived 36yrs in a pain wretched body and still accomplished so much. Sixteen years later and his memory lives on as strong as he did. A story like Johnny's will humble you & remind you that when you think you've got it bad you need to think again.

@BootsORiley 5 лет назад

your last sentence - yes precisely! my wife asked me why i'm watching such a sad, drab documentary. i told her straight away that it's making me appreciate what i have.

@BootsORiley 5 лет назад

M H what would be the proper way to feel while watching this then

@BootsORiley 5 лет назад

M H I hear ya, M. Thanks for taking the time out of your day to share this viewpoint. I really hope you’re doing well

@paddicakes963 5 лет назад

@M H Not one person said anything the way you made it sound. I'm sorry that you have to deal with what you have going on. That's called compassion, not oh woe is you, I pity you kind of thing. I too deal with severe health issues so when I see someone that has or had something worse than myself it's a reminder that I don't have it as bad as I think I do. You really shouldn't take what ppl say out of context!!!

@Secret-Serenity 5 лет назад

@M H I don't think she was implying it's good for "normal" folks to say thank God I don't have that mess and then go about their day. I think it was more directed at people who are depressed or feeling sorry for themselves or just being negative and telling them to try and snap out of it and realize how good they actually have it, many people have it so much worse and they need to appreciate what they do have. You could use anyone's life experience who has struggled, not just the disabled, as an inspirational story to motivate people to see the positives in their lives and that is what she meant, not what you're saying. Even though I suffer now in life, his story reminds me that I need to be brave and keep pushing forward because he had it so much worse than I do and he was brave. I wish I had gotten to meet him, what a wonderful inspirational man! And he was pretty funny too!

@David-mv3zl 5 лет назад

"It doesn't mean anything, but it'll get them talking."

@theproudpinoy1015 4 года назад

Racist!!!

@ianmills6260 4 года назад

@@theproudpinoy1015 what

@philippschmitz1787 4 года назад

@@ianmills6260 Didn't get that either... Proparbly a Boris Johnson fan, climate change denier, potential Trump supporter, flat earther and overall troll. In Germany we have those, too. Dunning-Krugers from mount stupid.

@shelbygarcia2038 3 года назад

@@philippschmitz1787 Jonny literally said this while they were talking about the Heinz label on the casket.

@jonathans.972 3 года назад

define Jonny Kennedy Jonny Kennedy (noun) A person of high esteem who inspires and teaches long after their time. A legend or hero known for greatly affecting the lives of people in a positive way.

@Memphis_ritz 3 года назад

I’ve spent a lot of time on the internet from being unemployed and mentally unwell. Far too much more time than i care to admit. I’ve watched every documentary from A to Z but i have to say this is one of the most emotionally profound ones I’ve ever seen. His attitude and outlook are incredible and i envy his acceptance of death

@willgetbettereventually124 2 года назад

I've had trouble the past couple years with depression. I started therapy about a week ago. If it's something you can afford to do it makes things so much better.

@Memphis_ritz 2 года назад

@@willgetbettereventually124 i had therapy for a decade growing up. It doesn’t do anything for me other than provide a person to vent too. I’m finally trying out medications. (SSRI’s) now. Hopefully that works. First one i tried didn’t do anything. Just started a new one last week. Fingers crossed

@willgetbettereventually124 2 года назад

@@Memphis_ritz 🤞🏾

@Memphis_ritz 2 года назад

@@willgetbettereventually124 indeed. Thankfully my wife is a surgeon. So I’m in good hands and she’s helping me figure out what meds to try. It should be 6-8 weeks (again) before i know if it works. They warm you up to them slowly to make sure there are no major side effects so it’ll be a couple months of trying it and adjusting dosages before i know if it works.

@2-d_in_a_bag 2 года назад

me too, matt. been through a lot, mentally unwell and scarred, on meds. but that documentary was one of the best ones i ever watched. i'm trying to adopt this mantra: death is not the opposite of life, it is the opposite of birth. life is eternal.

@tzzz7 4 года назад

I hope I get to know this dude in another life

@TheMouseAvenger 4 года назад

I'm sure you will. ^_^

@patriciarowe3431 3 года назад

T s,,, you will sweetie!!!!!! All of GODS PROMISES ARE SET IN STONE AS IT IS WRITTEN. I HOPE TO SEE ALL THERE. GOD BLESS

@rachel9946 3 года назад

I think we all do. Truly remarkable man.

@gr8macaw1 3 года назад

yes me too. Such a nice guy wish I had known him

@TELEVISIBLE 3 года назад

I don't believe in it but I wish him in a better place , a better life

@19zuzi82 4 года назад

His spirit was a hundred times stronger than his skin failed to be. Go, Tiger, defying the laws of gravity.

@cyberspelunker1980 2 года назад

What a brave and awesome dude with such a good personality. His mother’s face, the terrible grief, and also the relief that she did as much as she could and loved him as much as she could, and that he is no longer in pain. 😔 “I’ve got a dodgy shell” he says. Sense of humor through so much. What an amazing person.

@dutchweller 2 года назад

I just cried watching the bandages being changed. This guy is more of a MAN than many who claim to be such. What a a wonderful Man.

@onemuckypup9823 2 года назад

I hate to admit that I was a coward watching this poor soul having his bandages changed - I couldn't watch it all. I bawled my eyes out for him. My god what this guy had to endure was so cruel, but I'm glad that he had such an amazing family behind him.

@kellyhowful 3 года назад

It just just really made me cry seeing him cry out in pain when his mother was removing his bandages and in the next second apologizing for what he said. He was such a humble and brave man. I'm glad he is no longer in pain.

@ccorleans3063 2 года назад

Same here 🙋🏻‍♀️💔🥺😢♥️

@missvaleria1722 2 года назад

I know that was the hardest part to watch! My heart broke!

@kvizz9067 2 года назад

I agree. The most gut wrenching part of this was hearing that interaction between him & his mama💔😭. What a sweet gentle soul he was💞

@disclose_beauty 2 года назад

I feel like this documentary should have done better . More insight on the illness and more explanation on how he died and why he was so sick on the last days (Maybe I'm dumb and they said it and I didnt got it I'm not from native english speakers countries) Anyways he's a great person with a lot a courage , seems that nobody thinks at that but you need a lot of courage to decide to die. Death is frightening , the uncertainty of what it will be its scaring af, the jump to the obscurity , the fear of the unknown. I'm not good in english but it needs a pair and he has , not only just to live a life of physical excruciating pain , limitations , frustrations etc but to jump into the unkown, decide to die. He also from this vid seems he affronted life with sarcasm and a witty personality, without whining like many 1first world people I see do on the internet for stupid things . He had an intelligent view of life Bless his soul

@Der_Kleine_Mann 2 года назад

@@disclose_beauty He got cancer.

@happydays1336 3 года назад

Before my father died, he said with a twinkle in his eye, "When people come to the funeral home to pay their respects I'd like a recording of me saying "'Thanks for coming to my funeral. I hope you enjoy your time.'" (Or something to that effect.)

@rachelgonzalez8051 3 года назад

Were you able to play a recording at his funeral?

@happydays1336 3 года назад

@@rachelgonzalez8051 No, he never recorded one. I'm sure he was just joking but it would have been kind of neat if he had!

@NewGothOnTheBlock 3 года назад

It reminds me of a video I saw a while ago. I believe it was from Ireland. A guy made a recording before he died saying “Hello? HELLO?! Get me out of here!!” Which played the moment his coffin went into the ground (as far as I know his family was aware he wanted to do that). I’m sorry for your loss! But it is a great way of knowing that someone has accepted death instead of fearing it 🖤

@ShawnaCosmica 3 года назад

@@NewGothOnTheBlock I saw the same video of the Irish guy and his recording. I was going to say something about it too and that I think its an awesome idea!

@shazza4 3 года назад

What a character 🥰 the world has lost an amazing beautiful intelligent man 👌❤️ Life can be so unfair

@deltorolive8926 Год назад

Jonny is such an inspiration for someone to have been dealt with such a bad hand in life so to speak yet he has such a bright, beautiful and pure soul. In that way he was truly blessed and like he said his suffering cannot just be for nothing as there is a reason for everything in life. RIP Jonny and hopefully we see you again in another life.

@OddPoodle 3 года назад

As someone with chronic pain, I often wonder how I could cope with living every day of my life in pain for the rest of my days (I'm only 25)...and this puts perspective on it.

@birdv.378 3 года назад

Very true I also suffer from chronic pain and severe PTSD. I tell myself if Jonny can do it so can I

@dangodaydreams7872 6 лет назад

Honestly, I don't have any chronic illnesses. My depression has been getting very bad as of late and my suicidal thoughts have been getting even worse. But...seeing this documentary really made me think. It makes me realize that so many people are suffering. So many people need help. I want to do something more in this life than what I'm doing now. Johnny made me realize that. He made me realize that even if I have something horrible in my life that I can STILL keep going and keep my head up just like him. He's such an inspiration and I'm so sad to have seen such a beautiful life been cut far too short. I wish I could thank him personally for all that he's taught me, but that isn't a reality. The only thing I can do is live my life and keep him in mind. I'm so glad I stumbled upon this extremely humbling documentary. This was genuinely a lifesaver for me. I'll try and do the best I can in my life for Johnny and myself.

@dangodaydreams7872 6 лет назад

Linda Holt You’re such a dear. Thank you very much. I appreciate your kind words.

@sweettea5395 6 лет назад

Unfortunately, depression is a chronic illness for a lot of people. :(

@ChristieTwistie73 6 лет назад

Dango Daydreams If you ever feel down, reach out to someone, including me. I'm glad that this documentary helped you see that even though life really sux sometimes, it could be soooooo much worse. We are here but for a very short time. Much HUGS to you!!! Remember, you are LOVED!!!

@Jacoe413 6 лет назад

I really hope your SI thoughts are getting better... that's such a scary thing to deal with.

@MotherofDragons937 5 лет назад

I have chronic depression, ocd & panic disorder. I completely know how you feel. Just manage one day at a time and remember that so many things can change in life.

@briel7904 4 года назад

"I could see right down that t-shirt when she bent over." This dude was hilarious!

@amd-bu2mf 4 года назад

Lol this dude is a pimp

@dyztroyax4628 4 года назад

@@amd-bu2mf Was, you mean.

@izzykello8326 3 года назад

@@dyztroyax4628 his spirit will last for eternity

@nunyabiz6532 3 года назад

creep

@briel7904 3 года назад

@@nunyabiz6532 troll

@maplecosy9429 3 года назад

This Mom is phenomenal. That's why Jonny is strong.

@popslibra6885 3 года назад

The changing of his bandaging... oh my God I'm in tears

@GhiaDon7 5 лет назад

Dude was a wordsmith. When butterfly-woman was breaking down, "this will be history" "you're a part of history". Just damn... making HER feel better

@braveheartedme7855 4 года назад

GhiaDon7 what’s a wordsmith

@greenearthblueskies8556 4 года назад

He spoke truth

@monicathomas3386 2 года назад

@@braveheartedme7855 means he has a way with words. He is good using certain words and putting together something with humor or something to make others feel better.

@fluggert5261 7 лет назад

Just from this Documentary he seemed like a funny guy when he was here. his jokes are hilarious. when he's talkin about his disease he says "any friction, so like wankin too much" such a funny man. hope he's doin alright up there.

@wrenpeach6707 7 лет назад

Lance Smith, If heaven is full of idiots like you I'd rather go to "help" anyway.

@kbmls3 7 лет назад

Lance Smith Piss off

@fluggert5261 7 лет назад

Lance Smith God has abandoned us

@fluggert5261 7 лет назад

Lance Smith I said US. We are killing our planet, our selves all in the name of God. He has abandoned us

@fluggert5261 7 лет назад

Lance Smith I will not read a book that has been used to kill. To kill other religions, people who love a diffrent gender.

@nosadsongs 2 года назад

You never know what other people are dealing with. This was hard to watch. Imagine having to live it for 36 yrs. Tears at the end when his Queen song came on.

@StarlaBizarre 3 года назад

I remember watching this on cable as a young child and it actually scared me so much and now I'm watching it again so many years later and it's just so bittersweet

@vcassol6989 5 лет назад

46:55 that breath his mother takes seems to be a mix of pain, relief and peace... what a brave lady...she finally rest from seeing his boy suffer for 36 years...

@childofthemighty1341 4 года назад

True

@polaroidsofpolarbears365 4 года назад

I've been through it. when you're surrounding a loved one waiting for them to pass and they finally do, it's bittersweet. You're happy they're not suffering anymore, but they've left this earth and you'll never see them again.

@chelseajennings5969 7 лет назад

Imagine how his mother having to change those bandages! Putting your child through pain he has to go through to continue to live! So sad!

@gardensofthegods 5 лет назад

Chelsea Jennings Yes... horrible just like burn victims in the hospital... I knew somebody who used to change bandages decades ago in the hospital and he said the burn victims would start screaming when they saw you coming... how sad how really tragic

@kaimalikb 5 лет назад

gardensofthegods how sad,how so so sad. I wouldn’t have been able to do it

@n.n5641 5 лет назад

Once a week for 36 years.. That women was extraordinary.

@peadarkelly9750 2 года назад

What an incredible story about Johnny who celebrated his life to the full and even planned his own funeral what an amazing man

@nanarose3496 2 года назад

Words cannot express my admiration. What an example for us all…we’ve never a right to complain when you see his strength. Fly high sweet Angel 👼

@nyendochamwela3031 4 года назад

Forgive me my Lord when I complain about situation.

@tesedikova 3 года назад

The mother is queen how she takes care abou her son and this brave boy, no coment....Johni we have to learn from you....💗

@FG-pn2mb 3 года назад

Amen forgive us I hope you doing good May the Creator gave us strength and courage to face it for any situations we face will be wait for us support and unconditional love.

@smittysmeee 3 года назад

He does 🤗

@patriciaroberts8694 3 года назад

Yes...

@GinoNL 3 года назад

😂😂

@nazaregeorge9022 7 лет назад

"I was always a crap singer."😂I love how he still had humor and he didn't think of death as a bad thing. He accepted it.

@brittaniosullivan7745 6 лет назад

I agree

@sassyfrassezme 6 лет назад

I had to listen to that twice to see if he really sang what I thought he did. Very keen sense of humor!

@connorade6969 6 лет назад

Accepting something like death or the death of the loved one is the only way to living the rest of our lives without fear or guilt or sorrow.

@timothyclift5945 5 лет назад

Connorade death isn’t much I died three times and honestly I never had felt so rested when i came back was in a coma and was no sense of time but was very refreshing when I woke up I understand where he’s coming from about death, it’s the family that suffers. What a awesome bloke he was

@paulinabauer 2 года назад

I remember watching this as a kid. Over the years I've tried to find this documentary but couldn't remember exact details. So glad I found this.... what a beautiful soul.

@kerrilhernandez Год назад

All I remembered was inside out skin (I thought) and baked beans on the side of the coffin😂 sounds like the baked beans did their job!

@lindacassell5915 3 года назад

This poor guy, I have been feeling sorry myself the past few months with my delimma.. he really lived his life. Maybe I came across this video for a reason. Johnny you were amazing!

@nandistaton2503 4 года назад

I love the way he explained life. "...Earth is just a classroom..." That just resonates with me so much.

@dyztroyax4628 4 года назад

As little sense as it makes I can see how.

@kither04 7 лет назад

What a sense humor though! He said like constant wanking...skin falls off. I lost it. I wish i knew him we would get on great. I have a disability and i am the same way. If you cant laugh at your disease who can?

@1jazzyphae 7 лет назад

kither04 I just read that as he said it loll

@leanaandchloe5624 7 лет назад

kither04 Just asking whats your disability

@lilybrailsford4318 7 лет назад

me too ahah

@ineffablemars 7 лет назад

i honestly had to stop the vid because i was laughing so hard

@Lonniebelle1979 7 лет назад

kither04 me too, constant wanking has been a problem for alot of us but none have spoken so eloquently of it as him

@IamKrissyKO 2 года назад

I remember watching this in high school when it first aired. I believe this was like 2004 or 2005? I remember his sense of humor being unforgettable!

@SanDmaNTheFreakTrucker 2 года назад

“I look a little different than the norm, I don’t know who Norm is but I look a little different than ‘em” - reminds me of some throwback Dangerfield. Great one liners all around.

@oceanawadhams7128 3 года назад

his frustration after dropping his hat completely broke my heart. i can’t imagine all he’s been pushed through, he’s so incredibly strong

@rachaelkeach24 2 года назад

Yup that got me right in the feels

@ccorleans3063 2 года назад

Same here 🙋🏻‍♀️💔💔💔💔🥺😢 I’ve cried laughed and then cried some more watching this he was amazing!

@ccorleans3063 2 года назад

@@rachaelkeach24 me too 💔🥺

@axlyoung1218 6 лет назад

I believe death was okay with him. Because in this life he felt so much pain. And he's probably been ready for long time.

@whotelakecity2001 5 лет назад

I agree.

@shannamoxley1040 5 лет назад

Agree

@kylasam8530 5 лет назад

His real life just started!

@radimmynar5607 5 лет назад

but beautiful how he looking forward to every minutes in his life

@mohsenslim4395 2 года назад

I think that god has plans for him for the after life what a person so humble so strong RIP Johnny

@shanshanhiggins7314 2 года назад

It's now August 15, 2021 and I just stumble upon this Johny was such an amazing and special person RIP thanks for sharing apart of your life journey I couldn't hold back the tears watching him getting his bondages changed he cried in pain and then apologising for what he said he was such strong person

@Kimmymora95 2 года назад

I never cry at funerals. But for some reason, this one hit home and I never even knew Jonny. He had such a beautiful spirit. RIP.

@Aster_Risk 4 года назад

One of the parts that stuck with me is when Johnny mentions abortion. I'm so glad he said that he believes you should terminate a pregnancy if the child has that diagnosis. People need to listen to that part, because he had to live this life. It's cruel to knowingly have a child whose life will be nothing but pain.

@1Life2Little 3 года назад

I didn't read up on that cure/treatment that he spoke about at some point... But if it is good enough to give them a good life now maybe abortion is not the way to do it? at least not now.

@memeju1ce 3 года назад

It sounds so selfish not to, of course it would be hard but I couldn’t imagine bringing a child into the world who is doomed to so much pain. There’s a chance my chronic pain could be passed down, so for me kids seem completely out of the question. I wish completely healthy people all understood this...

@anastasiagonzalez3642 3 года назад

@Not This Guy Again I’m sorry but if several people with life threatening disabilities are saying it’s cruel to bring a child into the world with a disability where their life is basically just constant pain, then that should speak volumes to you.

@biggy1824 3 года назад

Im pretty sure most people terminate a pregnancy just because they dont want a kid based on their circumstances not because of the kid going through pain and suffering

@jacobkain4721 3 года назад

@Not This Guy Again .

@IAmSuzyQ 4 года назад

His singing absolutely cracked me up!😆😆😆 🎶 19:44 "I never knew all the words. I was always a crap singer." 🎶 20:03 "Never enjoyed the Harvest Festival."

@NohealaniMakanani 3 года назад

😂😂😂

@KaylaThePisces 2 года назад

😂

@kennedypruett9584 2 года назад

That random “I can see right down that t shirt when see bent over” at 11:52 floored me, and again at 13:22, he had a better sense of humor than most people. That woman he was talking to was so sweet to him

@jameswilder7649 2 года назад

Seen this documentary more than 10 times now. There's something about Johnny which make me want to watch it over and over again. He's very inspirational, brave, witty and funny. Rest in peace and may God bless your wonderful family, friends and community.

@alanalaurent6349 Год назад

I agree, Johnny was a warrior!

@marmac7467 7 лет назад

Wow, even when he knew he was going to die very soon his spirits were still up. That's incredible. RIP Jonny.

@thecraftycyborg9024 7 лет назад

Mar Mac - as someone with an excruciatingly painful disease, I can understand not being frightened by death. When you're trapped in an inescapable hell in the form of your own body day in and day out, after decades of suffering, death doesn't really sound all that bad. I'm not saying that everyone with severe chronic pain is suicidal, rather that we don't live in fear of a death that will free us from the body we're trapped inside.

@OffTheWagons 6 лет назад

Cassie C Yes, my mom who never even took a painkiller after every of her several back surgeries at the end gave in bc she was in so much pain it didn't even matter that she wasn't going to be able to talk afterwards. I could not only not touch her, but couldn't even get close to her body or she would wince in pain even being knocked out on a lot of painkillers she had absolutely no tolerance for. She hated pills. I know how much pain she was in just deciding to take them at that point. Once you are at the end, once you start taking those meds and you get that IV......you normally will never speak to them again. It's not the same as a coma. I felt her gone before she died.

@aimeek1236 5 лет назад

Yes Cassie C that's exactly how I feel.

@simplydanlrene4276 5 лет назад

Those were days I had Mahatma Kane Jeeves....and my son would stand at the foot of the bed and tell me "hugging thoughts mama"

@joebeefhash5549 5 лет назад

@@thecraftycyborg9024 I hope you feel well today and I am so sorry that you have to live in pain. Your cat looks like a sweetie and you're beautiful

@itsmedavinski8977 3 года назад

I made it through the whole documentary without crying...and then the curtain closes and I lost it. What a way to leave. He was such an incredible human being. And that Queen song...seemed like just the perfect song for him. May he rest in peace.

@Gerrie_de_B. 3 года назад

I cried already in the beginning when he started over that Heinz logo on his coffin :D

@sammiejones1837 2 года назад

I was so interested in his story. Such a brave man to endure his suffering for so long. He gave us all food for thought. We are all here to learn lessons of all kinds before we depart this beautiful world and our spirits lift Heaven ward. I thank him for sharing his story. He was an amazing spokes person and promoter for finding a cure for his illness. One could say he was a hero. God bless his soul. And God bless his Mom and brother and friends.

@gabrielabarrios965 2 года назад

I'm not much of a review writer over YT but this documentary was just magical, he was just such an amazing person I have no words to describe how moving and how touched I was from his story. RIP Johnny you had a very meaningful life, hope god have you in his calming arms!!!

@raypreseau5360 3 года назад

I do not feel pitty for this lad. Only respect.the embodiment of what we in America call a badass. Edit: im watching this again.. its necessary for me, because there is waaay to much, on a few different levels to absorb about this story By christ what that man endured. I personaly dont recall ever seeing or hearing of anyone suffering to this degree.

@deborahlaing5963 3 года назад

I lost my 42 yr old son just 4 months ago. This video has helped me to feel so much better. Thank you Jonny and God bless his Mom and Brother.

@sailormoonXx 3 года назад

My condolences mam , may your son rest in peace .

@sox5474 3 года назад

i’m so sorry for your loss. i hope you find yourself at peace. i know for a fact he is in a better place 💗

@Johnnyrocks34 3 года назад

Omg! Im so sorry! God bless and hang in there!

@kclords1852 3 года назад

I'm so sorry for your loss- When I lost my loved one looking up near death experiences really helped knowing they're in a better place. God bless you💜

@KatKevaKelise 3 года назад

That’s not such a bad age. At least you got 42 years of joy. I’m jealous. Your son is at peace now... I lost my 31 year old husband to suicide on February 28th 2021 - he was only a baby. My future died alongside him when he hung himself.

@jennhutchinson4328 4 года назад

Makes me question my life and what I'm waiting for. Half the time I'm scarred to jump outta my safety bubble and worry about failure, success, health, family, friends, work, school, ect...this makes me realize I'm waisting away my life worrying about nothing that will matter in the end.

@durandyoan2913 4 года назад

I don't care we are all like that don’t worry...

@katherinephillips5640 4 года назад

So true

@LostNdFound434 4 года назад

@@durandyoan2913 but you should worry...you could be so much more

@rbivgq1734 4 года назад

DURAND is right we are all like this but i do worry, i feel like when i watch something like this it helps to ground me and have a different perspective and above all else be more thankful.

@martinmolloy388 4 года назад

Every man dies, not every man really lives!

@barbrovaage7309 9 месяцев назад

What an inspiration he still is 20 years after his death.

@jamesmccormick875 2 года назад

What an incredible human being Johnny was. This is very sad but also inspiring to me. He not only had the will to live every minute he had but was willing to be ok with dying. He did both with dignity and a great sense of humor. You’re home Johnny, God Blessed us through your presences. PS- He’s still making people laugh almost twenty years later. I think he’d love to know that.

@cjsirm7109 4 года назад

I woke up yesterday morning limping, holding back tears because my arthritis is painful. Later, I watched this video. This morning as I limped out of my bedroom I am grateful - my depression lessened for sure. This man and his family are an inspiration and helped me put things in perspective. Thank you for sharing this video.

@jo_verabradleyfan4743 3 года назад

❤

@addicted2cosmetics911 3 года назад

I felt exactly the same, arthritis is horrendous for people that have it and no one can really see what's the matter... but this man's will was on a whole different level.

@vcassol6989 3 года назад

Another RA patient over here! Yes, its terrible ...painful, exhausting, expensive... but if I compare RA with EB arthritis is a dream...

@NewGothOnTheBlock 3 года назад

I can relate to you so much! Have two different types of rheumatism. Tietze syndrome (long story short: Rheumatic ribcage) and Fybromialgia. Also have days when even waking up is painful as all heck.. and the simplest of movements are a struggle. But indeed, looking at stories like the one of this great MadLad (narrating yourself and saying “that’s me in that box” before you die is beyond great”) cheers me up a lot. I don’t know you personally, but if you (or anyone with similar situations) ever want to talk just add me on IG 😊

@alexanderj1024 3 года назад

Look into borax research please. A Australien found out that the lack of bor is connected to arthritis. He sold it to cure it and wanted all people to know. Then he went to big Pharma. They realized they couldn’t make any money anymore and hide the effects now. Look into it

@gemgirl223 3 года назад

"The skin is like velcro, so the hooks are missin'" Uh huh "So any knocks or severe friction-" Uh huh "-such as constant wanking," Uh huh-WHAT. I almost spit up my drink that caught me off guard so much lol

@birdv.378 3 года назад

😂😂 this caught me off guard I was drinking coffee and I spit it out

@bobbylow175 3 года назад

LOL! He would make a GREAT comedian if he were alive.

@joanbowden3448 3 года назад

Yeah, I lmao at that 1 too! Poor guy just couldn't catch a break!

@user-tr2dh4xx6u 3 года назад

would have loved to have a few beers with this guy

@ccorleans3063 2 года назад

🤣🤣Yessss! Lol 😂

@Sarakate601 2 года назад

I’m happy they talked about the abortion aspect of this. Because i know if I were to find out my child was going to be born with this - especially after watching all of the documentaries on it that I have - I would abort as to not have to put another person through the pain of living with it. And MY BELIEFS is that I’d only be taking that physical form away from my child.. and the soul itself would just be put back into another, hopefully MUCH healthier body. It’s just BEYOND selfish IMO to KNOW your child is going to have some, not even just debilitating disease or disorder but an EXTREMELY PAINFUL one as well.. and continue in with the pregnancy all because the parent wants them there. And I get that they now have this “treatment” for it but.. even then the kid is never going to have a 100% normal and comfortable life.

@jackiebourg6869 2 года назад

ABORTION is very painful for the baby. GOD decides when to call a spirit back unto HIM. Who are you to make such decisions.

@sjsksgwkwksksjw3092 2 года назад

I completely understand and agree with you. I am childfree myself and the fear of giving birth to a baby with any terminal illness is one of the big reasons why.

@lifewithlulu4056 2 года назад

I get both sides. My concern would be aborting a child believed to have this, but they don’t really because tests are man made and can fail. People have been told their child will have Down syndrome and then the child is born without it. Imagine if she would’ve aborted Jonny. I wouldn’t be aware of this disease as well as many others. Also think of all of the people he affected for good that wouldn’t have known him. He has touched so many lives. We just never know what a baby is capable in their lifetime when they’re conceived. Not giving them at chance saddens me. Either way it’s a heart wrenching decision.

@kristalynfernandez3350 2 года назад

@@jackiebourg6869 not everyone shares your religious beliefs, or even follows a religion.

@PeteyThePenguin 2 года назад

@@jackiebourg6869 I'd rather have been aborted than to live with a condition like what this poor man endured. Sometimes, in awful situations like this, it's honestly the most humane choice.

@dianakate5808 3 года назад

I took care of a patient with this disease and it's truly horrifying. The skin forms huge blisters and it never ends. What an incredible will and fortitude to live with this disease in such a positive attitude.

@bayleyolomon3369 7 лет назад

That part where she's changing his bandages my heart just broke. Such a beautiful soul having to suffer so greatly. I'm glad he doesn't have to suffer anymore 💜

@DarnellHendeason-dk3uw 5 лет назад

It's very difficult to deal with.

@jennjeffs4893 4 года назад

I think without his wonderful sense of humor he wouldn't have lived as long. What a wonderful man!! I am glad he is free from his defective earthly body and now roaming beyond the veil in peace and comfort.

@venicegee3675 4 года назад

Oh yes i can just see him when i close my eyes❤

@smittysmeee 3 года назад

Coming back to haunt people every now and again, going a little poltergeist for a laugh.

@1211jinx 3 года назад

Megan Smith he could be like Casper 😄 friendly ghost..

@UnderTheMillkyWay 2 года назад

This was one of the strongest men alive. What a lovely outlook even with so much pain. Nobody can understand that amount of pain unless you've lived that life just like others living in their own pain but my goodness this child to man has suffered but even suffering he was easier to deal with than most living their best life. Truly remarkable man. You are a tiger!

@barbiepr1692 2 года назад

Its a pity that there are still people living and don't understand nor comprehend what life is about as Johnny said. Lets live with love and caring for one another forgetting about our shell, our soul is what makes us larger than life. Johnny comprehended and understood it, he was a beautiful soul. RIP Johnny, now you are an angel.

@jduill 5 лет назад

Your life mattered john . You showed millions of people what bravery is. What decency is. How a man should conduct himself. How to keep it together when things are truely awful. What a gift life is. We have never met but im sure we would have been friends. Peace out irish john.