Children's Miracle Network Hospitals' Champion child Emily Strand talks about living with cystic fibrosis. Her doctor, Dr. Accurso, shares his hope-filled outlook on CF research and Emily's champion spirit.
I have 3 sons with CF. My 15 year old had his pancreas removed recently and cells were transplanted to his liver which is making insulin. Over twenty hospitalizations for Pancreatitis took its toll. He is recovering well with a feeding tube for nine hours a day, down from thirteen hours. At six feet eight inches he was down to 135 pounds but is up to 160. Homebound for a year, he looks forward to return to school in the fall. Good luck and prayers Emily.
I was 2lbs 6oz when I was born, 1 of twins in 1981. I had friends with CF at high school. Thanks for the video. Beautiful family. I am from England and my family moved from Sussex to Oxfordshire when I was 5 to get better care for me. I was born 11 weeks premature and have cerebral palsy and hydrocephalus. Bless you and your family. Go Emily¡
my b/f had CF which he died from. we met 4 the 1st time when i was diagnosed with diabetes in a hospital in Ireland.I really liked this guy,i saw him every day & bought a red rose.He was too ill to hold my hand,but he was very thankful. i was not allowed in his room,as it was an isolation room. 1 morning.his room empty and i had asked the nurse what had happened to him & she told me he had been flown urgently to U.K. for a lung and heart transplant.I was devastated,but happy. 1 week l8r he died
@VirtualSuperSoldier Your niece is beautiful and she is a true champion. I imagine watching this is very hard for you as a family member. CF sounds like a terrifying disease (coming from a healthy 17-year-old with no family history of CF), but these kids are amazingly strong.
+Abbie Stambaugh My cousin that has a RU-vid channel has Cystic Fibrosis. She is in the hospital and she has to go all they way to Texas just for a lung transplant and she is only 12
